Dr. Stanislaw R. Burzynski

I have a friend w/ an inoperable brain tumor who has been seeing him...trouble is, insurance won't cover it, and it's VERY expensive.  Then, 60 minutes did a piece on him that exposed him as a quack, but my friend is alive after 4 years..........and she shouldn't' be according to statistics. A brain tumor JUST killed my little brother after a 16 month battle.

She also visited "John of God" in Brazil.

So I'm on the fence about Burzynski.

In April 2004 James Treadwell was diagnosed with glioblastoma multiforme stage IV. The doctors advised him he had 3-6 months to live. It was the most unexpected and shocking news for an otherwise healthy and very active retired US Marine Corps Lieutenant Colonel. After two unsuccessful surgeries, failed radiation and chemo treatments, Jim started treatment at the Burzynski Clinic. Today, three years later, Jim is fully recovered, tumor-free and back in the water relearning how to surf. Himself, he says: "I walk the dog daily, we are traveling again and life is VERY good".

http://www.burzynskiclinic.com/patient-stories.html

http://www.youtube.com/watch?v=Kdg2BFXEzns&feature=player_embedded

testimony on channel 9 ... incrediable!

Just my 2 cents, but I'd NEVER rely on testimonials, youtube videos, anonymous message boards, or random opinions to make decisions on anything as critical as cancer treatment.

When considering this or any other treatment options, for that matter, challenge yourself to find objective, independently verifiable and reproducible fact-based evidence of the claims. This goes for alternative, complementary, and conventional therapy.  

There are lots and lots of highly-respected and credible sources for legitimate cancer treatment information.  Here's a link to American Cancer Society's information about Burzynski's antineoplaston therapy

nurse-ann, You are so right about it could be growing for all those years. I know my BS told me mine had been growing there about 7 years. As far as the follow ups we have unfortunately most of us have insurance that decides which tests we can and can't have. My BS wanted me to have a pet scan last year when the cancer was found, but because of my early stage cancer the insurance said no.

FDA approval to conduct a study for a treatment is VASTLY, VASTLY different than having an FDA-approved treatment.  

How many treatments have been studied in legitimate FDA-approved studies and found to be ineffective, unsafe, or inconsistent? 

Asking for fact-based and reproducible evidence is VASTLY different from accusing someone of being a fraud.  

I'd love to hear that antineoplaston therapy lives up to the claims.  Does anyone have any credible, peer-reviewed, reproducible, evidence-based facts to share?   Please share!!

Hi,

I don't know Dr. Burzynski but one of my best friends took her brother to him about 5 years ago.  He had an inoperable brain tumor, not GBM but one stage under.  He had been treated first by regular medicine which didn't work so he tried Dr. B.  This family has lots of money so the cost didn't matter.  They all loved the doctor and believed he would of helped if only they had seen him sooner.  The family says that while under Dr. B's care, he died from complications which caused a bad infection in his body and not from the brain tumor.  I think they could all be related but I don't know.  I sure wish someone would find the cure for this horrible disease.

Good luck,

Nancy

Nancy

susieq53, I think it's more that the insurance will not cover it. Look at how much chemo treatments cost, but that is covered by insurance.

Read the article I posted - sounds like a quack to me.

I really think and feel he is great...BUT there is no way i can afford him....If i was rich i would have gone to him right from the start.no surgery or rads.Unfortunately i had to go with what my insurance would cover.this bc sure does suk.

BTW i knew BarbA would love him....maybe ill hit the lottery!!!!!

My brother, who is an oncologist and a researcher, and I have been discussing this work. Both my brother and myself have recently been able to review the data as it has come to light from the attention the movie on Burzynski has garnered. I have to admit that up until now, we dismissed his theories and results.

Well, we are not so sure about that anymore.

Now that another pharmaceutical company has applied for patents on the partial sister molecules  Dr Burzynski has developed, it is difficult to defend this position. He takes on the gravest of the cases and that is a brave thing to do. I think if we dismiss and malign him we do it at our own peril.

There is in fact something to his treatment and I it appears obvious there has been a very sophisticated smear campaign.

Cancer is big business in our country. 200 billion alone in chemo every year. I just wonder how much motivation there really is in curing cancer when treating cancer is so profitable?

Just a thought...please don't slam me for thinking out loud we are all in this together.

I'm not infering in my other posts that he is a quack.  I think the insurance companies probably won't pay for anything he orders (blood work, scans, drugs) because he's not an Oncologist and probably also does not have "privledges" at a local hospital.

Please don't assume that I like the current system, current treatments, or the status quo, because I do not.  My bottom line is I do not pay for stuff.  First of all that's why I have insurance.  I also have a 66 year old husband that I don't intend to impoverish just to give myself another year.

I may also be foolish enough to "assume" that because FDA has approved something, it won't kill me outright.  It may kill me down the road but it's gone through clinical trials and probably won't kill me outright.  I think that's probably the best we can say about our FDA.  When someone is giving you drugs not FDA approved, they could be pumping swamp water in your veins.

Again, don't take this as a glowing indorsement for the current system.

I'm hoping Dr. Burzynski gets the FDA approval so that his treatment will soon be available to us.

To repeat...it seems to me that a lot of women are on trial chemo and other type drugs that aren't yet proven. I constantly see on television that if you have taken this drug and have had a broken bone while on the drug, or whatever please call us because you are entitled to $$$ ...BECAUSE...the drugs caused harm. It seems unfair to point the finger at a man who is doing everything he can to find a cure at least for some cancers. This man put his life on the line for what he believes in ... and I hope he lives long enough to see his drug available to the world...paid by our insurance.

To add Burynski works with a team of oncologist, cancer research doctors and other medical professionals...he is not doing this alone. He is cooprerating with the FDA and going through correct protocol to make it legal and conventionally accepted.  

Seems to be that there is a double standard here.

grannydukes...let's pray the FDA approves it. For those who find fault with Burzynski for his research consider Avastin cancer drug that was so strongly advocated here for breast cancer. In the paper this morning I read that the FDA no longer recommends it for breast cancer ... 

The six members of the FDA oncology drug panel voted unanimously that Avastin is ineffective, unsafe and should have its approval for breast cancer withdrawn.

"No trial has shown that patients treated with Avastin lived longer than those not treated with Avastin," said FDA's director for new drugs, John Jenkins. "All clinical trials show an increase in serious adverse events." If the FDA removes their stamp of approval bc women insurance will no longer pay for it.