Stage lll sisters,sad to say,now Stage IV

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amlg1
amlg1 Member Posts: 596
edited June 2014 in Stage III Breast Cancer

Went for my second brain MRI,ct scan and PET scan yesterday,saw my onc.today.The 5mm nodule,in my brain grew to 7mm,even though that is very small,they are pretty sure they will do,SRS to zap it.The good news is my pet scan was good.I will see rad onc.Thurs,and see what her thoughts are,then Fri .they will all meet witha neurological onc.and for sure if they should come up with something now or wait a little,to see if it grows a little more.She is pretty sure it is B/C,especially that I am HER2+.This sucks,so bad.I have no symptoms of anything,blood good feel good.

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  • KiwiMum
    KiwiMum Member Posts: 704
    edited June 2011

    Anna, so sorry to read the news you have joined Stage IV.

    Best wishes for treatment and feeling good!  You are right, this sucks!

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  • KerryMac
    KerryMac Member Posts: 3,529
    edited June 2011

    Well, sh*t Anna. I am so sorry. Stupid Cancer.

    Sorry you are looking at more treatment, I hope they can blast that thing right out of you.

    Please let us know how you are doing. 

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  • geewhiz
    geewhiz Member Posts: 1,439
    edited June 2011

    Anna I am so sorry. I hate cancer. I'm with Kerry, I know that will nuke this out of you pronto!

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  • YATCOMW
    YATCOMW Member Posts: 664
    edited June 2011

    I am so sorry to read this too......

    I do want to say that I have a good friend that has a sister that has been dealing with brain mets for over seven years.  One pops up ....they zap it....and then a few years later another one pops up and they zap it....You wouldn't know at all that she has been dealing with this for seven years.

    I also saw a show on tv where a woman had brain mets and other mets and she said that she wished that her other mets had responded as well as her brain mets as they were gone.

    There is also a woman that works the cancer help line at MD Anderson that is over 30 years past her brain mets....I am always one to cling to these kinds of success stories.

    I will pray for strength....hope....and that these doctors help you kick this to the curb so you can be done with it.

    Jacqueline

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  • Gitane
    Gitane Member Posts: 1,885
    edited June 2011

    Hello Anna (our sweet Pleopal),  I am so sorry to hear how this teeny tiny brain met that grew a smidgen is the cause of this.  Please come here and let us know how you are doing.  Sending all the support and love there is.  G.

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  • clariceak
    clariceak Member Posts: 752
    edited June 2011

    I'm so sorry.  There are so many more treatments now for brain mets. Hopefully they can get control of this situation right away. Hugs.

    Clarice

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  • diana50
    diana50 Member Posts: 2,134
    edited June 2011

    (((((HUGS))))))

    i am so sorry.  keep us posted....hang in there. there are so many new treatments....just do today.  they can get control of this stuff as it sounds like your onc is on it*

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  • elmcity69
    elmcity69 Member Posts: 998
    edited June 2011

    (((((((anna)))))))

    you are on my prayer list, sister. i am so sorry. shining along my prayers/thoughts/energy and love.

    as diana just wrote, there are so many new treatments, and so many women living long lives with this crap.

    and i do mean crap. it isn't fair, damn it.

    xo

    janyce

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  • Pure
    Pure Member Posts: 1,796
    edited June 2011

    Hang in there girl...Good news those on the pet scan being clear...You should know there is still a chance of a cure or it never coming back when you have only a single spot or met..Prayers and hugs...

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  • gillyone
    gillyone Member Posts: 1,727
    edited June 2011

    Anna - so sorry to hear this. Hoping for good news when they zap it.

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  • lkc
    lkc Member Posts: 1,203
    edited June 2011

    Hi anna, I am too sorry to hear this, however one single 7 mm brain met and a clear PET is so doable. Zap the sh*t out of it and you'll be NED in no time.

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  • Joviangeldeb
    Joviangeldeb Member Posts: 213
    edited June 2011

    ((((((hugs)))))) So sorry.  My thoughts are with you.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    amlg1

    Oh Crapola!!!   Hate to hear thisYell.  My heart is with you.

    image

    Barb

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  • Bugs
    Bugs Member Posts: 1,719
    edited June 2011

    Anna, I'm sorry to hear this news.  So good that your PET was good.  Radiation will zap that little bugger in no time.  {{hugs}}

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  • mcsushi
    mcsushi Member Posts: 174
    edited June 2011

    So sorry to hear this Anna. Sending you a supportive hug...

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  • JacquelineG
    JacquelineG Member Posts: 282
    edited June 2011

    Sorry to hear this Anna! I know there is a woman who posts once in a while and had a single met to the brain and has been NED for years now! There is definitely hope!

    sending you hugs,

    Jackie

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  • Ihopeg
    Ihopeg Member Posts: 399
    edited June 2011

    Dear Anna,

      I am so sorry to hear your news. I am sending you hugs! Cancer sucks... 

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  • chainsawz
    chainsawz Member Posts: 3,473
    edited June 2011

    I'm so sorry you are joining us over in stage IV, but just know there is still sooo much hope!!!  I had 2 small brain mets treated 2 years ago with SRS.  I took tykerb after (along with herceptin).....great stuff for her2+ with brain mets.

    When I first found out about my brain mets I was crushed down to the floor....then slowly I started finding long term survivors....they are out there but hard to find because they are so busy living!! 

    There are two great sites for you:

    http://bcwatchdigest.evidencewatch.com/ & http://brainmetsbc.org/

    Also, the founder of the her2support.org site had brain mets treated 10 years ago....PM me anytime!  xx00xx lisa

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  • amlg1
    amlg1 Member Posts: 596
    edited June 2011

    Thank You for all your good thoughts.It feels so glad to know that there are others that feel for you and know what you are going through.I do have a good support system,but nobody truly understands unless you have walked in our shoes.God Bless You All.Tomorrow I meet with Rad onc.and see what she has to say.I will be in touch.

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  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited June 2011

    I'm so sorry for these results that you've been handed.  One thing I've learned through this journey is that it's all about Quality Of Life.  I'm wishing you a very good QOL.  You're in my thoughts.

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  • NancyD
    NancyD Member Posts: 3,562
    edited June 2011

    Anna, good luck with the zapping. I hate it when one of us IIIers moves to IV, but I feel they will get the little buggers with the SRS.

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited June 2011

    Sending you big hugs and prayers, I hope tx has you back dancing with NED soon, keep us up to date on things.

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  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited June 2011

    Damn it Anna, I'm sorry this is happening to you.  But it sounds like it's VERY small at this point, so hopefully the zapping will do the trick!  I HATE cancer................

    Sharon

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  • LindaLou53
    LindaLou53 Member Posts: 929
    edited July 2011

    Dear Anna, I'm so sorry to hear this news but agree with so many others that a 7mm tumor with clean PET is VERY doable!  My prayers are with you for an easy treatment and long lasting NED status! 

    Linda

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited July 2011

    Just checking on you Anna, I hope your appointment went well.

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  • amlg1
    amlg1 Member Posts: 596
    edited July 2011

    jenny...The rad onc.presented my case to the tumor board and it deffinitly is a met.i have a consult with neurosurgeon July 12th,and almost positive they will be using SRS.

    Thanks again all.i will keep in touch with all.

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  • KerryMac
    KerryMac Member Posts: 3,529
    edited July 2011

    Anna, thanks for the update. Hope they can get rolling on this quickly! Hope you are holding up OK.

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited July 2011

    Thanks for letting us know, we're here so come here as often as you need to.  Prayers going your way.

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  • kathleen1966
    kathleen1966 Member Posts: 793
    edited July 2011

    Anna, I did not initially make the connection that this was you!  I am very sad/sorry/angry to hear of your brain met but I am sooo, sooo glad they found it while it was sooo very small!  I hope that they zap that f*cker and you will be well for a long, long time!  I have hope that his is indeed highly possible due to the very small size and am glad that the cancer is no-where else.  This means the treatment really did work for you and there is much hope.

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