Great saying about depression
Comments
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Rowan: I had a very similar experience, though it wasn't a sorority reunion. I am FB friends with a person I haven't seen in 20 years and this person now lives in NY. Well, he was having an art showing within driving distance so I thought I would go and catch up. Well, the people I thought would be there were not, however, I ran into people I haven't seen in 30 years! I didn't even know that they knew each other! I ran into my first big love of my life's roommate and his wife. It was quite surreal. I think that it's great that you went and that you went while still under treatment had to have been a challenge and I am happy that you are lookiing forward to the next one. Hugs!
Barbe: I think about this whenever I am in a group of women now.
Kate: I hope you are still celebrating!
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I really needed to see this post. I am having such a hard time with depression following my treatments. I have always thought of myself as independent, but now I feel so weak and helpless. My faith in God is keeping me together. Reading these posts are very encouraging.
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Slp1960 sorry you are having such a difficult time. Did you just finish up chemo? I was horribly depressed after treatment...I hated the way I looked ...I hated the way I felt. My first priority was feeling better. I had every joint in my body aching...I hated the way the expander was gauging my rib cage...I felt like I was 100 years old. I cried so much my eyes hurt. Following chemo I did acupuncture which help TREMENDOUSLY with the joint pain...I did 5 sessions but felt 80% better by the 3rd session. once that pain was gone I was ready to start to get back to more physical activities. I then had my exchange surgery which was also a HUGE relief. After that I felt really like my old self for the first time since diagnosis..that was (unfortunately) about 9 months following diagnosis. I truly believe once the physical is healed then you can work on the emotional. I think that is where most of us find ourselves now. I have good days and bad and as time goes on ...I have more good days than bad. I hope by the time I hit my two year mark I will have most of these feelings behind me. I wish (we wish) docs would tell you upfront...this journey may take two years before you feel like yourself again...sorta
We know it's hard but that's what is so good about BCO..there is a thread for just about anything you can think of and lots of cheerleaders, supporters and friends along the way. You can come here and vent..yell.say what you can't say to anyone else...and no one here is judging just listening and understanding. No one ever knows what its like to be in our shoes but us! You've come to the right place and everyone is hear to listen whenever you need.
Hang in there!
Diane
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I had an amazing time on my birthday yesterday. A girlfriend of mine has the same birthday and we had a party together at a local resort. Happy hour, dinner and dancing with our whole gang of 14. Then a few of us spent the night there, too. I don't know if it was the sweetness of being "done" with BC but it was the absolute best birthday I've ever had except for the one where my DH proposed! The bar we went to had a live band and at the end of the night the lead singer brought up his sister and her friend to sing the last song. His sister was a BC survivor and the friend had just had her MX 4 weeks ago. I really admired them both and, wow, could they sing! It was the perfect ending to a perfect night!
slp1960- Just wanted to welcome you and tell you we all understand what you are feeling. It seems like just when we're done is the time it seems to get harder. We get through the physical stuff and then, WAM, the emotional ones hit. Just know that each day that passes you are getting stronger and stronger- physically and emotionally. Sometimes it's hard to process all this but it does happen in dribs and drabs. I never thought I'd even be able to go an hour without thinking about BC but sometimes it's days. Soon it will be weeks and then months. Not sure I'll ever be able to go years but when I do think about it now there is less pain behind the thoughts. A year and a half out I find myself saying, "It is what it is" and being able to move forward something I couldn't do even a few months ago. So glad you posted with us!
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Barbe and MBJ--
Thanks for responding. I know in the grand scheme of things it sounds like whining but I know you ladies understand. I hadn't really thought about that statistic. Kinda frightening really.
Kate--loved reading your post--you sound like you are making great strides and give me hope.
Slp1960--you came to the right place. I am going tonight to my first support group meeting for breast cancer survivors because I have the same feelings you are describing. I read somewhere that two years out from breast cancer diagnosis that most women are in pretty good shape emotionally. It's a long haul while we're in the midst of it.
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I am 2 1/2 years out and just NOW processing the whole thing. I didn't give myself a chance at the time - warning!!! I thought I could handle it just fine - a bump in the road, really...red flags!!!! I was already on antidepressants so I said right through. Now it is hitting me. You are so right to recognize that you need to process the situation and not just ignore it like I did....sigh. So slp and rowan, you are in the right place. Vent away!!!
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Kate, what a GREAT way to end your bc journey!! A milestone. You are DONE. And you celebrated SO well, too! hehehehehehe
I am just so happy that everything worked out in the end...you really put your heart and soul out there, but it turned out perfect! Congrats!
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Kate: Wow, it sounds like you had an amazing time! It sounds like a huge turnaround from just a month ago for you and I am so happy to hear this!
Slp: I spent the first year crying on & off and then right when I thought I should be done, it all came rushing back. I will be two years out in September and I am so ready to be done. It's a process and you came to the right place where you can feel safe to vent.
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Hi all,
Happy belated birthday Kate- sounds like it was wonderful! I had not read Konakat's posts and not sure if I have read Cool breeze but it does always hit hard when we all lose someone on this board as we are all here for the same reason. Barb - I know this had to be especially hard for you. I think taking time off and taking time for yourself will be wonderful and something you so desperately need.
Love reading about MBJ is it your husband who is the author? or Rowen. Can't look back without losing what I've written. I got to meet a friend of my SO's who is an author, in fact we stayed at the place the rent in the Bahamas. Anyway, she is a mystery writer, nothing heavy - very easy reads but her main sleuth is Hanna Ives who is a BC survivor as is Marcia the author. She is very nice interesting woman and I'm not sure how many books she has written or co-authored with but she says when someone does something awful to her or someone she knows then that person is usually reappears in the books as the victim. She says it is her own personal therapy- LOL! Anyway, if anyone is interested they are fun. Many are set up at Anapolis (sp?) where her husband was the music director for the Naval Academy and she was one of the librians. Anyway.... interesting.
Just retuned from taking my son up to camp - 9 hours away! He will be gone a month, started missing him on the drive home. We went up early and went to the beach something I hadn't done in what 6 years! It was so lovely - even had cool breezes! The waves were bid and rough and the kids and I had fun in the ocean. I had hoped going to the beach( which I dearly love) would be healing and theraputic for me... not sure if it worked. I have found I've been a lot more irritable, short, easily made angry and it hit me driving up that I'm probably depressed.
Like Barb said, I know I haven't dealt with having BC and yes I went for more surgery to avoid chemo and rads too. So the emotional part is still not tapped into. Also dealing with the doctors and insurance well it just gets to be too much and so much all falling apart at my house and then being taken advantage of my workers sometimes I just feel like giving up and saying OK, I just can't do it anymore... So I'm sitting on the beach watching the crashing waves which should have been complete heaven for me and then I see them. Another family has brought their two puppies with them two little long hair dachsunds - one brown and the other black and tan like my little beloved Liesl. Well I just totally lost it! I just totally broke down and sobbed and couldn't stop crying. My poor kids didn't know what to do but I just couldn't stop and then the little black and tan one started over to me. It was just so horrible. I miss that little dog so much and I think that is it or it is just the proverbial straw that broke the camel's back. I had her for 15 years but she went through all the deaths of my parents, my son's disability, my MIL's death, diagnosis of MS, divorce, moving, and BC. and I feel lost without her as she was who I talked to, who gave me comfort. I may have just written all this recently so please forgive me for repeating as I'm not sure who or where I wrote this. Anyway, seeing those little puppies just about killed me.
So, I'm thinking I don't think I'm doing so well right now.... but have to get it together somehow for my kids. Sorry to write so long...
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{{{{{{{{{{{{{ Stanzie }}}}}}}}}}}}}}}} My straw was Elizabeth. Say no more!
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Stanzie, as hard as seeing that dog on the beach was, it may have helped you tap into some raw feelings you have been keeping at bay. Losing a pet is like losing a family member. The grief process is the same! I'm so sorry you lost your beloved pet. Maybe one day you can get a new furry companion? {{{hugs}}}
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((((Stanzie)))): I think when we are our most relaxed is sometimes when this hits us the hardest! Use this time with your son away to be gentle and loving to yourself. I cannot imagine a life without pets! My litter mate pair of cats are getting on in age and the boy has now become ill and we will be lucky to have him another 2 years. That will be 15 years of having my babies with me through every death and every life challenge! Because we don't have children, they are our family. Big hugs to you and hoping you get through tis challenging time.
For those of you following my temperature reset: I found out that my taking Melatonin for sleeping the last year and a half was interfering with me being able to get my daytime temperature up. Even using the pills didn't work until I quit doing melatonin. I am now starting over, without the pills, and I have found my hot flashes at night are now non-existant (though I went through 4 nights of withdrawel and hopefully I am done) I am now trying to manually, without the pills, keep my temp up. I purchased an inexpensive space heater by DeLonghi called SafeHeat and my routine is to get up, have a strong cup of coffee, eat something with high fat content to give me lasting energy, get into a hot shower to get my temp up and then I plop myself down in front of the space heater to keep me at an approximate temperature of 98.6 F. The idea is to build up your ability to hold at 98.6 F for an entire day. If you can do this your body should naturally fight off any future cancers, by dressing slightly warmer then usual (stay away from A/C during the reset period), after two weeks your body should rest itself naturally. By taking your temp periodically during this time you will learn to be able to tell when you are at the proper temp. My right foot with plantar fasciitis aches and my thumbs hurt when my temp is below 98.4 so I use this as my redf flag that I need to bring my temp up. If you are able to finally keep your temp up during the day, you will also sleep better at night.
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barbe- Thank you! I just feel so blessed that I had an opportunity to fix things physically. I think that has helped me so much in being able to move forward emotionally. I know I'll still have some rough days, though, but I feel better able to handle them.
Stanzie- I can hear so much pain in your post and I wish there was something I could do to help. I know what it's like to feel so overwhelmed by life. You have been dealing with so much for so long- not just BC. You are amazingly strong and you'll get through it but I know how hard it is right now! I admire you so much because, no matter how much you are dealing with in your own life, you always take the time to offer comfort and support to others. You did for me many many times over the months and I'll always be grateful for that.
When I read your story about the pups at the beach I will tell you what came to mind. That it was Liesl telling you that she is still here for you. I know a lot of people do not believe that pets go to heaven. But with their pure spirits, and the unconditional love they provide, if anyone deserves to go it is them. I found it interesting that when you are at the beach, which you describe as a place you dearly love, at a time when you are feeling your lowest what should you see but a dachshund with the same coloring as Liesl? And this is the one that comes towards you? I wouldn't look at it as an event that caused you further pain but a sign of an attempt to comfort you. And I think it is significant that there was one who looked like Liesl and she brought a friend. Maybe she is letting you know that she understands how much you are hurting and how much you miss her. And that maybe what you need is a new friend to love?
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Beautifully said Kate! I agree that maybe adopting another animal could be very healing.
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Thank you all!!! Kate I have to say what you said did make me burst into tears but in a nice way. I'd love another pet but can't begin to do it now. I do still have our cat who until recently only liked my daughter but she has been trying to follow and take Liesl's place - she is trying but not the same thing.I don't know if I'll ever be ready as Rennasus says she was a member of the family - my first child and the one who was there for me and kept me sane and calm and happy. And you just can't replace a child even a furry one.
OH Barb .... what can anyone say? I so hate all this!
Thank you all so much!
So anyone know the difference between fat harvesting and lipo?
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Stanzie- I know you're not ready yet for another pup. I just figured it was Liesl's way of saying when you are she's o.k. with it!
I think the only difference between lipo and fat harvesting is with lipo they remove fat and get rid of it. With fat harvesting they remove it (using lipo) and use it to fill in a defect somewhere else. Have you had any luck on the insurance front, yet?
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Stanzie--I hope writing about your sadness on this board helped you. I know exactly wha you mean about pets, too. right now I have a dog, and she is only eight years old and she sticks to me like velcro. My husband is not really a dog person, but I can't imagine myself without one. Kate--your interpretation was beautiful-but like you said, it has to be when someone is ready.
hmmm--using people who tick me off as victims--there's a new idea!
MBJ -- I am just totally fascinated with your postings about your temperature. I'm sure you wish you didn't have that to write about witheverything else going on, but its all new to me.
I went to my first support group meeting last night and I plan on going again. About 7 or 8 women in all stages of this gruesome game. My heart really went out to the two women who are facing BMX this week. I told one I hoped the boob fairy was good to her (like we do on the xchange thread) and that brought a smile to her anxious face. I guess I have to say I remember feeling abject terror prior to my BMX and I can say today that I can see improvement in my well being when I look back at that time. tomorrow is my last visit to my PS before my exchange surgery--I might or might not need another fill. Not looking forward to it if i do, the last one hurt for days, but I know what I am in for at this point, so that's a good thing.
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Kate- I was going to call my insurance and then I just felt I wasn't up to it. I'm scared of what I say as if i say too much will they make sure it isn't covered even if the Doc codes it differently. I mean I know I'm the "client" and I'm paying for the insurance but with all I've got going on, I'm sure they would be more than happy to lose me and why wouldn't they be trying Not to cover and pay for things. It's not like it is in their best interest to cover me and my surgeries. So not sure how to deal with this at all. On another thread, one person said I should ask for a case manager but again why should they really want to help me...
The nose doctor is even more confusing as they want payment upfront (they have a credit with no interest for a year) then you wait and see what if any insurance pays for! Not liking that either.....
So under that definitian it would be fat harvesting so wondering what is up with the Doc. As in why doesn't he Want it covered by insurance??? Hmmm
Thank you all for understand so well about Liesl. It does help to share about her.... And kate I do appreciate you saying that it may be she is giving her Ok for me when I'm ready. I just want her... OK, got to stop thinking about her for a while now....
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Rowan: I found my support groups very very helpful! I was going through chemo at the time and felt so alone!
I decided to start a thread for the body temp:
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Stanzie: Get a Case Manager!!!! It can be very helpful especially being a BC survivor and going through recon.
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Thanks MJB!
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Stanzie- I can understand you waiting to get a new pup. I felt the same way when my little Yorkie, Olliver, passed away. The worst part was we were out of town, and had a pet sitter, when he died. I always felt so guilty I wasn't there for him as he was always my baby. It took me over 7 years to finally want another dog. It just hurt too much to lose him. The funny thing is when I found my new dog, Scout, she has the exact same personality and little quirks that Olliver did. I swear she is a reincarnation! I guess he could tell how much I was missing him and decided to come back as a girl this time! LOL!
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Kate: Wow, what a touching story and it has such a happy ending. Hugs!
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Oh Kate - I love that! Thank you!!! So I've been reading more about Kate's doctor and the doctor's at NOLA. Hmmm? Kind of scary being out of town but am starting to really think about it as not sure if my PS can do what I want or is really willing to. Cannot begin to imagine how one goes out of town for surgery and can I do it by myself? As I don't really have anyone to go with me. My sweet cousin is wonderful but I have imposed on her waaaay too much so I wouldn't dare ask her as I know she would but just really can't as she has so much going on in her own life. So is it doable by myself?
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Stanzie- If I can't find a job I'll go with you! Just to warn you, though, my cooking sucks! LOL! (I'm great at heating up soup, though!) In the meantime, I can ask over on the fat graft site if anyone there had it done without having someone there. If someone did they may be able to give you some advice. Also, we could ask Dr. K's office if they make any special accommodations for patients who are alone. We'll figure something out!
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Stanzie: I am so happy that you are researching this! I know that the American Cancer Society might be able to fix you up with someone to drive you to and from your appointments but it would be best to have someone with you.
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Kate: I thought for sure you would be this amazing cook! I am so surprised that your skills are just heating soup, lol!
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Barbe: How are you doing? Haven't heard much from anyone the last few days.
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I'm waiting to hear what my PCP says about the blood work results my onc had me 'urgently' take to him. I have some high 'cytes' level (monocytes, etc) but to me the more concerning one is high CO2. I can't find anything on Google to find out why I have high CO2!!! Why do they even test for it????
That's why I've been so quiet....
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It has been quiet here! I've been lurking on other threads in a funk. I hate summer time in Baltimore...no one is in town. Even my sister and niece are off to Disney for vacay...my invite must've gotten lost in the mail..
On the PLUS note ...I saw U2 the other night and they were AWESOME!!! OMG it was funny cause I saw them in DC Sept 2009 before my diagnosis (but I knew the lump was there..I was ignoring until I saw BRUCE so I could enjoy it) anyhow, during the concert Bono stated that one of the band members had a baby since their last show in the US which was the one in Sept 2009...then he said WHAT HAVE YOU BEEN DOING SINCE OUR LAST SHOW??? Literally I almost cried....but then he went into Beautiful Day and all was good in my corner of the world..oh I had the best seats too!!
Here You go...a little Bono singing whatever your favorite U2 song is ...
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