Really worried this time...
I had a postmenopausal lumpectomy around 13 years ago, radiation, and a few scares - diagnostic mamograms, core biopsy -- but all were OK. Last week I found a hard lump in a different part of the same breast. It wasn't there six months ago so I am trying to stop fearing that if is malignant, it must be agressive.
I see my doctor (breast cancer surgeon) tomorrow. Can anyone help me know what to expect? From what I read, this is likely a new cancer. It is not only in a different area, my last cancer (minimally invasive ductal) couldn't be felt and was found by a mamogram showing what looked like calcifications. This is a definite lump, not movable like the cysts and tumors I've had before.
I'm trying to read the information and it's hard to think clearly. Since it seems fast growning, I wonder if I have time to think about second opinions.
Do you look for second opinions after the doctor orders diagnostic tests?
I don't want to focus on the worst case scenario, but being prepared, knowing the possibilities has always helped me.
My faith is strong that "to die is gain." But the fear is there. Not just of death, but of medical proceedures and treatments.
Can you help me with some ideas of what I might expect? Of when to seek second opinions? Even a cyber hug would be wonderful!
Thank you!
Comments
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{{{{{hugs}}}}}
Don't get too far ahead of yourself. You don't know anything else yet, even that it's cancer. There are lots of benign things it could be.
You will have a biopsy and/or sonogram as you did before to find out what it is, and depending on the results, you will get a treatment plan. But, just because you had cancer before, it doesn't mean you have it again. If you do have cancer, it doesn't mean you will die. It also doesn't mean you will need a mastectomy or chemo. Even a larger lump can be removed as long as it's the only one and in one part of the breast.
The biopsy will determine the aggressiveness of the cancer (assuming it is cancer). HER2+ is considered more aggressive. ER+ is considered easier to treat. Grade 3 is more aggressive, grade 1 less so.
I had a mastectomy, chemo, a year of herceptin. It wasn't anywhere near as difficult as you are imagining right now. In fact, some of it I even enjoyed.
But, one step at a time. All you have is a lump and there are many things that cause lumps that are not cancer.
I am very well aware that it is hard not to let your mind go to the worse case scenerio. But, try not to think too far ahead because you really do not know what is going on. In the two years I've been here, I've seen thousands of posts like yours, and the women ended up with benign lumps. And, the ones who did have cancer, well, they found it wasn't as scary as they had imagined and, like me, they found they could handle what life was throwing at them. You will too.
The worst part is before you know for sure, where you are now. Since you are a woman of faith, put yourself into your deity's hands and try to relax as best you can.
{{{{{hugs again}}}}}}
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Thank you so much for the response! I know you are right and, though I've been telling myself some of this (some I didn't know and it is so helpful) it is so good to have it reinforced. I was actually doing alright until this morning.
The last time, after I knew what I was facing, there was much more peace than I expected. You are so right. The hardest thing is not knowing. Thanks for being there and for the cyberhugs!
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sleepdeprived, this is truly the hardest time - the waiting. I heard a sermon recently titled "He Will" and He will keep you. Trust in the Lord as you go forward, He is there by your side regardless of which way you turn. That will get you through.
Prayers going up for you and HUGS surrounding you. When you need one just reach out and feel His presence.
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Thank you, patoo. It really is amazing that most days I have had peace. The hardest was the day before and since my appointment was first thing yesterday morning, there was no time to worry. I had a mammogram, ultrasound, core biopsy and skin biopsy (Doctor was concerned about a pinkness that didn't seem normal). She wanted to do a full surgical biopsy but since I had had aspirin within the last week, that wasn't an option.
Since I was there all day, she said the report wouldn't be in until Wednesday. The peace is still with me. Thank you for the prayers. The one bad time was more frustration, than anxiety. I discovered this morning that the radiologist took the core to the side of the lump. Hopefully he angled it so tissue from the suspect area was gotten. They also put in a small titanium marker so that can be checked, I guess.
The office called today to see how I did (They are so caring and supportive at this clinic) and made my appointment for Wednesday. I told the nurse about the possible wrong placing of the core biopsy area.
The doctor said that from one view, it looks malignant, but from another angle it doesn't, so it is a little different than the usual patient. Whatever happens, I do know that God is in control and often gives peace when we most need it. When the doc was doing the skin biopsy I was imagining meeting Jesus in heaven and when she asked how I was doing, I said I had my mind on something else. When I told her what she said, "You are going to live until you are an old, stooped over old lady." I said, "It's always a beautiful picture to have in my mind, whenever it happens."
Whatever the results, I will let you know. If I have to make treatment choices, I'll start a new topic in another forum.
Thank you again for your encouragement and prayers!
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HI Sleepdeprived,
I am hoping that you get positive news on Wednesday! I really think the waiting game is the hardest part of this disease!
I just want you to know that if you decide to seek a second opinion, I think you can decide when to do it. In my case, I went forward with the surgery as soon as possible but I set up an appointment with a second onc at another big cancer center to review the pathology and comment on the treatment plan. I am very glad that I did it because the second opinion not only confirmed the original diagonosis (they requested my actual slides of my biopsy to review independently), but also helped me get comfortable with which chemo regimen was right (I was given a choice between AC X4 or TC X4 - I chose to do the TC.)
I hope that you do not have to face any of these choices! Best of luck, Beau
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Sending positive thoughts your way, sleep. Don't start planning your funeral just yet!
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Hi Sleep
ANy word yet hon? Thinking of you.. hope you have good results
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Sorry I'm so late getting back to you. This is the first I've been online. As the doctor and I expected, the tumor was malignant. The mri shows 4 centimeters. She is a little concerned about a reddish color around the area and says that, though she thinks it likely doesn't mean inflamatory breast cancer, she doesn't want to make a mistake. She took it to the panel of doctors at the hospital and they agreed that we should do chemo first. Monday (tomorrow) I see the onc, and Wedneday they place the port. I am comfortable so far with the center (the nurses etc are compassionate and caring, more than I've experienced before. The Betty Ford Breast Cancer Center in GR, and Butterworth hospital (Spectrum System) has a good reputation. I could go to the Cleveland Clinic, or maybe Mayo. Texes is too far. I have back and hip problems that make travel difficult. If there are chemo choices I won't know until Monday and waiting for long for a second opilnion would be difficult, so unless I'm really concerned about the Onc's recommendation (My nurse navigator told me she was the best they had there) I will start as soon as they set it up. I will likely have questions I forget to ask and may post in another thread for diagnosed patients. Thank you so much for your caring messages! Peggy
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Hi Peggy,
I am so sorry that the MRI confirmed your worst suspicions. ((hugs)). It sounds like your onc is being very thoughtful and thorough. You also sound ready for battle.
Be sure to send out an S.O.S. to all your close connections. I found chemo a big hill to climb but doable so long as I had close friends and family to help out and to keep me company on the worst days. I also want to offer the advice that my close friend gave me (she had gone down this road 2 years ahead of me.) Treat the psychological part of this disease as well as the physical. Take what you need to sleep and feel reasonably positive.
We are here to help as well. best, Beau
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Thank you, Beau. I have been limited physically so don't have a large circle of friends, but have a few who are praying and enlisting the prayers of their churches. My husband is supportive and my three daughters will be there to help as much as they can. Have reacted badly to many meds before. (Sleeping pills keep me awake :-0 ) But I do have xanax. Have taken it for years for an anxiety disorder. It helps me sleep also.
My daughters are having a hard time with this. We are very close. I have to stay strong for them.
It was almost funny today. I looked in the mirror while washing my hands and burst into tears. "I'm probably going to lose my hair!" Up until then that wasn't something I thought I would care much about. I think maybe i needed the release of a good cry.
So far I've been able to keep my sense of humor. It has served me well through difficult times. Hoping to find some funny, even hilarious dvds. We might sign up for netflix. They need to be PG movies though. Too much sexual innuendos and coarse language tears me down rather than builds me up. Think I'll look for posts on funny movies in the forum! Reading Bible verses and prayer usually brings me peace.
I'm scared. Sometimes to the point of sweating. But will take it a step at a time.
I'm so glad you are there. The reading I've had time to do on the forum lets me know this is a wonderful group of people here. I will probably post in the forums sooner or later.
Peggy
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Hi Peggy,
It sounds like you have a wonderful supportive family. I think that you will find this board a good place to come when you are particulary scared and need to stay strong on the home front. I have a 10 and 12 year old so I definitely found it important to vent here instead of at home.
I also highly reccommend valium, possibly instead of xanax. I have taken xanax in the past from time to time in periods of high stress and did so through chmeo. However, I switched to valium recently because it lasts much long (something like 50 hours in your system) instead of xanax, which only lasts 4-6 hours.
Definitely find ways to pamper and amuse yourself. Netflix worked wonders for me too! Best, Beau
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