I say yes, you say no, OR People are Strange

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  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited June 2011

    Revkat -- I've been assured by my onc that taking an AI or Tamox means I continue to be on active treatment.  There are some advantages to that  (though not many -- it did get me out of jury duty, shame on meUndecided)

    Rosemary --  Your SEs are too debilitating, IMO.  I'd be going off Femara if I had them. 

  • lewing
    lewing Member Posts: 1,288
    edited June 2011

    Revkat, that's really interesting - I was especially struck by the bit about not realizing what tamoxifen was doing to you until you were off it.  I wonder sometimes how to sort it all out - menopause, anti-hormonals, the after-effects of chemo, work and life stress, simple aging.  Studies don't speak to us as individuals, and our individual experience is too complicated and varied and, well, individual to offer clear answers.  And so we fumble along.

    I'll see my onc in September, which is right when I hit the 3-year mark on tamoxifen.  AIs will definitely be on the agenda.

    L

  • 208sandy
    208sandy Member Posts: 2,610
    edited June 2011

    Although I have posted on another thread about AIs I will post here again - I was on Arimidex and then Femara for a total of 18 months - I was miserable and quit taking anything a year ago - I just had my scans and testing and I am all clear and that's made me very happy - I couldn't live any longer with the depression, the bone pain, the fuzzy brain, the insomnia, and then all of a sudden I was "prediabetic" pretty funny as my tests have always been way below the norm - also my chloresterol shot up - they had put me on medication for my heart and were asking me to attend a diabetes clinic - that's when I decided that there would be no more AIs - I could hardly get out of bed and here I was suddenly confronted with two more major diseases - it was a low point I must tell you.  My onc wasn't too impressed but what could she do and my PCP told me that if I wanted quality of life she could understand what I was saying - oh yes my blood sugar reading is now back to normal and my heart medication was stopped - I may not live to be 90 but I am 65 and doing ever so much better than I have for three years.

    Sandy

  • PattyS
    PattyS Member Posts: 534
    edited June 2011
    Lewing...thanks for the info. I also wonder if the hot flashes are happening because I am going through menopause. To help with the hot flashes and some depression I take Effexor. I can't even imagine how bad the flashes would be if I didn't take it. Surprised
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited June 2011

    The roast lamb was great as usual, now we have left overs for sandwiches - great with tomato sauce (ketchup in US speak). Sorry some of you have never experienced how good lamb is. That was something I noticed when I was over there - not much lamb (if any) in the supermarket. We eat a lot of lamb - lamb loin chops, diced lamb for curries, the roasts...

    Someone mentioned hormone free beef earlier - we have one big supermarket chain here who now sell only hormone free beef and boy does it taste better. I only buy free range or organic chicken even though they say there are no hormones in the cheaper variety, I don't believe them.

    I'm taking Arimidex but my onc got me Zometa infusions every 6 months even though I really didn't qualify (he lied). The worst SE for me is stiff fingers in the morning. Any aches I have probably come from my arthritis - they don't seem worse.

    On the HRT subject. I was on it for 4 years - bc had a very high ER reading - surgeon says probably caused by the HRT as apparently high ER is an indicator. My GP told me the bc pill was 5 times the strength of HRT, so I do believe that also had an effect especially since I took it until I was 52.

    Haven't decided on dinner for tonight - could be pizza (I make my own but buy the bases) or a chicken linguine dish with a creamy pesto sauce made with garlic, white wine, pesto and cream. Grilled and peeled red capsicum (pepper) and snow peas added to the mix - totally delicious!!! Oh and garlic ciabatta on the side and don't forget the glass of wine :)

    Sue

  • PattyS
    PattyS Member Posts: 534
    edited June 2011

    Lindasa....That's interesting you were able to get out of jury duty. Was it because of the side effects from the Tamoxifen that got you out of it? I'll have to remember that, I have been called three times already.

    Sandy...Wow! That is a lot of miserable SE's you had. I'm glad you are feeling better. Wishing you continued good health.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited June 2011

    In Ontario , they send you a notice that you have been called for jury duty, and provide a form for you to fill out.  One of the questions was about health (something along the lines of "Are you being actively treated etc.").  After checking with my onc, I was able to write Yes, for breast cancer.  And that was that!

  • 208sandy
    208sandy Member Posts: 2,610
    edited June 2011

    PattyS -

    Yup, I am the poster child for weird se's but my BFF has been on Arimidex for six years and nary a se - not one, nada - that's why I tried two of them - just couldn't work up any enthusiasm for Tamox after feeling so crappy on the first two.  BTW got through chemo just fine but my hair has just started to grow and fill in after THREE years - like I said I get the se's the ones they say are "rare" or "very rare".

  • PattyS
    PattyS Member Posts: 534
    edited June 2011

    Linda.....That is interesting. I guess I have never thought about it in that way. That, yes we are being actively treated being on Tamoxifen or one of the other AI's.

  • PattyS
    PattyS Member Posts: 534
    edited June 2011

    Sandy...We are all so different in the way our bodies react to medication. Glad to hear your hair is growing in. As women, our hair is an important part of our appearance. It shouldn't be, but it is. 

  • kadeeb
    kadeeb Member Posts: 305
    edited June 2011

    Thanks so much for the reports on your situations. I turned 60 this year and was already in manopause when the BC thing reared it's ugly head. Tripple positive, yes, I've got hormones of all kinds. I really haven't complained so much about the side effects of Arimidex and after 4 years I somethimes think this is normal.

    I've never discussed this with family or friends, very few would have a clue about it. I live alone, divorced, have had several relationships before BC but now on this drug, I can honestly say that sex is the last thing on my mind. I don't even enjoy those sappy girl or guy gets his mate movies anymore. They seem so stupid. I agree with the need to be free of medication but I've felt this way so long, maybe I've accepted this "as" normal. I honestly don't miss that part of my life but I think that may be the Arimidex talking. This mess sux.

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited June 2011

    Sandy, I am so with you. I have a family history of stroke (tamoxifen) and heart attacks (AI's) so I chose not to do them. So I am doing natural aromatase inhibters. So far so good  but it is still a crap shoot and I hope I didn't screw up.

  • kadeeb
    kadeeb Member Posts: 305
    edited June 2011

    Barbara, You didn't screw up if you did what you felt was best for you, regardless of the outcome. I think the only time you screw up is when you give in and quit fighting. That's one of the reasons I have so much respect for Blue. She's been dealt a dirty hand and comes up swinging every time. Crap, I'm beginning to sound like a pink ribbon waver. Whatever, you guys know what I mean.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    I know the SE's of AI's is a long thread - started by Lowrider, but there are so many excellent suggestions about ways to get rid of the SE's.  I'm into my 4th year on Arimidex, and I honestly could not have made it without what I learned on that thread.

    Don't want to hijack this one - so please check the thread in Hormones Forum.  I can honestly say I am ok now.  Still sometimes tired, but I know that's lack of exercise - I am SO lazy.

  • kadeeb
    kadeeb Member Posts: 305
    edited June 2011

    Thanks much, I'll check it out. 

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited June 2011

    Barbara - what's a natural AI?

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited June 2011
    Grapeseed  extract and myomin and turmeric. I hope it works but if cr@p happen I will do it.
  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited June 2011

    Barbara, don't second guess yourself. If the worst does happen, no one can tell you whether it is because you didn't take an AI. As long as we make decisions that fit us, and we make them carefully, that is what matters. 

    Damned cell phone of mine. I could not finish getting my point across earlier. Not that it was a brilliant one, but one hates to leave things half said.

    But just to end it quickly....so basically, we have a situation in which the Women's Health initiative data showed no increased risk from estrogen only but showed increased risk from er plus pr.

    So if er is not the culprit after all (and this is by no means universally accepted), then why would Tamoxifen work? I know zero about ALs, so I won't comment there, but well designed studies do show disease-free survival advantages with Tamoxifen. If it isn't the selective estrogen receptor modulating properties that help er+ women, what could it be? I wonder if it is the oft ignored benefit of Tamoxifen that is really what can keep some women safe from cancer: its benefit to the bones.

    That might also explain why Zometa was recently found to be beneficial for post menopausal women, but not premenopausal ones or even ones in recent menopause. Its effect on the bones (yes, I know it is a totally different class of medication).

    Just my speculation. Estrogen's relationship with cancer is very unclear. The party line is still "stay away" because there is always a lag time between cancer scientific publication and cancer conventional wisdom due to resistance from both scared patients and harried and scared doctors, IMO. The cancer fear industry is the greatest of censors in this. 

    The progestin part is on more scientifically sound footing: it can definitely be recommended as something to avoid for us from what is known so far.

    Lindasa, I'm with you. We have every right to our hormones!

  • jancie
    jancie Member Posts: 2,631
    edited June 2011

    I have been gone all day long!  Got up and went and rode my horse.  Came home for 1 hour and then took my 6 mile hike up the canyon - came home and went grocery shopping.  It is 11 pm and I just finished putting the groceries up.

    No, dinner did not get made - nobody was home to eat dinner tonight and now I am starving!!!   I don't want to eat this late at night but might have to resort to some peanuts to tide me over until tomorrow.

    Any threads that I need to go look at? Innocent  PM me.  Here it is Saturday night - anybody get banned this weekend?

    Ang - welcome to this thread.  I wasn't welcome over there either Yell  I would much rather hang with ya'll.

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited June 2011

    Good Morning!

    Jancie it sounds like you had a great day yesterday!  Riding and hiking .. what fun.

    I don't post in the alt threads because I don't know anything about it .. they are interesting to read though.  I'm not much for the holistic approach ever since a friend decided that I caused my cancer because of some emotional discord within myself. 

    Hope everyone has a great day!

    Bren

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited June 2011

    http://www.huffingtonpost.com/2011/06/25/iowa-caucus-poll-2012-republican_n_884656.html

    Was reading Huffpo this a.m. and saw this article on the Iowa caucus.  I'm shocked that Romney and Bachmann are the two front runners.  Okay, not shocked about Romney .. but Bachmann .. yikes!

    I am not a fan of that woman.

    Bren

  • lassie11
    lassie11 Member Posts: 1,500
    edited June 2011

    It's interesting to watch all the machinations for the Republicans to choose their Presidential candidate so far ahead of time. In a parliamentary system (as in the UK, Australia, NZ, Canada, etc.) the party chooses their leader. Then at election time, the party with the most seats gets the Prime Minister. I have no statistics, but the whole election campaign in a parliamentary system has to cost a lot lot less. The party leader campaign amounts are restricted. How many better uses could there be for campaign dollars?

  • otter
    otter Member Posts: 6,099
    edited June 2011

    Well, I post in the alt threads a lot... and then I erase what I've written before hitting "submit".  I can't help it -- moth to the flame, I guess.  But, I do manage to keep myself off the "Report" list most of the time by having that second voice whisper in my ear, "Hey, you know this isn't worth it, don't you???".

    OTOH, I was off-line for 48 hours and one of my "favorite" (word used tongue-in-cheek) threads imploded while I was gone.  I really wanted to see how that soap opera would end, because it started out so flamingly awful and went downhill from there.   But, I guess soap operas never do end -- they just get cancelled and all the key players go on to other soap operas, a la "As the World Turns."

    We went to a family reunion yesterday.  Of course, dh hated it.  He's not very "social".  He doesn't like meeting new people, and he isn't good at casual conversation. (He's more of a "get to the point!" sort of guy.) 

    Oops.  Gotta go.  Things are going on and family members are glaring at me because I'm talking to you guys.  Be careful out there -- y'all stay out of trouble!

    otter

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited June 2011

    Having a rainy morning here in FL. We really needed it, though. Hadn't had rain for a month. And it is supposed to be the rainy season. Well,at least no hurricanes, knock on wood.

    The beef stew was killer. But the ice cream was better.

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited June 2011

    Barbara .. we could use some rain here too.  Dinner sounds like it was wonderful.  Before Tim left we had a great steak dinner with roasted red potatoes and corn on the cob.  I sure do get hungry when he goes back on the road!

    Otter ... that's funny that you're getting the "glare" for talking to us!  I'm staying out of trouble, although I'm getting bored so some trouble might wake me up, but I'm refraining from searching it out.

    I need to get a report done ... and some motivation would really help right now.  argghh!.

    I better get to work.

    hugs,

    Bren

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited June 2011

    'Morning all!

    May I just say how much I detest liars? :-)

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited June 2011

    Yep Athena.  So do I, especially the ones that were revealed a few days ago.  Wonder if they will have the nerve to post here again?

  • kira1234
    kira1234 Member Posts: 3,091
    edited June 2011

    Good morning ladies. Having a good rain here today. Hope it clears as I want to try out the new grill today when the family comes over.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    Good morning

    Athena, are "liars" like "sock puppets" - the thread which can not be named, is I think the one Moderators finally did away with!  Boy, that OP is now two for two!  I thought the strangest was when OP also posted a comment to TWO of her sp's.  Gave me the chills.

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited June 2011

    Good morning all!

    What's on the grill menu today, kira?  

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