April 2011 chemo

Options
1323335373886

Comments

  • scc218
    scc218 Member Posts: 163
    edited June 2011

    I'm so sorry, RangerMom.  I don't know what else to say except that I'm thinking of you and sending lots of healing, positive thoughts your way.  You can do it.  Hang in there.

    ArtieCat -- thanks for the info on Cure.  I'm going to check it out.

    CarlaB -- loved your We Were Soldiers.

    I haven't been on here in awhile because I've been feeling SOOOO depressed.  I just want to hide in a big ol' hole until this is over with.  Now I realize I should have been coming on here more often because we're ALL riding that emotional roller coaster, and misery DOES love company.  I certainly don't wish misery on anybody; it's just so comforting to know that I'm not alone.  I breezed through #1-3 of A/C, but #4 did me in.  I was feeling fine but the Neulasta injection failed to do its job (you would think a $5000 injection would ALWAYS work!), but I guess my body just said enough is enough.  Consequently, my white count went down to just above 0 and stayed there.  SOOO my body decided to pick up some nasty infection and I got REALLY sick.  Spent last weekend in the hospital on IV fluids and antibiotics.  Also had to get 2 units of blood and 1 unit of platelets (platelets dropped really low, too).  The whole thing just zapped me mentally and physically.  I'm feeling much better physically (except extremely tired), but I can't get out of this mental slump.  Normally I'm really upbeat and positive and happy.....blah, blah, blah......but now I just feel like crying.  I was supposed to start Taxotere today but body not strong enough.  2-week delay on that, which just pushes everything back even more. 

    Thanks for letting me "cry on your shoulders."  I really needed that.   --Suzy

  • KiwiMum
    KiwiMum Member Posts: 704
    edited June 2011

    Oh Suzy. This disease really does suck. I really feel for you, it's so disappointing when treatment is delayed and you just want to get it over and done with.



    I too was hospitalized 5 days ago with an infection and no white blood cells to fight it. I somehow managed to go ahead with AC #4 on Tuesday.



    In addition to feeling sorry for myself we are also having another family tragedy. My mums sister was admitted to hospital 3 days ago with double pneumonia, which led to a lung cancer diagnosis. In 3 short days they have just removed her IV and put her on morphine to manage the pain and assist her passing. My mum is desperately trying to get from Perth, Australia back to NZ in time. The earliest she can get here is 10am tomorrow. I hope and pray it's not too late. She will be devastated!

  • RangerMom
    RangerMom Member Posts: 604
    edited June 2011


    KiwiMum - Such sad news.  I think your Mom will make it in time. Just got a gut feeling. I'll keep tht in my prayers tonight to.

    Susy - I AM sooo sorry to hear of your set back. Don't think too far ahead now, just get through one day and make that day the best it can be. That's where I'm at, I have to get my joy back. I've been trying to say something nice or give someone a compliment each day. Something to make someone else feel good and in turn makes me feel good. It temporarily gets me away from my pain. 

  • RangerMom
    RangerMom Member Posts: 604
    edited June 2011

    Sudz I had ceral for dinner tonight! How funny. It was good, and good for me and I'm full. So you go sista and do whatever it takes. Your girls will understand and can even help out. My 24 year old daughter has moved back in with me temporarily. She's in nursing school and working 2 jobs so I don't see her much. She broke up wth a boyfriend she was living with and needed to move back home. But I love having her company here and knowing I'm not alone. 

  • seeay
    seeay Member Posts: 56
    edited June 2011

    Articat - YAY!!!!! And to celebrate, my cat named Artie arrived today! A furry ball to cuddle with has helped with the SE of Round 4. These hot flashes stink!!! I am going next week for accupuncture. I also have a list of others, but I am not onhere to complain tonight - just to say, YAY! We're all here!!! Keep fighting ladies!!!

  • KiwiMum
    KiwiMum Member Posts: 704
    edited June 2011

    Thanks Rangermom. Got the news an hour ago that my Aunt just passed away. RIP.



    I'll be happy to see the end of 2011.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited June 2011

    Kiwimum - so sorry to hear about your aunt. 

  • Merilee
    Merilee Member Posts: 3,047
    edited June 2011

    Kiwi mom

     I can so relate to your pain. Some of you know I just lost my brother to Cancer a few weeks ago while going through this shit myself. I am so sorry for your loss and the extra fear that it brings. It is amazing when I read these threads how much we are all coping with in addition to this F-N cancer.

    Ranger mom you sound like you are finding some peace with your situation and so glad to hear your daughter is there with you. One thing I have not mentioned is that I also did chemo last year and my marriage ended in the middle of that also. For me however it was a relief to have the ass hole out of my house. Don't know if you feel the same way but I have no regrets asking him to leave. I am however dependent on his health insurance so we are still married which I hate.

    Also other people have bailed out of my life, and I have really had to do some thinking about what is next for me and my son.  There is no doubt that this is a life changing diagnosis, but for me it is chin up, boobs out ( wait, make that chest LOL) and march forward. Nothing else will work.

    So glad to have this support network here, it has been a life and sanity  saver for me.

  • Merilee
    Merilee Member Posts: 3,047
    edited June 2011

    Seeya

    Congrats on the new fuzz ball, mine slept with me last night and every time a woke I got purred at. How sweet and healing is that!

  • scc218
    scc218 Member Posts: 163
    edited June 2011

    Thank you so much for your encouraging words.

    Kiwimum -- I am SO sorry to hear about your aunt.  And Merilee -- SO sorry to hear about your brother.  Geez....how much can a person take while going through all this sh*t?!  It's not fair.  But, as you said, Merilee -- it's so good to have this support network -- so many people going through the same thing.  We can all feel each other's pain.  And yup, we just gotta put the chin up and boobs (or lack thereof) out and march on.  RangerMom -- good advice on saying something nice each day, which in turn makes us feel good.  

  • Sudzinvermont
    Sudzinvermont Member Posts: 70
    edited June 2011

    Sometimes I have the best job ever. This is one of those weekends. Tonight I get to hear Deepak Chopra speak, and tomorrow night I can shake my bones to some  Michael Franti & Spearhead. I'm going to dance all night...."what cancer?"

    There was something in the air this past week, for everyone it seems. Lets hope next week is better.

    Until then...I'll gather up all the positive vibes I can this weekend and send them along to each of you.

  • ginger_mea
    ginger_mea Member Posts: 264
    edited June 2011

    Merilee, you're funny Laughing

    I too will be happy to see the end of 2011.. I had my son deployed this year, lost both my parents within 6 months of each other, watched my dad have a horrible time with Chemo, and pass away and found out I would start Chemo right after I burried him...  My son in law was diagnosed with thyroid cancer, and his dad is dying from bone/lung... So its been a cancer packed year, good riddens to 2011!!!!!  I also have to say its been an awaking for me, and I will never be the same as far as how I feel about this disease and how much we need more work in this field to be done!  I watched the movine Living Proof about Herceptin, and I have to say it made me thankful for the medicine, in the early 80s it would have been a death sentence....  So although it was emotional it made me thankful.... 

  • RangerMom
    RangerMom Member Posts: 604
    edited June 2011

    Man the stories on here are heartbreaking and we're all still so strong. We are amazing women! Last night I read from the Stage IV with Mets forum to see how they are doing. It was so very sad but has given me more encouragement to do everything possible I can for my health and well being. I will be a good girl and follow doctors orders to the best of my ability, I will ask lots of qauestions and I will be my own advocate! God bless everyone and have a safe and joyful weekend.

  • ginger_mea
    ginger_mea Member Posts: 264
    edited June 2011
    Same to you RangerMom Innocent
  • Teckler2
    Teckler2 Member Posts: 71
    edited June 2011

    I'm sorry to hear about what everyone is going through..I haven't been on in a while, and I'm trying to read all the posts and catch up.

    Has anyone had problems with eye and leg twitching? My left eye twitches constantly since treatment#4, and drives me batty!

    Kiwi- I agree I can't wait until the end of 2011

    merilee- i feel for you- it's hard to depend on someone when you don't really want them in your life. My marriage fell apart with my first surgery, and I still live with him thinking it will get better. But I need to learn I don't need his antics, like screaming at me in a grocery store, on top of dealing with my SE's and fighting cancer.

    I hope everyone has a wonderful weekend :)

    Michelle 

  • scc218
    scc218 Member Posts: 163
    edited June 2011

    Ginger_mea -- I'm so sorry it has been such a terrible year for you -- too much tragedy in one year.  My heart aches for you.

    I'm sorry it has been so tough for everybody this year.  It's hard enough dealing with the BC and SEs, but to add all of the other things so many of you are having to deal with is just unfathomable.  I'm thinking of you all.

    Teckler2 -- I haven't had the eye twitching, but I've had a problem with blurry vision and watery eyes.  I asked my onco the other day if chemo affects vision, and he said it definitely can because every square inch of the body has been bamboozled and bombarded.  He said now is not the time to go to the eye doctor because it should be a temporary thing and should dissipate once the chemo is over.  I hope he's right because it's very aggravating.

    Hang in there everybody.  Hoping for a relaxing weekend for everybody. 

  • Merilee
    Merilee Member Posts: 3,047
    edited June 2011

    Michelle

    No one should ever yell at you. It is a sign of great disrespect. Not in the grocery store or at home. Sorry you are dealing with that. Mine was just a clear lack of caring. I was out shoveling the drive way to get out so I could go to work after a chemo treatment and  he was sitting in his lazy boy chair. That was the moment I realized he really did not love me or at least not in the way I needed. There were more problems as well but that was the breaking point for me. Also, I realized that strangers and acquaintances were giving me support than he was. It took me almost a year to get him out of my house, very much adding to my stress.

  • determined3
    determined3 Member Posts: 128
    edited June 2011

    hey everyone. quick ?. could not get blood return using my port yesterday so now i am scheduled for them to look at or redo my port? my chemo was delayed greatly b/c of this. my appt was at 10 (for the first taxol) and i did not get leave there until after 3:30. anyone have this experience, not w/ delay, but with the port? aside from the obvious of having it re-done, what can i expect? was anyone luck enough not to have it redone after concerns?

    thanks.

  • Merilee
    Merilee Member Posts: 3,047
    edited June 2011

    They could have stuck it in your arm for just one. I did 10 treatments all without a port.

  • RangerMom
    RangerMom Member Posts: 604
    edited June 2011

    Hi all. Boy am I aching after my Taxol and neulasta. Feel like I've been run over so I'm staying in bed today. STill very sad about my SO leaving. He was diagnosed with prostate ca right before me and we've been going through this together. he was very good to me so yes, I miss him very much. I think he was struggling with his own issues after the surgery he had. I just don't know for sure anything.

  • CarlaB76
    CarlaB76 Member Posts: 74
    edited June 2011

    Sticking my head in and there is so much to catch up on.  Even though I don't check in every day, I've got to say that I think of you all so much.  RangerMom, wow.  Keep strong and be kind to yourself. 

    Determined3:  You asked a port question, so you can be pretty sure I'd weigh in.  Yes, what you described happened to me AFTER I had my port placed for a second time.  What my onc/nurses did was access the port and used some Heparin (different from Herceptin...Heparin is an anticoagulant, and if there are any clots in the port line or area this will break it up and get things flowing again).  The injected the Heparin and we waited for 30 minutes.  There was still no blood return, so they injected a second syringe of it and we waited another 30 minutes and then got blood return.

    Once we did this, (and if you set aside the issues I have actually accessing the port) once they are in, I get good, robust blood return now.  And I think they do a shot of heparin at the end of every chemo (but not positive).  I hope this helps.  

    Other thought real quick is that they could do a dye imaging of the flow in your port, they access it, push some dye through and scan to see what the dye flow looks like to make sure there is no clot.  Unfortunately, my only experience with this was when my port was flipped, so I can't tell you if that would have given us the answers we need.  But the heparin worked wonders.

    To everyone else, hang in there!  We don't need to ask how we're going to do this...we're doing it!

  • determined3
    determined3 Member Posts: 128
    edited June 2011

    hey carla b. thanks for responding. they did give me a shot of that solution you mentioned, but only once. they prob should have tried again. i am just dread having to have the port surgery again. damn.

  • Merilee
    Merilee Member Posts: 3,047
    edited June 2011

    Determined= how many more treatments do you need?

  • determined3
    determined3 Member Posts: 128
    edited June 2011

    @merilee ...i need 11 more. 12 taxols total and fri was my first one.

  • Merilee
    Merilee Member Posts: 3,047
    edited June 2011

    I did 10 total without a port. Is that an option for you?

  • RangerMom
    RangerMom Member Posts: 604
    edited June 2011

    Determined, you are in my prayers that the port can still be used.

  • Merilee
    Merilee Member Posts: 3,047
    edited June 2011

    Ranager  mom how are you doing?

  • katfinn
    katfinn Member Posts: 59
    edited June 2011

    I'm so sorry to hear that so many of you are going through some very tough times on top of your own diagnosis and Chemo side effects.  Not Fair!  This is my "good week".  It amazes me how I forget the yucky feeling once I'm in week # 3.  I almost feel like my old self.  It's wonderful.

    Sarah, I too get very weepy and now I'm making the connection that this happens right after I go off the steroids.  I thought it was the chemo.  I cry when I'm telling others about something nice that someone did for me.  It just comes out of no where???

    My eyes are a mess... blurry vision, extremely watery.  But we do have to wait until after this is all done to see an eye doc. (same with our teeth)

    Sue53- I also thought that my 3rd chemo knocked me out but I haven't had # 4 just yet???

    My onc did not talk about Taxol after my 4th (and final) T/C treatment.  I wonder if I should be having this chemo too.  I'll have to ask him (not that I want more but I am Triple Negative so I want to do all I can to kick this stuff out of me). 

    I'm supposed to go in for my Radiation CAT Scan on July 5th and get my tattoos.  Has anyone had that scheduled yet?  I need to read up on radiation now so I know what to expect.  I hear it's easier than chemo but that there are side effects with it too. 

    I just started to do some upper body exercises lately and found that my side under my arm is very sore.  I guess I need to stretch more.  It didn't hurt at all before this.  I wonder if it's scar tissue?

    Good luck to you all.  I'm alone through this (not really - lots of supportive friends and family, just no man in my life and I'm fine with that but I'm sure it's hard when they have been there in the past) and have grown stronger because of it.  You can do it!

  • axtella
    axtella Member Posts: 88
    edited June 2011

    I didn't have my Taxol this past Weds. My blood platelets were down...again. Taxol doesn't seem to bother me but boy does the Neulasta after Taxol. Not sure why the Neulasta didn't bother me after the A/C's??

  • profbee
    profbee Member Posts: 858
    edited June 2011

    I hate to hear that you're all going through such hell in ADDITION to the usual cancer hell.  I'm so sorry. 

    I've had 12 Taxols without a port.  No problems.  My nails are all turning brown and are killing me, but that's just the latest.  Oy.  BUt I didn't have any Neulasta. 

    Hang in there friends. 

Categories