Livestrong/YMCA exercise program

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kira66715
kira66715 Member Posts: 4,681
edited June 2014 in Lymphedema

Just wondering if anyone has experience with their program--we did have a woman on these boards who felt her LE was precipitated by one of their programs, and as it's a "one size fits all" cancer rehab, they may not "get" LE.

Thanks.

Kira

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  • Annhh
    Annhh Member Posts: 1
    edited June 2011

    Hi, Kira,

    As the Project Manager for YMCA of the USA's LIVESTRONG at the YMCA program, I wanted to share with you a bit about our training and preparation for Ys that offer LIVESTRONG at the YMCA.  All participating Ys engage in a 6-month training period, during which their staff are trained to understand cancer and its impacts on survivors.  Those who become Instructors for LIVESTRONG at the YMCA engage in a 16-hour training that covers cancer treatments and side effects, late and long-term effects and teaches instructors how to individualize an exercise program, based on each survivor's wants, needs, and interests.  In addition, Instructors also participate in a webinar on lymphedema, led by Dr. Katie Schmitz, one of the leading researchers in exercise for those with or at risk for lymphedma.  During the 6 month training period, Ys also forge connections in the medical and cancer support community to help handle any concerns that are out of our scope of practice.  We teach Instructors to check in with all participants with or at risk for lymphedema prior to each LIVESTRONG at the YMCA class, and if any participant has concerns about signs or symptoms of lymphedema, we encourage her/him to contact a medical professional before continuing any exercise program.  All this being said, the Y is committed to offering an evidence-based, high quality and rewarding program.  If a participant comes away from our LIVESTRONG at the YMCA Program and feels like we ‘don't get it', or has experiences to share that we need to hear about (positive or negative) we'd like to hear from them.  Your input could help us do an even better job in meeting our mission and serving cancer survivors.

    Thanks!

    Ann-Hilary Heston

  • kira66715
    kira66715 Member Posts: 4,681
    edited June 2011

    I sent you a pm (personal message) about how the state Livestrong coordinator near me violated my privacy and behaved in an unprofessional manner. Katie Schmitz knows the details of what transpired.

    Kira

  • peggy_j
    peggy_j Member Posts: 1,700
    edited September 2011

    Heard about this program in another thread. Thought I've give it a bump.

  • kira66715
    kira66715 Member Posts: 4,681
    edited September 2011

    I did hear back from the local Livestrong coordinator, and we discussed the PAL weightlifting protocol, and she's the state/national rep, and didn't have it!

    She was more receptive this time, and we're scheduled to meet in a week or so.

    The first contact was a disaster. 

    If PAL was developed to be used by YMCA's, and they all have to watch a video by Katie Schmitz, then why, as certified trainers, don't they have access to the formal protocol. 

    By mistake it was up on the NLN site for a while, so I forwarded her my copy...

    Kira

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