DCIS; when will i feel better?

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becmag
becmag Member Posts: 30

Hello,

Mid-April of this year I had my first mammogram, dcis, stage 0, grade 2. Had surgery on June 11 - lumpectomy & 2 lymph nodes(no cancer) were removed. I've been fortunate to have a good team of dr's, surgeon, radiologists, nurses, etc. I've gotten the best care but its been a rollercoaster of emotions.

Right now I'm healing from the surgery. Taking pain med and getting lots of rest. I've been suffering with nausea. This week I meet with surgeon & hope that the pathology report comes back with clean margins. I'm trying to stay positive but realistic. I never thought I would be where I am now but I've learned to embrace what I now have to face.

I have good days & sometimes not so good days. I have days when I feel 'blah' but I think I am being baby about it. I know & I don't compare myself with others who may be facing stage IV cancer. I know I will most likely be ok but the journey is not one I look forward to: possible recurrence & that it may be invasive, radiation, hormonal therapy, chemo, ? .

This is my second week @ home recuperating...when did any of you feel better? I was told 4 weeks.

What about radiation? What should I prepare for?

Thanks in advace!

Becca

Comments

  • bettydaviseyez
    bettydaviseyez Member Posts: 43
    edited June 2011

    Hi there!  I received the same diagnosis.  The cancer had broken out and spread into the local breast tissue as well as my lymph nodes.  I have had two surgeries in the past month.  The first surgery, May 24th, I had my left breast removed.  I found out a week later the cancer had spread to my lymph nodes.  On June 7th, I had some more lymph nodes removed.  I don't feel the greatest every second, but I can say my recovery hasn't been so difficult.  I have all sorts of odd pains due to the nerves being messed with.  I actually still have one drain and have been wearing a doc ordered sports bra vest since May 24th.  No shower yet.  Eweuuu. I have only taken pain meds twice (vicodin) and I try to stick with motrin or Tylenol.  I am a mess on many levels, but I realize it could be much worse.  For now it's not.   I will not be having radiation.  I start chemo mid July.  I will have my right breast removed in October.  So, as you can see I am far from done. My husband had to return to Afghanistan.  He got to come home for 3 weeks for surgeries.  I miss him so I am really down about that.  Physically, I could be better.  I just tell myself everyday to get up and keep on keeping on.  So, going full circle, I am at 4 weeks this coming Tuesday.  you do feel better as each day goes by.  Don't stress.  You are so totally normal.  This is one heck of a situation to be in, and it can be so difficult mentally, physically and emotionally.  Hang in there!

  • corian68
    corian68 Member Posts: 168
    edited June 2011

    Hiya!

    Hang in there girl! Each day will get a little better. I had both mine removed in Feb. The pain was pretty brutal but after about 4 weeks I was feeling somewhat human again. ( somewhat) the strange nerve pains are pretty crazy still, I guess everything is trying to grow back. Sometimes it feels like bee stings...strange. But over all I feel great! Glad to be moving forward in life.....and enjoying it for reals...you just never know what's around the corner!!

    Live, love and love some more!!! ;)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    becmag- We have all been where you are.  Breast cancer is definitely an emotional roller coaster.  More so than just about any other type of cancer.  It affects our insides, outsides and all our emotions.  Everything you are describing sounds very normal.  Sometimes our emotions are intensified by the after effects of the anesthesia and also the pain meds.  I found I felt much better when those had worn off.  As far as the nausea I would ask your doctor to prescribe an anti-nausea to take with the pain meds.  I had to take one every time.  (The one that worked great for me was Promethazine.  It's generic, very inexpensive and worked great.  I would take it about a 1/2 hour before it was time for my pain meds.)  I hope you get good news on your path report and find no chemo is needed.  As far as the radiation the biggest thing I've heard is that fatigue hits a few weeks in.  So be prepared for that.  Do you have friends and family that could pitch in and help with meals, house keeping, etc?  Can you make meals ahead of time?  Whatever you can do to line up help now would probably be a good idea.  You may not need it but you'll feel better knowing it's there.  

    I know sometimes it seems that just because we "only" have DCIS we shouldn't be affected by this but, no matter what stage, we all share common emotions when it comes to breast cancer.  It changes so much in our lives.  It's almost like a loss of innocence that our body betrayed us that way and it's forever there in the back of our minds.  We never really get back to the way it was before.  It's different but it does get better.  But it sometimes takes awhile to get to that place.  You will find amazing support on here for as long as you need it and it really helps to talk to others who "get it" because they've been there.  (((hugs)))

  • Tildymom
    Tildymom Member Posts: 32
    edited June 2011

    Just wanted to ask, so your DCIS was a 1cm stage 0 grade 2....I understand the size and the stage but what does the grade mean?  I am still awaiting my stereotactic biopsy results...so don't know for sure what is going on in there.  Alls I know so far, is they told me I have a 2cm cluster of microcalcifications in the milk duct and suspect DCIS.  I had a FNB and showed nothing because they were unalb eto get the correct spot under US, so they ordered the core biopsy and now I wait.  Going CRAZY not knowing...all jittery inside and cant sleep well.

  • cinnamonsmiles
    cinnamonsmiles Member Posts: 779
    edited June 2011

    The American Cancer Society has really good information, easy to read yet detailed enough that explains cancer. I have never researched breastcancer.org to see what they have. Here is a link:  http://www.cancer.org/Cancer/BreastCancer/index. There should be two headings, one for detailed guide to specific breast cancers, and one an overview on where to start. I found the information extremely helpful.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    Tildymom- BCO has great information on the different grades of DCIS, too-

    There are three grades of DCIS: low or Grade I; moderate or Grade II; and high or Grade III. The lower the grade, the more closely the cancer cells resemble normal breast cells and the more slowly they grow. Sometimes it's difficult to figure out where the cells are on in the range from normal to abnormal. If the cells are in between grades, they may be called "borderline."Grade I (low grade) or Grade II (moderate grade)Grade I or low-grade DCIS cells look very similar to normal cells or atypical ductal hyperplasia cells. Grade II or moderate-grade DCIS cells grow faster than normal cells and look less like them. Grade I and Grade II DCIS tend to grow slowly and are sometimes described as "non-comedo" DCIS. The term non-comedo means that there are not many dead cancer cells in the tumor. This shows that the cancer is growing slowly, because there is enough nourishment to feed all of the cells. When a tumor grows quickly, some of its cells begin to die off.People with low-grade DCIS are at increased risk of developing invasive breast cancer in the future (after 5 years), compared to people without DCIS. Compared to people with high-grade DCIS, however, people with low-grade DCIS are less likely to have the cancer return or have a new cancer develop. If more cancer does develop, it typically takes longer for this to happen in cases of low-grade DCIS versus high-grade.There are different patterns of low-grade and moderate-grade DCIS:PapillaryPapillaryLarger VersionPapillary DCIS: The cancer cells are arranged in a finger-like pattern within the ducts. If the cells are very small, they are called micropapillary.CribriformCribriformLarger VersionCribriform DCIS: There are gaps between cancer cells in the affected breast ducts (like the pattern of holes in Swiss cheese).SolidSolidLarger VersionSolid DCIS: Cancer cells completely fill the affected breast ducts.Grade III (high-grade) DCISIn the high-grade pattern, DCIS cells tend to grow more quickly and look much different from normal, healthy breast cells. People with high-grade DCIS have a higher risk of invasive cancer, either when the DCIS is diagnosed or at some point in the future. They also have an increased risk of the cancer coming back earlier — within the first 5 years rather than after 5 years.Comedohttp://www.breastcancer.org/symptoms/types/dcis/diagnosis.jsp
  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    Just click on the link at the bottom to read "Diagnosis of DCIS" on BCO.

  • Tildymom
    Tildymom Member Posts: 32
    edited June 2011

    Thanks KATE33!!!  That is very informative!  Wish my phone would ring and just tell me yes or no....I hate waiting but want to be very informed before the call comes in.  Thanks again!!!

  • cycle-path
    cycle-path Member Posts: 1,502
    edited June 2011

    becmag -- I had a lumpectomy and SNB with IORT and was also stage 0 grade 2. I was fine after 4 weeks. By 5 weeks it was as though it had never happened. So I think the 4 week estimate is a good one.

  • becmag
    becmag Member Posts: 30
    edited June 2011

    I can't thank you all enough for your responses. It gives me some comfort knowing that I'm not alone.

    Well, I did get anti-nausea meds & it helped. I'm feeling really tired in the mornings. Friday I meet with surgeon & I will see where that will take me.

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