Dense Breasts

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  • twozzs46
    twozzs46 Member Posts: 26
    edited February 2011

    Char2010 - Wow hearing that we go back to mammos after all this is so disappointing knowing that they don't find everything in dense breasts.  I think they have some benefit because US doesn't show microcalcifications.  Why isn't both mammo and US used? Did they tell you.  Oh by the way I'm  "why" person Smile 

    So sad to hear that you had to have chemo and radiation.  I am going through radiation now.  Had 12/36 today and this is wiping me out.  I have been working full time as a nursing supervisor.  So to think that after all this I would go back to just mammos UGH!

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited February 2011

    It amazes me that in the world of today's technological advances, that mammography is still the gold standard.  

  • lago
    lago Member Posts: 17,186
    edited February 2011

    Char2010 I know where you are being treated and I am shocked.

    Have you considered maybe getting your mammograms at the place I'm being treated. Their breast imaging dept is supposed to be amazing. I wish I had been going there for my mammograms over the years. You can still continue to be treated at you center. They will send the info to the doctor that requested the mammogram as well as any other doctors you request.

  • Char2010
    Char2010 Member Posts: 532
    edited February 2011

    Hi Lago - My oncologist finally got "approval" from the head of imaging for me to get an MRI at my next 6-month follow-up.  But I bet this will be a repeat next year.  So I am planning to make an appointment with your oncologist for a second opinion.  I will probably need to switch doctors/hospitals since someone has the submit the order for the scan.

  • lago
    lago Member Posts: 17,186
    edited February 2011

    Char I'm not sure what my onc does because I don't do mammos anymore. Right now it's just physical exams I think 2X a year with her and 2X a year with my BS (which means every 3 months someone is checking). I don't think they do MRIs on me unless they suspect a problem but I might be wrong. Granted I can't have an MRI right now because I have TE's.

    I just thought that the imaging dept might recommend an MRI if they couldn't see properly on the Mammo/US. It does sound strange though with dense breasts and cancer history that they aren't doing MRIs.

  • Lou10
    Lou10 Member Posts: 332
    edited February 2011

    While I was told that I had "very dense" breasts (I now know they are >75%), which made reading mammograms and ultrasounds more difficult, I was never told this also put me at higher risk of breast cancer. I am 51 and have moderately large breasts (C/D cup).

    Talk about being a sitting duck while having diagnostic mammograms since my first mammogram in 2006! After my first mammogram I had an ultrasound of my right breast, then continued to go back for diagnostic mammograms. Found the lump in my right breast this past November, about 6 months after a diagnostic mammogram apparently was "fine".

    Was diagnosed with IDC in December. Had surgery in January and the cancer has spread to my lymph nodes with extranodal extension. The surgeon told me I can expect to have more surgery, plus chemo, radiation, herceptin therapy, etc. Will see an oncologist in about a week.

    I am so ANGRY no one told me about the higher risk of cancer with very dense breasts, or suggested an MRI (I had an MRI just before surgery that found a second suspected malignancy, which was removed, and a third, less suspicious, area of concern that will be investigated shortly). The anger is undoubtedly putting more stress on my body, so I better get a grip (hard enough dealing with fear and sadness). I'm now getting copies of everything and will ask for copies of my earlier mammograms to see what they actually said.

    UGH is right. 

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited February 2011

    I think it is medically negligent bordering on malpractice to only order mammos on women with dense breasts.

  • bevin
    bevin Member Posts: 1,902
    edited February 2011

    HI Ladies- I too was told I have very dense breasts, size B- so not huge, not too small.  I did however , know since I was young that my dense breast tissues  impacted ability to see and find cancer. My tumor was a bit over 2cm, and found in my mamogram, but my office as and uses computer aided detection on women with dense breasts.  This helped them to find it. I don't believe the human eye can easily find it in the white snow image that dense breasts shows on mamo.

    CAD should be recommended for everyone like us. 

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited February 2011

    CAD was useless on me.   I wonder what "grade" your density is?   For 4 years, I had CAD, digital, diagnostic mammos that never saw a thing.   My tumor was nearly 2 cm by the time I noticed a dimple in my breast and had it checked it out (U/S detected it, still never showed up on the mammo).

  • bevin
    bevin Member Posts: 1,902
    edited February 2011

    You know, I am not sure.  I recall the amount of dense tissue being high,I will go try and find my Mamo reports and send you a note when I do. I am certain I have those copies filed somewhere. Mine was 2cm as well, but I did skip mamo's for 3 years. I erronously thought I was safe as I had 11 years of clear mamos from 30 years old to 31 and no family history.  I think they need to change the advertising. 90% of all BC cases found each year are from people with no family history, only 10% of new cases each are are people with family history. .. I thought I was safe and didnt go.  I wonder if the CAD would have found it earlier before it got larger.  I'll never know now.  anyway - I will get back to you once I find the report.

  • lago
    lago Member Posts: 17,186
    edited February 2011

    I too had digital mammos for the last 5 years also a size A/small B. My tumor was 5.5cm (not including the DCIS part making it closer to 6.5cm) before they found it… (That's like 1/3 of my breast! I also went into that mammo/US with a bloody nipple.  Digital mammos are better but still can be useless for women with very dense tissue.

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited February 2011

    Bevin, it may not tell you on your report.   I had to ask my radiologist.   There are 4 grades. 

  • juliem25
    juliem25 Member Posts: 27
    edited April 2011

    I know this is an old post - but, I think it is a very important and interesting topic. I was wondering - at what density level should you insist on further testing? Both of my reports always list both breasts as heterogeneously dense (51-75% fibroglandular). I also have a cluster of microcalcs in one that are being watched every 6 months. IF there ever was something sinister lurking in there - would a mammo even detect it? My center uses digital and I always get the callback for magnification views. However, I often wonder what they are looking for - just a possible change in the microcalcs? Also - this sounds like a dumb question - but, which is better? An US or a MRI?

  • Rennasus
    Rennasus Member Posts: 1,267
    edited April 2011

    Just found this thread. I had dense breasts too. I had a "mass" which was detected on mammogram, but here is the clincher: It was only detected because when they reviewed it against my mammo from the year prior, they noticed a "subtle architectural distortion" and suggested US because I have family history.

    Had I not had family history, they might have just had me wait another year. 

    The bottom line: mammograms really *are* very helpful. But it is vitally important that they be reviewed against prior years to see if there are any differences. So always request a copy of your complete mammogram report (not just the page that says everything is 'OK') and read it very thoroughly. There is often language in there that can alert you to potential problems. I cannot stress enough how important it is to read these reports.

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited April 2011

    I still think for the majority of grade 3 and 4 density, they are useless.   Mine were read and compared 4 years in a row.    Women with grade 3 and 4 density cannot rely on mammos alone as their primary diagnostic screening tool. 

  • CrazyKitties
    CrazyKitties Member Posts: 180
    edited April 2011

    Yes Yes a Thousand times Yes, and it was true...my cancer was there for at least 5 years, never showed up on any test, ever, had a hunch to remove a lump, and BRAVO! Cancer...

  • diana50
    diana50 Member Posts: 2,134
    edited April 2011

    breast MRI is necessary for women with dense breasts. just returned from 6 month check up and onc ordered breast MRI . important conversation to have with your doc if you have dense breast tissue.

  • SheriBell
    SheriBell Member Posts: 393
    edited April 2011

    Add me to the list.  I had dense breasts - had 6 "clean mammos.  I lost weight last summer when I noticede the dimple in Nov 10.  Figured I just had a mammo in Feb so it must be nothing - waited for my well woman exam in Feb 11 before showing to my dr.  She freaked out and sent me immediately for a mammo - big surprise - still showed nothing.  Then ultra sound came in to the picture.  Ummm, how come I never had sonos before?  I had very dense larger breasts "D" - not a soul said a word to me about not being able to see everything.  Had a false sense of protection.  Tumor was 2.5 cm.  Had an MRI and guess what?  oh yes - another tumor found in opposite breast 9mm - stage 1.  In summary- mammos every year - I find lump - further testing shows multi focal 2.5 with 5mm satellites in right and 9mm cancer in left breast.  MAMMOGRAM NEVER SHOWED A DANG THING!

  • mebmarj
    mebmarj Member Posts: 380
    edited February 2017

    Dense breast tissue goes along with age.

    It's hard to tell some people's age at dx because it's not always mentioned in the posts. As you age and hormones decrease the tissue becomes less dense and more fat, easier to read on mammos right? so the older ladies will be diagnosed easier. That is why younger women often have more advanced cancer with very aggressive characteristics.
    So when the guidelines for mammos suggest fifty(?) that really angers me.

    I was 32. It was palpable. Mammo did see it, so did US.

    Now I'm 39. It was palpable. Mammo didn't see it. US didn't think it was malignant, but with my history, suggested biopsy. Gee, ok.



    Guess what, it was cancer, again. No family history other than myself. Nonsmoker. Active, not overweight. But I had young boobs and that got me into the club a second time.

  • ttay
    ttay Member Posts: 100
    edited May 2011

    I underwent a mammogram on 3/25/2011, and was told that nothing was detected. I felt a lump prior to the mammogram....but kept pressing the issue with my hemotologist/oncologist. He sent me on to a breast surgeon for an ultrasound. I was diagnosed on 4/19/2011, and was told by my breast surgeon that in younger (pre-menopausal) women, the breast tissue is really dense and abnormalities are hard to detect on regular mammogram.

  • mammalou
    mammalou Member Posts: 823
    edited June 2011

    I am another victim of dense breasts.  Ten years of mammograms and never saw a thing.  My breast turned red 2 weeks after a "benign" mammogram.  I really want to ask the radiologist since when does "you can't see anything" mean the same thing as "benign".  We should at least be informed of the denseness.  Here is a web site of another woman working to education woman and pass legislation requiring women to be notified of dense breasts.  When you have dense breasts, you also have a higher risk of developing breast cancer along with a high risk that the cancer won't be seen on mammogram.

  • mammalou
    mammalou Member Posts: 823
    edited June 2011

    Dense breasts don't always go with age.  Some older post menopausal women also have dense breasts.  Many younger women don't have dense breasts.  The only way to know is to see them in a mammogram.  I had dense breasts at age 20 when I had a benign biopsy and still have extremely dense breasts at age 53.

  • bettydaviseyez
    bettydaviseyez Member Posts: 43
    edited June 2011

    Mine was nto caught because of dense breast tissue.  I think it is rather common.  Myine was caught in my left breast after untrasound.  It took MRI as welI to see that it had spread to surrounding tissue. I had my left breast removed three weeks ago as well as 12 lymph nodes. After path report, doc let me knwo that the cancer had spread into the surrounding breast tissue as well as the lymph nodes. No cancer in my right breast but it is going in October.  I haven't had reconstruction yet, but the plastic surgeon in conference said if I were his wife he would tell me to remove the right breast as well cuz of dense brest tissue and a tremendous amount of fibrous lumps in there.

  • lovetorun
    lovetorun Member Posts: 33
    edited June 2011

    That would be me!  My 2 tumors were never seen on a mammo (IDC).  Only 1 tumor was seen on the ultra sound and MRI.  Wasn;t until lumpectomy we learned I had a 1.7cm AND a 1.4cm tumor.  Mammos are out for me.  Only ultra sound and MRI from now on.  Thank goodness for the clip, the radiologist had a hard time finding the tumor without it, let alone getting that wire through the tissue for the lumpectomy. 

  • Rockym
    Rockym Member Posts: 1,261
    edited July 2011

    I too have been part of the "dense tissue" breast club for a long time.  Back in 2007, I started having ultrasounds after my diagnostic mammos for a better look.  I was told that a "screening mammo" wasn't applicable to me and my OB/GYN switched my yearly orders to "diagnostic mammos."  I even had an MRI way back because I had dense breasts with cysts and lovely little things that were giving the drs. concerns.

    This was actually the first year that my doctor and I agreed to skipped the ultrasound since each year it was "same breasts, different year" and sometimes the radiologists office wanted me to come back after a diag. and do the ultrasound later.  I would get ticked because this meant two copays at $40.  I was like do them both or just leave me alone.

    This lovely June, the same deal went down, except we decided to just do the diag. mamo.  Well, when they called me back and said they wanted to do the ultrasound, I was like... not this again.  Needless to say, my .7cm is what showed up on the diagnostic mammo causing the radiologist to have me back for "more views" and then an "immediate ultrasound" and then an "immediate biopsy" that very day.  I suppose my breasts may not have been as dense OR she was just that good in her reading the first X-rays and comparing.  Either way, glad she found it (and sad too).

  • suzanneinphoenix
    suzanneinphoenix Member Posts: 208
    edited July 2011

    Unfortunately, as I aged, my breast tissue became even more dense and proliferative.  My BS told me I had "busy breasts" after I had a stereotactice breast biopsy 5 years ago on the Left breast.  I was always told my breast tissue was dense, and more challenging to read.  But I don't recall them ever saying that I was at greater risk because of it.  Knowing this.....even happier that I did the BMX

  • mammalou
    mammalou Member Posts: 823
    edited July 2011

    How funny.  My BS told me I had "busy" breasts also.  Unfortunately, I had 2 different tumors and 5 different benign conditions.

  • Patriotic
    Patriotic Member Posts: 281
    edited July 2011

    Another "dense breast" victim here. DH is really angry about my supposed "negative" mammogram 6 months prior to diagnosis. As we now know, the cancer was pretty big and was missed. I am angry because the radiologist's report was not shared with me and specifically, said that the "accuracy of mammography is reduced" because of having "heterogeneously dense breasts." This also was not shared with my OB-GYN. If it had been shared, I would have done more research and pushed for an MRI and an U/S. Also, I did not know that I had dense breasts at age 40, after having 2 children and breast-feeding. I knew they were dense at age 20. And NO ONE ever said that dense breasts put me at increased risk. These issues are all medical negligence, in my opinion. I see several doctors a year, since age 18, for check-ups. I know that things happen and medicine is certainly not an exact science. But, my BC should have been caught MUCH sooner.



    Bottom line: the MRI is the gold-standard for me. It revealed a larger area than the U/S did. It was much more accurate and specific in my case. But, it's expensive and insurance doesn't usually want to pay, unless there is a BC diagnosis. How stupid is that?

  • findingsolace
    findingsolace Member Posts: 17
    edited July 2011

    My cancer also was not picked up on screening mammogram, diagnostic mammogram and ultrasound found it "accidentally" while looking at another area, not the area in question. My question for all is..would you choose bilateral mastectomy over lumpectomy if you were faced with a decision like that due to the fact that future mammograms are not sufficient? That is my choice now for 8mm IDC found on right breast. BRCA negative, ER+PR+HER2+++. will find out about nodes during surgery.  I am concerned I may worry about recurrence but truthfully, lumpectomy is more appealing to me.

    Thanks 

  • mammalou
    mammalou Member Posts: 823
    edited July 2011

    My BS went back and looked at all my MRIs and determined that my cancer was clearly seen on MRI.  Based on this, she felt that we would be able to follow the other breast with MRIs.  She agreed that these would be the standard for me.  Bassed on this I did not do at BM.

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