May 2011 Radiation

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  • brenilea
    brenilea Member Posts: 41
    edited June 2011

    I recieve 5 total zaps.  The first and second are at the 11 o'clock spot for 15 seconds. The third at the 3 o'clock spot for 17 seconds and the final two are in my armpit area for 20 seconds. My skin is breaking down so bad that it became infected. My RO put me in the hospital for a couple of days so he could give me antibiotics through an IV. But he told me that skin in a week behind in reaction to the radiation treatments. Yesterday I recieved my 25th out of 38 treatments, so I'm getting there. Yay!!!

  • Pinkprincess
    Pinkprincess Member Posts: 280
    edited June 2011

    Congrats to all that have finished and those that are almost done:)

  • JulieH
    JulieH Member Posts: 351
    edited June 2011

    My RO, too, says the radiation has nothing to do with my aches and stiffness.  She theorized it might be a delayed reaction to the Taxol.  Of course, I'm 7 weeks PFC, so it must be really delayed . . .  Just know I'm tired of walking around like my 97-year-old grandma.

  • GabbyCal
    GabbyCal Member Posts: 277
    edited June 2011
    brenilea - I'm so sorry to hear about your skin issues. I hope you're feeling better. Hang in there.
  • slcst12
    slcst12 Member Posts: 161
    edited June 2011

    JulieH
    I'm feeling the same way. I'm home with my two boys (4 and 2) on M and F and today...thank goodness they took an awesome nap. I napped w them from 12:30 to almost 4!

    I was wiped out.

    Congratulations to all the women who will be done or are already done.
    My final day is due to be July 8th. Can't wait. My skin is really starting to suffer. I'm glad to have the weekend off.

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited June 2011

    sicst12: I finish on the 8th too -my skin is still the same pink/red as day 4, so I guess the Xclair cream they gave me is doing the trick.

    When it rains it pours.... woke up with major pain in my right arm and it hurt so bad during treatment I started crying... come to find out that it looks like tendonitis... they put me on Aleve and told me to have someone drive me on monday incase they need to give me pain meds... Could this be caused from them radiating my lymphnodes under my arm?? Ok.... I will get through this, but at the moment I'm not a happy camper.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    24/30 done...only 6 more to go! Don't ask about the scratchers lol.

    My poor underarm is magenta and I have a bright magenta area on my areola...thank heavens I only have one more whole breast session on Monday (and that it's the weekend)! Boosts starting next Tuesday and they'll set me up on Monday after my rads. I heard them talking about a bolus while I was dressing and I think they were talking about my boost setup! Surprised

    Congrats again to those who have finished and I hope the weekend brings some peace and comfort to those who are having side effects!  

  • Pinkprincess
    Pinkprincess Member Posts: 280
    edited June 2011

    Who has started your Tamox or Femara post rads and which one are you on?

  • MaggieMc2
    MaggieMc2 Member Posts: 54
    edited June 2011

    Today was my last day of radiation! I went in at 9 a.m. And again at 3:15 so that I would not have to go back on Monday. I will definitely miss my techs. They were always so cheerful. There were lots of hugs today. I made great friends in the waiting room as well. Everyone had an interesting story. If it wasn't for my poor, sore and very red radiated chest, I would have to say that - in a strange way- I will actually miss it.

    My DH calculated that we put the equivalent miles on the car of driving all the way to New Mexico since we started going to the hospital in November. Perhaps we could use that time and gas money for something less painful and a whole lot MORE fun.

    To all the brave women on the May rads boards, congratulations on making it through your part of this journey. I'm sorry that so many of you have had such a rough time. It will eventually get better. When you need encouragement, advice or a place to let off steam, you know where to come.

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited June 2011

    Maggie - Congrats!!! All you ladies are awesome troupers!!! Enjoy the weekend... I will still be here for 3 more weeks - but I am half way done!!! WooHoo!

  • sagina
    sagina Member Posts: 1,219
    edited June 2011

    Gmafoley~ I've had arm trouble for 20 years, bad.....is it swelling? I have permanent tendinitis in the elbow....ouch.....when it flares up my whole arm swells up.  It's hard to "see" it swollen sometimes but I can feel it.  My arm will feel heavy.  Right after my lumpectomy (same side as arm trouble go figure) my arm was visibly swollen - fingers would swell up if I didn't move my arm.  Radiation aggravated the arm swelling a bit, but I think it was from the positioning of the arms.

    julieH~ I had weird pains in my knee and hips about six weeks after chemo.  Happy to say now whatever it was has resolved itself.  I started to wonder if that's how I was feeling before chemo, then all the steroids they gave me during treatment made the aches feel better, and chemo head made me forget it all! lol. 

    Congrats to everyone that's done - see you on the "after radiation" threads! 

  • hopefortomorrow
    hopefortomorrow Member Posts: 193
    edited June 2011

    I have really been suffering with aches in my joints the last week. My RO says it is not related to the radiation either. I wonder now that I see so many of you are having stiffness and achiness. I do think it could be from coming off taxol too, like I read someone wrote. Just a little frustrated with my RO, I feel like she dismisses any symptoms I might have.

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited June 2011

    Sagina: My arm doesn't seem to be swelling except where everything is in spasm on the underside of my arm up where the bicep and pectoralis meet..  alot of nerve type pain ..the doc says aleve and I can put a cold compress(not ice) on it and alternate it with a warm cloth (but is afraid that would make it worse)...then gave me the warning: if you get any swelling of the arm have it checked out asap even if I have to go into emergency...  I hate when they say that! 

  • GabbyCal
    GabbyCal Member Posts: 277
    edited June 2011

    Maggie - Congratulations on finishing up!!!! Hope you and your DH went out to celebrate and you enjoy a nice break not being a patient. 

  • juliet62
    juliet62 Member Posts: 3,412
    edited June 2011

    congratulations on finishing maggie,  at least i'm half way now   17/33

  • brenilea
    brenilea Member Posts: 41
    edited June 2011

    Aw..Thank you GabbyCal..that is very nice of you. I am so glad it's the weekend, I am ready for time off. I started the tomox when I started my radiation. I think the tomox has thrown me into early menopause, I go from being very hot to freezing cold in a matter of seconds. I drive my family nuts.

    Congratulations to you, Maggie! I understand the feelings of missing the techs and people you get involved with. I have met some very wonderful people while going through this. Yesterday I rand into the my surgeon and got a hug from him. Enjoy the rest of your summer!

  • carberry
    carberry Member Posts: 1,153
    edited June 2011

    Hopefortom   My RO did not dismiss my symptoms,  but had that look on his face that said prop not the radiation.  Then what?  I am like a 95 yo walking, not taking tamox yet till after rads.  the ones that do think I'm crazy is the chemo nurses, they always said when they asked me about my SE's !is "that I am different"  Well I had the same SE as everyone else here, no different.  they need to learn their job, and study up.  i was very sick yesterday after Herceptin which usually doesnt happen, felt like chemo again, like I got the wrong drug.  Anyways, I dont really know what is what anymore, my body is just rebelling big time.

    Congrats to all who are done...now on to the healing!!

  • TonLee
    TonLee Member Posts: 2,626
    edited June 2011

    Tina,

    If they put bolus on top of already burnt skin....YOUCH!!!!  Plan on blistering at a minimum.

    The whole point of bolus is to treat the skin, once the skin is red, it IS treated.  I had an RO tell me that if the skin turns red while using bolus, it's time to remove it and leave it off...that adequate rads has been achieved in that field.  I'd REALLY ask about that, and make them show me some studies before I let them put bolus on red skin.

    Nothing on the scratchers....pfft.  Oh well.   

    I'm more sore than anything.  4 more to go!! 

    WOO HOO!!!

  • MaggieMc2
    MaggieMc2 Member Posts: 54
    edited June 2011

    I had the bolus every time. That's probably why my chest is so red!

    As far as the scratch offs go, I have won a grand total of $7.

    $33 spent on scratch offs. Reward for Throwing the last loser into the trash...priceless.....because that meant that I was done.

  • GabbyCal
    GabbyCal Member Posts: 277
    edited June 2011

    I had my last treatment on Wed and am happy to report that the rash is clearing up much faster than I expected it would. During treatment, it would start to get a little better every Monday after the week-end. Given 4 zap-free days, the healing seems to be on a roll. That said, I think I'm losing my mind. I started the Anastrozole 45 days ago and this week I started to lose my train of thought mid-sentence. I'm getting these looks of pity from friends who most certainly are thinking I've moved on to dementia. 

    I'm on board to stave off SEs through diet, exercise, vitamins, etc. but don't know what to do about the memory. And this is coming out of the clear blue.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    TonLee:  Thanks for the guidance, Obiwan!  My tumor was at the chest wall so perhaps that wasn't me they were talking about! I'll definitely quiz them if it looks like they want to do that!

    I am having trouble figuring out something...perhaps you guys can help! I've read that you continue to "cook" for a week or two after they stop but if you heal some over a weekend, then how is it you can continue to get worse and redder once they stop? That doesn't make sense to me...have I misunderstood something? Thanks!

  • NewatThis
    NewatThis Member Posts: 41
    edited June 2011

    Help.  Anyone have any experience with this? I ended up in the hospital last night. I really thought I was having a heart attack.  Couldn't catch my breath, crushing pain in my chest and left arm.  After a zillion tests, none of which I remember because of the drugs they gave me, they couldn't find anything. It wasn't my heart, wasn't a clot in my lung...the docs just thought it was swelling in my chest wall due to the radiation.  Got home this am, and slept all day today...still have discomfort but nothing like last night. 

    I hate this freakin' cancer. It makes me doubt everything I once thought about my self: that I 'm strong and unafraid.

  • ProudMom_Wife
    ProudMom_Wife Member Posts: 634
    edited June 2011
    NewatThis: Glad you are home and feeling better.  Sorry I have no experience with this.  I did want to tell you that you are strong! and yes unafraid too! because you are still fighting.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011
    NewatThis:  Holy cow! I've not heard of this on any of the forums I've read.  Which side are you or did you have radiation on? I hope you feel better quickly and have no long term effects...
  • TonLee
    TonLee Member Posts: 2,626
    edited June 2011

    Newatthis, I'm sorry, I don't know....how scary!

    Tina, that's a really great question!!  Now I am wondering the same thing because my techs said a week or two after I'll be the worst....but just like you said...I start healing over the weekend.

    Hmmmm.

    Anyone a couple weeks out??

  • hopefortomorrow
    hopefortomorrow Member Posts: 193
    edited June 2011

    NewatThis, I am feeling your pain. I totally understand about doubting everything you once knew about your body. The last few days I have really been feeling kind of down about it! For me it is Chemopause, the terrible aches and pain-I am sick of walking like an old woman, among the usual post chemo and almost post Rads treatments.

    Carberry, Thanks for sharing! It seems like my experience is the opposite of yours! My Chemo nurses and Onc were great and totally empathetic, and my Rads techs and RO treat me like, get over it, you are almost done, and the side effects are livable. It has really thrown me. Yes,  for me Rads is much easier, but it is still a new experience and I do not know what the norm is and what isn't! I was late for two appointments due to road construction, but on the other hand, I am the first after lunch appointment. Half the time I sit and wait for them to return for lunch- long story short- the RO told me maybe I should see a shrink because I might be getting depressed-my being late and napping too much is a sign of depression!  Grrrrrr!

    Does anyone else lay on their stomach? (I forget which of you do) Are you having trouble raising your arms up? (stiff and soreness?)

  • Aet
    Aet Member Posts: 2
    edited June 2011

    What are the tattoos that everyone arectalking about I go tobthe RO July 6th. I am supposed to go on vacation July 16 any chance I will have to cancel.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    Hi Aet and welcome!  We're happy to answer any questions you have.

    The tattoos are like the size of a pencil tip.  I have 5 of them, one at the top line where the radiation hits (there's like a tan line from the middle of my chest straight across to my underarm), one at the bottom under my breast, one between my breasts, one at the side of my breast and one beside my areola (although that one didn't seem to take). They seem to make them right where your breast ends and bone begins...at least on me.

    They use laser light guides to line up with these tattoo dots each time you go in (and they tug a sheet that's under you to move you up, down or to roll you in order to get you in the same position every day).  Not all ROs do them; if they don't then you'll spend weeks trying to protect the sharpie marks they will put on you.  The tats are nothing; they just put a drop of ink on you and then use a kindof hollow needle to press the ink into your skin; over in a second each and no big deal. 

  • GabbyCal
    GabbyCal Member Posts: 277
    edited June 2011

    Aet - Welcome! I will ditto what tinaj said about the tats. They're nothing and they help the whole process be more precise. I didn't even feel them when they made them and practically need a magnifying glass to find them.

    TonLee - I'm 5 days out and my rash seems to be clearing up. I've also heard there can be a delayed effect. I'm crossing my fingers that's a possibility they warn us about, but that it doesn't always happen. (BTW - the Dawn is working great on the Aquaphor grease stains. All gone!)

    NewatThis - Yikes! I hope you're feeling better and have no more attacks. Which side are they treating?

    Be well and stay strong everybody. 

  • TonLee
    TonLee Member Posts: 2,626
    edited June 2011

    Aet, I didn't have tats.  My RO doesn't do them.  They marked me with a sharpie and then covered the marks with clear stickers...that stay stuck through all kinds of things including hot flash sweating and aquaphor!  lol  Though a few got gummy and were easily replaced. 

    If you meet July 6 and start txs immediately, you go M-F everyday...so not sure how a vacation works into that....

    Gabby,

    So glad the Dawn worked for you.  It's awesome for me.  I haven't had a single stain.

    I hope I don't suffer from "delayed" reaction....That would suck so bad.  Right now I have 4 more to go and this is the first Sunday that I'm still pink..usually by Sunday I'm back to normal. 

    Thanks for the info!! 

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