Lymphedema symptoms today - Help!

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Anonymous
Anonymous Member Posts: 1,376
edited June 2014 in Lymphedema

I had 28 lymph nodes removed in February and was doing great until today. I recently got a bug bite right near my wrist (half an inch up my arm from my wristwatch). It's an angry red welt, and when I removed my watch, I discovered my arm had swollen from the bite above the watch. It's clearly lymph swelling. (Yeah, I know, I shouldn't be wearing a watch on that arm, and won't from now on.)

My physical therapist can't see me for three weeks (!), but she took a quick look and said the swelling should recover on its own with topical antibiotlcs and cortisone cream. She said to elevate my arm and gently encourage lymph flow back up my arm, but otherwise not to do much about it.

She specializes in BC patients. When I asked if this would put me at risk for long-term lymphedema, she said no. Is this correct? Is there something more I should be doing?

Thanks in advance for any help.

Comments

  • Suzybelle
    Suzybelle Member Posts: 920
    edited June 2011

    Hi, Windlass:

    Unfortunately, a bug bite, cut,  burn, or even a hard hit to an at-risk limb can bring on lymphedema.  I would do what your pt suggests for 7 to 10 days and if it hasn't resolved itself, I would call my dr. to get in with a certified LE therapist.  No offense intended, but even the best of pts who work with bc patients constantly often know very little about le (certainly less than the fabulous women on this board.). 

     Best of luck to you - there is a website that was created by several pioneers who still frequent this board - www.stepup-speakout.org.  I would check it out for additional information.

    Suzanne

  • CML0310
    CML0310 Member Posts: 75
    edited June 2011

    No idea about the long-term.  I am kinda new to this whole thing myself.  No signsof lymphedema but I did develop a cord after surgery so I have been seeing a Lymphedema PT specialist.  You might also want to try deep breathing exercises.  She said that helps to trigger the rest of the lymphatic system.  expand your stomach while you breathe in through your nose, hold it for a few seconds an release.  Hope this helps. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    Suzybelle: I think my PT actually specializes in lymphedema, so hopefully she has a clue. And thanks for the website link!

    CML: Thanks for the great advice. It feels great to breathe deep regardless of whether it helps the lymphs.

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2011

    Windlass, here's a page about how to find a well-trained lymphedema therapist, just so you know what to look for and/or what questions to ask:

    http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm

    Elevation of your arm (on the back of the couch during the day, at night on pillows) and deep breathing are great suggestions. Also, strange as it may seem, staying really well hydrated helps.

    Keep us posted! Be well,
    Binney 

     

  • mrsnjband
    mrsnjband Member Posts: 1,409
    edited June 2011

    Windlass, you might want to put a cool compress on the red area.  You might be having a bit of an allergic reaction too.  I'm allergic to bee stings. If it gets real bad you might want to get it checked out. NJ

  • kira66715
    kira66715 Member Posts: 4,681
    edited June 2011

    Windless,

    Bug bites are what triggered my LE, and it hasn't gone away--it's been 3 years, and I just had 3 nodes out.

    Everyone is different, but the fact that you're swollen shows that you have at least Stage 0 lymphedema, and deserve the full evaluation and education about LE.

    Many of us have found that even well trained PT"s vary in their clinical abilities. 

    Bug bites triggered my LE: but I managed--klutz that I am--to fracture my bad hand in the fall--and with the help of good therapists, things are under control. Talk about aggravating the situation.

    We have a page on the site: what to do while waiting for your first LE therapist appointment:

    http://www.stepup-speakout.org/How_You_Can_Cope_with_Lymphedema.htm#while%20waiting

    What to do While Waiting for Your First Appointment with a Qualified Lymphedema Therapist


    DO NOT try and treat this yourself!!! Proper professional treatment is essential to getting control of lymphedema and preventing its progression. Treatment can be expensive and inconvenient, but this condition is life long, potentially disfiguring, disabling and possibly life-threatening (if you get an infection known as cellulitis) so professional evaluation and treatment as soon as possible is essential.

    1) Get evaluated promptly by your doctor to rule out other causes for the swelling in your hand/arm, and get a referral to see a well-trained lymphedema therapist;
    2) Drink plenty of fluids -- staying well hydrated helps dilute lymph fluid and keep it moving freely;

    3) Elevate the swollen arm or hand as much as possible during the day and on pillows at night; support the arm well so that it doesn't tire;
    4) Several times a day pause and do some deep breathing -- this helps stimulate the largest lymph vessels in your body;

    5) Raise hands over head as high as is comfortable for you, three times a day, and pump fists 20 times;
    6) Call for medical help immediately if you have severe pain, redness, fever or feel ill;

    7) You can try mild compression gloves by either Sammons Preston or Isotoner® Fingerless Therapeutic Gloves if your hands and/or fingers are swollen until your appointment with your lymphedema therapist. Be sure to bring them along to your appointment;
    8) Do NOT use ACE wraps or any other wraps without the advice of your lymphedema therapist after your evaluation and your treatment plan is scheduled.

    Kira

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    Thanks for all the good advice and reassurance. The bite is healing and the swelling has gone down a lot, so I am hopefully out of the woods.

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