Survivors who have used only alternative treatments

Patzee........ROFLMAO at you!  Who brought hockey into this thread....YOU DID!  Gotta answer when you're TRYING to take a shot at me.

If it's not histrionics it's manipulation. I am trying to think of one Axis II disorder, but more than one comes to mind... 

Patzee9

You wrote: There is more bickering on here than on the Real Housewives.  Misery loves company. Seems to me you are the one wanting to bicker. I peruse this website almost daily. This is a wonderful site for information and the ladies on here are full of great advice from their own personal experiences. I very rarely post, but after seeing quite a few of your replies to the ladies on this thread and several other ones I felt the need to tell you how I perceive your posts. I think we all should treat each other with respect and courtesy because we all are here due to the same circumstance. With that being said, thank you to all the wonderful ladies on this site for sharing and caring.

I can understand why some of you who had positive nodes would not want to consider this to be metastatic disease and therefore feel the need to argue against the word "metastasis", or some form thereof, being used to describe nodal disease.  Yes, the word metastasis tends to be used primarily in conjunction with more advanced stages of disease to distant organs. However, when someone has cancer which has spread to the lymph node(s), this by definition is local metastasis.  Any spread of cancer outside of the tissue of origin is metastasis.

@susie - you're right, as usual!

MarieKelly,

Just to be clear, do you think we node-positive gals should tell people we have metastatic breast cancer? And put mets in our sig lines?

just to clarify, the rapture happened on May 21st.  I'm writing you from heaven and there's no good coffee up here.  crap.

I never got raptured.  Guess I'll have to wait it out with the zombies.

Christine, just wait around for awhile.  There are lots of women on this "Alternatives" forum who would love to discuss alternative treatments with you.

This thread, for instance, was started 4 months ago and already has 62 pages of posts.  These past few pages have been crazy, but I'm sure if you scan the rest of the thread, you'll find something useful.

In the meantime, I think everyone is hoping the storm passes.

otter

Beeb:  I was wondering about that also.  There are a lot of costs associated with administering the chemotherapy, and I guess the onc charges to cover all of it.  Don't know what their net profit would be.

Christine:  This thread does go off subject quite a bit.  I remember early on there was a big discussion about AIDS . . . .but it's always interesting.

I would like to see your questions answered.  That person said in an earlier post she was directed to an oncologist only once.  This makes me wonder . . . do many alternative people not even go to oncologists?  I can't imagine having an aggressive disease like this, and not seeing an oncologist.   

Patzee, your profile says you joined BCO on May 6th, about 41 or 42 days ago, or 7 weeks.  So it's a little odd to hear you say anyone has "been a bully here for a while."

I have known Bluedahlia for 4 years -- and she's not a bully.  Period.  She just calls it like she sees it.  You know, you could always put the people you don't care for on "ignore."

BTW, this thread was started by a woman with a specific diagnosis, and I believe she was asking for input from survivors with a diagnosis similar to hers -- Stage 3 and HER2+.  The experiences of "survivors who have used only alternative treatments" but who are earlier stage, and most importantly, HER2-negative, are not particularly relevant to this thread either.

The question still stands. Is there anyone out there who is Satge III and HER2 +who has only used alternative treatment? If there is she has missed this thread or her posts are buried somewhere in the last 62 pages because I have not see anyone with those stats post on this thread.

If there are no posts from someone with those stats, I see a few possibilities. Noone with those stats posts on bco, they have all missed this thread or their choice of treatment failed for them.

I do not have the answer. I have tried to stay out of this discussion because I am only Stage I and have nothing to offer the OP  because of that and my choice of treatment but I am curious as to why nobody with those stats has posted.  

Rosemary, Interestingly, earlier in this thread we kept asking that (different people at different times). Why no one comes forward is anyone's speculation. I can imagine that if that person exists they would not post on BCO. This is a very pro-protocol treatment board. And that person probably does exist. I am sure there are BC patients who will not even do surgery, just as there are Christian scientists who will sooner die than agree to a transfusion.

The OP said that she got some PMs from people but I can't recall if these people were actually BC patients with her profile. But things got very testy here at the mere mention of non-chemo options specifically. And so it became a thread about chemo efficacy and, to a lesser extent, Herceptin. I found the OPs posts incredibly moving and intelligent. She strikes me as a thoughtful person and a courageous one.