Crazy Sexy Cancer in Seattle
Comments
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So Ladies, long time since I have posted here. Unfortunately I have a newly diagnosed friend who is looking for a great breast cancer surgeon. I went back through the pages and couldn't find a discussion about surgeons. Could I get some suggestions from you ladies? She lives down near Puyallup but is perfectly willing to travel to Seattle to get care. Thanks!
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I feel Dr. James Hanson at Swedish is an amazing breast cancer surgeon. I had a great surgical and post surgical experience, took only one pain pill after surgery and have constantly been told what beautiful surgery I had....It is hard to find my scars (truly)....
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Thanks so much raincitygirl!
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I also had Jim Hanson and thought he was fantastic. Also I've heard very good things about the two other surgeons in that same office at Swedish: Claire Buchanan and Dr. Beatty. Good luck to her!
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Dr J David Beatty is my BS and i really love him, although i only had a lumpectomy. He did a great job, you can barely see one of my scars and he has a great bedside manner and sense of humor. He's at Swedish Hosp., both madison and cherry hill.
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I too had Dr.Beatty .I love him and his sense of humor. I had a right side masectomy, I feel he did a wonderful job and after care has been great too. FYI I have Dr. Goodman as my ONC and he's great too.
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My surgeon is also Dr. Beatty, but I have not had surgery yet as I am doing neoadjuvent, so I am glad to hear all the positive info about him!
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Hi Libby - I love my surgeon - Dr Rick Clarfeld at Overlake in Bellevue. He has an awesome rep and I've been back to see him over the past two years for looks at various lumps and what-nots. Two thumbs up!! I know several gals from Seattle who have come across the lake to see him.
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Hi Ladies - it has been a really long time. Hope everyone is doing well. I missed the Komen race 6/5 as well...it's a busy time of year, no? Looking forward to some good summer weather!
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I too used Dr. Clarefeld at Overlake. He is an amazing Dr. and very well known in Seattle as he used to work there too. He is an amazing person with an awesome bedside manner. fwiw-everytime someone saw my chest and port, they asked what surgeon did this because he did such a great job.
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Thanks everyone for your input!
I too had Dr. Clarfeld and was very impressed and would recommend him without question. And Gina, good to see your post! Hope all is well.
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Hi Ladies;
I was diagnosed last Friday. I'm 28 yrs old with two children. I'm having a double masectomy. Has anyone else had one? What are your opinions? I begin chemo at the end of August, after surgery and am super scared about chemo. Is it terrible? Are the nurses nice? these questions seem soo silly but I'd rather know what to expect. I'm being treated at the SCCA.
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jwaldher
I'm so sorry about your diagnosis. I was supposed to have a consult at SCCA but then found my surgeon at Swedish and went with them for treatment. The staff there was AWESOME. I think that is true for all the places you might go in Seattle---we are lucky to have excellent staff.
I did not have to do chemo so i can't really help you there. I think response is very personal---no two women respond exactly the same. I do think that with all the treatments we receive, keeping ourselves fit and exercising helps our bodies recover faster. I know that when I did zaps, I didn't have half the SEs I expected.
How old are your children? Swedish had some options for children dealing with parents with cancer. I didn't use them because I didn't have chemo so my kids did not have my BC in their face but if I ever had to do chemo, I would sign them up. Also you might want to check about a support group for yourself--sometimes its good to have a coffee with someone who just knows what you are talking about.
hang in there and sorry you have joined the club.....
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Jwaldher, I too am sorry you have to join this club. I also went to Swedish and i loved all my doctors. I have a friend who has Multiple Myeloma and he is going to SCCA and is very happy with them. I'm sure they will be fine. I wanted to respond to you because i had chemo and rads. I don't know what kind of chemo you are having, but i had 4x DD AC and then 12xAbraxane and i was really scared of it also. It's not that bad, in fact nothing was as bad as i had in my mind. The AC was the hardest, just very very tired. I went back to work while i did the Abraxane. Everyone is different, but they have good meds for the side effects. It has been a little over a year since my diagnosis and i can't believe how fast it went by. It will for you too. I'm almost back to normal, whatever that is.
Here's wishing you all the Good Luck in the world!!!
Pam
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jwalder-So sorry that you are here, but this website has so wonderful for me. I did not go to SCCA, but have heard good things about them. I actually started my treatment out at Overlake and then switched to Swedish for my follow-up care.
This whole journey is so scary. What I found along the way was the most scarey part of the journey was the unknown of each stage-ie, the biopsy, the mastecomy, the chemo, the rads, dealing with my two young kids throughout all this. But, once part of each stage was taken, the fearfulness eased up tons. I chose to have a dbl masectomy (left side prophylactically) and really, it wasn't nearly as rough as I thought it would be. Chemo also wasn't nearly as hard as I thought it was going to be either. As for the rads, it was just a huge time inconvenience more than anything else. Each body is different, but they have wonderful meds to help you through.
This is a great web-site, and there is also another great support group for younger women with breast Cancer. Young Survival Coalition. These women were amazing too.
Hang in there,
V
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Thanks for the encouraging words ladies, I appreciate them! Knowing that others in Seattle are surviving and overcoming is lifting my downtrodden spirit. And it is good to live in the PNW where there is excellent care and proactive research on combating/curing BC.
My mind is at a lose on what else to say. I beginning to see that it is one day at a time, and sometimes one hour at a time. Accepting the facts is very difficult. I keep thinking, this can't be me! Yet it is. For now it is focusing on today and leaving tomorrow to tomorrow.
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Hello, this is my first post here. I got my diagnosis in June on the last day of school (hello sh*tty summer!) and have been on the treadmill of tests, doc visits and research ever since.
I was glad to see the good posts about Hanson, as he's my surgeon. I tried to get an appt with Buchanan but she wasn't available for several weeks. I also saw Christine Lee at Swedish, who I really liked, but I felt that Hanson had a better grasp of my tests and my individual situation.
At this point I'm deciding between lumpectomy+radiation and bilateral mastectomy. I only have a small tumor in one breast but my breasts are very dense, don't image well (cancer didn't show up in mammo or MRI) and I am not sure I can tolerate not knowing if it will recur and if it will be caught. However, the things I have been reading about the mastectomy/reconstruction recovery are terrifying -- so many problems people have had.
I'm really struggling with the decision, so if you were in a similar place, I'd love to talk to you. I have another appt with Hanson on Monday 8/1 to set my surgery plan so I've only got a few days left to decide.
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Hello, this is my first post here. I got my diagnosis in June on the last day of school (hello sh*tty summer!) and have been on the treadmill of tests, doc visits and research ever since. I was glad to see the good posts about Hanson, as he's my surgeon. I tried to get an appt with Buchanan but she wasn't available for several weeks. I also saw Christine Lee at Swedish, who I really liked, but I felt that Hanson had a better grasp of my tests and my individual situation.At this point I'm deciding between lumpectomy+radiation and bilateral mastectomy. I only have a small tumor in one breast but my breasts are very dense, don't image well (cancer didn't show up in mammo or MRI) and I am not sure I can tolerate not knowing if it will recur and if it will be caught. However, the things I have been reading about the mastectomy/reconstruction recovery are terrifying -- so many problems people have had. I'm really struggling with the decision, so if you were in a similar place, I'd love to talk to you. I have another appt with Hanson on Monday 8/1 to set my surgery plan so I've only got a few days left to decide.
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dawmson - I also had Dr. Hanson as I mentioned above. I chose lumpectomy with Dr Hanson's encouragement based on the success rate being virtually identical. I figured I could always have a mastectomy later. I also have very dense breasts. PM me if you have any questions I can help with....best wishes!
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I was in a similiar place. I could have chose lumpectomy, but chose bmx. I wanted to avoid radiation as the tumor was on the left atop my heart. I was a candidate for nipple sparing so that helped. I had dense breasts and was"young" for bc (43) and didn't want to go through years of biopsies. I had my bmx Nov '10 and was done with reconstruction last April. I took off 4 weeks for the bmx and less than a week for the "implant exchange surgery". No problems and no regrets...so far.
It's a very personal decision and I wish you speedy healing no matter what route you choose.
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Jwaldher -- A neighbor of mine went to SCCA and thought the staff was top notch. It has an excellent reputation. I ended up at Swedish, like many on this thread, I see, and have had wonderful care. I was very worried about chemo too but got through it fine. I was kind of careful and didn't over-do it. I have kids and that summer I had chemo we just had kids go through the garage to the back yard, and did not have other kids in the house. Another mom told me she had a big bottle of hand sanitizer and any kid who came in the house had to do that first. A nurse told me, "Now is not the time to go to the theatre." So I avoided big crowds. Be sure and drink lots of water (which they will tell you to do) especially the day of chemo. You will find it's easier than you thought. Hang in there! You can do it!
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Hello Jwaldher and ladies...
I hope you are feeling well. I was diagnosed at 34 with IBC. I had a double mastectomy with Dr. Beatty at Swedish. He is excellent! Lately I have been busy living life and planning DIEP recon. I had a routine PET/CT on thursday and I have mets to spine and pelvis, so I am not sure what that means for my plans. I will see the onc on Monday after work and I'm hoping since it's all bone mets that I can do Herceptin and Zometa and no chemo. I also take Tamoxifen. I'm 36 now and just when I was getting back into the swing of life... my future is uncertain again. Best to you all! xoxo
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Hi all! Any chance a former Seattlite ('95-''98) and former Alaskan who now lives in Spokane can join you? I had a consult with breast surgeon here this past week and was so upset by the appointment that I am considering coming to Seattle for surgery...
I just felt pressured regarding reconstruction. I am having BMX done. I don't want TEs and am considering BRAVA instead. I just don't want to face possible complications from TEs when I know I will need radiation.
Neoadjuvant chemo is going fine...just 1/2 way through and feeling like the rest of the road is long. -
Cheers 247,
I'm sorry your PET scan showed mets. But I'm hoping Zometa and Herceptin will help. I have been on Zometa for a couple years and it doesn't really have any side effects for me. I'm so sorry you have to live with the uncertainty now, it IS difficult. It is one of the hardest things, and one thing I think we all have to face once we've been diagnosed. But hang in there. We are all pulling for you! Blessings to you!! And keep us posted as to how it's all going.
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Cheers247-Oh my gosh! I'm so sorry to hear your news. How devastating for you to have to go through all of it again. We are praying for you of course. I'm with Madge24 on the Zometa. No side effects for me at all except for the first time when I felt a little flu-like for a day or so. Hang in there and keep us posted.
Deep2deep-of course you can join us! Hoping things go well for you wherever you are. You have to be comfortable with your doctors because you certainly spend a lot of time with them.
Hope all are doing well.
Tracy
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Jessica, I'm so sorry to hear your news. As it was a routine pet scan I am hoping that you are not in any pain. As Madge and Tracy have said, we are all here to support you, and pray with you. You have a great oncologist, who will have a fierce plan to get you back to NED.
Deep2deep - as Tracy said, welcome! Halfway thru chemo is great. I would definitely come to Seattle to more opinions on reconstruction. You should be able to explore all options.
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Jessica, I am so sorry about the mets. I have followed your story as you live close to me (I am in Issaquh) and I felt a connection. I hope they found it soon and you are able to stay ahead of the train.
I am scheduled to have my "exchange" surgery on Sept 13th (2 weeks from today). I am excited to be at the end of the deconstruction then reconstruction.
Any thought of getting together in October. It has been quite some time since we have all met up!
Happy Labor Day.
Lorrie
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Welcome newbies! I think it is high time to get together and meet all our new faces. How is October shaping up?
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Hi, just popping in to say I had my lumpectomy and SNB at Swedish on Tuesday. I think it went well - we'll know more next week when the path results come back.
I've had very little pain but a lot of swelling, and today the back of my upper arm is numb. I'm hoping that will go away! The nurse says it's prob related to the SNB.
I'm new to the group but frosty1 I love the idea of getting together. I'll be in radiation in October (I assume) so I won't be traveling much.
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Hi Ladies, I'm new here but I grew up in Bellevue and live in Snohomish. Glad to see there is a group for us PNW gals.
I had a bmx on 6/30 and am scheduled for a diep on Nov. 28th. They called today to schedule a routine CT scan so the PS can map out my blood vessels for surgery. Although I knew I'd be having this scan, I'm now freaked out and scared that they might find mets or something. "Scanxiety", I suppose. Ugh, I hate all these tests and the waiting for results is torture.
Cheers247- I'm so sorry to hear about your mets. As Issymom said, hopefully finding them early will keep you ahead of the train. I'm going to remember that to ease my stress knowing that finding them is better than having them and not finding them till later.
The scan is next Friday and I'm going to do my best not to stress out about it. Wish me luck.
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