Any 3c survivor stories out there?

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  • Suze35
    Suze35 Member Posts: 1,045
    edited May 2011

    Alex - I'm in a weird spot. I'm on day 11 of 33 total rads, then will be starting a chemo/Avastin combo on 6/27 in an effort to improve my odds. I had a ton of disease after neo-adjuvant chemo as it stopped working, but no mets yet, unless you count my supraclavicular node which is being treated with radiation. So my onc is being very aggressive. I get scared that I'll never get a break from treatment sometimes :(.

  • alexanjb
    alexanjb Member Posts: 304
    edited May 2011

    Suze 35,The treatment does seem to go on forever.  I think rads especially does because it is every day.  But before you know it, it will be over and that is a little stunning and scary in itself to suddenly be on your own so much.  Yes, there are follow ups but not like the 20 questions before treatment each time.

     Godsgirl-I am a one year TN Stage 3c fluke and hope to keep on flukin.  You must be doing something right.  Any advice?

  • Suze35
    Suze35 Member Posts: 1,045
    edited May 2011
  • bak94
    bak94 Member Posts: 1,846
    edited May 2011

    Hi Suze35, thank you for bumping this. Survivors are out there, just busy living their lives! It is a hard day today, but it will be better. I go for my second ac tomorrow and I think I have a bit of anxiety over that also. I worry that the cancer is not shrinking, even though I have a good feeling about it and my breast seems to be a bit smaller, Never could feel the tumor, but breast did start to look a bit larger right before diagnoses. Are you done with rads? Weren't you doing more chemo after rads? Have you decided which chemo? Hope you are feeling good.

  • bak94
    bak94 Member Posts: 1,846
    edited May 2011

    Oh, Suze35, I just read your may 11 post and it answered my questions!

  • Titan
    Titan Member Posts: 2,956
    edited May 2011

    Hey ladies.not Stage 3 but I'm here anyway..with TN...sometimes I wonder if it really matters what stage you are??

    Anyway...you guys keep "flukin"...may we all keep "flukin"

  • Rburke1
    Rburke1 Member Posts: 7
    edited May 2011

    Hi all I am 2 years out last month from my last round of Chemo. TN  Brac 2 positive, I saw my doctor every 3 months first 2 years but now every 6 months. Really makes me nervous. I stress on every little ache and pain, Internet is not my friend. Need to read less and live more. How often does everybody go for check up??  Thanks

  • redgrldj
    redgrldj Member Posts: 8
    edited June 2011

    I was first diagnosed stage 2b in May of 2008, just passed my 3 year anniversary of a survivor.... But in Nov of 2010 I had a cough and they found the same TN BC in my right lung... I have had 6 tx of Carbo/gems and it seems to be working... I am now Stage 4 but plan on fighting this with all I have in me..

  • Braveheart
    Braveheart Member Posts: 66
    edited June 2011

    5 month survivor here! just finished chemo! Overall doing good.

  • Southamptonmom
    Southamptonmom Member Posts: 491
    edited June 2011

    I am newly diagnosed IIIb 5/27/11. Although I have a feeling it is more like IIIc. I do remember reading the initial path report that showed invasion into breast tissue with multiple nodes and skin involvement.  My regular mammo did not show tumor, but it did showed many lymph nodes, so initially they biopsied the a node which showed ER- PR- Her2+. PET showed diffuse right breast CA with 2 small areas behind the nipple. Got a call yesterday that the main tumors that they found on MRI/Ultrasound were TNBC. I started AC last week with lots of nausea day 3/4, and a better nausea plan for next time. I'll find out today if my treatment will change at all. Was going to do ACx4 over 8 weeks, TCHx12 weeks, then surgery/rads, then finish out year with H. This is a roller coaster ride. Thought I had myself in check, but it is so hard. You women are ALL an inspiration for so many. Keep it going we need each and every one of you.

  • aprincess
    aprincess Member Posts: 1
    edited June 2011

    Hello, I am new to this this site.  I am 1 year and 3mths into this battle.  I too am triple neg.  I am very glad I came across this website.  I am from an area with limited access to support groups.  Now, that I have a clearer understanding of what is means to have TNBC I find myself in a bigger need to be surrounded by people that understand my struggle.  Thanks for being here!

  • alexanjb
    alexanjb Member Posts: 304
    edited June 2011

    I was 1 year in March.  I am TNBC. 

    I had a uni-SIEA reconstruction 2 wks ago. 

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