Breastcancer.org: Bone Health Section

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Moderators
Moderators Member Posts: 25,912
edited September 2021 in Bone Health and Bone Loss

For some great information, check out Breastcancer.org's Bone Health section.

Hope this helps!

--The Mods

Comments

  • hymil
    hymil Member Posts: 826
    edited June 2011
    Hey we got our own forum area Hooray!  Thanks, mods Smile
  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited June 2011

    I'm still working my way through the articles.  Shame they aren't linked though.

    I'm hoping people will see the new section and use it now the mods have been so kind as to start it for us. 

  • otter
    otter Member Posts: 6,099
    edited June 2011

    Thanks, Heidi -- live links are better, and yours work nicely. Those articles are a great start for those of us who need general information. 

    The second article does a nice job of explaining what a DEXA bone scan is, and how the results are interpreted.  There's even a picture of the screen results/printout from the scanner.  The fourth article provides quite a bit of detail on the treatment options, including the "SERMS" (e.g., tamoxifen and Evista), bisphosphonates, and the newest treatment option -- "denosumab" (Prolia), which is a monoclonal antibody that's injected subcutaneously.

    I'm hoping we will get more threads going in the next few days.  I have some links to medical articles and editorials I'll dust off in the next few days; I'll post the useful ones.

    otter

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited June 2011

    I want to direct you to the work of Dr Miriam Nelson of Tufts.  She did the pioneering work in strength training and the importance of staying fit as we age.  This is a summary from work done more than 20 years ago.  It made a major impression on me at the time as was reviewed in Prevention Magazine.

    This is from the Strong Women website:

    My study followed 40 postmenopausal women for a year. All
    were healthy, but sedentary; none was taking hormones. Half the volunteers - the
    control group - simply maintained their usual lifestyle. The others came to the
    Tufts University laboratories twice a week and lifted weights.

    Most women begin to lose bone and muscle mass at about age
    40; in part because of this, they start to slow down. And that's exactly what
    happened to the women who didn't exercise. One sedentary year later, their
    muscles and bones had aged, and they were even less active than before.

    The women who lifted weights changed too - but in the
    opposite direction. After one year of strength training, their bodies were 15
    to 20 years more youthful.

    • They became stronger - often even stronger than when they
      were younger.
    • Without drugs, they regained bone, helping to prevent
      osteoporosis.
    • Their balance and flexibility improved.
    • They were leaner and trimmer, though eating as much as
      ever.
    • The women were so energized, they became 27 percent more
      active.
  • otter
    otter Member Posts: 6,099
    edited June 2011

    Claire, I have an idea.  How about starting a new thread on this new "Bones" forum, dealing with exercise and weight-lifting as a way to maintain bone density and/or combat bone loss?  You could just copy-and-paste your post (above) and make it the O.P. on that new thread.

    I think the issue of weight training to combat the effects of aging is important enough to have it stand alone as a thread/topic, rather than have it buried in this general "informational" thread.  Okay?

    otter

  • KayeBG
    KayeBG Member Posts: 2
    edited June 2011

    I would love to see a forum titled Bones-Weight Training or something like that for us to exchange info.  Glad I spotted this thread.  I want to do this, but am concerned about doing it "right" especially because I am already having lyphemdema issues and I do not trust the over zealous young trainers at our health club.

    kayebe

  • LtotheK
    LtotheK Member Posts: 2,095
    edited June 2011

    KayeBG, I'm am with you.  Would love to get a trainer in place, but super-wary of the LE potential issues!

  • Annabella58
    Annabella58 Member Posts: 2,466
    edited February 2012

    How about us lat flap ladies?  I have plenty of strength, but if I overuse my left arm, my breast distorts.  (under the muscle and thin rads skins)

    How can we lift weights?  If I do, the "iron bra" comes back.

  • Rosieo
    Rosieo Member Posts: 262
    edited April 2014

    Hi everyone

    Need advice!! My last dexa scan figures went down.  My oncologist and primary want me to

    take something prescribed for this.  My primary suggests Prolia.  I have read from people that take

    it on the Prolia website but I would rather speak to some of you ladies on here.  

    Thanks 

    Rosieo

  • spendygirl
    spendygirl Member Posts: 231
    edited April 2014

    Hi Rosieo.  I've learned that not even many doctors are familiar with Prolia yet, so I wanted to tell you what I know.  I had my first Prolia injection in December, 2012.  To be honest, I didn't really have any side effects.  I was a little more tired than usual, but I was blaming it on Femara.  When I went for my next injection six months later, I was informed that my insurance would not cover it because of the cost.  So I had to take Fosamax.  I could only tolerate it for 7 weeks.  I had debilitating back pain, so much so that I was convinced I had mets somewhere.  Coincidentally, my tumor markers went up at the same time.  Had a bone scan, everything was fine.  Onc took me off that for a month, then went on to take Actonel.  It was not quite as bad but the same exact symptoms.  I decided I would rather risk a fracture than feel like that all the time.  After failing two oral bisphosphinates, my insurance covered Prolia and I had an injection in January.  Again, fatigue - but really no other side effects.  So at least for me, this is tolerable.  I'll have a Dexa scan this month to see if it's working.

    Good luck to you and if you have any other questions, I'll be happy to tell you anything I know.  

    Tracye

  • Ratherbecooking
    Ratherbecooking Member Posts: 42
    edited May 2016

    I am hoping someone can give me advice on the Prolia injection and fibromyalgia. It is being recommended to me while taking Arimidex since my bone density is decreasing, but I am very concerned that it will cause a spike in fibromyalgia symptoms.

    Does anyone here have muscular/skeletal pain issues and has used Prolia successfully or with SE?

    Thank you in advance.

  • Actionaunty
    Actionaunty Member Posts: 16
    edited September 2021

    Hi Ladies

    I started having Denosumab [prolia] injections in January this year and they have worked really well making my bones much stronger.   Before diagnosis of metastases in pelvis when sitting in the bath I felt my coccyx very sharp and  I was uncomfortable on sitting in a chair without a cushion.  I already knew I was osteopenic and Denosumab has made a difference without any noticeable side effects.  I can recommend it .  

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