Cellulitus
Just spent a week in the hospital with cellutlius. They could bnot find anything to have caused this, I do have LE nothing severe. The antibiotics to treat it IV was was horriable. I just got a teeny cut on my right pinky finget and I am paranoid its going to happen again. I put peroxide on it an a band aid to help with any infection. Has anyone else had this happen to them?
Comments
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No but I have neosporin and band-aids with me at all times. So far so good. My LE is mild but it does not like this humidity.
BTW love the "power surges" I'm lucky though my circuit breaker is working great now. No more surges.
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YOU ARE TO NEVER PUT PEROXIDE IT!! I READ THAT IT KEEPS THE INFECTION IN OR SOMETHING.. CHECK OUT LYMPADEMA ON WEB!!
DID YOU U HAVE RADS?? THAT CAUSES THE BREAKAGE IN YOUR SKIN AND GETS BACTERIA IN AREAS THAT YOU DO NOT REALIZE. I HAD THE SAME PROBLEM!!
USE BUG SPRAY AND BE CAREFUL!! IT IS HARD. WEAR GLOVES .. LONG SLEEVES AND NOW GO TO A PHYSICAL THERAPIST WHO IS CERTIFIED IN LYMPHADEMA AND MAKE SURE YOU GET HEALTHY AS POSSIBLE. REMEMBE DO NOT WAIT TO GO TO THE ER... IT WILL NOT GO AWAY. I LEARNED THE HARD WAY!!! VERY PAINFUL AND 102 TEMP AND THE RADIATION DOC STILL MADE ME GET RADS!! SHE WAS A LOOSER!! ALWAYS USE SOME ANTI BACTERIA STUFF .. DO NOT USE PEROXIDE!!! I KNOW HOW YOU FEEL. SORRY ABOUT YOUR BOUT.. SO NOW YOU HAVE TO PAY MORE ATTENTIONS TO EVERYTHING!!! .. COULD OF BEEN A SPIDER BITE OR ANYTHING AT ALL...
ALSO WITH ALL THAT SAID TRY NOT TO GO TOO CRAZY JUST HAVE STUFF READY..
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What happends if you have a mole that needs to be removed from your LE arm? I had a mole removed about a month ago (had 19 nodes removed) I was papranoid that I would get an infection. I have to get 2 more removed from that same arm.
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Vettegal, hello!
Bummer on the cellulitis!
I'm just glad you're on the mend now and being alert to any potential repeats.
Here's a page on medical emergencies with lymphedema that might help:
http://www.stepup-speakout.org/Emergencies_and_Medical_Care_lymphedema.htmA lot of us with lymphedema keep oral antibiotics on hand, with our doctors' blessing, so that any sign of infection can be treated at once. (NOT any cut, just any sign of infection. You treat the cut, then keep an eye on it, and you use the antibiotics only if you see the start of an infection.) The caveat on that is to call the prescribing doctor as soon as possible if you ever have to start them. Don't think I've ever heard anything about not using peroxide before so I don't know what that's about, but personally I always keep antiseptic wipes and bandaids with me so I can deal promptly with any skin breaks, whether bug bites or hang nails or paper cuts or something more drastic.
It's pretty common with lymphedema for there not to be any obvious reason for the infection.
One cause that's sometimes theorized is microscopic skin breaks from dryness, so daily use of a good moisturizer is one of the points of the skin care that's part of Complete Decongestive Therapy.
I don't know if you've done a therapy intensive with a well-qualified lymphedema therapist, but if not, that has been shown to reduce the incidence of cellulitis (and that reduction is one of the main reasons for doing it!
) Even if you have, you might want to see your therapist again to update your self-care skills and get her/his take on your situation.
If you do have repeat cellulitis episodes it can help to see an Infectious Disease specialist, but make sure the one you see has experience with lymphedema-related infections so he/she is on top of the elevated risk we have.
Gosh! Stay well!
Tell us how we can help.
Binney -
Sanbar, at the bottom of that page I linked to above is a section about dealing with procedures like that on a lymphema arm. Hope it helps.
Be well!
Binney -
Vettegal,
In Pittsburgh, Magee Hospital has a lymphedema clinic, with a Dr. Attilla Soran who runs it.
The problem with LE, is that even if it's mild, you're a set up for cellulitis. I just read an article in the most recent newsletter from the National Lymphedema Network, about a woman who had recurrent bouts of cellulitis, and Dr Paula Stewart got her into intensive treatment, and she stopped getting infections and her arm did beautifully. It's easy to ignore LE--who wants to deal with it--but once you've gotten cellulitis, you realize how dangerous it is to ignore it.
Kira
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I had cellulitis back in April... that I am pretty certain started with an upper respiratory infection. There were no other points of entrance. I keep my arm moisturized and wash every knick and cut with soap and warm water, then follow up with a bandaid with bacitracin at any sign of infection (redness, heat, swelling). My husband makes fun of me, but the last time I ignored a cut on my finger I ended up with streaking up my hand - and had to hurry and get some antibiotic ointment on it! I have never ever heard about the peroxide thing, but I can tell you that in general we don't like to use peroxide for wound therapy because it can inhibit healing. You are better off washing a cut out thoroughly with soap and water... having said that, though, I have been known to use peroxide if something looks like it is getting infected - followed by the antibiotic ointment and a bandaid. I am pretty certain I must be single handedly contributing to multiple bacteria becoming resistant to antibiotics! I hope you start feeling better soon.
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I did do some LE maassage therapy a few years ago. Then I had a hysterectomy and you know how it is...crap happens and I moved on with life. I use the sleeve when I fly on a plane. I wear gloves when I work in the yard. I hibernate from the sun in the AC those damn hot flashes. I may need ti moisturize more. When I was in the hospital they had a hard time with my IV. I got poked 8 times in 4 days cause the anibiotic made my veins collaspe. Thanks for the responses.
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Bad times vettegal. Well done for the moving on. - keep it going!
Sanbar, i suppose with the mole you have to question whether it really needs to come off, is it malignant or just plain ugly, does it catch on your sleeve edge and keep getting infected, etc, and then balance the risk of removing it from the risk of leaving it in place. Also there's more than one way to remove moles and skin lesions depending on their shape and depth, could they maybe tie it off at the base, or freeze it off like they do with verrucas? Or laser? although the results might not be so pretty as cutting out an ellipse. Would look for a second opinion on the options.
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Its just scary to think I almost have to do a mini panic everytime I get a cut or scratch. The girls @ work finally figured out why..Lymph nodes help fight infection and when I am missin 34! Duh...lol
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I had a very similar experience about a month ago. I only had 2 nodes out and about a 10 months after treatment had some cording and very mild lymphedema which resolved. Out of the blue my breast became swollen and red. I was on Clindamycin for 4 days, in the hospital for 2 days on IV Vancomycin, and then 8 days on oral Zyvox. I was 2.5 years out from treatment and totally taken by surprise by the cellulitis. Like you the doctors could not find a point of entry. My oncologist said that it all likeliehood it was spread through my blood stream. As she so eloquently put it, when you brush your teeth you release a flood of bacteria and if conditions are right that bacteria gets into your blood and finds a nice warm spot to reproduce.. An interrupted lymph systems offers a great place for the bacteria to incubate. I would have answered sooner but I have been laid flat from a C Diff infection secondary to all the antibiotics I took..... I was taking a probiotic while on antibiotics, but it obviously did not do the trick. After some research I have found the best probiotic to take is Florastor, it's been proven to help irradicate C Diff. Vettegal, I hope you are feeling well by now and are well on the road to recovery.
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Knowledge, hope you're feeling better. C diff on top of cellulitis--that stinks. When did you get sick?
Kira
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Vettegal, there's more to it than the missing lymph nodes. When the warm, protein-rich lymph fluid sits around in your tissues because it's not getting moved out, it's like a nursery for bacteria.
The major medical benefit of all the LE care we do is NOT that it makes our arms look more normal in size and texture (if that was all there was to it we could learn to live with that!) -- it's that the stagnant lymph fluid makes us a target for serious infections that can become systemic and even life-threatening in a remarkably short time. Making the effort to keep that lymph fluid moving is our best protection.
LE is a lifestyle thing -- meaning it's going to affect your lifestyle whether you make room for it or not.
Soooo glad you're getting on top of it now and can look forward to fewer complications ahead -- tell us how we can help!
Gentle hugs,
Binney -
vettegal: wow ..in hospital for a week. Glad to hear you are doing better. I am so happy to have read this post. I now know to keep neosporin and bandaids with me. I might also ask my gp for some "onhand antibiotics" in the event I have a problem.. Is is amoxicillin that some of you are carrying?
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njb, I'm packin' Augmenten, and I ain't afraid to use it (said with a swagger, a ten-gallon hat, and my snakeskin cowboy boots).
Binney -
LOL!
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