Standard Treatment of Lymphedema--Kinesio Taping

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  • Outfield
    Outfield Member Posts: 1,109
    edited June 2011

    I would be interested in others' experience with using this.  I have been using it on my trunk for a couple months, but more recently developed lymphedema in my arm.  My tries at putting it on my arm were dismal failures - the long strands kept coming loose, then I would have to take it off, then my skin got irritated where the base of the web was applied.  I gave up when I had the skin irritation, but if anybody had any tricks I might try it again.  The link is useful, but there is no way I'd have access to the amount of training described.

  • BeckySharp
    BeckySharp Member Posts: 935
    edited June 2011

    My therapist was taping me and showing me how to do it.  I tried once myself (on my breast) and was unable to do so.  I have a new therapist and she said she will help me try next week.  I think it is  hard to do yourself at first.  Somewhere I saw a book that showed you how to tape.  I think I saw it when I googled kineseo tape.  It was expensive though.  I think Suzybelle tapes her arm.

  • Suzybelle
    Suzybelle Member Posts: 920
    edited June 2011

    Hi, Ladies:

    I use kinesio tape on my right arm and side - I have le in the right arm, and truncal le in my right side. 

    Outfield, it takes a lot of practice, and you need to get with a certified le therapist who knows how  to use kinesio tape for le.  If you don't know what you're doing, you can easily make the le worse with the tape, as the tape basically herds and corrals your lymphatic fluid to go where the tape tells it to go.  I use the tape with a barrier because I'm also allergic to the adhesive.  You can use milk of magnesia as a barrier, but the best barrier I've found is by Smith and Nephew.  It comes in a spray or they sell it as individual wipes.  Bandages Plus sells the spray form.  Lymphedema Products doesn't have the spray but they have some wipes that are not quite as good, but are serviceable. 

    Feel free to pm me if you have more questions.  I no longer wear compression garments during the day - they seemed to aggravate my le.  I strictly use the tape, and I wrap during the day a couple of times a week and wear the big oven mitt at night.  I do all this along with using a flexi-touch machine and doing mld.

  • pil
    pil Member Posts: 315
    edited June 2011

    Thank you Suzybelle for sharing.  I think its good to know if not only in a pinch.

  • Outfield
    Outfield Member Posts: 1,109
    edited June 2011

    Yes, thanks Suzybelle. 

    I had kind of figured you could make it worse because my longest-lasting attempt did trap some fluid in lines on my forearm. I followed the therapist's directions, but I couldn't say I've been trained.  What I do on my chest seems to be working, but that's so much simpler to apply since I can use both hands and for some reason it sticks much better there.

    I just do not have access to the type of training I see described on this board.  I am wondering about flying somewhere (the closest major metropolitan areas are 6 hour drives from here).   But I couldn't do that for repeated sessions.

  • FaithFollower
    FaithFollower Member Posts: 49
    edited June 2011

    Help w/Kinesio tape - I convinced my NLN LE-Cert PT to use Kinesio tape for my breast/chest but I'm not sure if she's doing it right. Does anyone have prior experience on where the anchors should be placed and the like? She relentlessly insistents I find a compression garment in the shape of a tube top - just pick something up at Victoria Secret...I'm a 32-H pre-LE! So frustrating. I've seen another LE PT who said I didn't need treatment and am consulting with yet another PT next week. I can feel the fluid backing up into my arm which was already treated. Thnx ladies

  • Outfield
    Outfield Member Posts: 1,109
    edited June 2011

    FaithFollower,

    I didn't get good instruction and still haven't figured out my arm, but I've been using it on my chest for maybe 3 months.  I had slightly better instruction for that but it's also much easier because you can use both hands.  I had a BMX and am flat-chested; I don't know how I'd manage over a breast.  My anchors are near my groin and the opposite axilla.  

  • FaithFollower
    FaithFollower Member Posts: 49
    edited June 2011

    Thanks Outfield! Back to the drawing board.

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