MARCH 2010 Rads Group
Comments
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So glad to hear all was well, 3monstmama!
I'm up next, I think-Friday, June 3rd. Bad boob only this time. It still is more tender than the other one, a year+ out from rads. I wonder if that will ever go away? I don't think I'll need pain pills, though, just some ibuprofen in advance. The pain pills sound kind of fun though....
Mary
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Congratulations, 3monstmama, I'll take boring everytime!!!!
Good luck, YramAL/Mary!!!!
Got nothing new to report, thankfully, at least not until my Aug. '11 mammo but I did want to bump this thread up because you all will always be important to me. We laughed, cried, shared, and slam dunked through every one of those zaps.
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Starting to get a little nervous about my mammogram on Friday. I think what makes me most nervous is that my cancer totally hit me out of the blue. No lump that I could feel(even when I knew it was there) and no family history or risk factors. It was discovered on a routine mammogram. I'm grateful that it was, but I don't really trust my own body or instincts anymore.
Everyone please send me postive thoughts about 2:00 PM Pacific Time on Friday.
Thanks,
Mary
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Mary - I'll send you the positive thoughts as I head out the door from work on Friday at 5:00 PM Eastern Time!!
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Mary, I will certainly be thinking positive thoughts at you.
Where do you get your mammogram? Will you be downtown?
Did you ever get the pain pills? You might even consider one of those calm your nerve pills --my surgeon gave me those before my biopsy.
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3monstmama-I go to the Breast Center at NW Hospital. I'm guessing from your past posts that you go to Swedish?
I don't think I'll need the pain pills. My breast is still somewhat sore, even a year+ out from the end of rads, but it's not that bad. I'll see how I do this time, and if I freak out too much, I'll ask for the nerve pills next time.
Thanks all for the positive thoughts.
Mary
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Mary,
yes, I am at Swedish. Is this your first post treatment mammogram? What made my poor boobie hurt was the squashing of the mammogram--they were fine as far as the zaps and the like. Pre-surgery mammograms were uncomfortable but it didn't hurt. I am thinking maybe it was from the scar tissue? Not sure but I was really glad that I got drugs for the next check-up and I'm really not much of a drugs person.
keeping my fingers crossed for you!
jenn
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Jenn-
No, this is actually my 3rd mammogram on the "bad" boob since finishing rads last April. Previous 2 have been just fine and I'm hoping this one is as well. I have one every 6 months on the "bad" boob, and every year on the other one. I don't know why I'm still sore, but I'm assuming it's from the rads-the gift that keeps on giving.
Thanks for the crossed fingers.
Mary
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Hey Mary,
I have the same set-up only I keep trying to pretend I never had the stupid experience. I would think that the time it would have hurt was the first two and not at this point. I would guess any sorenesses is scar tissue related---I'm sure your doctors like mine told you that it actually takes a year to heal [both for rads and surgery] even when the outside is looking fine.
Think of something really fun to do for yourself to celebrate when its over---perhaps an outting with a girlfriend? excuse to buy yourself a treat? works for me!
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Woo hoo! All clear! Now back to our regularly scheduled programming.
Mary
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Good news Mary...thanks for sharing! Now you can celebrate and have a great weekend!!!
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Hurrah Mary! Have a great weekend enjoying all the sunshine.
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Wonderful news, Mary. Thanks for sharing, nothing better than reading a happy post from my rad sisters!
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I know I'm not the only one here coming up on the 2nd anniversary of their diagnosis. Mine is Dec. 7th-Pearl Harbor Day. I'll be having my next mammogram on Dec. 5th. This time it's on both breasts, and I'm starting to get a little anxious. I can't believe I used to be so calm about getting my annual mammogram before I was diagnosed with BC.
Mary
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Mary - good luck with your mammogram on Dec. 7th. We'll be thinking of you.
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Hey Mary,
more good luck wishes for your upcoming scan. I just passed my 2 year cancerversary--November 16? 17? honestly I forget the exact date. I also find I get very nervous about my mammograms---part of me is always convinced they will find something. Plus because of the scar tissue, it hurts like hell which it never did before.
The answer: drugs. I got meds from my oncologist which deal with the pain and help with the worrying. For anyone stressing about their mammograms, I would encourage a call to the oncologist.
Drugs are the answer!

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On another note, just this past Tuesday (the one right before American Thanksgiving) my 83 year old mother was diagnosised with ovarian cancer. She had been experiencing a lot of abdominal pain and a lot of symptoms of "something" and they finally sent her for a contrast CT. I guess she lit the thing up like a Christmas tree. Unfortunately, because of the holiday, thats really all we know. She was not able to see a doctor on Wednesday and won't find out details until Monday.
I am not with her. Our relationship is strained at best and she is more often than not, down right mean to me. She is not alone--my godbrother is there and she loves him like a son. I feel awful for him as he thinks of her as a second mother and his mother died of ovarian cancer roughly 20 years ago. My guilt level goes up and down but I am coping with that part.
What I am coping with less is the absolute terror as to myself and my own stupid ovaries. I never did the genetic testing---my children are not biological, there was no other cancer in the family of this nature so what was the point? And now here she is with ovarian cancer. And I am feeling like someone tucked a bomb in my abdomin. I tried reading about her cancer --to get some sort of feel for what stage she might be--but kept getting caught up in thinking some of the symptoms were things that fit me.
I have always been scared of ovarian cancer--nothing like watching someone die from it to make you fear it--but told myself it was illogical because there wasn't any in my immediate family. And kept telling myself that when I got my BC diagnosis---no ovarian in the family, nothing to be scared of, no reason to freak. And now I can't tell myself that anymore.
I have an ultra sound scheduled for Wednesday. It will be followed by the CA125 blood test. The following week I have an appointment with the surgeon and the yanking of the ovaries (or as I said it when I made all the calls within hours of my mother's diagnosis, the little fuckers are coming out NOW!) will take place on the 16th.
In the meantime, holding on by my fingernails.
hugs to all.
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3monstmama-
I'm so sorry to hear of your mother's diagnosis. I don't blame you one bit for being ready to get rid of your ovaries, once and for all. Are you going to have them removed no matter what the result of your CA125 test is? I'm glad you're able to get in for an ultrasound right away, and hopefully put your mind at ease.
The mother of my best friend since kindergarten died from ovarian cancer when she(the mom) was 59. It was not an easy thing for her and her family to go through. My friend and her sister have both had their ovaries removed-I don't think either one had the CA125 test, though. They had other issues-endometriosis-so insurance paid for their surgeries.
Please let us know the results of your tests. I'll be thinking of you.
Mary
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I'm having a pelvic ultrasound myself this coming Tuesday. I haven't had a period since chemo ended in Feb. 2010 but had some spotting today. My GP said to call if I have any bleeding at all. So when I called today, she wanted me to have an ultrasound right away. I feel crampy like my period and am hoping this is nothing.
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Sugar77-that seems a little odd, but I don't think it's totally unheard of to start your periods after such a long time.
I didn't have chemo, but I have been on Tamoxifen for about 18 months now. I'm 51 years old and I"m still having my period, but the time between my periods has been anywhere from 3 1/2 weeks all the way up to 12 weeks. When the interval is longer, I get a lot of pelvic pressure and cramping until my period actually starts.
Mary
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ok girls, i found you:) i had rads last year from jan- march had to take about 10 days off because of burns. My question is has anyone had the side effect of tightness from collar bone to below imframmatory crease. What it actually feels like is you are wearing an iron bra! I went to see my original ps yesterday and he said all this is caused by my radiated tissue,and i also have cc stage 2 but my tightness is not just the implant as i said. He also said it may get better but basically its will always be there! i was going to have reconstruction again(not with him ) but thinking whats the piont the pain will stiil be there does anyone else have this?
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beacher4209
I have noticed some tightness on the radiated side--left side and under my arm,not so high as the collar bone-- when I am doing yoga. its not all the time and its hard to descibe but for lack of better words, it feels like a piece of saran wrap stretched too tightly over a pan of leftovers. What I find curious is that I don't notice it all the time.
Sugar77 Any report on the pelvic ultrasound? no advice, just many hugs. -I had a hysterectomy in 2004 so no periods to compare.
YramAL thanks for the words. The little f*(kers (as I have come to think of them) are so very gone, regardless of results of testing. I am set for a laproscopic procedure on the 15th. I call it my christmas present to me!
As for my mother, doctors are now unclear as to whether her cancer is ovarian or bowel and they can't do a biopsy to figure it out because she is on plavix and needs to be off for X days before any procedure. So very frustrating ---everything is delayed more because of that and will continue to be delayed when we hit the next round of holidays. Add to the mix that she is giving us hardship/grief about coming out here to be treated near family. At one point she actually told my godbrother that if she had less than 6 months, she would just stay where she was but if it was more than 6 months well then she would come here for treatment. As used to her harsh words and selfishness as I ought to be after 50 years, that hurt. Not for me as much but for the monsters. My MIL ---a tremendously awesome woman--was just gobsmacked that anyone would choose not to be with their family at the end of their life.
What it comes down to is that my mother is a hoarder--not that anyone who ever only saw her on the outside of her house would ever guess. We have been trying to get her to move closer to us for years but she doesn't want to leave the hoard.I will be taking care of me---getting the time bombs removed and making a nice Christmas for my monsters. I can't deal with the stress of trying desperately to help someone who doesn't really want any help so as long as she stays on the East Coast, she is on her own.
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beacher4209-I too,have tightness on my radiated side, from about underarm down to the bottom of my ribs. I can feel it pull if I stretch too high, too fast.
Sugar77-Please let us know how your test went today.....
3monstmama-When I'm sick, I don't want anyone around me. I know they mean well, but I would just rather nurse my wounds in private. Maybe your mom is the same way? I do remember your stories about your mom's hoarding-I'm sure that has something to do with it as well. Maybe all to do with it. Do you ever watch "Hoarders"? The people on that show are frequently asked, "Do you want your family or your stuff?" They hesitate every time......and some actually chose their stuff. Best of luck with your surgery-be sure to get those monsters and Mr. monster to help you as much as possible with the holiday preparations.
Mary
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Hi 3 monstamoma and Mary Do you mind if i ask if either of you have implants? maybe my implants are what makes my pulling constant and sometimes it feels like a steel bar is in there turn .
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No-I do not have implants.
Mary
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Hi, I had the ultrasound today. While the technician couldn't tell me much...she said she "got everything she needed and what she got was good"...then she smiled and said "you know what I mean!". The actual report will come in 4 business days but I felt pretty good when I left. Thanks for asking.
I'm glad to see this thread active and I love to keep in touch with all of you. Remember the slam dunk? Lol
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Sugar77-I do remember the slam dunk! I'm so glad you feel like your ultrasound was good. I have not had a period for 8 weeks now and things are getting a little congested feeling. My periods are very irregular these days, but my FSH levels continue to be pre-menopausal. My next blood test is next Monday(same day as my mammo) so maybe they will be different this time.
Mary
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sugar77 so glad to hear your scan was good. Thats awesome news! I am off to my tests in about half an hour. here's hoping your luck is catching.
beacher 4209--no implants here either, just lumpectomy.
yramAL---I've watched Hoarders--first time I watched I cried. There was something about finding out my family was not the only one like that. And regretably. it would be her hesitating if asked to choose between family and stuff. I wish the problem was that she wanted to be sick alone but its not. Its that she wants her hoard more than she wants Sunday dinner with her grandchildren. One hell of a concept to wrap the brain around. . . . -
3monstmama-My husband refuses to watch "Hoarders". He says it hits too close to home. His mom is quite the hoarder. We've moved her into progressively smaller places over the years, as her financial state worsened, and each move was excruciating as far as getting rid of stuff. And she would fill each new place as the years went by. She's now in assisted living because she has dementia, and she tries her darndest to hoard there too. She's quite often tuned out of the real world, but the one subject that will bring her back to the present time is her "stuff". I swear she can hear us kids talking about some old crappy stuff she had years ago, from across the room, and her attention immediately snaps to what we are talking about. Her "stuff"!
I'm hoping sugar77 good luck is catching too-my mammo and blood tests are on Monday.
Mary
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YramAL
tossing sugar77s good luck your way---just spoke to doctor and my CA125 was 9.9!!!!!

Can't tell you what a relief that was---when they did the scan they found one cyst on the left ovary--the last cyst the little bugger will ever get!--so I have been chewing my fingernails since then and chewed even more when I spoke to my mother's new oncologist and was told her CA125 was over 7500.
I understand your husband's view completely. I have the same feeling about the show. My godbrother is currently on the East coast with my mother. (She has always treated him like a mom should treat a son and this is really hard for him, not just the ovarian cancer but learning that she is a Hoarder.) We are working together to keep her out of her house, now that she's in the hospital. Today he showed photos of his house to the hospital social worker.
We didn't know how else to make certain she couldn't go back there.Keep us posted on your mammo!
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Hey ladies! Long time no talk. We always seem to circle back around during testing time. Do you know what? I am supposed to schedule my test for December, but get so nervous about it that I am waiting until January. I want stress-less holiday season before I have to deal with all that emotional baggage. I sure am glad that Sugar's results came back well, and I wish everyone the same success. It's truly nail biting time.
I had a unique, funny, strange experience 2 weeks ago. Went into my dermo because I found yet another strange mole, this time on the nipple of my radiated breast. She took one look at it and told me it was a CLOGGED pore, i.e. a ZIT???? And proceeded to squeeze the ever loving mother out of it. "Yep, it's a clogged pore, you have pores on every surface of your body". Ughhhhhhh. Why was it a clogged pore on my BC side???? I try not to think about it too much, but it does cause me a bit of worry.
Good thing was she performed an entire body scan and found a precancerous mole on my back. Cancer, cancer, cancer. Yikes. Just thinking about the possibilities fills me with dread.
Ladies, I hope you are having a WONDERFUL, slam dunk kind of holiday season!!!!
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