Disentangeling the past
Couldn't find a better place to put this.....it is a sort of a moving beyond story, all in all.
I was diagnosed in December, specifically Dec 21, 2010. On Dec 21, 1990, we brought my mother home from the hospital to die (of breast cancer). My first appointment with my oncologist was January 14, 2011. My mother died January 14, 1991. My husband and I were driving home from the oncologist, and it was a beautiful day - we could see the Alps (I now live in Switzerland, my mother died in Pittsburgh PA). I had this weird sensation, like a puff of air, a pull, and when I looked at the time, it was a little after 4 in the afternoon, my mother died a little after 10 (same time of day though when you incorporate the time change).My diagnosis and treatment decisions seem to be bracketed by my mother's experience...
So for a while, I felt really good about this - as though I knew my mother was still there, but my story didn't have to be the same as hers. And in fact, her diagnosis was a lot different - she was diagnoised in 1986, after she'd had the lump for a while (we don't know how long), and she had 9/19 positive nodes, a large tumor and radical masectomy. Chemo was not recommended at the time. In 1989, they found mets and started rads and chemo, but it was a downward course, especially the last 6 months. Bone to brain. My sister and I were lucky enough to be able to care for her in the last few months (plus some aunts and hospice), and we were with her when she died. It was moving, peaceful, natural. But haunting.
Back to the present. My dx is much better - stage IIa, no nodes or mets, and I'm having chemo now, will have rads and then onto armidex. I'm 56, my mom was 59. I was able to have a lumpectomy.
I finished the first part of chemo - anthracyclines, and had a bit of depression, low counts, neurtopenia, and infections after the very last course. I've been tired. When I look in the mirror, especially around my eyes, sometimes I see my mother's face. It haunts me. Now that I'm on taxol, I seem to tolerate it far better, and most of the time I know that my mother's dx is not mine, and neither is her px. I know that rationally, but sometimes emotionally, it's very very difficult to disentangle myself from her. I guess shared features make it hard.
I guess I need time, and well, if the worst happens at some point, i know I've done what I can. But it's difficult - and I'm really very new to this.
I don't like "cancer survivor" and I don't like the metaphor of "war" within my body. Not sure how to frame it.
So I keep living each day, staying in the present. The germans say "Luck in unluckiness" and it seems that I have some of that - I do have a good px.
So do others of you have similar stories, and how have you disentangled yourself from the past?
Comments
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Edot.. I am bumping this up so others might chime in. Prayers and thoughts to you and thanks for also posting about your infusion room etiquette!
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Edot,
I guess you could say I had a similar situation in a way. My mom also died from BC 5 years before I was diognosed. She also never had mammagrams, and chose to ignore the lump till it was really big, also had many nodes involved. She was 79, I was 56 like you when I found mine with my yearly mammo. Mom also had a hard time the last 6 months. Chemo was very hard on her. She died at home, and had such good care from hospice. Family was there at the end. It was peaceful and beautiful.
I also feel she is looking down on me, and so thankful I went to the Dr. for my yearly mammos. I know she wants me to live a long life filled with joy, and not worrying constantly about BC. I agree at times I find myself thinking about the future with fear. At those times I turn to my family for the love and support I need, as well as one very good friend who is also dealing with cancer although a different kind. I am so thankful I do have her at those times.
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edot,
Your post brought tears to my eyes. It would be impossible to not see the parallels in your and your mother's breast cancer. I don't believe in mystical intervention in our real lives but it would be impossible to not make that leap. BUT a lot has happened in the past 20 years of breast cancer treatment and research. From diagnosing earlier to anti-hormonals to more targeted radiation treatments... you have access to treatment that was not available to your mother.
I don't really look like my mother but every once in a while when I glance in a mirror I will catch a glimpse of her. It always surprises me. It is my sincere hope that the look in "the" eyes is one of love and comfort, sympathy for what you are going through, a little guilt that she might have passed the risk on to you perhaps, but most of all, the undying love that a mother has for her child.
I wish you comfort and confidence.
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Does it have to be a cancer disentangling? Because while not a cancer story, the following event(s) defined for me both the serendipitous and the inevitable nature of life:
My mama led an amazing life, yet it was tortured by what was then called schizophrenia and manic depression. After a lifetime of attempts, she succeeded in killing herself with a cocktail of barbiturates and wine, on Oct. 2, 2000. She had just finished a visit to see my brother, with whom she was very close. The maid at the hotel found her sitting up in bed, lamp on, book in hand.
Three weeks to the day, my sister-in-law found my brother sitting up in bed, lamp on, book in hand, dead of an aneurysm.
I know my mother took him with her. She had not been able to protect him from some horrible events in childhood that continued to haunt him as an adult, and I believe this was her way of giving him peace.
My mama did the best she could, considering her state of mind. Through all this cancer &@$ ,
I hear her voice, her tears, her support, and it helps me through. -
I wanted to post that I've been thinking about this a lot - and rethnking it. A couple things have come to mind.
First, I made a list of all of the things that were different between myself and my mother, and I focused on that - especially in terms of our dx and px. And I have to thank my mother for the experience of being with her, because I did learn a lot. I also have to let go of survivor guilt - I wish I knew then what I know now, but that's simply impossible.
The other thing, that I've just come to realize is that I really look forward to my chemotherapy. I've completed 6 of 12 taxols and it's not bad. My hair is coming back - it looks funny, like 5'oclock shadow on my head.
So I've come to realize that rather than fighting cancer, I love myself enough to do the best I can to care for myself and to get the best care for myself (although I don't think I can ever become a vegan ;-p).
I think I've found my answer too to the cancer survivor, war against cancer thing... love is always better than war. So maybe rather than separating myself from the past, just consider what I've learned from it and be thankful.
Deep thought for the morning.
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Hi
I just lost my brother 2 years older than me and of course my childhood playmate to lung cancer and I am currently on chemo myself. Very heart retching to see, and quite a reality check.
He was not diagnosed till stage 4 with mets to the brain. I was responsible for his care for the last year, that last 6 months he spent in Hospice fighting for life. Needless to say I am crushed that his chemo did not work. The stress of it all combined with the high pressure and stress of my work , I believe contributed to my recurrence.
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Merilee
I'm so sorry to hear about your brother. It must be really difficult to deal with that. I was working on a dissertation and frustrated by it when I had my diagnosis.
I wish I knew more about protecting ourselves from stress - I think it does influence disease, but I don't think we understand enough about the impact of stress on disease. And, we still have to work, care for our families, etc.
I hope your treatment goes well though, and you find some peace about your brother.
best
e.
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