Starting Chemo April 2009
Comments
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Thanks for sharing that Amy - I think anything is worth trying. Glad you had a good weekend.
We went to see the Memorial Day Parade in DC yesterday which was great! It was extremely hot though, but worth it. Then we went paddle boating to try and cool off a bit. Back at work today which is always hard after a long weekend.
Lena - hope you are feeling ok this week.
Have a good day everyone, hugs, Judy x
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Well Judy, I wouldn't go as far as to say I'm "comfortable" yet, it's just BETTER and EASIER to not have the drains. Showering is possible, yes, and I went back to taking showers, but it's not "normal" yet either. I can't use my "scrubby"; I have to keep my body turned as much as possible away from the shower flow so it doesn't directly "hit" me in the chest, and I have to bend down to wash and condition my hair because I can't raise my arms up that high. But it's better than not being able to shower at all, and it's enough to keep the BO away (although I find I've had a lot less of that since my estrogen dried up)! I guess it'll just take some more time. But then again, it hasn't even been two weeks yet since I had surgery. I suppose given THAT, yeah I'm doing GREAT. But comfortable -- not there yet...PADDLE BOATING? I used to LOVE paddle boating. That, and my strong-water-pressure shower, are the only things I "miss" from where I used to live; the park where I used to go for my walks was just about immediately next door to my apt building, and it had a lake with paddle boating. I suppose there's places to paddle-boat here but haven't found 'em yet.
Amy -- Glad you didn't have to "do" drains. LOL
Helen -- has your weather improved any?
Finally, finally FINALLY the weather totally "broke" this weekend -- it got sunny and WARM!! I planted most of my container garden this weekend (I'm deliberately waiting another couple weeks to plant the cherry tomatoes). Other than that I was mostly lazy. Saturday night me and my Pack Rat went out for pizza and watched Firefly. Today was still gorgeous so I walked to the pharmacy to renew my Wellbutrin prescription, and found 99-cents each red "wooden roses" which actually look pretty real. They'll do for Pasteurella's until the zinnias grow....IF the zinnias grow. I used to be great with house plants in my teens, but I never got to do any kind of outdoor plants or gardening at all until now. Oh and speaking of house plants, Solfegietto likes being outside in his own pot with dirt now.
Tomorrow -- studded snow tires come off, so it'll be a Pack Rat day. He'll be over for lunch, after eating we go to the tire place, and then, oh wow, I thought he'd probably go back home to finish his workday but when he called this afternoon he said he'd rather just come back to my house and work here. What good timing, too -- I had no idea. The day before he works from here, I usually move "everything" over to the iBook so he can sit at my desk and use my big monitor; I take the iBook downstairs. Well as it happens, this morning I decided I wanted to be outside on the porch today so I did the iBook updating already. So all I have to do now is just stay out here on the porch! LOL...well, OK, I do think I want to straighten up a little in there, and I know I want to sweep up and straighten up on the porch too, not just sit here being lazy on the iBook.
On that note, think I'll say "catch you all next time" and go downstairs to get the broom and dustpan....
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Lena - I really enjoyed reading your post and hearing what you are up to. It is great that you can enjoy the outdoors, I am finding it too hot here in MD for that unfortunately.
I have an Onc appt this afternoon, hope everything will be ok. I will update you later on.
Hugs, Judy x
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Am back from my appt and everything was ok.
Judy x
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Hi all,
I think if I went back just a few pages on this blog I would find all of us complaining (no, more like bi**hing) about the COLD, so with that in mind I am enjoying this beautiful, ergo mightily warm, June day!
Lena - I admire anyone who actually can grow anything, and that includes wooden roses..I'm quite sure I would find a way to ruin them as well...now, pictures of pretty flowers I could probably handle
Glad to hear that while you are not comfortable, and yes, only two weeks from surgery you are doing amazingly well, that things are improving.
Helen - school is almosr over!! Retirement around the corner!!!
Titan - are you ok - don't think I've "seen" you here in a bit.
Betsy - thinking of you, how are you coping?
Amy - I'll have to remember the telephone pole trick next time my mind wanders to that nasty place of fears.
To anyone else I might have missed mentioning, here's a great big "HELLO"
Geri
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Ohhhhhh myyyyyy....... :::::faints:::::
I don't believe it.....guess what me and my Pack Rat did this evening......
Apparently he decided we should celebrate Hump Day, and he started up! Yes....THAT!!!!! Not that I didn't um.... appreciate his...skills, but part of the reason (other than body image issues: I still look like I was too recently dissected) I hadn't tried to start anything up is because, well, any contact with my chest still hurts. Like I can only give "little" hugs, not big full frontal hugs (and no way am I ready to get totally buck naked and jump on top of him; frankly the thought of doing that actually makes me shudder!). I couldn't imagine how we'd be ABLE to "do anything" until I at least reached the point where I could painlessly give big hugs again...well...leave it to my Pack Rat I guess, to find a way! (yeah my T-shirt was still on and only the night-light was on)...He found a way for us to do it which made zero contact with my chest and maximal contact everyplace else. Weirdly enough, he had HIS T-shirt on too.
I'll tell you this much though -- I could NEVER have been that FLEXIBLE if I was still taking AIs!
Ummmm...so how come he's the one who's unconscious and I'm the one who just had an operation? LOL
So glad your appointment was OK, Judy.
Betsy? Helen? How are you two doing?
Geri -- well, whether I still have a green thumb or not is yet to be determined. Even if all of my plantings end up growing (which would shock me), it'll be close to 2 weeks for me to find out -- germination on all of them is 10-14 days. And oh yes, isn't the warm weather GORGEOUS!
Catch you next time.....
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Ummmm oh yeah.... snow tires are off my car now. LOL
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Did you all say "warm gorgeous weather"???? It's still winter here...rainy and cold. I can not recall a spring that has been so dreary. We didn't have a cold winter like you...but OMG the water has not let up. It's truly black clouds most of the time. I can hardly wait for things to dry up a bit.
I'm doing ok. Actually better than I expected. I was explaining to my sister tonight...of course you are depressed think of what has happened over the past three years. We have had six family members die (both parents, the rest are all of our aunts and uncles), both of us have gone through a cancer scare, her family is falling apart (possible divorce). I said talk about stress...we are off the charts. So it's ok to grieve, it's time to grieve, we have a right to grieve. By just saying those words I felt much better.
Amy I liked your post.
Titan...when is the wedding???? I bet she is busy being the mother of the bride. Showers, etc. At least I hope that's what you are up to.
Lena I planted my garden last week between rain showers. I had to put cloches on my tomatoes otherwise it will be a summer of green tomatoes for me. Of course, I love fried green tomatoes (the movie too) so if the cloches don't work I will still be happy. I lost all my artichoke plants this year, so I need to replace them but the soil is too wet. I love how gnarly artichoke plants look plus they are really good to eat. One year I stripped all the leaves off and let the artichoke bloom, it was like a living sculpture. I love gardening, it's very therapeutic to me, even with my gimpy arm.
It's getting late so I need to sign off. Hugs and happy hump
day to all.
Betsy
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Lena...you go girl. That wild activity will generate endorphins for sure, plus remind you of the pleasures that still lie ahead in your future. God bless the PR!
Betsy..what are cloches? -
Funny you mention the endorphins, Amy. My chest was totally "quiet" for maybe half an hour or 45 mins after the Hump Day festivities. All day yesterday, actually all day the last couple of days until a little way into them, my chest had been feeling what I call "kind of raw," which means "doesn't hurt enough to justify pain pills, but hurts enough to be noticeable. Today is also "kind of raw." I think today's post surgical recovery improvement was more in terms of range of motion/what I can do physically rather than a reduction in pain -- I did the laundry this morning! Almost all by myself, too, once my Pack Rat carried the laundry basket to the trunk of my car (he always does that if he's here when I want to do wash). The only help I had to ask for was to ask the laundromat lady to close the washers for me (they have to be pushed hard, held in and locked; honestly I found them difficult BEFORE the BMX so I wasn't shocked I couldn't do them at all today). Anyway yeah it was kind of like taking a post-surgical shower, i.e., I can do it effectively but with accommodations. I was able to do more than I expected, like I can close the trunk of my car if I stand up on tiptoes so I don't have to reach up so high, and, I used the "lower" dryers instead of the "upper" ones, which I usually use to spare my back (and waist/knees from bending down when I was on AIs). And, I had to bring the basket of clean clothes up in "steps" -- (a) out of the car on to a kitchen chair...rest... (b) pick it up, lean it on the couch by the staircase and rest....then (c) up the stairs, put it on the end table. Prior to surgery I'd do that in a straight run to "get it over with." Not today though!
Oh and I entered my May weights (plus did some math to calculate for the days I didn't actually weigh myself, i.e., from the day after surgery until the morning after the drains came out) into my computer chart and YAY!!! Found out I held a steady average of 122 pounds all month with absolutely NO obsessive calorie counting and NO meal pre-planning like I had to do to lose weight -- I went up a little in March and down a little in April adjusting to "knowing" how much food I could eat for a maintenance level. This morning's scale weight 121.2. So cool, I learned how much food my body needs for me to eat this past year. (AND I have room for CHEESECAKE on my birthday).
Um. Speaking of food, it's lunchtime! Later all!
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I have really enjoyed all the posts over the last day or so.
Lena - good to hear that things are getting back on track
!!!
Betsy - really happy to hear from you - you really have been through so much and it is ok to let that take it's toll on you. Sending you (((((Hugs))))).
Today is a gorgeous day outside - Betsy, I am sending you some virtual sunshine : - )
Hugs to all, Judy x
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I bench pressed `100 lbs today. It was very exciting. Of course I wanted to share my news with my April sisters.
Love to all -
Amy
ps. Weightlifting aside, I am going to have cheesecake on my birthday too. SO MUCH better than birthday cake, IMO.
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I'm on board for the cheesecake, but birthday is not until November - oh well, I'll just celebrate Amy and Lena's birthdays
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Titan - where are you...busy Im sure, but do stop by to let us know all is ok.
Beautiful day - and Betsy, like Judy, I am sending you sunshine!
Geri
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Oooh AMY!! Another cheesecake lover! Woo-HOO! When's your birthday -- sorry I forgot if you told us. Damn chemo brain is forever; most of my marbles are back by now but apparently not 100%. Mine's June 9th (next Thursday). Actually the celebration will have to be the weekend of the 11th since the 9th falls out in my Pack Rat's office workweek (and his job is likely to get weirder too). Well I guess it was more important he had time to take me for surgery and to get my drains out and such. Well I guess all you can keep up that major bench pressing to help you work the cheesecake off at least. I can't bench press, I guess I'll have to think of something else physical to do..... ;-) and if I can't think of anything, maybe my Pack Rat will.
Geri -- weather changed here today. Got cooler (low 60s), mostly cloudy and windy. 70s, my favorite, are coming soon though.
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I love cheesecake too! And my birthday is tomorrow - so I think that is what I will be having! Great idea, thanks all
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Titan - hope all is ok, please come by and let us know how you are doing.
Have a great weekend everyone and Happy Birthday to all those celebrating!
Hugs to you all, Judy x
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HAPPY BIRTHDAY JUDY!!! I hope this year ahead is a wonderful one for you.
My birthday isn't till September - I was just planning ahead re the cheesecake.
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HAPPY BIRTHDAY JUDY!!!!
And, as you would say - sending you (((((HUGS)))))
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Happy birthday, Judy! :-) How was your cheesecake? (I know... YUMMMMMMM!, right?)
Amy -- I decided I wanted to eat cheesecake on my birthday back in December, so I see nothing wrong with a decision in June to eat cheesecake on a September birthday. LOL
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Judy, Happy Birthday. Lena, my grandaughter's birthday is the same day as yours. She will be 4. My birthday was last week. We should get a big cheesecake that we can all share
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Happy B-Day Judy.. my fellow Gemini! Today's my mother-in-laws birthday too. A popular day. My birthday was May 25th..it was hard to celebrate right after my Mom's services. All my siblings called or emailed me...which was very unusual. Usually only one sister remembers my birthday. But given everything, I had a good day. I hope your day was wonderful.
I'm not a big cheesecake fan...but I'll supply caramels if we ever meet!
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Last night we were in the car and i said to DH, "You know what I'm in the mood for? Cheesecake.". He said "Yes, I know, you've been mentioning that every few days now.". OOPS. I guess this thread has gotten to me, LOL. (didn't have any though...yet.)
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Thank you all for your good wishes! I had a lovely day and was thoroughly spoiled. I did share birthday cake with a friend with the same birthday, and it was chocolate cake, but not to worry, cheese cake is on the way for me this week
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I hope we all have a great year ahead! Hugs to all, Judy xxx
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I'm also a Gemini - May 26
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Happy belated birthday Helen! How is the end of your year going? And Happy belated birthday to anyone else I may have missed
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I am so busy at work today, so cannot write anymore. Hope everyone is well and sending you all hugs, Judy x
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Oops. I forgot to wish Helen and Judy Happy Birthdays, didn't I? :-O Well OK, Helen and Judy:
HAPPY BIRTHDAY! AND YOU TOO, BETSY (also belated).
Hmmm, I SAW cheesecake today, but didn't eat it. I was at the medical center for physical therapy and surgical followup, and geez, remind me to pack and bring a lunch when I have to go up there on a morning when I wasn't hungry at breakfast time -- not because of the cheesecake, and not because I was "starving" (they have little food establishments there so there IS food), but because the food there is so EXPENSIVE. Since I wasn't hungry for breakfast, I had to eat at lunch time! I ate between my appointments which were 11:00 AM and 1:00 PM. But almost FIVE BUCKS for one slice of pizza and over a dollar for one banana? I didn't ask how much one of the slices of cheesecake would have cost, though. I'm saving the Total Cheesecake Pig-out for when me and my Pack Rat do the birthday thing this coming weekend. My birthday is actually on Thursday but he had to work in CT this week. Us not getting to spend my actual birthday together was the price for his being able to rearrange his work schedule so he could take me to and from surgery and be close at hand for the most critical part of my recovery plus drain removal, I guess. But this isn't the first time. In the 7 years we were long distance, we've only spent 4 I think of both mine and his birthdays together COMBINED because the day had to either fall on a weekend or be part of the annual summer week I would go up there (and I missed 2009's because of chemo). Midweek birthdays we mostly DID have to postpone until the "closest weekend visit" either before or after. Oh, his birthday is in July, so yes, I would try to make my yearly trip around the time of his birthday...but only succeeded twice.
Anyhoo. I check out good, i.e. "on track" in my recovery, both in terms of my physical range of motion and the healing of the incisions. The physical therapist, who I saw first, "measured" my range of motion, then she taught me some very light exercises and deep breathing techniques to go with them, which I need to do twice a day. And yeah I'd been doing a little "too much," she said, when I answered her questions about what activities I could and did do, when I'd started doing them, which were hard or impossible and describing either "Here's what I did instead so I wouldn't seriously injure myself" or "No way, I can't even TRY that yet!" kind of thing. She said it was okay but it would have been preferable if I'd been a TOTAL slacker for my entire first 3 weeks postop. Well, what's done is done, I guess. I'll try to slack a little more till Friday (my 3 week point) except for when I do the exercises. Our next visit is next week.
The surgical followup was probably more interesting once I got home and read the report. The surgeon gave me the full surgical report with all the "fun for science geeks" pathology information -- IMMEDIATELY -- I didn't have to ASK her for it! But we still talked about it once she examined me. She said there had been a LOT more cancer in my body than she'd expected to find (TWO tumors in what had been the 'good' breast that we found the ONE 'new' lump in, and that was just for STARTERS) but she got it "all"....well, at least as much as is POSSIBLE to say "got it all" when you KNOW it's in the dermal lymphatics (that's what defines IBC as apart from other BCs). She also said she thinks the reduction of that high a tumor burden will make a noticeable difference in QOL as well as increasing survival time -- as in, she said I might even get a noticeable increase in physical energy. Um yeah right we'll see: I haven't HAD physical energy since my stroke! Then we talked about what I'd just done with the physical therapist and getting those exercises to do. Oh, and, speaking of "exercise," LOL, I mentioned that my Pack Rat and I had celebrated Hump Day last week and in addition to "good for you!" she said I might have set a record for earliest post-BMX sex. And now :-{ we come to the What's Next part. :-{ She very strongly encouraged me to have rads. She had MENTIONED rads when we had our pre-surgical discussion and she examined me for the first time, but it was more a gentle-to-moderate "I think it would probably be a really good idea" sort of suggestion. Today though, she absolutely considers it VERY VERY IMPORTANT for me to have rads. So, OK, I gave her the go to set me up with a radiation oncologist. Oh, and the rads she wants me to have aren't for where my breasts used to be -- they're for my right ribcage area, where she took off several of these little skin mets which had popped up over about six weeks or so. She says rads will keep them, and new ones, at bay; if I don't have them, she's virtually positive they'll be back within a few months at most. So OK :::::sigh::::: rads look to be next. I don't know when, yet, but I think I'll find out soon enough.
Um HUH? WAIT!!! She said I might get my ENERGY back at the same appointment she's telling me to have RADS? She said rads are a walk in the park compared to chemo, but still! :-O
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Hi Lena. Every step in this journey is a challenge, isn't it? But report sounds positive - if one can say that having cancer removed from your body is positive. I have had rads 2 times - first on my right and then a few years later on my left. I agree that it is a walk in the park compared to chemo but still not a party. The first time I did have some burning but not terrible. Second time, no burning, but I did find the surgical site where the lymph nodes were removed tightened up again and it took a while to go back to where it had been. New research is saying that rads gives a huge benefit in preventing recurrence. How many is she suggesting?
And happy birthday to everyone -
Uh well, I guess it's better to have it taken OUT of your body than to keep it IN there, right Helen?
Thanks for the warning about rads though. I didn't have any lymph nodes removed and my rads are supposed to be on the skin on the right ribcage area (3 or so inches below where my right breast used to be) -- but I do have an incision there from removal of the skin mets.
I don't know yet how much radiation I'm getting or how often I'll get it -- I still need to find out when my appointment with the radiation oncologist is.
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Lena - good to hear that you are "on track" with your recovery. It is a long process, but from reading your posts, you seem to be doing ok. I did not have rads, so cannot offer you anything on that. I just hope that everything goes smoothly for you.
We are in the throws of our relocation process and my husband is very busy meeting final deadlines at work, and I am trying to plough through lists, but with little success. I am so overwhelmed and exhausted. I suppose, that what will get done is ok and whatever doesn't get done, well, that's just the way it is. I find that frustrating, I used to be so organized and on top of everything, but it is just not happening at the moment. So, I am trying to take it day by day and do what I can.
I hope everyone is doing ok today, sending you all hugs, Judy x
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How are you all doing today? What is with this weather? It is sooo hot outside!!!
Stay cool and take care, Judy x
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Huh? The weather is beautiful today, Judy! LOL It's a beautiful partly sunny summer day, 85 degrees, slight occasional breezes.
So....today is my third birthday post diagnosis. Three down, maybe two more to go perhaps. Think maybe I'll go for a walk after I finish my iced tea.
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