Brain MRI Results,(scared)

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amlg1
amlg1 Member Posts: 596
edited June 2014 in Stage III Breast Cancer

Got a call from my onc.today,I didn't want to call before weekend,I don't think she did either.A 5mm nodule was found,she doesn't know if it is cancer or an anomoly,that I could have been born with.She said that is the size of a period.I now have an appt. June 27 for another mri to see if it changed,I guess,and a PET scan.Then the next day to see her.I had a PET scan 2 years ago,and all was clear,wouldn't that have shown then?Do you think I am reading into this too much?Help!!

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  • lkc
    lkc Member Posts: 1,203
    edited May 2011

    Hi Anna,

    Many times very small lesions do not show up on Pet Scans. None of my 12 nodes  showed up on my pre tx PET. and I had  3 that were totally encased with BC. so do not fret about that.

    Also, a 5 mm dot does not necessarily mean anything. Drs have to check out ANY abnormalities and if there  is any growth  on your next MRI then it would be an area of concern.

    I would not be too worried about this however.

    Your Onc is being diligent.which is good.

    I will keep you in my prayers that you receive " all Clear" soon.

  • littletower
    littletower Member Posts: 333
    edited May 2011

    Wish I knew more about this so I could be more helpful. Can only reach out with all good wishes and a (((((((((hug)))))))). Praying for the all clear.

  • chainsawz
    chainsawz Member Posts: 3,473
    edited May 2011

    Your lesion could be something benign so hang in there!!  I had two lesions about 5-8mm and they didn't have a doubt they were mets....I think it's good they aren't sure what they are.  If it is a bc lesion, then take a deep breath and know this is just another blip in the road!  I had mine treated almost 2 years ago with SRS and I'm still going strong.  If you met me, you'd never know!  Also, the founder of her2support.org had brain mets treated 10 years ago....and there are many others like her. There is always hope!!  I'll be sending you benign wishes :>

  • elmcity69
    elmcity69 Member Posts: 998
    edited June 2011

    Anna, I'm so sorry you're going through this. It stinks. Sending prayers for you. As Lisa said, it is a hopeful sign the doc isn't sure!

    ((((((hug))))))

    janyce

  • Joviangeldeb
    Joviangeldeb Member Posts: 213
    edited June 2011

    Sending hugs and prayer your way. Hopeing its b9

  • karen1956
    karen1956 Member Posts: 6,503
    edited June 2011

    ((((((((((((((((((((((Hugs))))))))))))))...wishing you only good news on the other tests...

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited June 2011

    I agree with the other ladies, PET doesn't always pick up everything, which in your case could mean the spot was there before and wasn't picked up.  So, I will pray that you get GOOD news this month!

    (((HUGS)))

    Sharon

  • jennyboog
    jennyboog Member Posts: 1,322
    edited June 2011

    Hugs and prayers going your way.

  • clariceak
    clariceak Member Posts: 752
    edited June 2011

    So sorry you are going through this stress.  If the doc is willing to wait a month, she must think it could be benign.

    Did you have a brain scan 2 years ago?  I'll also 3C and received every scan at my dx except brain.

  • Pure
    Pure Member Posts: 1,796
    edited June 2011

    Brain scans are not normally given to er positive girls. I would agree if there willing to wait a whole month they don't sound that concerned. I would INSIST on doing it sooner unless your ok with waiting a whole month:) Hang in there!

  • amlg1
    amlg1 Member Posts: 596
    edited June 2011

    Thank You for all your good wishes and your thoughts.

    Clariceak...I didn't have a brain scan 2 years ago,but I had a pet scan before surgery,all was clear,I assumed that also covered my brain.

    Pure..She doesn't know what it is ,I guess she is waiting to see if there is a change,also I feel she may be well concerned,since she wants me to also have a PET.I feel fine,so I will just wait,on pins and needles.

    Does anyone know what the difference between a nodule and a lesion are??

  • lkc
    lkc Member Posts: 1,203
    edited June 2011

    Lesion and nodule are the same when referring to Imaging modalities.

  • Alpal
    Alpal Member Posts: 1,785
    edited June 2011

    Anna - PET scans only go from your upper forehead down, so chances are the area where the blip is has never been scanned before. I'm 3 years into my Stage IV diagnosis and no one has ever mentioned my brain (they probably think I don't have one). I know that if I start having vision problems or headaches or other symptoms, a brain MRI will be ordered. Keeping my fingers crossed for you that nothing shows up on the MRI!

  • clariceak
    clariceak Member Posts: 752
    edited June 2011

    Ok.  Well at least you know that the blip may have been there before, since this was your first brain mri.  I never understood why headaches were so worrisome to your onc, but it sounds like she wants to keep very close tabs on you,  Since you don't have any symptoms, I would try to put this to the back of  your mind as much as possible.  Good luck.

  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited June 2011

    Take a deep breath and try to relax.  Don't let cancer rob the month of June from you! 

    You said you feel fine and that the headaches are just the usual.  That says a lot.  But the onc still has to pursue it with scans to verify that she is doing her job.  She sounds like a conscientious onc who doesn't want to regret not having followed up on an issue.  And she also wants to minimize the wait time by having you come in right after the scans are done so she can give you the results.

    She's probably adding the PET because she expects the MRI to not show any growth.  The PET is useful for catching cancerous cells before they easily seen as a mass on an MRI or CT because it can show the high glucose activity that accompanies cancer cells.  Unfortunately, though, they can show a lot of false positives so they are usually used as a secondary scan.  So the scenario could very well be that the MRI shows no change and the PET confirms that there is no extraordinary glucose activity so it's not cancer.

  • Katarina
    Katarina Member Posts: 386
    edited June 2011

    What I do know about ILC is it prefers to travel to the ovaries and abdomen before anywhere else. Amig1 - I'm saying a prayer for you and I feel confident that it will come back as nothing to be concerned about. 

    We're all here for you. It's scary when we hear about anything showing on any scans. I'm with AnacortesGirl....I'm feeling false positive. 

    Hugs,

    Kat 

  • kimber3006
    kimber3006 Member Posts: 586
    edited June 2011

    Just chiming in with hopes for good results.  Prayers coming your way!

  • elmcity69
    elmcity69 Member Posts: 998
    edited June 2011

    you're on my prayer list. xo

    janyce

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