Radioactive Injection into Nipple NOT TERRIBLE

waynesgirl50
waynesgirl50 Member Posts: 1

The day before my surgery I had to go for the radioactive injection into the nipple so that the surgeon can locate the lymph nodes etc. during surgery.  I had read various posts on this site saying how awful and painful it was going to be.  Most people who posted said their experience was terrible. After my injection (only one) I actually came out of the room laughing with relief.  It just felt like a tiny bit of burning and it only lasted all of maybe ten minutes. I truly have had more bothersome bug bites!  I had read that it felt like a cigarette being extinguished on your nipple and was terrified!  My experience was extremely positive and I am posting this for all you who are going up against this injection in the near future.  I hope your experience is as positive as mine was!

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Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2011

    I had the same experience too.  After reading posts on this site I was prepared for the worst.  I thought it wasn't any worse than them poking you for an IV.  Granted, my doc prescribed a "numbing cream" to put around the areola about 3 hours prior.  Maybe that helped? 

  • Faith316
    Faith316 Member Posts: 2,431
    edited May 2011

    I had to have four of the injections around the areola when I had my SNB.  The first three were like you said, no big deal.  The last one was EXTREMELY painful.  Glad it was the last one of the 4 that she gave.  If it had been the first, I would have had a hard time getting the remaining three!  Glad your was only one and you sailed through it.

  • suzanneinphoenix
    suzanneinphoenix Member Posts: 208
    edited May 2011

    I was absolutely terrified! But I hardly felt anything...and any sensation I did have lasted only a few minutes.  I almost said "THAT'S IT?" when it was over!  My guess is, since I had it done at the breast center of the hospital, rather than in the nuclear department...it was a much better and easier experience. 

  • DocBabs
    DocBabs Member Posts: 775
    edited May 2011

    The numbing cream absolutely helps.I never felt the actual needle stick. I did feel the solution being injected and that butned but he stopped 3 times foe a second or two. I cried aftwards from relief!

  • sherryhuttRS
    sherryhuttRS Member Posts: 20
    edited May 2011

    I am having the dye first, then go across the street for the wire placement, then have surgery. I am having lumpectomy after 4 months of chemo, Why is it done this way? I was hoping to be asleep for the whole procedure. Any input would be great.

    Thanks, Sherry

  • AnneWisc
    AnneWisc Member Posts: 476
    edited May 2011

    Ladies, it is always better to be pleasantly surprised than nastily surprised!

    I am going for a planning session for my radiation, and they told me the breast would be numbed and then there would be an injection of radioactive dye.  After my bad experience with a lot of pain in my core biopsy, which the surgeon acted like it was trivial, I asked for some Valium ahead of the procedure and will also take a hydrocodone before I go in. That's in a couple weeks.  At least I feel somewhat prepared for it.

  • worldwatcher
    worldwatcher Member Posts: 205
    edited May 2011

    Not trying to scare anyone here, but the injection of the radioactive material was the worst experience of my BC journey. The numbing cream was applied ONLY about 15 minutes before the injection.  I was in sobbing all through it and have made sure to never see that doctor again. This was in the Breast Health Center, not Nuclear Medicine.

    Nearly a year later, I am still occasionally having burning sensations in the nerves in my nipple as a reminder.

    I believe that if I have a recurrence in the other breast I will opt for complete removal instead of the lumpectomy.

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited May 2011

    They didn't offer me any numbing cream and it HURT!!!  I had 4 needles but it was really strange how badly it hurt but only lasted for seconds.  It was the most painful part of the process for me, however, the wire they inserted was the most uncomfortable.  I had to go to three separate places that day.  I was freaked out living the imaging center and going over the the surgery center with a wire poking out of me.

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited May 2011

    It was awful for me too. I wasn't told that I would have any type of injection before the surgery (I had surmised it was going to be during the surgery when I'd be asleep). I had 4 injections done around the nipple with no numbing cream or any kind of anesthetic and each and every one of them hurt horrendously, like someone was stabbing me with a red-hot poker.

    Reading the posts here - as well as other posts on another thread that was about this injection - I am wondering if the amount of pain has anything to do with the size of the tumor, as it seems that ladies who had Stage 0/I/IIa didn't have much pain while stage IIb and up complain of bad pain. Maybe the serum that contains the dye pushes on the tumor, or maybe just the needle itself pokes the tumor. Maybe also about where the tumor is located and how close to the nipple/areola it is?

  • worldwatcher
    worldwatcher Member Posts: 205
    edited May 2011

    DAY

    "Maybe the serum that contains the dye pushes on the tumor, or maybe just the needle itself pokes the tumor. Maybe also about where the tumor is located and how close to the nipple/areola it is?"

    My tumor was 2.2 cm and was located in the right lower quadrant, very close to my armpit and not at all close to the nipple.  Possibly the amount of dye injected could be a factor in the pain.

  • Pam1
    Pam1 Member Posts: 13
    edited May 2011

    I had mine done right before surgery and I also thought it was going to be done while I was asleep.  This was the most horrible pain I have ever experienced in my life.  There was no numbing before either.  My tumor was 2.5 cm and half way to the nipple.  I have had no pain with the removal of my boobs.  I could have come home that evening but they kept me until 9:30 the next morning.

  • mrsnjband
    mrsnjband Member Posts: 1,409
    edited May 2011

    I don't think they did my right because they couldn't find the sentinal node.  They barely touched me with the needle.  Mine felt like a hard pink.  Glad yours wasn't that bad.  I guess some of us are more sensitive than others. NJ

  • Faith316
    Faith316 Member Posts: 2,431
    edited May 2011

    Although it may be true that some of us are more sensitive than others, I don't think that is all of it.  3 of my injections were no big deal at all.  The 4th (and fortunately last one) was excruciating.  I have no idea why one would be different but it most definitely was!

  • naty41
    naty41 Member Posts: 28
    edited May 2011

    That injection was very painful for me as they didn't give me any numbing spray. I had it done about 3 hours before my surgery.

  • just-starting
    just-starting Member Posts: 7
    edited May 2011

    Oh my goodness! I am due to have a blue die injected into my nipple before my lumpectomy to find the sential node. They know I have a needle phobia and discussed the possibility of my not doing it, bit it improves the chances of them finding it so much that I said "go for it". They did not mention painkillers but said they would give me Valium.



    I am now really worried, imwill talk to my breast nurse about it.

  • mommaof4
    mommaof4 Member Posts: 62
    edited May 2011

    I am a stage 0, grade 3 with multifocal areas and I had my BMX/lymph node removal 6 days ago.  I also thought the injections were horrible and painful.  I had two of them and they were equally sooo painful.  I feel almost angry that this was not discussed with me, creams or meds were not offered.   When I found out they were getting ready to do it and it was supposed to be so painful- I begged for some valium and my nurse just left the room, basically ignoring me saying it's best to just do it and get it over with.  I myself am a labor and delivery RN and this is just not acceptable!

  • just-starting
    just-starting Member Posts: 7
    edited May 2011

    ok, so in the past i have had two core biopsies on by breast with anasthetic and with my needle problems these were traumatic but not painful, i had a needle biopsy on a node without anasthetic and that was painful, very traumatic, but i coped better than the radiologist did. he could not stand the screams. Can someone tell me how this die thing compares to those? Also my surgeon mentioned one injection, others here mention 4. I have a intracystal carceanoma just above the nipple, and the node they are targetting is just above that. Is the pain the needle or the burning of the die? Does it stop as soon as the needle comes out or carry on? I was told the needle is the same as a insulin needle, very small

  • Lindy323
    Lindy323 Member Posts: 57
    edited May 2011

    Mine didn't hurt, but they didn't inject the dye directly into the nipple but all around the tumor....wonder why? I think it would hurt being injected in the nipple.

  • TinaT
    TinaT Member Posts: 2,300
    edited May 2011

    The radioactive dye is not blue.  It sometimes moves slowly to the sentinel node.  That's why it is typically done hours before or even the day before surgery.  Obviously, they don't want to give the patient anesthesia for those extra hours.  Sometimes they take pictures in Nuclear Medicine, sometimes they don't.  That varies with the surgeon - if he/she feels comfortable finding the node with the radiation detection probe they may not need or want images or to have the Nuclear Medicine doctor mark the skin where they believe the sentinel node lives.  Some facilities inject around the tumor site, but studies have shown that injecting AROUND the nipple (not INTO the nipple) shows the same drainage pattern as injecting around the tumor.  Much easier for the injecting doc to always just inject around the nipple than to have to request and review mammo films to localize the tumor.  The number of injections can vary by institution.  Doesn't matter - the same drainage pattern and sentinel node or nodes should light up regardless of injection technique.

    Blue dye is not radioactive and is injected by the breast surgeon at the time of surgery USUALLY after the patient is already under anesthesia.

    Some surgeons like either the radioactive dye or the blue dye.  Some use both.

    I had four injections with no numbing cream or lidocaine.  It was uncomfortable (like a hornet sting), but very briefly, and I did fine.

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited May 2011

    TinaT,

    I had the blue dye, not the radioactive die and it was injected about 2 hours prior to the surgery, no anesthesia or numbing cream.

    The pain was not so much the needle as the dye itself.

    I guess everything is relative to the respective hospital and surgeon usual practices.

  • TinaT
    TinaT Member Posts: 2,300
    edited May 2011
    Day:  Thanks for the correction Embarassed.  Yes, it's so different from place to place, surgeon to surgeon, etc.  I edited my comment above.  Thanks again!
  • tcplk
    tcplk Member Posts: 1
    edited June 2011

    I had Stage 0 (no tumor) DCIS in 2006, and opted for a mastectomy after no clear margins were attained in the lumpectomy procedure.  The description of the SNB injections being like hot pokers perfectly applies to all 4 of mine and what I experienced.  I was not offered any anti-numbing cream, and it was done an hour or two prior to anethesia being given to me for the mastectomy surgery.  The nurse just told me to hold onto her hand tight.  I cried my eyes out, and so was very upset going into surgery.  There seems to be no predicting who will have mild stinging and who will have excruciating pain from these radio-active injections.

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited June 2011

    My radioactive shot hurt.  I had it day of surgery and that was the worst part that I was awake for.  Needles do not bother me, but the burning!!!  I let out an involuntary "Ooooowwwwwwww!  They did mine near, but not on, the nipple, and it lasted about twenty (long) seconds.  Mine felt like "hornet sting" to the third power.

    Besides individual threshholds of pain, I am pretty sure that location plays a big part.  Nearer to the nipple, more of a chance to get close to a nerve.  waynesgirl50, I wish I had your luck.

    p.s.  I only got one and no numbing cream was offered.

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited June 2011

    Mine hurt like H3$$! No numbing cream. It felt like hot oil was poured over my breast. The first one hurt so much I didn't even feel the final 3.

  • SuziePA
    SuziePA Member Posts: 27
    edited June 2011

    I had a sentinal node biopsy last Monday as part of my mastectomy and reconstruction, and as promised by my breast surgeon, everything was done while I was "under" and I felt absolutely nothing.

    I had the blue dye.
  • CaroleS
    CaroleS Member Posts: 9
    edited June 2011

    I had the injections and scan today, in preparation for SNB in the morning. The nuclear medicine technician told me they have altered the pH balance of the radioactive substance, and patients are experiencing much less pain as a result.  I was skeptical!  But honestly, I had 3 injections (no numbing cream) and it barely hurt at all.  

  • Faith316
    Faith316 Member Posts: 2,431
    edited June 2011

    The pain for mine (only the last one of 4 hurt) was not at the surface but deep inside the breast, so I can't imagine how numbing cream would help as it only numbs the skin.

  • edot
    edot Member Posts: 72
    edited June 2011

    I had my radioactive - 4 shots around the nipple the day before. It didn't hurt much at all. They did tell me not to wear my bra again, so I didn't.

     Then during my surgery, they injected me with the dye, so I never felt it - no wire tho. I did wake up with an awfully blue boob - from the dye - that took a week or so to fade. 

     I guess it really does depend on the doctor,  and maybe how sensitive your breasts are.  I had my radioactive shot and imagaing done in an imaging center - the same place that did my post surgery liver and bone scan (which is a routine thing for every breast cancer patient post surgery at the hospital I used). 

  • danesgrammy
    danesgrammy Member Posts: 3
    edited June 2011

    I had a needle loc first while in the Mammogram machine and then the radioactive shots.  The surgeon had prescribed Emla cream covered with Tegaderm 3 hours before the procedure.  It barely hurt for the radioactive shots.  I had three radioactive shots.  All of us tolerate pain differently and I'm usually not good with pain! During surgery the doctor inserted the dye for the sentinel node biopsy...only warning for this was to expect BRIGHT BLUE urine  that may last a week! My husband forgot to tell me that they had told him about this and the morning after the surgery was a major shock!

  • libraylil
    libraylil Member Posts: 528
    edited June 2011

    Mine was also done after I was out. Libraylil

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