Biopsy question????

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mamatoboyz
mamatoboyz Member Posts: 18

Had excisional biopsy May 20th ...finally!!! After biopsy I asked the surgeon what they had found and he said that everything was "intraductal"! I don't get my results until Tuesday! They took the tissue and examined it to make sure they had clean margins etc. so does that mean they already know if its malignant? He told me prior that he was suspect of DCIS just from the mammogram films. Thanks for your help!! Hugs :))) 

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  • MWS
    MWS Member Posts: 36
    edited May 2011

    This sounds like what I had, then I had a lumpectomy to remove all cancer and get clean margins, then after biopsying all that, I ended up having a bilateral mastectomy.... because it was found to be fast growing and could come back... I am happy with my decision, I discussed this at length with oncololgist and ob and both agreed it was the best decision.

  • Emaline
    Emaline Member Posts: 492
    edited May 2011
    Oh I'm sorry you have to wait so long for your results. I honestly do not know if they can tell if there is a cancer or not.  I've read different things. Most things I've read suggest that they know if it is cancer or not but they wait until final pathology is done so that they have all the pertinent information to give you and so that they can make a good recommendation and you can make an informed choice.  This is just what I have inferred, I do not know if I am correct or not.  I'm sending you tons of B9 thoughts.
  • AnneWisc
    AnneWisc Member Posts: 476
    edited May 2011

    Hi mamatoboyz, I looked at your posting history, what a long wait you have had!  That is just awful. 

    By way of encouragement, if they suspected a really invasive cancer, they probably would have seen you sooner.  The DCIS label includes "in situ" (the IS part of the name) which means noninvasive.  Furthermore, across all types of DCIS and all treatments, it is about 95-98% curable.  Try to cling to these statistics.  You are much more likely to be a winner than a loser - cling to that until Tuesday.

    When you get your pathology report on Tuesday - I gather they are making you come in, rather than telling you on the phone? I was told over the phone, both for my biopsy and my lumpectomy - your doctor might have an immediate surgical recommendation for you. You can accept a surgery date if they offer you one, but that still gives you time to look around and make some decisions for yourself.

    Treatment options for DCIS come down to (a) Mastectomy (1 side or both sides),  (b) Lumpectomy with radiation, or (c) Lumpectomy alone (for the very mildest cases).  If your surgeon doesn't offer you these, ask about them.  If you have to make a second appointment to better understand what you've been told, make it.

    Did you know you have a right to choose your surgeon?  (Maybe this is less true in Canada, apologies if I am giving you a bum steer.)

    In a city the size of Vancouver, there have to be options.  I am lucky to be in Madison, Wisconsin, which has a Comprehensive Cancer Center and a Breast Center within that.  They have more of a team approach and specialized approach, rather than just general surgery, general oncology, general radiation, etc.  Does Vancouver have anything like that?  I disliked the person I was assigned to for my biopsy, and am much happier with my care at the Breast Center.

    You may be a person who feels overwhelmed by too much information or too many choices, but you can exercise choice even in how much information or how many choices you want.  Exercising choice makes a bad situation more endurable. 

    Good luck with your biopsy results, I will keep my fingers crossed for you to have a good outcome.  Don't freak out when you get your info, but come here to the forum and let our good sisters-in-cancer give you perspective.  You are never alone! 

  • bluewillowskys
    bluewillowskys Member Posts: 365
    edited May 2011

    when i had my stereotactic biopsy in Madison for my DCIS they told me the results that it was positive for DCIS about a week after the biopsy. I requested to get the results from my family doctor rather the over the phone. When I had my lumopectomy i got the pathology report about 3 days later when I developed a hematoma and had to have a second surgery to remove and clean up the blood leaking veins. I got the full print out of my pathology about 4 days after my lumpectomy. I know the waiting game is so awful to go through.The not knowing seems worse to me then the knowing what I have. When you at least know what you have then you can make plans for attacking it. When you dont know your mind tends to think the worst case scenarios. Try your best to be opatient and know that generally speaking DCIS is very curable .

  • sweatyspice
    sweatyspice Member Posts: 922
    edited May 2011

    It sounds to me like your surgeon suspected DCIS, and if they ran any preliminary tests during your surgery....well, I'm guessing his saying it was "intraductal" means DCIS.  But it's important to remember that those are preliminary results, and you won't really know for sure until you get the final results on Tuesday.  The waiting is awful.

    Wishing you all the best, and the ability to get some sleep! 

  • mamatoboyz
    mamatoboyz Member Posts: 18
    edited May 2011

    Called today about results and was told that I will be lucky if I hear anything by Friday so I cancelled the appointment for tomorrow because they said they for sure will not have them by then. 14 days for results ...are you kidding me? They say its only ten because the weekends don't count!!!!! Arghhhhhhhhh!!! Sorry just venting!

  • agada
    agada Member Posts: 452
    edited June 2011

    I was fortunate.  My Dr. who did the biopsy actually called me into her office the next day with results!  They took me way back into the  the office to tell me. I suspect they thought I would fall apart and needed the privacy to cry.  I did not cry, took the news, went home, and then sat and thought about everything.  I wish everyone luck on getting biopsies faster.  I think making people wait is cruel.  The pain of waiting is difficult to say the least.

    Agada

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