scared it may have already spread.

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tresjure
tresjure Member Posts: 16
edited June 2014 in Triple-Negative Breast Cancer

Im triple negative,and  have to wait till 6/8/11 for sentinal node and possibly axill.dissection.i feel that this has already spread.had lumpectomy on 5/17/11. 2.0cm grade 3,negative margins,vessel invasion negative.I keep getting joint,neck,and shoulder pain,sometimes armpit pain. freafin out just want to know!

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  • bak94
    bak94 Member Posts: 1,846
    edited May 2011

    Waiting is so difficult, but your soreness could definitatly  be from stress, stress does a number on our bodies. I went through the same thing before I had scans. Everything hurt and I was sure cancer was the cause, but my scans came back clear. My situation is a bit different than yours, a later stage, but I do understand the worry while waiting for answers. Weird thing is all my pains went away after I found out I had clear scans! Sending you hugs!

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  • tresjure
    tresjure Member Posts: 16
    edited May 2011

    Thanks,bkj66 for the encouragement and hugs.I really needed to hear them.so glad your scans were clear! hugs back at you!

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  • lago
    lago Member Posts: 17,186
    edited May 2011

    Tresjure I didn't have triple negative but I was grade 3 HER2+ and very fast growing anad really big tumor (about 6.5cm if you include the non-invasive part). They knew it was fast growing even before the biopsy by looking at my past mammos/US.  I had to wait 2 weeks for biopsy, week for results then wait another week for MRI. Finally after the MRI my surgery was scheduled… another 6 week wait. My BS said it might not be in my nodes because he didn't feel anything and MRI showed nothing. I was thinking all this time going by isn't going to help but…

    even fast growing cancers don't grow that fast unless its IBC. BTW if you notice I wasn't in my nodes so the extra time made no difference. Even the size was about what they said.

    Hang in there. This waiting is tough but at least the got the big sucker out.

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  • Luah
    Luah Member Posts: 1,541
    edited May 2011

    I understand how stressful it is to wait but that is not an unusual time between surgeries. Your tumour wasn't large, no LVI and clean margins -- all this bodes well for a good outcome. Stress can do funny things - I had all kinds of aches and pains prior to getting my scans and waiting for results. All for naught. If you can't stop worrying, talk to your onc - maybe he/she can reassure...

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  • tresjure
    tresjure Member Posts: 16
    edited May 2011

    Thanks,lago and luah.The breast surgeon said i would have a Special team(oncologist,etc)For my case,after the procedure,when they know where we stand.so its waiting and  waiting. Yes thank god its out!

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  • Suze35
    Suze35 Member Posts: 1,045
    edited May 2011

    tresjure - I am the POSTER QUEEN for thinking my cancer has spread, and with good reason if you look at my stats.  But even 10+ months with cancer in me (still have positive nodes), I don't have any evidence that it has spread.  Unfortunately, we can never truly know if it has spread until we see it, and it is so hard to disregard all of those things that would have just been normal to us before cancer.  But take heart that the bulk of the tumor is out, and your surgery is just a week or so away.  Hugs to you.

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  • tresjure
    tresjure Member Posts: 16
    edited May 2011

    Thanks suze35 you give me such hope!! hugs back!

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  • Titan
    Titan Member Posts: 2,956
    edited May 2011

    tresjure..it is scary..the waiting...but remember you do have that tumor OUT of you.....the oncs always seem to want to wait to "rest" your body and get you prepared for the next thing..and we just want to start chemo/rads..or whatever is planned for us...

    Triple negative is aggressive..but maybe a week or so won't make much of a difference.sounds like you have good news.no LVI, good margins...maybe the pain is from your lumpectomy????

    Umm..just wondering..why didn't you have your SNL at the time of your lumpectomy?

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  • Titan
    Titan Member Posts: 2,956
    edited May 2011
    Oh and Suze and Luah are the best ladies you can listen too!  We love them here on the TN threads!Laughing
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  • tresjure
    tresjure Member Posts: 16
    edited May 2011

    Hi titan! i didnt have the snl at the time because the intial ncb i had came back inconclusive.thats when bs said lets just get the whole  thing. thanks titan and to all  for helping me get thru this!

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  • jenn3
    jenn3 Member Posts: 3,316
    edited May 2011

    tresjure - I am so sorry you're going through this.  The pain you're having sounds more like stress related pain.  Try soaking in a hot tub with epsom salts and if possible try not to think about cancer, let you're body relax. 

    While you're waiting know that the women on these boards are wonderful and we're all here giving you big cyber (((hugs)))).

    Jenn

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  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited May 2011

    Hi Sweetie.

    Everyone told me that if it hurt it was not cancer.  Not so.  But you are all on top of it, and are doing all you can.  I had all three procedures in one, less than a week before Christmas.  I didn't like that much, or hearing I was triple negative.

    Most of what you are feeling is probably mostly fear.  Until it is all out of you, you won't feel right, so let the surgeon do his or her job and take care of that.  In the meantime, look about and talk to your doctors and see who is a good person to take it from there to see that it does not come back.  You may well need an oncologist and maybe a radiological oncologist too.  Most triple negs do.  Find the best in the area and let them know you are serious about this.        

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  • tresjure
    tresjure Member Posts: 16
    edited May 2011

    Hi jenn3 and yellowdoglady,i talked to bs he said your not the only women that feels this way after diagnosis.i said why couldnt they do a scan to see if it has spread.his answer was that the cells from the primary tumor are to tiny to be picked up on the scan.still getting twinges here and there,but trying to be positive.youve all helped alot!

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