February 2011 chemo pals

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  • sewingnut
    sewingnut Member Posts: 1,129
    edited May 2011

    #6 TCH over and done.  WooHoo doing the happy dance. Start the every 3 week Herceptin next friday.  On to the second half of this journey.  After weekly treatments for 16 weeks I will welcome the extra free time :0)

  • MamaV
    MamaV Member Posts: 907
    edited May 2011

    Sewingnut- congrats!! Keep on fighting! I had taxol #6 today - the weeklies do come on quickly don't they?

  • sukie10
    sukie10 Member Posts: 96
    edited May 2011

    So I'm happy to report that my feet are almost better. Fingers still quite sore. I am impressed with the extra energy I seem to have. I didn't fully realize how extremly tired I had been for the last 3 months until now. The AC left much longer lasting effects vs a better bounce back with taxotere. Still, both are pretty miserable.

    A month ago we were all wondering if we could really do this and now we are "Happy Dancing" our way out one at a time. It's nice to see a rainbow after a major thunderstorm. Smile 

  • MamaV
    MamaV Member Posts: 907
    edited May 2011

    I am so jealous of everyone finishing up their chemo.  I figure there are a few of us left ...

    Me - July 7 

    Dogeyed - July 7

    Charlottesmama- July 15

    Donna - June 22nd

    Christina - June 13

    Lorenar - July 5ish

    Anyone else?  We last few really need to stick together.  I think I will see a flicker of light at the end of the tunnel when we get into June.  Then I know the end will be near.  It sure has been a long journey since my first Chemo Jan 26th.  We will have to catch up with all of you starting RADS next month.  I will probably join that board too just so I know what to expect!  I hope everyone can take a break from the big C word and have manageable SEs for enjoy the Holiday weekend!  I know I sure can use a day off of work that isn't for treatment or b/c I am sick!  Hugs to all.

    We are strong and doing this together -

    Vicky

  • donna661
    donna661 Member Posts: 11
    edited May 2011

    Michelle,

    I did 4 rounds of A/C and just did my 8th treatment of Taxol yesterday. I take claritin before my treatment to prevent allergic reactions. I have much more energy on Taxol than when on A/C.  I work 3 1/2 days a week now.  Appetite completely back on Taxol and no nausea. Have a metalish tasted in my mouth sometimes.  My hair is starting to sprout back in.  Constant runny nose on Taxol, alittle pain in tips of my fingers. No more dry mouth like with A/C though. I don't notice much achiness and haven't had to have a neulasta shot since I started Taxol.  My hemoglobin has been bouncing back every week. Alot of film in my eyes still and eyelashes and eyebrows pretty well gone. Raquel Welch makes a great line of wigs ... I get lots of compliments on them.  Wigs.com has got great prices.  4 weeks to go and I'm done with this chemo journey then on to Tamoxifen. I've found that the weekly treatments do come and go quickly and its nice to only have to be there for 1 1/2 hours instead of 5 hours. Stay strong ...you'll get there.

  • pejkug3
    pejkug3 Member Posts: 902
    edited May 2011

    I'll be around until June 9.  The end is in sight!  :)

    Have a great weekend everyone. 

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited May 2011

    I finish up June 3rd.

  • dragonfly1
    dragonfly1 Member Posts: 766
    edited May 2011

    My last chemo (TCH #6) is next Tuesday, May 31st...I can't wait to finish! The side effects have been awful and I thought the last one would never get here. I start rads on June 20th and the MO says she won't start Tamoxifen until I'm done with rads sometime in August...Hope everyone has a great holiday weekend!

  • sukie10
    sukie10 Member Posts: 96
    edited May 2011

    I still think I'm last July 20th. Fuzzy is July also.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2011

    Hi All,

    dragonfly - here we go into the last one - I am so excited, even though this last one feels like it tried to kill me! 

     My last one is 6/2, then continuing on with Herceptin and more surgery, fills and exchange, and AI.

  • mamaoftwo
    mamaoftwo Member Posts: 267
    edited May 2011

    My last one is 6/2 also.  I meet with the radiation oncologist prior to chemo that date to find out if he recommends radiation.  Then Arimidex (5 years) and stage II of diep surgery in September after my body has detoxed.  2011 will be remembered as cancer year in my house.

  • LisaGH
    LisaGH Member Posts: 242
    edited May 2011

    My last TCH is next week Wed 6/1. Can't wait.

    If my hemoglobin gets and stays at 10- will have my exchange surgery on 7/6.

    I won't have radiation- had bilateral mx w/ recon.

    Getting close.

    I hear ya mom of 2- the year of the cancer 2011- got dx in January and cancer has consumed my household too- we are in the same boat all of us.

    Looking forward to the fall! For everyone on here- I appreciate the support.

    Lisa

  • Babyswim
    Babyswim Member Posts: 62
    edited May 2011

    Count me in-Still doing weekly Taxol down here in South FL. 6 rounds left has me finishing July 8th. Hopefully my counts will stay up. My WBC have been in the the 1 and low 2's since starting treatment and  I was on daily Neupogen injections during AC. I ended up missing a few treatments since starting Feb 17 had to have blood transfusions instead and we skipped a round due to flu-like symptoms and a possible shingles outbreak (thank god it was not). 

    Currently........No hair, no eyebrows, no eyelashes, no wrinkles ;-)  (what a nice bonus)

    I will have a modified skin sparing BMX in mid to late August. Hopefully go straight to implants and then 30+ rads. Still a long road ahead but at least after chemo it will be downhill!

    Gayle

  • EmilyInOntario
    EmilyInOntario Member Posts: 626
    edited May 2011

    Congratulations to those done and soon to be done. My last chemo was May 13th and though I have found it to be the hardest to recover from ( still struggling with side effects)...I have begun preparations for radiation. I saw the radiologist Thursday and go for the CAT scan and the mold that they make up for the head and shoulders to keep you still on Monday. I will be jumping onto the the radiation threads now but will be checking back here rooting for all of you !! I thank you all for your support and don't know how I would have got through these past 4 months of misery without all of you! Best wishes to you all!!!

  • dogeyed
    dogeyed Member Posts: 884
    edited May 2011

    I think I missed a page sometime back.  I just finished filling out my financial assistance papers and I not only started with my Taxol brain in park, I think I have now wrecked myself.  My scribbles were a mess, and instead of multiplying out what 878 times 12 is (disability money), I just put that and an equal sign and a question mark.  They say if you send in an "incomplete" assignment, they will not accept it.  SIGH.  So, at the end in the bottom margin, I wrote, "I did the best I could."  And this is from a former writer and editor with newspapers.  Last time I couldn't finish my schoolwork was in the third grade, on account of I talked too much with my neighbor... remember how they put two desks together in elementary?  Perhaps it was a space issue.  I also remember when I was in first grade, I think we had reading, and we held hands as we walked down the hall two-by-two.  WHAT AM I TALKING ABOUT?  But I WILL say this, some angels helped me finish my papers today, because no way I could do that by myself.  My legs and butt are starting to hurt, Taxol encases them in concrete around afternoon of Saturday from Thurs chemo.  Tomorrow I go under.  I heard Oprah spent her first day off from work in 25 years by laying around in her PJs.  HOOORAY for her!  Thatz my daily uniform!  GG   

  • pejkug3
    pejkug3 Member Posts: 902
    edited May 2011

    Day 9 post TCH #5...counting down to the LAST ONE!

    It's weird that these last two rounds have been so nice to me.  Yeah, I still have the Big D, but neither of these rounds have been as terrible as #3.  Being a worrier, it makes me suspicious...hmmm...are they giving me the cheap stuff?!  ;)

    My onc said that some people just adjust to chemo as the "new normal" and their bodies adapt.  No way do I want chemo to be the "new normal".  But I like that I've not been crushed by SE.

    It's stormy in my area of the midwest today.  My son (11) and I are using the day to finish up some projects around the house.  We installed the trim in our mudroom that's only been sitting in the corner for 4 YEARS.  lol

    When I do stuff like this with the kids, I can't help but feel a little sad...  Surely I'm not the only one who is a worrier.  When my twins 'graduated' from kindergarten this year, I wondered if I'll see them graduate high school.  My daughter starts high school in the fall.  I'm not as afraid of not seeing her graduate, but the boys - and I - have so far to go.

    I love BCO, but sometimes I read too much here.  I read about ladies who moved to mets and recurr and I really internalize that.  I pray for them and wonder, "why not me?"  Why won't I recurr?  Yeah, we never know...

    So how do you guys cope?

    Update on MIL:  She's home and doing ok.  She was admitted to ICU on Monday after collapsing during a chest xray.  There was a quart of fluid around her heart that was removed when they did (minor) heart surgery to tear the pericardium.  She's been doing better since the surgery.  Even went home without oxygen this time!  So thankful for good news for her.

    Question:  I have pain and what I *think* is a hard place under the scar for my node biospy.  I believe I irritated the area with a new bra yesterday.  But it's still sore today.  I'm trying to just let it go - I'm in treatment, there isn't much they would do if I called my oncs office.  But it's a nagging worry.  Anyone else have this?

  • dragonfly1
    dragonfly1 Member Posts: 766
    edited May 2011

    Pejkug I'm glad TCH 4 and 5 have been a little bit kinder to you. It's so nice to be almost done. I have my final TCH on Tuesday and can't wait to get it over with-the sooner the better!

    Coping with the "what if" of recurrence is tough and I think we all worry about it on some level whether we admit it or not. I worry a lot at times because of the triple positive status and knowing that I could recur even with negative nodes. I guess I tell myself that at the end of the day I've done everything possible and they'll be monitoring me very closely from now on so anything new would be caught as early as possible. I have the attitude that I need to work hard on not worrying about what is out of my control (easier said than done) and focus my energy on the things I can control like my diet, excercise, taking the medication as prescribed and getting all the right tests done...that's what helps me get my head straight when I'm worrying too much.

    You MIL is really having a rough time of it but I'm glad that she's back home now and feeling a little bit better.

    My SNB area gets sore from time to time for no apparent reason and the breast surgeon has no explanation for it but tells me not to worry about it-it's never been hard though. If yours stays that way you may need to have it looked at...

  • LisaGH
    LisaGH Member Posts: 242
    edited May 2011

    Pejkug- I am glad for you that 4 and 5 TCH went well. For me I have just been weaker overall- now fighting a sinus infection/cold- resting up for next week on Wed for TCH 6.

    I don't know how to stop the worrying but just trying to take this whole process one step at a time. When I think what so many of us have gone through since February (and before w/ our diagnosis etc), it's overwhelming still. I cannot believe I have had BMX, then a port, then chemo. And one surgery coming in July. And we are all similar though the procedures might differ- surgery, chemo, some more surgery, some radiation. Unbelievable still....

    So glad to have support. I am starting the pre-chemo dread that I get. And scared- because for me each time is tougher than the one before from just a weak/fatigue standpoint. (SE have not been worse really).

    Dreading but also relieved this it TCH 6....just a few days away. Thinking of you all too- wishing you well on this Memorial Day weekend.

    Lisa

  • Judy_63
    Judy_63 Member Posts: 247
    edited May 2011

    July 12 is my last chemo, then onto Herceptin weekly for a year.

  • lorenar
    lorenar Member Posts: 141
    edited May 2011

    hi ladies. Hope everyone is under the circumstances having a nice memorial weekend. Sorrry for you not feeling well. glad for you that are. Wonderful for you finished with chemo. I will have #6 of 12 of taxol/herceptin next week, Gettin one step closer each week I say. Than comes my dbl masec. in July finished by monthly herceptin till next April along with a hormone pill. I keep tellingmyself ok you have come this far you can do this. I dont think I could have done it the same without all my chemo sisters to get thru iit with. I dont know about ya all but the heat seems to make the feet and leg pain ache worse. Off to bed now. Better days ahead for us all.

  • Thundershowers
    Thundershowers Member Posts: 36
    edited May 2011

    Hi ladies -   My last chemo (TAC) is scheduled for June 8.  I am experiencing D - loose bowels from my last one and am a bit worried.  I don't seem to find too many ladies who have this - is this unusual?  I told my doc and they recommended Imodium which I haven't been able to get yet - will pick some up tomorrow.  I just worry this might be a sign of something else?  ugh  Let me know if any of you have had this happen - I always hear about the constipation but not this.  Thanks ladies!  Other than that I seem to be tolerating this ok and am just tired.  Can't wait to get this over with.  xo

  • pejkug3
    pejkug3 Member Posts: 902
    edited May 2011

    Thundershowers - I have had terrible Big D thoughout chemo.  I'm on Day 11, #5 TCH.  I've had diarrhea though the whole chemo experience.

  • Thundershowers
    Thundershowers Member Posts: 36
    edited May 2011

    Pejkug3 - thank you for your reply.  I was a bit worried and when I told my doc her nurse acted as though it was something unusual.  I just picked up a strange vibe from her and that worried me.  I guess we are all a bit over sensitive right now - your reply made me feel a lot better!  Thank you and sorry for your Big D bouts - but I'm glad to know I'm not alone!  :)   This is day 12 for me and TAC #5 - so we are nearly at the same point. 

  • LisaGH
    LisaGH Member Posts: 242
    edited May 2011

    Lots of folks get either the Big D or the Big C- I was told to get Immodium too by my MO office if I had problems w/ D- I have not- but others I know have. Hope you feel better soon.

    I am getting really nervous about my last TCH (I'll still have Herceptin every 3 wks-  but not worried about that). Taxotere and Carbo are rough. I am glad this is the last one- but dreading the SE again. We are all making it- and coming near the end- hard to believe we all started in February???!!!

    Lisa

  • pejkug3
    pejkug3 Member Posts: 902
    edited May 2011

    Lisa!  You're on the slide toward home plate now!  Good Luck this week!

    Thundershowers - my onc office called in Lomotil for me.  But in my experience, Immodium works better.  I never get rid of the Big D, but it lessens the cramping.

    There is always something to worry about, isn't there?

  • alison0415
    alison0415 Member Posts: 35
    edited May 2011

    Hi All, I am checking in because it has been several weeks and I do miss these boards....

    pejkig3 - first, I am so very sorry to hear about you MIL, I will keep her in my prayers.  It is so hard when we have multiple major things to worry about in our lives.

    dragonfly1 - best of luck tomorrow and congrats on finishing up your chemo!

    jenn-h - I've had hair coming back in as soon as it fell out and it's the white weird kind that I really don't think is permanent hair growth.  I've been told that I should shave my head again after my last chemo and start new hair growth rather than letting that weird stuff continue to grow. 

    Sewinghut - CONGRATS!

    Like some TCH#5 was terrible, no doubt the first so far.  Add anemia to it and it makes for an almost unbareable week.  But I had now day 11 or so, and feel much, much better.  Makes me dread #6 that much more, but the fact that it's the last one sure does help.

    Good luck to everyone in the chair this week!!!!

    Alison 

  • sewingnut
    sewingnut Member Posts: 1,129
    edited May 2011
    Special K,  Lisa and Dragonfly,  Good luck this week. You are rounding the bend and heading for home in this journey.  Only a few more "crappy" days ahead then the hair watch begins :0)  Funny note, had my DH trim the hair that has been growing and it was like mowing dandelions. The clipper would go over the wirey spike then the darn thing would pop back up. Kind of comical !!
  • MamaV
    MamaV Member Posts: 907
    edited May 2011

    Lorenar - good luck with #6 - I'm right there with you on Thursday for my #6 too!  I will pray for you.

    Judy 63 - There are only a few of us who go into July, sorry you are on that list.  I know we all want to be done!  I started chemo Jan 26th and it feels like it's been going on forever!

    Have a good day everyone!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2011

    thundershowers - definitely the Big D for me all through - and it lasts for quite a few days.  I was warned that it would probably be one or the other, but also told by the onc nurses not to medicate it unless it was numerous times a day.  I think their concern was for dehydration, otherwise just try to put up with it.

    sewingnut - you are sweet to remember us triplets are finishing 1, 2, 3 this week!  I hope we all do ok.

    alison0415 - #5 tried to kill me too!  It was the worst so far - I am nervous about how I will be feeling after the weekend, but relieved that this is the last time!  When is your last one - is it Thurs. as well?  I seem to remember we were both on that day.

    pejkug - with all you have had to deal with I am glad you are on that countdown to the last one too!  And glad to hear things are a little easier for your MIL.

    lorenar - half way, yay!  The half way point was good for me - I could visualize the progress much better after that point - I could feel the last one getting closer every time I went in.

    braveheart - I am sorry I let so much time go by without responding to your post - I am done with chemo this Thurs.  I still have to have surgery to replace my left TE (hopefully sometime in June), have fills and then exchange later in the year.  I will still be having Herceptin for the year as well and taking an AI beginning at some point in the not too distant future.  I am supposed to return to work on July 1 but I am not sure how that will be working out, so it will be interesting!  You are so kind to wonder where I am in the process!

    Good luck to all this week - if you don't have treatment I wish you rest and regrouping!

    Kathie

  • dragonfly1
    dragonfly1 Member Posts: 766
    edited May 2011

    I'm in the chair for my final chemo right now-hooray!!! This is the last time I'll face these miserable side effects...Congrats to everyone finishing chemo this week-I'm so happy that there are so many of us at the end of this part of our journey. To those who still have more chemo, hang in there-you've come a long way already and you are closer than ever...

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