Still Uncomfortable with Implants
Comments
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mom3b- Dr. K took out my implants and replaced them with smaller ones. The space left behind is what he filled with the fat grafting. He said in order to get me to no implants at all I would need to go through 2 more procedures. If I wanted to do that he would have me wait 3 months and then take out these implants, replace them with an even smaller implant and do additional FG. The third procedure he would take out the implants all together and do more FG and I'd be done and have no implants. Not sure if I want to go through all that and I think just putting a lot of fat over my implants is going to make everything feel so much better. But it would be tempting to not have implants since down the road they will need to be replaced which will involve another surgery 10-15 years from now.
Your insurance has to cover revisions. It is a federal law. Dr. K was in network for me so everything was covered. (It'll be the only time in your life that insurance will pay for lipo so that's a benefit.) Just to warn you, though, doing the fat grafting will probably be much more painful than any breast surgery you've gone through. Also, just because a PS does FG doesn't mean he does it the same way Dr. K does. I believe the way Dr. K does it more of the fat is retained afterwards, the stem cells survive and there is less likelihood of the fat forming lumps. He transfers the fat drop by drop. It is very painstaking but it helps get a better result. There are surgeons out there, though, that have been trained by him so you don't necessarily have to go to him but I would ask the PS what their method is. As far as how I feel about the procedure- the jury is still out on my final results but I've definitely seen a lot of improvement. They feel and look much more natural especially now that they are warm to the touch. They felt like "Barbie boobs" before and that is now gone. I may not have the other two procedures and will still be happier than I was before.
bher- From everything I have read Dr. K's method works really well for those with radiated skin. It has to do with the stem cells that are transferred with the fat. I understand what you're saying about the heaviness of the implant. That is something that bothered me a lot. Not sure if it's because I now have a smaller implant or the fat being added but they definitely feel a lot lighter. As far as the new incisions, he said he didn't want to use the old incisions because they had healed so well and were barely visible. He said he could make a much smaller incision in the armpit and swap out the implants through there. He said it would heal quicker, be less visible and he also didn't want to disturb all the Alloderm by the old incision. (He hates Alloderm, by the way, and doesn't think it should ever be used. He said why use cadaver tissue when your own fat works so much better? Wish I'd known about him before I had gone through all my surgeries.) As far as the permanence of the fat it is going to vary from patient to patient. Most PS's, though, who do FG claim that only about 50% of the fat will be retained. With Dr. K's method, though, I think it's more like 85-90%. Some of his patients are 5 years out and haven't lost any of it. Just realize, though, that if you lose weight afterwards you will lose it there, too, which is why he really wants you to be at your ideal weight before beginning.
For those of you who just want to improve the look and feel of your implants you can do so with just one procedure with Dr. K. If you want to get rid of your implants all together you can do that, too, but it will take about three procedures to get there. If anyone has questions I would encourage you to go to Dr. K's site (miamibreastcenter.com) and click on the link to email him. He's busy so it might be several days before he gets back to you but he will take the time to answer your questions. You can even email him your photos and he will give you his opinion on what can be done.
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Kate- Sounds like you did not have to wear the Brava device since you replaced your implants with smaller ones. If you wanted to get rid of implants entirely, would you have to wear the Brava for some time period? It would be so nice not to have implants. Thanks very much for the info and for sharing your story.
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bher- During my consultation with Dr. K he had originally said that he would have me wear the BRAVA for 4 weeks prior to the second procedure during which he would remove the implants. But when I saw him for my surgery he was talking about replacing these implants with even smaller ones and not taking them out all together until the third procedure. I was so focused on this surgery that I didn't think to ask him which one was right. Maybe I could go either way? Probably a moot point since I don't think I could get to Florida again. My DH was just DX with Parkinson's and is going out on disability so once I'm feeling better I'm returning to job hunting.
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Faith, thank you for getting me on to this site. I now lnow I am not CRAZY or NUTS with this contraption in me. To make a long story short, I am pissed off at my dr. and will wait until 7-7 to see him. This site has educated me. Before my mast and t/es, I had to sign tons of papers acknowledging that I knew what I was getting into. The only reason I opted for mast was b/c they could not do radiation twice if the cancer came back. Can't look back, but every day is a nightmare for me. My augmented side is fine with implan, but the mast side is a brick, sandbag,
Dr. says I am not used to it. I had exchange in March 2010. Well it is one year later I am not happy. I will give it to 7-7 THE DATE. Now I know I have options. Thank you ladies.
Hugs,
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ronqt1 - Hang in there! We are here listening to you and we care about you. Keep us posted. It is a hard and confusing decision since everyone is so different. And it takes a while to decide what you want to tolerate, what's comfortable for you, and when you have just had enough.
For me on my road, I'm all for simplifing my life. I want to have them out, and call it a day!
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ronqt1- I think it helps so much to know that others truly understand what you're talking about and we do! I think too many BS/PS downplay MX and recon as if it's just like having a boob job. I know mine did and I went into it totally unprepared. I truly wish that before a MX it was required by law that they had to tell you what each and every option you had was and ALL the pros and cons of each one. So many times they will answer our questions if we have enough information to know what to ask but it seems very few times will they offer up more information than asked. This just has to change.
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Kate33- Yes, I like that idea about the docs telling a person about all their options and the pros and cons of each. That would have helped me immensly!!!! Or if not the docs, then an intermediate person who could give the needed information and help you with a decision. Sometimes the docs don't really care. Or just don't have a clue themsleves, about what things are really like. I didn't know enough to know what to ask.
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Kate- I feel exactly like you. We should have been way more informed and educated about our choices and about the pros and cons of our choices. My PS said my "new" breasts would be even better than my natural ones. What a joke! I think they tend to forget that we are not there because we are unhappy with our size or look but rather because we have just been given a very real and very scary diagnosis of breast cancer. It has been over a year since my exchange and I am totally unhappy and I am not giving up until I get some relief. Reading about several of you on here who have gotten some of their problems resolved has really empowered me to not quit! I see the new PS tomorrow and if I don't feel he can help me I will be calling Dr. K tomorrow! I have already checked and he is in network with my insurance which is great news. Thank you all for your information! It means so much!
Becky
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This is kind of off the subject but this whole lack of information infuriates me so much. All I can think about is the women who may not have access to the internet and are at the mercy of their doctors and what information they decide to dole out. My first BS never even told me that NSM was an option for me. Luckily, I did my homework before my MX. When I asked her about it she tried to talk me out of it and then I found out she wasn't even trained in the procedure. The most infuriating part of it all? I ended up having to drive 2 hours to find a BS that did the NS. (They don't exactly put out ads in the yellow pages.) I just recently found out that her partner in the same practice was performing NS but she never even told me or offered me a consult with her.
binga- Good luck with your appointment tomorrow. If you end up going to Dr. K I'd be happy to help you through the process as others have helped me.
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binga - Good luck and ditto with what Kate said. I'm happy to help if you end up going to Dr. K. My 1st fat graft w/implant exchange is now almost 9 months ago (wow!) and I love how my breasts look and feel.
Kate - I'm glad you are feeling better! Yipee for soft, warm breasts! :-)
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Lee,
Just curious....have you posted any pictures on the picture website?
Sandy
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Sandy - yes I have. Search for "fat grafting recon" I only posted my BEFORE and AFTER photos. I have more photos and my "progression" on fatgraftpatients.com
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I am trying to follow the post here. I have a question what is the Brava?
Is it related to helping the patient to decide what size is appropriate?
I know that Kate 33 is having fat grafting but I am interested in what the BRAVA is
Thanks
Laura
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The Brava is an EXTERNAL tissue expander. Just like with internal tissue expanders, room has to be made for the reconstructed breasts. With internal TEs, the space is later filled with implants. With Brava, the domes use suction that create a space for the fat grafts. Since it is external, there are no additional scars and the fat is injected by syringes so it is so much less invasive than implants. The pectoral muscles aren't compromised in any way, the tissue is warm and soft, there's no rippling - it's YOUR soft tissue instead of a cold, hard foreign object stuck in your chest. This is obviously a very short, over simplification of what Brava is. Feel free to jump on over to fatgraftpatients.com where you can read ALL about Brava as it's used for reconstruction and augmentation. Hope that little bit helped :-)
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I wasn't able to go to my appt today because I have a bad case of bronchitis. I was hoping to make my appt even though I am sick but I am running a fever and feel so bad I can't even get out of bed. So I rescheduled and the earliest I can get in is July 1st. I also sent an email to Dr. Khouri's office so I could go ahead and get an appt on the books with them since I figured they would also be booked. Cindy called me and I am scheduled for an appt on July 12th. She said I would need to have an MRI done first and scheduled me for that on the morning of July 12. She explained that I would do the BRAVA and if they put new smaller implants my insurance (United Healthcare) would not cover them. I guess I need to call my insurance and see what they say.
Becky
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Binga - not sure why you would need an MRI. I would email Dr. Khouri to clarify. Yes, check with your insurance and let them know that your implants are painful, shifting, rippling or whatever the case may be. It's a shame we have to fight for what we deserve but we are stronger. Good luck!
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Feel better!!! Bronchitis is such a pain......
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This is way off the subject but-------------lauralu- That has got to be a YORKIE!? My favorite dog ever!!!!
Our family pet was a yorky- for 16 years!!!! At the present time, my husband and I,
don't have a dog but we have a grandpup-yorkie, that visits. We love her. She is 5#.
They have such a great personality!!
You might try googling breast reconstruction/Fat grafting w/ Brava system
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Binga- I am going to send you a PM because I think you're already suffering from "cindy-itis". His PA is, unfortunately, pretty incompetent. I just had my procedure and I also have United Healthcare so it should be covered. I will write to you!
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Yes mtks this is my 3/4 yorkie X puppy he is about 10 weeks in the picture..I had a pure bred one previous to this guy!!! Love Them Too!
Laura lu
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lauralu- Your puppy is so cute! What's his name? I have two Yorki-poos who are sisters from the same litter. Just love Yorkies!
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My puppy is named Tukker.
I Love Him. He is a real cutie.
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Kate- you have a york-poo! How cute are they!!!!
I just LOVE YORKIES!!!! They have such personalities.
How are you? I am thinking of you always. Just love reading about your progress.
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mtks- I'm still very happy with the feel of the implants now. The only ongoing issue I seem to be having is the numbness/soreness under my arms from armpit to elbow. I had thought it was getting better but yesterday and this morning it was hurting so much I took a pain pill. The hard part of having surgery out of state is when things like this come up you don't know who to turn to. I will probably email the PS in Florida and just check in that this is normal. I know it's only been a few weeks but it seems like this would get progressively better. I think I have a little "cabin fever" going on, too! It's almost 100 here today and am stuck in the house and can't even get out to the pool because of the incisions. I should have timed my surgery better! LOL!
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Kate- I think the shoulder needs rest and healing. All the manipulation after all the surgeries we've had, it takes a toll on other parts surrounding the area. My left shoulder still aches from exchange. It's been 3 mo.
Hang in there, it will all be worth it!
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Kate & Take Two - 2 weeks today! Yeah!
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I everyone, well I went to PS yesterday b/c of not being happy with implants. I told him I am tight, it is heavy, it hurts, it is pressing against me, makes me nauseous. He suggested a pain management dr. before we take them out. He said he could understand it being too heavy. So I agreed to a pain management dr., then I will have one augmented smaller and have a smaller implant put in. I really think it is just too heavy. I am quite happy with this. However, I am now having knee surg next week, and he won't consider touching me until I am healed witht that, I have a tentative appointment with pain mgt 7-11. I have waited this long, can wait one more month. Today I had to volunteer/work and I paid attention to how I was feeling. Again, just too heavy for one person to deal with. I hope this nightmare will be over soon. This was a great thread for me to get on to. Thank you.
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Ronqt- Funny how your PS wants you to see a different doctor rather than admit he may have made a mistake when selecting the size of your implants. It bothers me when we are told to wait. We know our bodies (especially after having BC) and we know when something isn't right. Lately, I have heard more and more women unhappy because their implants are too large. I don't think anyone's complained about them being too small afterwards. They need to let women know that implants are going to be heavier than breast tissue so factor that into your comfort level. (No one told me this.).
PS's who are doing recon should realize that their elective patients are there because they want to change something and BC patients are there to do everything they can to have it stay the same or to try to return it to normal. We're not there to be Dolly Parton. We're there to be made whole again. -
It is so true about how heavy these things feel. I have a 600 cc implant on my reconstructed side and it is killing my shoulder.
Ronna--I have also been sent to a pain management doc (also a psychotherapist, but the way.) It goes without saying that I hope you have success with that. I was put on increasing doses of neurontin, which seemed to help at first, but then, not so much. For me, this pain has a life of its own.
I will be looking to revise my surgery soon. Right now, I'm having a rough time, regretting that I didn't chose a different surgery. I've mentioned earlier on this thread that I had an oppportunity to have reconstruction with a 'becker' implant that's in clinical trials. It's an expandable implant that goes right in the space where the breast tissue was, not under the muscle. It would have saved me the second surgery to place the permanent implant (it has a removable port--once it's the required volume, the port comes out, and you are done.) Maybe it would have caused less nerve and other damage, since they don't make a 'pocket' under the chest muscle.
I just ran into a woman yesterday, whom I know--she has had hers redone three times because of capsular contracture. I think that because she is very thin, they haven't suggested flap surgery. So coincidentally, she mentioned that she was thinking about another revision, and she'd heard about Dr. Khouri--I want to share your info with her.
As always, thanks for listening. Best, Joan
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Joansf- I was also told I was too thin for a flap but was able to do Dr K's method so you could tell your friend that!
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