Drinking alcohol

IllinoisNancy
IllinoisNancy Member Posts: 722

Do any of you ILC gals drink any alcohol?  I spoke with my oncologist yesterday because I have been reading a lot about ILC with er+ being really bad with alcohol.  He said one drink is perfectly fine and absolutely does not cause any harm.  I was having a few occasional drinks prior to my recurrence of ILC in October and have been scared to do it again.  I feel responsible for it coming back.  Any input on this subject would be appreciated.  I'm not a big drinker but enjoy one with the family when we are all together for a "happy hour".

Thank you,

Nancy

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Comments

  • sanbar8771
    sanbar8771 Member Posts: 281
    edited May 2011
    My onco said NO alcohol. I can have one drink a month. I thought what is the point? But realistically I have about 1 glass of wine a week. Wink
  • ebann
    ebann Member Posts: 3,026
    edited May 2011

    Never asked my onc. Figured if she didn't want me to  I would of heard. When I go out for mexican food I have a margarita, when I  go out to Chili's I get a presente, at home I have red wine with my meals. I am not going to stop living my life. I do the meditterean diet and it recommends to have have a glass of wine with your meal. So I do. I have cut sugar out and processed food....I need to leave something in there. lol Wish you luck in your decision.

  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited May 2011

    Hi,

    I see nether of you are ILC.  I've heard alcohol is ok for IDC and IBC.  It is just us ILC gals who are ER+.

  • sptmm62
    sptmm62 Member Posts: 665
    edited May 2011

    I have read that you should limit your alcohol intake to less than 3 drinks per week.  I have decided not to drink at all because it really doesn't mean that much to me, so I am not taking that chance.  That is just my personal decision, but you are right Nancy, I have read that there is a stronger correlation between drinking and ILC. 

    I think we all have to draw the line where we are comfortable.  We can't cut out everything that might increase our risk, so we do what we are comfortable with.  At least that is how I have approached my lifestyle changes since my diagnosis. 

  • toomuch
    toomuch Member Posts: 901
    edited May 2011

    Nancy,

    First, I want to say that although it's easy to blame ourselves for BC cognitively we should all know that why cancer occurs is multifactorial with genetics playing a huge role. So, while we can do things to decrease our risk of recurrence, we don't have total control.Please try not to blame yourself for the recurrence.

     I think that there is only 1 study on this and it showed that women who drank more then 3 drinks/wk with ILC had a higher rate of recurrence. My onc told me that I should limit alcohol consumption to no more then 3 drinks/wk. I have given up alcohol almost completely but I cook with wine sometimes and I'm not sure if this counts.

  • Kleenex
    Kleenex Member Posts: 764
    edited May 2011

    I have to say: I am still drinking as infrequently as I did before diagnosis, the equivalent of about three drinks a month, usually just one per "drinking event." I'll have a glass of white zinfandel or an interesting mixed drink. I am NOT worried about that. It can't POSSIBLY have caused this in the first place. I wish I had a clue why I got breast cancer, and I certainly am not going to take up serious drinking as an activity, but I have no problem having a drink or two if I am out with friends or at someone's house. I do find that two or more drinks in an evening seems to set me up for hot flashes (compliments of the Tamoxifen). 

    One of my "rules" I use to try to decide things now is to consider how annoyed I'd be if I had a recurrence or spread. My thought here has been that if it DOES come back anyway, it will be annoying if I didn't enjoy that yummy pina colada at the beach or a glass of my friend's homemade sangria on her back patio. I think that stress is bad for cancer and laughter and fun are good. So a couple of cocktails a month in a fun setting should have a net positive effect, in my world. I take my Tamoxifen, I try to get a lot more exercise than I was getting in the years before diagnosis, I try to eat well. I'm not going to torture myself, because if I did and it came back I would be EXTRA angry. I am not starting a new regimen where I have three glasses of wine per night with dinner, but the occasional social beverage is okay by me.

  • cathmg
    cathmg Member Posts: 278
    edited May 2011

    Hi Nancy-good topic, and interesting to hear different oncologists' take on it. I didn't drink a lot before bc-maybe 4 drinks a week at most. My onc has been "everything in moderation", but I see him in July and am going to ask about studies showing any concern with alcohol use. Plenty of my friends drink more, and they didn't get bc at age 43! I drink about the same amount now. I try not to eat much sugar or refined food, and I was always active and an OK weight. I really had no risk factors other than being female, getting older, and living in an affluent society. I doubt alcohol is the culprit...just my .02. Hope you are doing well

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited May 2011

    My onc said you would have to virtually be an alcoholic with a damaged liver for drinking to be a risk for bc.

    Nancy - hope you are doing better now.

    Sue

  • wallycat
    wallycat Member Posts: 3,227
    edited May 2011

    I think everything in moderation, including moderation ;)

    I drink the same as I did pre-diagnosis.  If drinking gave me my initial cancer then I fear I will have a recurrence from continued drinking but life is short.  What if my consumption did not lead to BC and it is a genetic flaw that is yet unaccounted for.  What if I get hit by a bus tomorrow or get e.coli from a bad cucumber (yikes, 3 dead in germany from spanish contaminated cukes).  

     I know gals on HRT with no cancer, even though proven increased risks exist.

    I know women alcoholics (some still drinking, some now dead and some recovered) who are cancer free (obviously the dead would not get cancer).

    My twin sister drank as much as I did in our partying 20's and she is cancer free.

    I had a perfect bmi, exercised, was vegetarian for at least a decade, ate organic, lots of fruits/veggies, took vitamins...who knows..maybe "Over-healthing" myself prevented any free radicals to kill of the cancer.

    Since there is no WELL known, absolute reason why we get breast cancer, I am not altering much in my life.  I eat meat, I exercise less, I still drink my wine with dinner, and I occasionally have a nice single malt scotch after dinner...not every night, but a tiny pour on occasion watching a good movie.  

    Life is short and I am going to try to enjoy it as much as I can.  I know Julia Child ate and drank with abaondon.  She died just shy of 94 and had breast cancer...mastectomy and no other treatment.  Not sure what type she had, but life and cancer are a crap shoot.  That's my story and I'm sticking with it.  If mine comes back, I will be sad; I will wonder why....but clearly even if we do it all "right" there is no reason why some cancers never come back, why some do and why some ever appeared to begin with.

    Best to you Nancy!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2011

    I agree--everything in moderation is key. My mom had ILC many years ago--she has an occasional glass of wine--has never had a recurrence in over 24 years .

    anne 

  • karen1956
    karen1956 Member Posts: 6,503
    edited June 2011

    My onc never told not to drink any wine....so I enjoy a glass or two of red when the mood strikes...as some of the others have said, everything in moderation....

  • Aggiecat52
    Aggiecat52 Member Posts: 55
    edited May 2011

    I did drink every day before I was diagnosed, wine and cider. Let's say one cider and two glasses of wine with and sometimes after dinner. I exercise six days out of seven, my weight is pretty good because of the exercise, I don't eat any red meat and take vitamins. After the BC diagnosis, I cut out most of the wine but still have half a cider with dinner. I will drink wine on special occasions but often just one glass.



    It's hard to say what caused us to get BC. I used to think it was the alcohol but I do have cancer in my family too. One of my aunt's on my Dad's side died of BC and a cousin also on my Dad's died of BC in her forties. No sign of cancer on my Mom's side. Like all of us, it came out of the blue. Suspicious micro-calcs seen on screening mammo and here I am.



    I agree with Wallycat. You do have to live your life!



    Aggiecat

  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited June 2011

    Thanks for all of the responses.  You ladies are the best!!

  • Hipline
    Hipline Member Posts: 195
    edited June 2011

    Like many of you I have tried to second guess why I have cancer.  Healthy and fit, or so I thought.  But I have been doing my own research and I'm convinced that for me an over abundance of estrogen was my problem and I am cutting estrogenic things out of my diet - like soy, non organic dairy and simple sugars.  I love red wine and continue to drink it but in moderation because it too is estrogenic.  The one thing the onc said was to drink the wine with a fat or protein - never simple sugars - as that will help the metabolism of the wine.  So, wine and cheese, a few nuts and I'm happy!

  • pickle
    pickle Member Posts: 1,409
    edited June 2011

    I have two glasses of wine every evening. My onc said a glass a day but my DH and I enjoy our wine with dinner. On the positive side...my Doc said I have the best cholesterol levels in his entire clinic. I have never eaten  soy, sweets, sugar , I very rarely have chips or junk snacks, don't drink pop so I think a couple glasses of wine won't hurt.

    I had IDC & ILC (two separate tumours in different quadrants)  

  • GabbyCal
    GabbyCal Member Posts: 277
    edited June 2011

    Hi Nancy - I'm struggling with this same issue. I'm learning that so many guidelines are actually based on IDC since there are relatively few cases of ILC. I'm interested that you've uncovered evidence specific to ILC ER+ indicating recommending no alcohol. And disappointed as well as I too enjoy the sociability of happy hours and a good wine with dinner.

    Since my diagnosis, I've limited but not eliminated alcohol. Whether from fear or anxiety or whatever, it's not a joyful as it used to be.

  • Sereena
    Sereena Member Posts: 99
    edited June 2011

    I love my social drinks and since my dx I feel so guilty having them let alone enjoy them. I read an article posted by a top breast surgeon where she stated that ILC and alohol are like gasoline and fire. BC has altered our lives in so many ways right down to the social piece. I have always been careful about my alcohol intake because of the sugars and because I eat clean all but one day a week....my cheat day. Does this one day where I might have 3 or 4 drinks really jeopardize my reoccurence I wonder. I am going to Curacao for a week with a group of friends next month and am wonder if having tropical umbrella drinks everyday is going to put me back into the operating room! I know....what's more important.....my health or that alcoholic beverage??? I know the intelligent answer but geeeezzzz....a girl has got to have fun!!!! Doesn't she??

  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited June 2011

    Hi Sereena,

    I'm in the same boat as you.  My oncologist has only OK'd one drink "occasionally".  He said the only women who have to worry are the ones who drink 3 often.  WTH does that mean.  I hate to sound like an alcoholic but having 3 drinks over a 6 hour period seems reasonable to me.  When I was first diagnosed in 2006, I cut out all alchol for about 2 years.  Then I started getting comfortable with my dx and I had several drinks on weekends and probably 6 glasses of wine on my son's wedding day which was over a 7 hour period.  I got my cancer back within a couple months after that.  So I guess I will follow the doctors orders and have just have one drink on special Friday's or Saturday's.  It really takes the fun out of living sometimes. 

  • GabbyCal
    GabbyCal Member Posts: 277
    edited June 2011

    Sereena and Nancy - I'm right there with both of you on this. Just takes the fun out of living sometimes. And don't get me going on all the women I know who have been doing all the "don'ts" and ignoring all the "do's" for years (taking HRT, smoking, overweight, no exercise, etc.) who don't get BC while some of us who are role models for healthy living end up with it.

    With that off my chest, thank you both for making me aware that there is evidence out there specifically regarding ILC and alcohol. I had no idea. 

  • suzanneinphoenix
    suzanneinphoenix Member Posts: 208
    edited June 2011
    My oncologist teases me about drinking....since I'm orginally from Kentucky ( I guess he thinks everyone has a still) But he did say no alcohol.  My dx is not ILC, but I would think it would be "NO" for anyone with any form of BC Undecided
  • CML0310
    CML0310 Member Posts: 75
    edited June 2011

    I have to say I am torn on this subject.  I havent specifically asked my oncologist about drinking but when we discussed the possibility of me doing chemo I asked him about dietary restrictions.  he told me to eat whatever tasted good, because i might have a metallic taste in my mouth.  he said i could drink a bit if I felt like it- but if you like red wine(which I do) itmight not taste as good for a while. So I didnt get a hard and fast no alchohol.  I agree that we shouldnt take the fun out of living.  In the grand scheme of things I think I did just about everything right. I got my mammograms when I was supposed to, exercise 4 times a week, eat healthy etc.  Admittedly I drink on occassion. I think going forward i may turn down a drink more that i have in the past or have one instead of two.  All things in moderation...maybe a little more moderation going forward.

  • angeljoy
    angeljoy Member Posts: 128
    edited June 2011

    For me, breast cancer sure has taken the fun out of drinking! Not knowing if it might have contributed to my getting BC or if it puts me at greater risk of recurrence, I just find I don't feel the same about alcohol as I used to. I usually limit myself to 2 drinks a week.  If we are on vacation or something I bend my "rules".

  • Sereena
    Sereena Member Posts: 99
    edited June 2011

    Angeljoy, My feelings exactly! I enjoy all those social events which always involves 1, 2 or even 3 social drinks and sometimes more than once a week. When I take a drink now all that's in my head is BC. Where's the fun?? I still do though, on the weekend have  a couple drinks and I am leaving in a few weeks to the Caribbean for a week with another couple and there will be umbrella drinks. I will try not to think of the BC. Its only a week.....can it hurt that much? In one week can the alcohol produce enough estrogen to wake up those ratty cancer cells. Just wondering about that!! BC really stinks:-(

  • ck55
    ck55 Member Posts: 346
    edited June 2011

    I definitely enjoy my white wine Wink. Maybe more than I should, but that is my choice. As I am sure others have witnessed, I have had friends who were avid runners, thin, never drank and ended up with breast cancer. And of course the opposite is true, those who drink like fishes, never exercise, smoke and never have any problems. Who knows?

    I also wonder, as far as the estrogen/alcohol issue - if one is taking an AI which is preventing the production of estrogen, is drinking alcohol still a factor? I know my estrogen is low because I have had it tested, so the AI's are doing their job. 

    Any opinions?

    Cyndi

  • sweetbean
    sweetbean Member Posts: 1,931
    edited June 2011

    You know,  I don't think we can compare our lives or make decisions based on the people who did/ate/drank whatever they wanted and never got cancer.  We are not those people, unfortunately.  We ended up with a cancer diagnosis, so I think we have to make our dietary choices based on how to prevent a recurrence.  If alcohol is contraindicated for women who have a history of cancer (and it seems really clear to me from everything that I've read that it is contraindicated) then we should basically avoid it, except on really special occasions.  That whole "kerosene on a gas fire" comment really got me thinking this morning.  

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited June 2011

    Cyndi.....I have asked the wine/estrogen/AI question and there doesn't appear to be any information on that one yet.

    I am continuing to enjoy one of the supreme pleasures in life. But that is me.

    I don't believe there is any accurate data on alcohol consumption BTW.  It's all self-reported, and I suspect that most women under-report this type of information. - Claire

  • kira1234
    kira1234 Member Posts: 3,091
    edited June 2011

    I have read that there does seem to be some risk if you have ILC. That being said I still will enjoy an occasional drink when my DH and I go out to a restaurant.

  • GabbyCal
    GabbyCal Member Posts: 277
    edited June 2011

    I was at a restaurant the other day and noticed that sign places that serve "adult beverages" are required to post. Hadn't paid much attention to it for a while since I thought it was just there to warn pregnant women about birth defects. Come to find out, it said drinking alcohol "..may cause cancer and in pregnant women may cause birth defects".

    I too consider a glass of wine with dinner one of the "supreme pleasures in life".  

  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited June 2011

    I've read the study and it hasn't change my thinking.  I seldom over-indulge anymore -- just don't want that headache and wasted day.  But if I feel like a drink or two I'm going to do it.  I've already lost a lot of days and time to cancer when I was in active treatment.  I'm not going to spend time worrying about risks that may or may not apply to me.  What's the point in going through chemo, radiation, surgery and emotional trauma if we live our lives in fear?  Instead of living in fear I want to spend my energy on doing the taking the extra steps to try and keep my eating healthier and my exercise more regular.  And doing it because I feel good about it and not feeling like it's what I have to do.

  • trying2Bpositiv
    trying2Bpositiv Member Posts: 18
    edited June 2011

    I continue having an occasional drink. Not as much as before. I have discovered non alcoholic wine and enjoy it. So if I want more than the occasional glass of wine. I get out the non alcoholic wine. No buzz but does taste very close to the real thing

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