Wheeee!!!! Here I go again!!

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited May 2011

    Ann - if it does turn out to be mets and HER2 take comfort in the fact that herceptin will probably kick it in the butt. One of our Nov09 chemo girls is now NED but still on herceptin indefinitely.

    ((((((((((((((((BIG HUGS)))))))))))))

    Sue

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited May 2011

    Oh, Ann, I'm so sorry to hear this.

    I know from the tone of many of your past posts that you try to deal with difficulties by using humor, so I am assuming your doc was reaching out to that part of you when he used the term "salvagable". People live  for years with bc mets.

    So we're over at the Stage IV forum, waiting to greet you. None of us wants to be there, but at least we have each other.

    All the best.

    Leah

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  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited May 2011

    Ann nothing to say but I am sending up prayers. (((hugs)))

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited May 2011

    Sending my most gentle hugs along with prayers and thoughts to you. I wish you well.

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  • allisontom911
    allisontom911 Member Posts: 425
    edited May 2011

    ((((hugs)))) Ann. Sending good thoughts your way.

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  • DiDel
    DiDel Member Posts: 1,329
    edited May 2011

    Coolbreeze so sorry you are going through all this...just know everyone is here for ya anytime you need someone to talk to or a cyber hug!!

    Stay strong.

    Diane

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  • 2Hands4me
    2Hands4me Member Posts: 484
    edited May 2011

    Sending you hugs and prayers. One step at a time. First the biopsy, then the PET. Sometimes we try to look at the whole big picture, but sometimes it's best to just take one day, or even one hour, at a time! You can do one step. After that, you can do one more. And then another. Reach out, ask questions, do works for you. You always have our care and support.

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  • Cleb
    Cleb Member Posts: 28
    edited May 2011

    Coolbreeze, please let us know how you are.  I am praying for you.   I just finished chemo in Jan. 11 and rads in April 11.  I just found two kidney bean sized lumps under my left arm 3 inches from the pit and a large (egg) sized red lump on left shoulder blade.  My cancer was on right side but one week after rads finished a softball sized lump appeared on my left side of my back along with "the burn" type mark that radiation leaves. When I called onc they said that they told me this could happen.  I don't recall that conversation.  For all of you that presented with bone mets, does it hurt and turn red?  I don't know how to react to all of my emotions and thoughts since I've been diagnosed!  God Bless ALL of YOU!

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  • amlg1
    amlg1 Member Posts: 596
    edited May 2011

    So sorry to hear this news,will be praying for you.Please keep us up to date.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2011

    Cool-Breeze, I am sorry. Let's hope the biopsy comes back just a cyst. I had a Pet and 2 CTs yesterday. Going nuts playing the waiting game and (of course)  this is a longer than normal weekend. - Jean

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  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited May 2011

    You are all so awesome.  And, I'm sorry for those of you who are waiting for results - it's the worst. I chastised my onc, "why didn't you call me? You could have called me with this news!"  He said it would be irresponsible of him - he has to give the news in person in case it makes somebody suicidal - then he can be there to help them cope.

    I said, "'Well, I'm not going to kill myself because I'm going to die!"  :)  Anyway, he still won't call me with bad news, I can't make him budge.  But, he'll see me within two days of any tests so that's a plus.  Getting through to his secretary to make that appointment though?  Not sure she ever answers her phone. 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2011

    My oncologist sees me first, then orders the tests. Every time he's called and just says, "looks good" when in fact times, it did not. Thank God for my PCP who sent me to other specialists to address the issues. (tumors in esophagus, colon, chest, and mouth).  Last year, day before Thanksgiving, I had scans, he called and left the same message on my cell phone before noon (11-11:30). That's when I lost any respect for this man - I wasstill having my scans when he called!!!!

    If I don't hear something by 10:00 tomorrow morning, I am calling the office. I guess if he says,
    come in, I better be prepared for bad news.

    Jean

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  • K-Lo
    K-Lo Member Posts: 2,743
    edited May 2011

    Cool breeze/Ann.........



    Fudge gol dammit. I keep waiting for liver b/c my granma had br ca go to liver. Listen, does it hurt there? What's next?

    My onc calls me with results but tries to set an appt immediately after the scan if possible. She thinks I deserve that trust about honesty and speedy responses.

    Can't say enough about being at a teaching hospital. But even there you have to find out from the chemotherapy nurses who they would go to. If that's not worth fighting for, I don't know what is.

    Ann, keep talking it out, we want to support you. Xoxo Kathy

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited June 2011

    Ann - hope you're doing OK - we're all with you through this difficult time. 

     (((((((((((((HUGS))))))))))))

    Sue

    2nd diagnosis October 2010 - IDC 5.8mm node negative - missed on mammogram in October 2009
    Diagnosis: 10/13/2009, ILC, 1cm, Stage I, Grade 3, 0/5 nodes, ER+/PR+, HER2+

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  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited June 2011

    Thanks everybody.

    Does it hurt?  I have had lower left flank/back pain for six months.  However, that is apparently unrelated to the liver lesions, and now that has me quite nervous.  I've had a spinal CT that came up nothing, the CT in December that came up nothing, and the lastest one mid-May that showed the liver lesions - my onc says are an incidental finding.

    That pain, assuming it is cancer, means it is likely not isolated to the liver.  Of course, I suppose I could be having some referred pain, although referred pain from liver often goes to the shoulder.

    I do have occasional stabbing pains in my upper right back behind the ribs.  That's from the liver certainly.

    What caused him to do the second CT in five months was sudden bloating and weight gain.  Again, we don't know why because I don't have any acites.

    It's just weird.  I guess a PET will disclose all! 

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  • 2Hands4me
    2Hands4me Member Posts: 484
    edited June 2011

    How are you doing? Thinking of you..... When is your PET scheduled? One step at a time, slow deep breaths.....

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  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited June 2011

    I'm still here!  The liver biopsy hurt like hell, I'm not going to lie.  I know exactly what it feels like to be stabbed now.  I get the results on Wednesday and that's when we'll set up the PET.  I am not going to allow them to schedule me for that weeks in advance, and as it turns out, I have a little in with the scanning place that I am going to use to full advantage.

     I've little doubt that it'll be mets but there is always that sliver of hope.  I'm increasingly anxious and it seems like forever until Wednesday.  Somebody posted a picture of a tropical drink on facebook and now I want one seriously bad.  I have no idea if drinking is a negative with liver mets or not but maybe until I'm diagnosed for 100% sure, I should pretend I don't know.  :).

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  • o2bhealthy
    o2bhealthy Member Posts: 2,101
    edited June 2011

    Ann - go ahead and have a cool drink...

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  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited June 2011

    Oh that looks so delicious.....

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  • Letlet
    Letlet Member Posts: 1,053
    edited June 2011

    Ann...I'll be checking all your posts on Wed...I'm still hoping .

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  • 2Hands4me
    2Hands4me Member Posts: 484
    edited June 2011

    Hold on to that HOPE - even a sliver is worth it and it may be the whole pie, not a sliver! The PET should be a piece of cake after the liver biopsy! But then more waiting for results.... (There's a thread called something like "The Waiting Room" where others are waiting too. Let me know if you can't find it and would like to). Thoughts and prayers are with you!

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  • jacksnana
    jacksnana Member Posts: 168
    edited June 2011

    Sometimes a sliver of hope is all you need and we always have to have hope!  Will be checking in on you and keeping you in my prayers.

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  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited June 2011

    Thank you all.  Tomorrow morning at 9:45 I see the doctor.  I'm going to work after and I'll see if I can sneak on and post the news.

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  • o2bhealthy
    o2bhealthy Member Posts: 2,101
    edited June 2011

    Fingers and toes crossed for good news!

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  • GoldenEyes
    GoldenEyes Member Posts: 180
    edited June 2011

    Anne, I am so sorry that it was so painful for you (biopsy) Keeping you in my thoughts and prayers for tomorrow.. Hoping its NOT mets.. Please keep us posted...

    Donna

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  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited June 2011

    So, ladies, it is liver mets.  I am now officially in the Stage IV section.  I have a PET tomorrow and a treatment plan will be set on Monday.  

    Thanks for the well-wishes! 

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  • GoldenEyes
    GoldenEyes Member Posts: 180
    edited June 2011

    Still keeping you in my thoughts and prayers hon..Please keep us posted.. Everyone is here for you.. Keep fighting...So many here are stage IV.. The ladies are wonderful .. great support and love here

    Donna

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  • Makratz
    Makratz Member Posts: 12,678
    edited June 2011

    I'm praying for you too, Cool Breeze.

    ((((HUGS))))

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  • 37antiques
    37antiques Member Posts: 643
    edited June 2011

    ((CoolBreeze))

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  • 2Hands4me
    2Hands4me Member Posts: 484
    edited June 2011

    Hold on to HOPE - there's lots to be done! Thoughts and prayers continue!

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