DIEP 2011
Comments
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OMG!!! you ladies are scaring me a little with your talk of frankentein bods and depression...eeek.
My surgery is 3 weeks today and last night I started having a little anxiety attack...thinking that I am ACTUALLY going through with this.
carberry...I don't know about anyone else, but I would DEF love to see a pic of your girlz in a low cut t-shirt...lol Any encouragment wecome here.
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me too carberry... being someone who is about to enter into the whole diep journey am appreciating hearing more and being forewarned about the reality of post surgery depression, expectations met or no etc
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Those feelings are part of the process for some of us, but not all of us. I wouldn't have done it any differently even with the challenging parts. I know some of mine is a delayed reaction to BC plus a history of depression.
I've really enjoy wearing camis with a cardigan in order to show off my cleavage, even though I only have cleavage on the diep side! My other side is too droopy from nursing and gravity, but I plan on that changing with stage 2.
The pictures you find that show the 'naked' truth don't tell the whole story. My tummy is also FLAT, FLAT, FLAT! I have quite a bit to lose off my hips & butt, but hey, from the side and front, I'm happy.Yesterday, I noticed how close to the surface my hip bones are!
ladym13: The anxiety as the date gets closer is pretty normal - get yourself listening to some of the tapes mentioned earlier in this thread, they can make a HUGE difference, in both how you feel and how you heal. I felt scared to death and excited all bundled together. My test was: how would I feel a year from now if I didn't go through with it? Regret & sadness kept coming up.
There is a thread asking women if they would to it differently, posed for those with implants and diep. That is a good place to see a broad spectrum.
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I am so excited!!! I just got a text from Mscal and she said she is doing fine and is up walking around. They took the IV out today and she expects to go home tomorrow. Hoooorrrraaayyy for Caroline! She is only 4 days post surgery.
Sue, I hope you are doing great as well! The two of you are giving the rest of us courage and hope!
Susan
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You beat me to it! I had a text from Carolyn too. It said the same. She is showing us how its done.
She said they removed the IVs from her hands. They put them in both hands? What about the lymphedema risk? I am not supposed to have needles or BP on right. I kind of wish the port was still in.
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One week out today. Don't be scared off, it is a rough week but I feel better and better each day. In the hospital I kept telling myself in a few day I will feel a lot better and I do!!!! My incision sights have not bothered me, it has been my shoulder and low back from being in bed those 1st days and stooped over the 1st few days. I have been standing straight the last few days just because of my back.
I have hardly taken anything but Tylenol since day 3. Anything stronger is hard on my stomach and I told them so before surgery. But they insisted even tho I told they I wasn't having pain. I ended up Thur. evening dry heaving for and hour and a half and did get sick but imagine how that felt on my stomach.
I have not experienced and depression.
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The bad parts are over so quickly and, I was hapily drugged up so it was over before I knew it. The depression is normal and it passes quickly too. I acknowledged it, let it be and then it was over. You just have to roll with it. This may all be a big deal (and it is) but there are so many other BIGGER deals we could be dealing with. Perspective is a great thing!
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How long til the swelling goes down?
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Sue, since I haven't done it yet, I can't tell you from personal experience but several people have said it will take a few months for the swelling to be completely over. What are you able to wear right now? Are you pinning your drain tubes to your clothes? How long after surgery did you have to wait before you could eat? LOL!!!! You know what I am worried about! If my memory is right, you have to drive almost 4 hours to your doctor, right? Are you going to have to drive all the way there and back in one day for your post-op visit?
Susan
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ok guys so I tried to get some pics here, got them loaded to photbucket, but that is as far as i could go. i have no computer sense! Will keep trying. Wish I had one of my kids at home.Ha!
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IowaSue44 - So glad you are back and doing better day by day. Want to hear more about your
experience when you feel up to it.Happy to hear Mscal02 is up and moving around. Wishing her a smooth recovery too.
Of those of you who have DIEPed already, has anyone had a hysterectomy before DIEP? I have and I'm trying to gauge if DIEP will be more or less or the same difficult first couple of weeks of recovery. Hysterectomy was internal whereas DIEP is external. Trying to get my head around all this. Anyone know?
Nowords - wishing you all the best on Friday. Will be sending positive thoughts your way for a smooth surgery and a rapid recovery. We'll be waiting to hear how you're doing.
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I have stretchy shorts and today I thought I was going to sit out in the sun so I put on my shorts and a zip up cover up with a wife beater. Been pinning my drains to my shorts. I do have to drive back there tomorrow for my follow up, I know long drive huh? I think after tomorrow I won't have to go back for a month. If my drains aren't ready I can have them removed local, it looks like they will be ready to come out.
Eating- nothing 12 hrs.out from surgery except a suck on a mouth swab. Then I started with jello, applesauce, juice and water. then the pain meds. made my bellyache and I had a hard time eating.
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Sue, I will be thinking about you tomorrow. Do you have to drive yourself or do you have someone to help? That seems like a long trip for you alone. Let us know what the doc says. I hope you get your drains out!
Susan
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Hubby drives me.
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I think my swelling has just gone completely down to "normal" and I'm at 8 weeks today. Of course, who knows what "normal" is since my body is completely different than it was before.
I still do have a bit of pain on the "outside" of both Toobs. It is really where my drains were, so that might have something to do with it.
Man, I hated those drains!
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I almost pulled my own drains - they billed my insurance something like $280 for each visit, had I known that, I think I might have! There is nothing to it, but I think it is pretty common to have a local doc pull them.
Massage helped the pain associated with my drain exit points - it felt like scar tissue pulling when I moved my arms. I have occasional pain at the hip incision and where the incision scar goes under my breast - sometimes it feels like a bruise.
Yoga and elliptical today, only a couple of poses that produce a twinge here & there in my chest/breast. I'm 9 weeks out.
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yoga and elliptical at 9 wks out! That is good to know. I had a conversation with the BC coach at the Y today and she wanted to know when I might be ready for the Lance Armstrong Livestrong program and I really didn't have any idea. I know everyone is different.
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hen I had BMX with TE and 4 drains was not allowed to shower, great risk for infection because of the Tissue Expanders. But I did shower anyway after installing a hand-held shower wand and put a big plastic bag over me and Hubby washed my hair.
After DIEP PS said it was ok to shower with my six drains. Another difference with PS instructions.
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Happy to see you back IowaSue, you do give us hope, keep up positive posts
Im so glad to hear Mscal02 is doing well, l continue to pray for smooth recovery. I love coming to this place eveynight, you ladies are such a wealth of information and hope. Thank you!
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alexanjb: I did the Lance Armstrong program but had to stop in the middle for my diep. I don't plan on getting back to my full program until I'm three months out - too much strain on abs & pecs. I eased myself into things and didn't use my right side very much, so a lopsided attempt! I'm still not pushing myself on the elliptical. Not sure if starting stuff too soon caused some of my ab scar tissue.So hard to know what causes what or if it just how my body 'does' things.
Dee: A big plastic bag is a great idea . . you could cut arm holes in a big trash bag and be all set!
The doc that didn't want my drain exits to get wet gave me "Tegaderm HP; transparent film dressing frame style" kind of a clear bandage with an adhesive frame around the edge, so I could protect the drain exits but still shower. I used a shower chair and a hand held shower head with my DH standing by to hand me things and help out (a good long back scrub - heaven!).
The back ache and med side affects were the worst; the surgical stuff wasn't too bad.
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Treesprite-thanks for the info. The next Livestrong Program here will start in September and my surgery is June 8 so that might work out just right (approx 3 months).
When I had my mx I showered by putting a platic patio chair in the tub and wore a rain poncho from the $1 store. I already had a hand held shower. My tub is oversized so the patio chair might not work for everyone. The tegaderm is a good idea too. I have some left over from when I had the port.
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Hi Everyone, haven't posted lately. I am 10 weeks out today from my Uni-DIEP. I am walking/running 2 miles every morning before work and last week I started a toning class at the gym. Last week which was the first time was tough, was extremely sore since I haven't had much exercise since before my treatments last year. Today I am going for the second time this week. I am feeling really good and more flexible everyday, we just have to listen to our body but push passed the comfort zone. My clothes are starting to get lose all though the scales don't show it yet. I want to lose as much of this 25 lbs gained in chemo as I can before my next surgery July 19. Stay encourged girls, this side of surgery is feeling great, so glad I did the surgery just ready to get finished but I know I have to be patient. Good Luck to all you girls recovering & waiting on surgery.
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I am trying to edit my profile to include my treatments, I hope it works.
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I am trying to get my surgery info, sorry guys. Maybe I have it this time. :-)
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Hi Ladies: i got home today. Just gotdone eating and I am headed for lala land with my friend pergoset. I look like a movie star,well work that they would have had done.I am glad that I went through with it My PS is very pleased. I will tellyou all more tomorrow. Thank you for all of your prayers and don't stop praying for me.
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Hi mscal02! I am happy you are doing so well and I appreciate you delaying la la land to tell us. I had my pre-testing today and of course I am second guessing myself about going through with this. I told my daughter that maybe I am nuts to be even considering putting myself through it. She said that it something I need to do or I wouldn't have gone this far. So, you saying you are glad you did it, when you are less than a week out from the surgery helps a lot.
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Alexan, when is your surgery? Two more weeks?
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SAMmayoFL, Yes my surgery is two weeks from today. EEEEEEEEEEEEEEEk
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OMG, I am taking deep cleansing breaths with you. We are going to be FINE!!!! I know it! Carolyn and Sue are both doing great. We are going to do great as well. I have such a hard time keeping people straight. Is your surgery bi- or uni-lateral? Does Mscal or someone else have your phone number? When it is my time I may put my number right here so everyone can text me. The thought of ya'll checking on me gives me great comfort. Plus, being able to talk to one of their family members has helped to alleviate my fears a great deal. Deep breath, we are going to be HOT when this is all over.
Susan
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I am going for a unilateral. I asked the anethesia nurse if she could knock me out now and wake me up when it is all done. She just grinned.
By the way, what are you all telling people about your surgery? Like the people at work that are not your closest friends, but people you have known a long time? I am not ashamed or embarrased but I don't really feel like making an announcement either. Hey everyone! I am getting a new TA TA! I mean a Noob. But I don't want them to worry that it is surgery for cancer either because that is what people think of first and I don't want to scare them. Privacy is nice, on the other hand I don't live in a vacuum and I see these people every day and have been for years. I am kind of handling it one by one, so far. But when I come up missing everyone that doesn't know will be asking my daughter because we work at the same place. I am amazed at how comfortable some of the men are about asking questions.
I haven't given my phone number to anyone on here yet. I will PM you. Probably posting it on here is not a great idea. I've read about some of the hijacking of posts on here to bogus websites. I guess the moderators handled it, but that doesn't mean someone won't try it again. We don't need whackos calling us. I will probably ask my daughter if it is OK to give you her number as well, or give her yours. She will probably be the one to give updates and she is much attached to her iPhone, I wouldn't want to ask her to monitor my phone as well as hers, while I am out of it. She doesn't consider MY phone to be user friendly at all.
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