DIEP 2011

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  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited May 2011

    Sue, we are all thinking of you and hoping to get some news soon!

    Susan

  • mscal02
    mscal02 Member Posts: 522
    edited May 2011

    Maybe I will wake up looking like Rachel Welch.

  • misszed
    misszed Member Posts: 90
    edited May 2011

    MsCal02 - Wish you the best for tomorrow, positive energy all the way!!!

    Sue - Hope all went well for you and that you are getting much needed rest.

  • ladym13
    ladym13 Member Posts: 251
    edited May 2011

    Good luck mscal02....I can't wait to hear how you make out. Sending you positive healing energy.

    Good luck....3 and half weeks for me....eeek

  • grdnslve
    grdnslve Member Posts: 310
    edited May 2011

    mscal02--rachel welch huh..let me know how that turns out!  my dh would be over the moon if that was a possiblilty!!

  • misszed
    misszed Member Posts: 90
    edited May 2011

    LadyM - Im 3 weeks away....no feeling so anxious anymore. We can do this!!

    OMG grdnslve you have the same surgery date as me!  Good luck to us!! 

  • treesprite
    treesprite Member Posts: 359
    edited May 2011

    LadyM and grdnslve - your surgery date is my wedding anniversary, 34 years, so it is very lucky day!

    Okay, I'm dense, what is a noob? (foob- fake boob?  noob - new boob? natural boob?)

    At some point, you 'screw your courage to the sticking point' and go forward with as much confidence and power as you can muster! 

    I printed off a picture of a fierce chinese dragon and had them tape it to my leg; it was my protector! Whatever it takes to shore up my courage, I'm going for it! It worked for my mx and it worked for my diep (well that and having a great team probably helped just a teeny bit as well).

    Kathy 

  • mscal02
    mscal02 Member Posts: 522
    edited May 2011

    Good morning all: The Lord and I are off to see the wizard!

  • alexanjb
    alexanjb Member Posts: 304
    edited May 2011

     mscal02-hmmm Off to see the Wizard is right!  Shall we call you Rachel from now on?

    Treesprite noob is new boob because we feel that the DIEP boob is NOT a fake boob, just a new boob.  Noobie, Noob.  It is part of us just relocated (by the Wizard).  I think we will bond with it better if we don't label it (or them) as fake.  I guess they could be toobs (tummy boobs) but that sounds like we are hanging a bit to low doesn't it?

  • alexanjb
    alexanjb Member Posts: 304
    edited May 2011

    Have any of you taken your MP3 player in to surgery with you?  Bellaruth Naparstek suggests it in her Guided Meditation for Surgery and said most surgeons are good with it.  She said that studies have shown it is helpful to listen to it even when you are sleeping.

    BTW-mscal02 sent me a number to check up on her.  I will try that this evening.

  • c8ndygr1
    c8ndygr1 Member Posts: 186
    edited May 2011

    alexanjb - LoL - not toob (tummy boob), it makes me think of inner tube and I sure don't want one of those. As for mp3 player in surgery, I don't think my battery would last that long 10+ hours. It would be nice though to listen to Frank Sinatra sing, "Noobie, noobie, new..."

     Cool

  • grdnslve
    grdnslve Member Posts: 310
    edited May 2011

    yeah-not toob...makes me think of my waist.  or what once was.  now it just looks like a semi-inflated tire lounging about the top of my jeans. 

    just got a call from the ps office--changed my date to june 24.    :(   i grilled her about the recovery, as that is 2 weeks closer to the wedding!!!  she assured me i should be able to get into the dress.   so think we may take a little trip during those 2 weeks to distract me.  hope that is a lucky day too.  btw--congrats on the anniversary kathy & much happy happy to you & the dh.

  • alexanjb
    alexanjb Member Posts: 304
    edited May 2011

    grdnslve-that's a bummer, I hope they don't do that to me!  Did you have your pre-op appt yet?  I can't remember.  Mine is this coming Monday.  How close does the surgery date put you to the wedding?  I know you said 2 wks closer but how much time will you have in between for recovery?

     I sent a text to mscal02's phone and hopefully her GD will give us some news.

  • XRAYestInMA
    XRAYestInMA Member Posts: 132
    edited May 2011

    Re: IPods during surgery. When I spoke to a pre-op RN the other day, she mentioned that I could listen to my MP3 player during surgery if I wanted to OR I could just request specific music to be played in the OR suite. Imagine that - I could rock out to Elton John or Fleetwood Mack while I am DIEPing, HA HA. Funny thing is - I probably wouldn't even remember the music even if it was played. I was in an orthopedic OR case today at work and while the surgeon was repairing a shattered ankle ~  his IPod was playing some really funky tunes from a group called Chumbawumba, or something like that. I didn't care for it, but I'm not the surgeon so I def. don't make the OR rules. I have also been in urology cases where a certain surgeon favors Beatles tunes. That was pretty cool. I may bring my IPod for some after surgery tunes, but have no intention of using it during the surgery. I told my DH and the children that I plan on getting a 10 to 14 hour snooze while I'm being re-built. No music needed - just peace and quiet would be nice.

    I refer to my new DIEP boobs-to-be as NOOBS also. They will not be FOOBS since there will nothing "fake" about them, and definitely not TOOBS. I think there is a condition where natural breasts can grow tubular - Google it. They are not too pretty, IMO. They will not be DOOBS either = Diep Boobs 'cause that sounds ridiculous. So NOOBS they shall be, =) 

  • alexanjb
    alexanjb Member Posts: 304
    edited May 2011

    I was wondering about the IPOD during surgery not for music but for the guided meditation and affirmations by Bellaruth Naparstek.  She said they have done studies that show it is beneficial in pain management and healing.  It seems like it would be something else for the surgery team to keep track of or have in their way but if I am told at pre-op then I will consider it.  My battery wouldn't last through the surgery but the recording wouldn't either unless it is on a loop.

  • grdnslve
    grdnslve Member Posts: 310
    edited May 2011

    alexanjb-- my pre-op appt is 6/3, and the wedding is 7/23.  so i will have 4 weeks to get in that dress. omg!

    foobs, toobs, noobs.....think i may go with TA DA!!!!!  hopefully.  i'm so use to 'ta ta'  being 'good bye' - now there are 'save the ta tas's' shirts, so is a 'ta' one boob, or  just 'bye'....... not working sadly leaves me with far too much time to ponder such things.

    any news from the newly dieped?????

  • treesprite
    treesprite Member Posts: 359
    edited May 2011

    so much going on!



    Frank Sinatra - noobie, noobie, noo . . . .that is hysterical!



    I think June 24 sounds like an excellent date! Is the wedding local? It will be lovely to have your new breast in time for the wedding.



    One of my favorite things is being able to hug people and not feel self-conscious about my breast.



    I didn't take my IPOD in with me to surgery but listened to my meditation stuff right up until the time they wheeled me into the OR. I did ask what music they played during surgery and asked about the OR environment. I had a surgery where they docs were all talking about their golf games and it really bugged me! The more relaxed you are, the better it is all the way around.



    I think I would go to camp the weekend before; fun is never a bad thing, although I would probably take something to help me sleep just in case.



    Those of you with upcoming surgeries; if you ask a question and it gets lost in the shuffle, be sure to ask again.



    I helped my sister with her cleaning business today - I don't think I've worked this hard since before my mastectomy and that was back in October! I'm two months post op; I'm a bit sore but more just from muscles that haven't worked this hard in so long. I'm still cautious; I look forward to the day I don't have to give it a second thought.



    Everyone on this thread is so kind and supportive and funny! You are a great group!

  • ladym13
    ladym13 Member Posts: 251
    edited May 2011

    I am cracking up at the noobs, toobs, foobs conversation...lol...I dont care what it's called I just want one...lol

    Got my pre-op appointment and CT scan booked- June 10th and then Surgery on the 14th.

    I can't remember the name of that healing CD, I want to start listening in preparation for surgery.

  • misszed
    misszed Member Posts: 90
    edited May 2011

    Happy Friday!! 3 weeks to the big day fo rme.....Sending hugs to everyone. Has anyone heard from Sue? 

    Positive vibes to Sue & mscal02 today.

  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited May 2011

    YES!!!!  I finally heard from Julie, Sue's sister.  She went up to the hospital today.  It's about an hour and a half from her house.  She said Sue is looking and feeling great.  She is going home tomorrow.  Go Sue!!  You did it.  We can't wait to hear from you when you get home!

    Mscal, I have been thinking about you all day today.  I hope you are feeling no pain.

    Ladym, I want two!!!!!

    Susan

  • misszed
    misszed Member Posts: 90
    edited May 2011

    YAY for Sue!!!!

  • c8ndygr1
    c8ndygr1 Member Posts: 186
    edited May 2011

    So glad to get word that Sue is doing well and going home. Want to hear all when she gets back on the computer. Waiting to get news on how mscal02 is faring. Healing thoughts going her way too.

    Saturday marks one month until my surgery. I'm on the waiting list for any cancellations but doubtful that will happen. Pre-op appt for check-up with my primary physician is in two weeks.

    Got a Victoria's Secret catalog in the mail today. I'm large breasted going small with this BMX recon surgery and I can't wait to chuck my industrial-strength, underwired, padded-strapped Mrs. Doubtfire minimizer bras for some cute little frilly things from VS.

  • Suz39
    Suz39 Member Posts: 125
    edited May 2011

    Hi All,

    I have my mast w/ immediate DIEP recon scheduled for June 21 in Toronto. I got a little reminder this morning that it is going to be my time of the month during my surgery and recovery time. Does anybody know how they handle that? I'm thinking that it might need a little attention during the 10 hours that I am under. Also, will I be mobile enough afterwards, to deal with it myself?

    Thanks for any input:-). I know it is a bit of a strange question, bot I imagine I will have more in the coming month
  • alexanjb
    alexanjb Member Posts: 304
    edited May 2011

    well darn it Suz39 that is an added layer of discomfort to think about for you.  I am postmenapausal so I don't have that to think about, but I think you should definately call the nurse at your PS and maybe the GS nurse too, just to ease your mind.  Are you having a uni or Bi, probably bi if your surgery will be 10 hrs?   I would think that the surgical nurse would take care of you during the surgery, they probably have an industrial size napkin or something, it probably happens all the time.  But self care might be a different issue for the first couple of days.  Hopefully, someone that has been through this can give you a better idea. Who knows maybe the stress of the surgery will make it stop?  Definately worth asking the nurses I think.  I hope they have a good answer for you that will ease your mind.

  • alexanjb
    alexanjb Member Posts: 304
    edited May 2011
    LadyM13 the healing cd I am listening to is found on healthjourneys.com.  I have the surgery pack.  Be prepared to zzz out!  It is so calming and relaxing... there was another mentioned on here by someone else.  I opted for this one because I could download it from the web site and put it on my MP3 player and didn't have to wait for it to come in the mail.  Plus I knew I liked Bellaruth, my social worker/therapist at the onconology center first recommended her to me.
  • dee7493
    dee7493 Member Posts: 155
    edited May 2011

    Getting ready for Phase 2 DIEP finishing work -  have so many questions on how contouring is achieved.

    Does PS open up incisions on top and manipulate /shape  then inject fat and lipo where needed?

    What is the recovery and pain level?

    Are there advanced lipo techniques?  Various options?

    3 D tatoos versus nipple construction

     How do they take care of Dog Ears?

    Any input and informaton would be so appreciated :)

  • dee7493
    dee7493 Member Posts: 155
    edited May 2011

    SUZ39-  it happened to me right in time for my DIEP.   At first I was disrupted to be naked with hospital gown draped over me (easier to check new breasts with doppler) and having a hospital maxi pad on and all with a young male nurse - All I can say is we are warriors dealing with everything.

  • scubacat
    scubacat Member Posts: 113
    edited May 2011

    dee7493, I had my Phase2 done last Monday. I'm still pretty swollen and nurse yesterday said all swelling will take up to 6 weeks to go down, but I can get back in the gym this week and help things along. But there is no way I could lie on my side on the floor! Recovery time depends on what you have done. I took 1.5 days off work and worked from home the rest of the week, no issues. But I did not drive for 4 days, but walked day2 after. My surgery was about 2hrs and PS went in through the ab scar edges, then tidied those up. I have massive bruises on both hips/love handle area and it looks and feels as if I have been kicked by a horse (or 2!). He then moved the lipo'd fat on top of my boob area both sides, to "fill them out". Now nipple recon is something else! 2 small incisions vertical, then he pulls the skin together, twists it into a lilttle button shape and stiches it back in place. These stitches will desolve in a few weeks. I now have to wear nipple shields for 6 weeks, which I can tell you is a little bit of a clothes challenge as they show throw EVERYTHING!!!!!!! Loose jackets and cardigans for work for me now! It's difficult to know if I will need anything else done as this needs to settle down first. Pain was OK, nips were fine, but the hip/lipo area was/is still very painful. I didn't take too much though, just worked through it. I didn't really have any bad "dog ear" areas, but at your consult you should ask the PS what will happen in that area. I had a small dip one side, and that seems to have been filled in. I'm pretty happy with the results so far. Need to buy new bras! Padded to hide the nipple shields - man I have bought so many different bras throughout this whole process. Oh, yes and you MUST HAVE spanx, PS wanted mine on before I left the OR! Have to wear them for 2-3 weeks. Still wearing mine. Next PS visit is in 6 weeks time.

  • treesprite
    treesprite Member Posts: 359
    edited May 2011

    here is the address for the DIEP Stage II / Stage 2 thread; I had a hard time finding it, so I thought I would post it so we can get that conversation going



    http://community.breastcancer.org/forum/44/topic/769050



  • c8ndygr1
    c8ndygr1 Member Posts: 186
    edited May 2011
    scubacat - what type of Spanx must you wear? One-piece, camisole, hip/thigh pull-up? I've had lipo before and it does feel like you've been run over by a herd of elephants and bruising makes it look like you were too. But it is manageable with pain meds and the pain doesn't last long.

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