DIEP 2011

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  • alexanjb
    alexanjb Member Posts: 304
    edited May 2011

    mscal-that is just the kind of thing I have been worrying about since I don't have my paperwork yet.  It must have shook you up a bit.  Just what you don't need.

  • pamdo
    pamdo Member Posts: 49
    edited May 2011

    Hello all...joining this thread - uni mastectomy with immediate diep for me...can only do one side because of previous abdominal surgeries : (   Will be with drs. escallon (bs) and zhong(ps) here in Toronto, Canada.

     Waiting for a date, but likely some time this summer.

     Anyone else here with Dr. Zhong?

  • Snobird
    Snobird Member Posts: 593
    edited May 2011

    Been thinking about all you DIEP's that are coming up and the ones that have started the journey. So glad that this board is here for you. What a great resource. I didn't know about it until after my surgery but I just wanted to lend my support out there for all of you. I'm so happy that I had my BMX/DIEP. What a load of relief it's been for me as you all can imagine. I hope that everything goes well for all of you and we all continue to spread the word so that more women can have this wonderful opportunity.

  • alexanjb
    alexanjb Member Posts: 304
    edited May 2011

    Welcome pamdo.  I am Stage 3c ER-/PR-, HER2- as well.  I will be getting a delayed DIEP in Syracuse NY.  It seems like I've seen Dr. Zhong mentioned here by someone.

  • carberry
    carberry Member Posts: 1,153
    edited May 2011

    Hi everyone,, I met a lady today at the bank,she is the teller and somehow (because i had a hat on..no hair) told her I was BC pt. she told me that she is a 10yr survivor and had the Diep surgery 10 years ago!  She says she is pleased with the overall results but her scars never really faded, they are still bright pink.  She showed me the top of her foob right in the bank! LOL it is very pink for 10 yrs ago but she is a redhead and very, very fair skinned.

    Good Luck mscal on Friday  big HUGS

    Keep the updates on Sue coming, I know we will hear from her soon when she gets home.

  • mscal02
    mscal02 Member Posts: 522
    edited May 2011

    Hello All: I may have to look her up before I leave the hospital and have a long talk with her on doing her research and calling the PS's office instead of the patient.I am so happy to have this board,I was telling my DH about it this morning and he is so impressed.I have been lazy and nodding off and on all morning. I have to just stay away from the bed. I am eating a bag of raw vegetables trying to clear out the fridge before Fri. I am hoping that they will have wi-fi at the hospital,so that I can bring my laptop.

  • c8ndygr1
    c8ndygr1 Member Posts: 186
    edited May 2011

    Pamdo - I too have had previous abdominal surgeries. My PS is going to attempt DIEP for both breasts but if he can only do one, we have a Plan B for the other breast. I refused the implant option so we agreed on external tissue expansion with microfat grafting for a backup plan for the second breast. Not ideal but he's a well-respected microsurgeon/PS in my area and his co-surgeon is coming from Stanford to assist so I'm hoping they will come through with two DIEP breasts. I should be in good hands.

    Carberry - you know, going through this process, we've shown our breasts to so many people that it becomes a non-issue. We've become 'sisters' by having this experience in common. So your 'sister' at the bank was just sharing with another 'sister'. I've already shown around my lumpectomy scar. And another 'sister' has shown me her tummy scar. When I'm done, I may just call them my 'war wounds.'

  • dee7493
    dee7493 Member Posts: 155
    edited May 2011

    SCUBACAT  thanks so much for sharing once again  - I started a new forum topic DIEP Stage II 

    have so many questions in prep for finishing touches 

    Hubby thinks if I gain any weight it will go staight to my bellyboobs lol 

  • ladym13
    ladym13 Member Posts: 251
    edited May 2011

    Hi All...I've been away for work for a couple days and just had to catch up on what's been going on here. Hoping sue is recovering and feeling okay.

    Pamdo- welcome,  I am scheduled for delayed uni DIEP on June 14th with Dr. Zhong at toronto General.

    4 more weeks to go...I think I'm getting nervous now

  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited May 2011

    Dee, I have to add to that - I have been reading every forum I can find on this website about the DIEP surgery.  On one of the forums someone posted When I get hungry after DIEP surgery will my boobs growl?  That was so funny to me that I have never forgotten it.  LOL!!!!

    Still waiting on news from Sue.

    Susan

  • rayofsun
    rayofsun Member Posts: 204
    edited May 2011

    I was asked to post an update since I started this thread. I had taken a break from the boards for a bit as I have been busy. I am very glad I did the DIEP. My surgeon Dr. Chang did an amazing job. I had my mastectomies in April 2010 and then a delayed DIEP so my experience may be diffferent than others who are doing it all at once.

     I actually felt that i recovered quicker from the Diep than my mastectomies. Also getting rid of the expanders felt good and decreased the lyphmedema I had which was a mild case. I still get some truncal symptoms but they seem much less. I was worried about being in the ICU as I thought I would be constantly bothered which was not the case. I had a doppler hooked up and they took readings from that to assure I was not going to reject the flaps.

    I have a history of 2 c sections and the surgeon used my c section incision and expanded it so i knew what to expect somewhat as far as abdominal surgery. I am building up my abdominal strength back and was cleared to do so about 2 months after the surgery. Your ab muscles are affected but not like the tram.

    I am currently in a breast cancer vaccine study so my stage 2 is delayed until november 2011. Feel free to ask me any questions via this thread of privately and I will do my best to answer them.

    thanks Ray

  • scubacat
    scubacat Member Posts: 113
    edited May 2011

    yeah, maybe Noob is better than foob, as they're not 'fake" for us DIEP sisters! Just relocated. I'm still amazed by this whole process and what these PS Dr's are capable of achieving. Everytime I look in the mirror I'm still amazed. Good luck to all ladies facing this and I really hope your outcomes are as good as mine has been. That's the best we can wish for each other.

  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited May 2011

    Hey Ray, I am in a similar situation except that I had a right mastectomy with no reconstruction and in August will have a left mastectomy and reconstruction of both sides.  Now that you are healed from stage 1 are you able to wear a regular bra?  Would you say your noobs are flat or football shaped?  How does your cleavage look?  I am also wondering as time passes does the difference in skin color start to fade?  In other words, does your flap skin and your existing skin become the same color as you start getting out in the sun and as time passes? Really, I would like to hear the feedback on this from all of you ladies.

    I have been calm since I scheduled my surgery but then I read last night about someone who had a drain tube in for 6 weeks and I have been in panic mode every since.  Today, when I think about the surgery I break out into a sweat and nearly hyperventilate.  I keep telling myself that the outcome will be wonderful and permanent and the pain I have to endure to get there is only temporary.  As of today, I have 10 weeks and 6 days to go, but who's counting, right?  LOL!!

    Susan

  • alexanjb
    alexanjb Member Posts: 304
    edited May 2011

    Yeah, I get panicky when I look at some of the photos in the photo gallery and hear about things like leech therapy.  I ask myself why in the world am I doing this?  Haven't I been through enough?  But I do want a noob.  I am one day less than 3 wks away from my surgery date.  Our summer is short here and I had to stay out of the sun last summer because of chemo.  Will I spend this summer in misery?  I am supposed to go to Camp Good Days and Special Times the weekend before my (wednesday) surgery.  Am I whacko to consider that?  I didn't have the surgery date when I signed up for it.  I am thinking it might help my pre surgery nerves to be occupied that way.  What do you guys think?  I don't have kids at home to worry about.

  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited May 2011

    Alexan, I am not sure what Camp Good Days is but if it's something that you can get away, be with friends and have some laughs, I think it's an excellent idea!!  As you said, hopefully it will keep your mind off of things.  I have gone through the exact same thing - when I look at some of the pictures, I totally flip out and feel like I can not do this.  I can only hope that the anticipation is far worse than the reality.

    I have texted Sue's sister a couple of times but haven't heard anything back.  We are all thinking about you Sue and hope everything is going great!

    Mscal, how are you doing today?  Do you have pre-op stuff to do today?  What time is your surgery scheduled tomorrow?  Know that we will all be thinking of you and praying for your speedy recovery.  Please post as soon as you can!!

    Susan

  • mscal02
    mscal02 Member Posts: 522
    edited May 2011

    Hi All: So far so good.I am cleaning and washing today. I am scheduled for the hospital at 5:00 am. and my surgery is at 8:00 am. Making sure that I have my bag packed so that DH will only have to pick it up and bring it when I am in my room. I told him when I am in surgery he can come home and feed our doggie and have them call him for any updates. I have a fish that I hope DH does not forget to feed. I will probably leave him a honey do list. He will be working next week and taking off to be with me when I get home from the hospital. I have told my friends and family to wait until I get home to visit because I don't think that I will be getting much rest while in the hospital.

    Susan: I have finished all of my pre-op stuff. He is going to map me before surgery. I am just so excited to get this part of this journey behind me.

  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited May 2011

    Mscal, I am envious that your DH will be close enough to go home and feed your little doggie.  Ya'll are all going to think I am a freak but I have 2 dogs, a 125 gallon fish aquarium and a parrot.  Travelling 600 miles for surgery, being gone for 12 days, trying to be sure my animals are taken care of and the expense of the trip is going to give me a heart attack before I can even have the dang surgery.  Please know that my thoughts will be with you and we will all be anxiously waiting to hear from you.

    Susan

  • XRAYestInMA
    XRAYestInMA Member Posts: 132
    edited May 2011

    @SAMayoFl Good question on the color of the Noob after all is said and done. When I look at my abdomen, the color is very similar to my chest wall and remaining breast right now. I think it is anyway. Perhaps that is because I haven't worn a bikini since before my DD was born - 12 1/2 years ago. I have no plan on wearing one in the near future either (how sad is that?). I suppose if you sunbathe in a full monty, your skin would become the same color with a tan and what-not. I'm not quite sure if I would sunbathe topless, even with 2 Noobs

    .I don't think you are a freak - my sister (who lives in FL) has had a menagerie of different animals over the years, including a few snakes. I never quite understood the snakes - who would cuddle one of those? Does your parrot say anything? I had a pair of parakeets as a teen, but the novelty of owning birds wore off once I realized how much poop they made.(I'm a clean freak). I love all those cute little lizards that live in the yards in FL. It's like having pets and not having to take care of them. At times, a lizard sneaks into my sisters house, but I never tried to catch one and hold it. I would get grossed out if it peed in my hand, LOL.  

    @alexanjb Hmm, I'm not sure what that camp is that you mentioned, but I am all for a Good Day and a Special Time - so it sure sounds good!  A good day to me is a day off from work, the sun shining with low humidity (curly hair), all my housework done, I have taken the dogs on a long walk, and I am chillaxin' on my deck with a good book on my Kindle and an iced tea! Throw in a massage and no requests from the children, and my Good Day would become one with some Special Time! Yeah baby, sounds good! I say def. go to the camp and have a great time! 

    @mscal02 Oh my, I was stressing about having to be at the hospital for 6 a.m., never mind 5.My surgery is scheduled for 0730 - and there is no CT involved. I will be marked that morning by my PS. Are you freaking out? I'm not (yet), but ask me again on the day before and the answer might be different. We live about an hour and a half away from the hospital, how about you?I will have to leave my DH one of those honey-do lists also - most likely a small novel. I'll bet a $100 that my kids (and DH) will be eating at Mickey D's and any other take-out/fast food places that they can agree on while I am in the hospital, and while I am dining on "clear liquids", YUM ! Are you taking a lot of stuff to the hospital? I picked up a black nylon hip bag (kind of like a "fanny pack") at Target that I think will hold the bulbs of at least 4 drains. It can get wet (for showers) and will dry fast. Super cheap = $10, compared to the Marsupial pouch that my PS's office suggested.

    So, I received a pre-op call yesterday and was asked many a question about my health and such-and-such. The nurse was super nice. She went over everything, including how the flaps will be monitored, the position I will be in during the sx and in post-op, the "clear liquids" after the surgery (hold the green jello, please), how I may develop pain in my arms after the sx and why, how I will be cushioned to avoid pressure sores, etc. I have my PAT's scheduled for Monday, and will most likely be asked these questions again, as well as have labs drawn and whatever else. I can't believe that I received my sx date 7 weeks ago...and now have 2 1/2 weeks to go! Crazy sometimes - how time flys. This DIEP is fast becoming a reality and I know this sounds odd but I actually get a little teary-eyed when I think about having 2 Noobs on my lop-sided chest.

    I hope Sue from Iowa is doing well. My thoughts are with her, as well as with mscal02 for tomorrow.   

    17 days to go...but who's counting ? ME=)

    ~Lori

  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited May 2011

    Lori, the thought of one of those big iguanas peeing in my hand made me laugh.  I would worry about one biting my finger off before worrying about it peeing on me!  Actually, all but one of my dogs is reject from someone else.  My son left the aquarium when he left home, one of the dogs came from my husband's daughter who could no longer keep him and my parrot came from an old man who was seriously ill and could no longer take care of him.  Initially, the bird was only going to live with me until the man was able to take him back.  But then I fell in love with the crazy bird and he has made a permanent home with me.  He is a yellow nape amazon and his name is Cookie.  When I walk in at night after a long day at work he looks at me and whistles and says, "hey baby you want a kiss, huh?"  You have to laugh at that.  Also, every morning I get up and put a slice of bread in the toaster.  Cookie walks back and forth on his cage saying, "hey, whatcha got, huh?  I want some!!"  That crazy bird cracks me up and brings me great joy although I never particularly wanted a bird as a pet.

    I can't wait to hear all about your noobs and your cleavage!

    Susan

  • alexanjb
    alexanjb Member Posts: 304
    edited May 2011

    Camp Good Days and Special Times is a camp for people that have or had cancer.  Check it out there may be one in your area:  http://www.campgooddays.org/  I was hoping someone from on here would be going the same time as me.   I am signed up for the Women's oncology arts & crafts program.  It is Friday evening Jun 3 through Sunday June 5, and I think it will involve a boat ride on Keuka Lake.  We won't get the schedule until arrival.  They have other Women's programs like Wellness (yoga, massage) and outdoor activites (canoe, hike, climbing).  At any rate I will be with other women going through cancer "stuff".  Not just BC.

    SAMayoFL your bird sounds like fun.  I have two wonderful fluff ball dogs (Bichon Frise) that give me great comfort and joy.  I hate to be away from them for any length of time.  We are crazy about each other. XRAYEstlnMA- I am two days after you for my noob.  But who is counting?Wink

  • NotAfraid
    NotAfraid Member Posts: 218
    edited May 2011

    mscal02 - Good luck tomorrow!!!  You'll do great and, before you know it, you'll be feeling great!

    scubacat: Glad stage 2 went well.  Mine's 7/11 and I can't wait to get it behind me!

    I still can't believe how fast the time went post-surgery.   I'm back to work walking thebit dogs this week.  My pecs were sore after the first day of them pulling, but the muscle will build back up.  I'm not going to damage the flaps at this point.

    I'm still fighting my "delayed depression" but am keeping busy with work, jewelry projects, gardening and caring for 3 foster kittens (as well as my own brood).  I don't know how I have time to be depressed with all of that going on, but it sneaks in there.   This too shall pass!

    A friend is visiting from Hawaii and we're having a party for him on Saturday.  Since the world is supposed to end on Saturday, that's our theme.  We were up way too late last night creating a playlist of "end of the world" songs.  I'm glad my husband shares my sense of black humor.   Now, what kind of food do you serve at an End of the World party?

  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited May 2011

    Alexan, I think the camp sounds like a great idea!  I would like to go there with you.

    Notafraid, I am cracking myself up.  Did you see the movie Steel Magnolias with Julia Roberts?  They had an armadillo cake made from red velvet cake.  When they cut into the red velvet cake topped with that grey icing it looked like the armadillo was bleeding.  I think that would be pretty cool for an end of the world party.  LOL!!!  Good luck with that!

    Susan

  • mscal02
    mscal02 Member Posts: 522
    edited May 2011

    Xray: I live about 15 minutes from the hospital.I am pretty cool right now. I probably will not sleep at all tonight. I found a bottle of suncreen lotion with a laniard attached to it that my DH had purchased ,so I will take the laniard to hang my drains on and I bought one of those house coats from Walmart that has pockets, and I will be able to hang the drains on the inside pockets when I am up and about.I am not taking a lot because I will probably wear the hospital gown for a couple of days. I have 2 pair yoga pants.a botton front shirt, and a hoodie in case it gets cold in the room.antibacterial wipes,hard candy, toiletries,an eye mask,(don't need to see who is waking me up) a couple of men's tanks 3xl.I don't want anything squeezing too hard, socks,a couple of magazines,and my Bible.

    Thanks Notafraid

  • carberry
    carberry Member Posts: 1,153
    edited May 2011

    alexanjb  Nice that you are doing camp good days, being from NY I know what that is!  You should deffinitely go, it will take your mind off surgery.  I would love to sign up for that some day, maybe when I retire LOL  I have always taken care of children with disabilities, so rewarding!

    To all those of you asking, My skin flap is a different color, kinda, and maybe a diff texture, not drastic though.  Although it has a different shape when out of a bra, it looks very good in a bra and a bathing suit..ha ha....I had to try on a suit to see what my summer was gonna look like.  My new one is a little smaller too, but not really noticeable, only to me.  I think a lot of this will be corrected when I move on to stage 2, but I dont see my PS till after done with rads.  I am so happy with my results! Really, who is gonna see me naked besides my DH?

    Mscal  good luck to you!  sounds like you are all ready to go.  Sweet dreams

  • mscal02
    mscal02 Member Posts: 522
    edited May 2011

    Thanks carberry!

  • treesprite
    treesprite Member Posts: 359
    edited May 2011

    mscal: I'll be thinking of you and sending you lots of positive energy. Sounds like you are totally ready. I liked the part where I could just sleep whenever I was tired and know that I would be taken care of. The intermittent waking didn't bother me; I was on a no schedule schedule. Everyone was kind and gentle and I loved the whoosh whoosh of my doppler - it was like a lullaby.

    I second Carberry's wish. Sweet dreams all the way through!

    Kathy  /  Treesprite

  • XRAYestInMA
    XRAYestInMA Member Posts: 132
    edited May 2011

    @mscal02... Carolyn, not sure what time zone you are in - I'm on the east coast, but I get up for work at 5 a.m., and will be thinking of you =) Good luck and happy healing thoughts going your way.

    ~Lori

  • c8ndygr1
    c8ndygr1 Member Posts: 186
    edited May 2011

    mscal02 - you are so ready for tomorrow. Wishing you all the best. Will be thinking about you and sending good thoughts your way. All will go well and you will soon be on the healing road to recovery.

  • mscal02
    mscal02 Member Posts: 522
    edited May 2011

    Thanks everyone: I am in the central time zone.

  • alexanjb
    alexanjb Member Posts: 304
    edited May 2011
    Show us how it is done mscal02!  I hope you wake up happy with your noob and with as little discomfort as possible.

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