2011 Sisters

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  • selfmedicatinggirl
    selfmedicatinggirl Member Posts: 10
    edited April 2011

    Good luck Carol! Will be thinking of you on Friday. Hope that it all goes well. *hugs*

  • Silia
    Silia Member Posts: 330
    edited April 2011

    carol - it's so unfair how long you've been in limbo.  I'm glad that the waiting will finally be over on Friday.  Best of luck with everything.  I'm having chemo before my bilateral Mx in the Fall - ugh.  These boards are so valuable so when you feel up to it, come back for support and virtual hugs...

  • carol6026
    carol6026 Member Posts: 45
    edited April 2011

    well surgery is done and finally over with. Just in alot of pain and have 4 drainage tubes, which are uncomfortable. But, I would like to say ty, toall the wonderful ladies out their, you have really helped me through this.

  • JLopez
    JLopez Member Posts: 2
    edited April 2011

    I was just recently diagnosed Triple Neg, but a ki67 score of 100%.  Should I be scared?  I havent had the lumpectomy yet.

  • Huskerkkc
    Huskerkkc Member Posts: 536
    edited April 2011

    There is a forum called "Calling all TNS" that is fairly active and will give you lots of support. I am also triple negative...scary sounding, but not the end! I'm not familiar with a ki67 score, but I bet the TNS site will have somebody that knows. Come on over and ask all the questions you want. Just take your time, take a breath, and DON'T go doing a lot of research yet. There is so much stuff out there that will scare you and not all accurate. Hang in there. These gals will get you through!

  • BirdyRobin
    BirdyRobin Member Posts: 105
    edited April 2011

    2011 Sisters,

    Nice heading. I was officially diagnosed on the 15th of April. I have been working on my diet and overall health. Tomorrow I get my MRI (originally denied). This will help in my decition of what type of surgery to have. I know my doc wants to have me start chemo and posibly rads, depending on my surgery.

    Monday will be blood tests ect in prep for surgery tentativly schedualed for the 6th of May.

    I would like to get to know the rest of my 2011 sisters.

    Robin

  • Kymn
    Kymn Member Posts: 999
    edited April 2011

    Hi Ladies, sorry i havevnt been on this thread as much as i would like, its hard to keep up to them all and work full time between treatments. had my third round of FEC yesterday yeah no more red devil and I am now halfway done chemo. Moving on to doxotaxorl for the last three.Hopefully this goes smoother.Onc added in some new meds for me this go around as i have been having trouble keeping sickness away seems better so far but only day one out so we shall see.the puckering in my lumpectomy scare seems to be filling in a bit but still not happy with it did they really need to bring in part of my areola really. lol. its snowing here again, sigh,

    ok well need to run, folks are down this go around should get out there and visit some with them.

    hugs to all my sisters that were in the chair with me this week, hope your side affects stay at bay.

    Kymn

  • Melmes
    Melmes Member Posts: 76
    edited May 2011

    Hi, Ladies, Happy Mother's Day! I may kknow some of you from the Stage I thread.

    I am a 37 year old mother of two and teacher, diagnosed in April with stage 1, grade 3 IDC. My lumpectomy showed DCIS cells as well as the 9 mm tumor, and I had a re-excision last week to ensure clear margins (and got them, thank goodness!). I have no node involvement, but I did have cells in my blood vessels. I am going in for a cat and bone scan on Tuesday and I have been dealing with anxiety over that for a few days now. I am terrified they will find something awful, even though I know that realistically I have very little chance of there being anything, given that my nodes were all clean. I am scheduled to start T/C x 4 and then 35 rounds of rads end of May.

    Sorry to be here, but looking forward to getting to know others dealing with this and to the strength that comes with knowledge and support!

  • neecee
    neecee Member Posts: 663
    edited May 2011

    Hi all.  I was diagnosed in April, had a lumpectomy and snr a week and a half ago.  Meeting with the oncologist for the first time this week.  So glad I found this forum, and others who are in the same situation!  I look forward to offering mutual support throughout!

  • Kymn
    Kymn Member Posts: 999
    edited May 2011

    WElcome Melmes and Neecee, sorry to see you here but this place will give you the support and understanding you need to get through this. I just finished round 3 of 6 treatments and I dont know how I would have kept somewhat sane lol without the support of the women here. Welcom.

    Happy Mothers Day to all you wonderfull Moms out there.

    Hugs Kymn

  • kll22
    kll22 Member Posts: 124
    edited May 2011

    Count me in to the Class of 2011.  IDC diagnosed on May 6.  We're still in the information collecting stage.  Had breast MRI Tuesday where another small spot was found just far enough away from the original spot.  Having a node biopsy this morning and an MRI guided biopsy next week to look at the new spot.  I have made the decision that the information we receive is no longer "good" or "bad," just information that needs to be learned to make the best decisions possible. 

  • DocBabs
    DocBabs Member Posts: 775
    edited May 2011

    Also a new member, daignosed April 27th. I'm having bilat mastectomy with TE tomorrow.Just came beck from nuclear medicine injection.I need a drink!!

  • Kymn
    Kymn Member Posts: 999
    edited May 2011

    HI K1122 and DocBabs, welcome, sorry to see you here but this will be an invaluable place for you. Excuse any typing or spelling errors as I am half way through chemo and my brain doesnt connect like it used to lol.

    KII22 the information stage can be overwhelming, so much to learn and I remember just wanting to know everything right now and then having to wait for all my tests it seemed like forever and now here I am half way done chemo. Ask all the questions you need to here there will always be someone who has been through what you are unfortunelty. Lost of great threads on this site to addresss everything.

    DocBabs Good luck tomorrow, I will be thinking of you sending hugs your way. Join us on the what about drinking thread we have lots of fun even if it is virtual drinks when we are not feeling well enough to endulge in a real one :)

    To all the rest of my 2011 sisters hope your having a SE free day

    Hugs Kymn

  • DocBabs
    DocBabs Member Posts: 775
    edited May 2011

    Kymn..thanks for the hugs.I feel them!! I will join you for the drinks as soon as i'm able.

    Barbara

  • traceygayle
    traceygayle Member Posts: 4
    edited May 2011

    Hello Ladies...I also can be added to the 2011 club....I had mamogram in Feb..Core biopsy in March..diagnosed with IDC in April....Lumpectomy and Sentinal Biopsy May 3, see surgeon May 16th for details....for sure radiation in my future..not sure about anything else...Everything seems to be moving along quickly now that I've been diagnosed...I'm in Winnipeg, Manitoba and it seems to me that the Breast Cancer People here have definetly got their shit together....going to an after surgery info session tomorrow at the BC Centre of Hope...this will be my first outing since surgery. I am hoping to learn something there about diet, exercise and what to expect in the near future I guess....thanks for being here....Huggs to all!

  • filrb
    filrb Member Posts: 3
    edited May 2011

    Hello to everyone. I have been reading alot of the posts here, alot of the posts will aid in my decisions I must make in the near future. I was diagnosed with StageIII in March, we don't know if nodes are involved yet, possibly one. The decision I have to make inthe next 12 weeks is if I should remove both breasts. I have no family history of breast cancer but my breasts are very dense and it is hard to get a really good reading on a mammogram. I am also concerned that it will likely come back in the right breast if I don't do a double mastectomy. I am also concerned about reconstruction. I have not talked to a PS yet but I am also afraid of getting anytype of gel or silicone put in me for fear of more cancer. I know at this point I am very uninformed and must do some research but if there is anyone who can help shed a little light would be helpful. I am considering a second opinion as well. My BS is pushing to just do a lumpectomy on the cancerous breast and match up my right with that same size. I am very leary at this point becuase she is evading my specific questions about the topic. Thanks and good luck to everyone.

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited May 2011
    Update: Went to see the surgeon for a recheck and Radiology Oncologist.. Surgeon said I'm good to go back to work in another week... then RO says that he is thinking 16 rad treatments and I will be good BUT we are still waiting to see if I need chemo... That appointment is Monday if the oncotype test results are back.. They weren't back when I saw the RO. I will probably start radiation in June.
  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited May 2011

    DocBabs: Praying for you today... I hope all goes well with your surgery...

  • neecee
    neecee Member Posts: 663
    edited May 2011

    I am back from my appointment with my MO.  She has recommended chemo, and I have agreed.  Without it, my recurrence probability is at 45%, and that is just too high for me at this stage in life.  Treatments to begin in a couple of weeks.

  • GrammyslilButtercup
    GrammyslilButtercup Member Posts: 24
    edited May 2011

    Hi girls, I am also a 2011 sister. Found a lump February 8, mammagram February 15, ultrasound and core biopsey followed and on March 17th  Breast cancer dx. april 1 I had lumpectomy and lymphnode auxillary disection, april 15 second surgery to remove a small margin but pathology came back totally clear so they removed all the first time and I had no node involvement. My cancer is IDC grade 3, and I am borderline triple negative...now has anyone heard that before, I am 44 and was devastated with this dx but thankful that everything has been coming back with good results. I had a clear catscan and now am waiting on my bone scan results. I met with my oncologist wednesday, she is fabulous, unfortunately it seems everything we do or have revolves around numbers, my numbers say chemo. I begin already next Friday, I am terrified, I have been so strong and I talk tough but I am not so tough now. I have ateach class on Wed, I have to have a Picc inserted as well. 4 rounds AC followed by 4 rounds Taxol, I am thankful that there is medicine out there to fight this ugly disease but I am afraid.Today I am getting my long locks cut off into a sexy and sassy do, I think either way the loss will be heartbreaking, but for today I get to choose the date it comes off. I am happy but sad that we have so many sisters on here to tlak with. Its a sad wait to meet but a blessing to have one another. Much love faith and hope to all of you. I will be back here often. Thanks so much for being here.

    Becca

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited May 2011

    Yes Grammy, It is bittersweet for me.. I donate my hair every year for cancer patients and now I am one... I just cut off 9.5 inches and my new doo is my picture... I figured no matter what my treatment plan is.. I needed to have an easy short haircut that all I have to do is brush it.. I find out Monday if I need chemo or not.

  • Rennasus
    Rennasus Member Posts: 1,267
    edited May 2011

    Hi Ladies...I have not had chemo but I know women who have had great success with the Penquin Cold Caps keeping their hair during chemo. Here is the thread link:

    http://community.breastcancer.org/forum/6/topic/735873?page=105

  • Rennasus
    Rennasus Member Posts: 1,267
    edited May 2011

    filrb: I opted for a BMX. I do have family history. But there are many women here who have BC and have NO history. 

    I did not have chemo. My oncotype score was 16, which is at the top end of low risk. My oncologist did not think the benefits outweighted the risks. I agreed. I was not willing to do the chemo but I was willing to have a BMX. Here is how I made my decision.

    Initially I was supposed to have a lumpectomy. But my mass was 3.2 cm and in the center of my breast. I was a 34 B. They would have had to remove 1/3 to 1/2 of my boob. Even though I had a slow-growing cancer (Grade 1), I was afraid of stray cells remaining if I didn't get rid of all the breast tissue. I also knew that if I was going to go through with a mastectomy, I wanted to do both sides. Get rid of all the tissue. Then make them both match. So I had a BMX with TE. I plan on silicone implants. They are the most natural looking, and they are very safe now.

    Things haven't been easy; I had problems healing one of my incisions so I haven't had any fills yet. But I never for a moment regretted my decision, even though there are no guarantees that won't get BC again.

    It all comes down to knowing yourself, your fears, and your tolerance for uncertainty. Each of us is different, and we must make the decision that is best for us, not anyone else.

    I hope that helps a little! ;-) Hope you have a peaceful weekend! 

  • sam1
    sam1 Member Posts: 28
    edited May 2011

    Hi I am new to this site, I just read your post from last year, you said that you had both breasts removed, I have just found out this week that I have BC again last time was ten years ago, dr says have to have breast removed, I am so not looking forward to that, it sounds so painfull and by what I have read online the recovery takes a long time.

    Could you tell me how long it took for you to get the use of your upper body back where you could lift things and drive. Thank you and I wish you the best in your recovery.

  • Rennasus
    Rennasus Member Posts: 1,267
    edited May 2011

    Sam, the BMX was not so bad! I took Vicodin the first 2 weeks, but only when I needed it. The bigger problem is that you can't move your arms above your head or bear your own weight or lift or even scoot yourself up in bed for the first couple of weeks. That was the hard part! I started driving after 3 weeks.

    I'm sure some other ladies will chime in about their experience!

  • BirdyRobin
    BirdyRobin Member Posts: 105
    edited May 2011

    Hello all, tommorow I have surgery. I am nervous, trying not to go stur crazy tonight. What did you all do the night before you mx's?

    Robin

  • TinaT
    TinaT Member Posts: 2,300
    edited May 2011

    My husband and I went out for a late dinner.  Tried to get a good night's sleep, but it wasn't easy.  I'll have to admit I tossed and turned a lot and shed some tears.  It was a pretty hard night for me.  Fortunately, I had to be at the hospital at 6am for which I was really grateful.  After that it was all a blur! 

  • kks_rd
    kks_rd Member Posts: 363
    edited May 2011

    Hi there, I guess I belong here! 

    Until tonight I pretty much posted on the Just Diagnosed section of the board but need to settle in at a more permanent home.  I am 32 and have no family history, found a lump on myself and was dx'ed on 4/29 and am having my second meeting with the BS tomorrow.  I've had an ultrasound, u/s guided core biopsy, bilateral MRI, bilateral mammogram, and genetic tests that came back today positive for BRCA-1. 

    Don't know what else to say but wanted to at least introduce myself. :)   Is this the correct place to post updates etc.?

    Good night sisters-

    Kat

  • TinaT
    TinaT Member Posts: 2,300
    edited May 2011

    kks_rd:  Sorry we all have to meet like this, but WELCOME - you DO belong here!  This is a great starting point and, when appropriate, I'll venture to say that others will direct you to more specific threads.  There are threads for different forms of BC, different surgery and reconstruction choices, drug treatments, radiation, hormone +, hormone -,  etc.  When in doubt, just ask or use the "search" function that you'll find at the top of the page.  You can then add to your "favorites" so the threads are easier to find.

    Sounds like you've been through a lot in a month or so.  You'll hear this over and over - try to take it one step at a time, learn as much as you can, and listen to your gut as well as to your doctors.  It's not easy, but you can do this!!!

    Again, welcome!

  • Kymn
    Kymn Member Posts: 999
    edited May 2011

    wow so many new women in the last couple of days since I have been here. I am so sorry for all of you and a big welcome from Canada . I am in the middle of treatment right now going for round 4 on thursday then 2 more to go so I kind of pop in and out depending on how I feel. You will get alot of info and comfort here. wishing you all the very best outcomes...NED for LIFE

    Hugs Kymn

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