May 2011 Radiation
Comments
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Well this process is finally getting started . . . I went in today for the CT scan and am covered with lovely black and red marker lines. I go back next Friday for the simulation and then start treatment the Tuesday after Memorial Day. They told me the tatoos were "optional". However, I'm thinking if I want to be seen outside at all this summer without looking like a freak then I need to opt for them. For those of you with tats, how big are they??? I'm a freckled person naturally so I'm just wondering if I should stop wasting my time obsessing about these.
Tammy
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the tats are super tiny. they are actually smaller than a little freckle. i am very happy my place does tats. no way was i going to have to watch where i bathed and that.
i did invest in some nice cotton sports bras. it's been one week, but my nipple is already sensitive!
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tsundermann - my tats are the size of the pointed end of a pin. I need to look really really carefully to find them. There are two on my breastbone and one under by arm. The only one that would ever be visible is the top one on my breastbone if I wear of deep v-neck. Then, it's so small you need a high powered magnification glass to see it.
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Hi All! 19/36 treatments done. Starting to turn red and fatigue is setting in. I'm still exercising but not at the level of intensity that I used to. I too had a very sore nipple the first week but it has gotten better. I've used the udder cream in the past on my kids' diaper butts. If it's good enough for their butts, it should be good for our boobs! Take care ladies. Keep up the good fight.
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Just had my 4th/35. Got very emotional on the way to rads. Glad to hear I'm not the only one. I had some loud expletives for cancer as I drove (alone, thankfully) to my appointment. Feeling very tired, but it's hard to know if it's the radiation or a cumulation effect from all the chemo and surgery and all the other forms of torchure we cancer patients endure. Walking in Relay for Life tomorrow.....I'm sure it will be a very emotional day.
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Hey. How are you doing.
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On one forum I read "things could always be worse." On the Rads April 2011 forum, people were complaining about nipples being sore and sometimes peeling. Pu those two things together, and I'm thinking a bilateral mastectomy wasn't too bad - at least my nipples won't be peeling during radiation!
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Hello! I have been lurking here waiting to join a "radiation group", was hoping it was going to be the April group, but now I know i am an official member of the May group!!! I finally start radiation on Mon, may 16! It is funny, that from the beginning of the "journey" it started with test after test, then i had lumpectomy/SNB at the end of March, and have been anxiously waiting to start radiation, all the while waiting on more tests and more tests! It sounds so weird, but I am excited to finally get the radiation started! I am sure most feel the same way! I never stuck to a diet or excercise routine or anything else every day for 6 weeks, so this is going to be a change for me!!
I really do want to thank everyone that shares their experiences on here. It is wonderful to be able to read how everyone deals with it. There are so many things the doctors and nurses do not tell you! (i always tell everyone my best example of this is i honestly thought my incisions would be about an inch long, i was blown away when i finally saw them a week after surgery and they were 3 inches long! )
Anyway, best of luck to everyone, this is certainly not a journey i would recommend to anyone, but having a lot of new friends to share with that totally understand what you are going through on here, make it much easier!!
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Welcome to our little club ftblmom3.
I felt pretty nervous prior to my first radiation treatment.....but, I want you to know that for me, the radiation treatments have been a breeze. I lay on the table of a big machine....they position me with my arm up over my head....they leave the room and flip a switch and bzzzzzzzzzzzzz...by the time I count to 250 I am done. It's a snap....no worries and best of luck to you with your treatment...you will do fine!

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Hi all! I started my rads last week and tomorrow will be number 5. Going well so far, I'm a little pink. They have me using Gold Bond Ultimate healing w/ aloe and Aquafor. I just trade back and forth with them. I have my 38 days counted off on my calendar at home and as soon as I get there, I cross them off. It's my way of keeping control of all of this.
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I went Friday for the planning CT scan and got all marked up with Sharpie. They put these little round stickers on top of the marks and told me to be careful and that they would see me in one week for the simulation. Well . . . here we are less than 48 hours later and 3 of the stickers (and the marks) are gone. I didn't even take a real shower! Two fell off while I was cleaning the house. I was working hard, sweating and having a hot flash
Then, another one came off last night while I was sleeping. I guess I'm going to have to call the RO tomorrow and see if I need to go back in and get re-marked before Friday's sim. Anyone else had this happen???Tammy
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So, earlier this week I bought some of the Tom's deodorant and thought I'd try it today. It felt like slime under my arm. There's no way I will be able to use that. So, I bought one of those crystal deodorant things at the store today. Guess I'll give it a try. Anyone else use one of those? Does it really work as deodorant?
I know, it's a "small" thing next to the chemo I just went through, but I'm finding the idea of having to deal with a clammy, smelly armpit for the next 7 weeks really annoying . . . I guess it's just adding insult to the injury of everything else.
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Is it the aluminum that's bad??
I have organic and would like to use that...
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I am so used to feeling slimy now from lubing the boob with aloe gel that Tom's doesn't seem that bad. You can let the Tom's dry a bit and then put cornstarch on over it. I got the tip from this forum of putting the cornstarch in a nylon knee high and then just tapping it on. That seems to work. Be careful with organic deodorants because some of them have aluminum in them. That is bad.
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ftblmom3 - welcome to the rad rads group
JulieH - I didn't like Tom's deordorant either. I have been using Crystal deordorant (from Trader Joes) since I was dx with bc. A friend of mine gave it to me as part of a 'survival kit', along with the coolest solar powered smiling flower that dances in the sunshine. I have had no problems Crystal, my RO said I could use it, and so far it it works well for me as a deordorant (disclaimer: we haven't had real hot weather yet, in fact it snowed today and they had to cancel the first stage of the Amgen bike race).
TonLee - my understanding is that we are to avoid aluminum and anything which contains 'metals' in it. My RO said some soaps have 'metals' in them and to stay clear of them too, he recommended Dove soap. I was also told a combo of cornstarch and baking soda works as a deordorant and is OK to use too.
Tomorrow is my first day to get zapped. Will be buying 25 lottery tickets on my way there. Absolutely love that idea and hope to win some money to spend on my vacation when this is all over with.
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Tomorrow is day one for me too:)
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Hang in there. The anticipation is much worse than the first treatment. I've had 5 out of 21 (15 + 6 boosts). Half the time but twice the rads everyday, laying on my stomach. I did a two mile ocean swim with friends this morning and wasn't tired.
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ProudMom and TonLee - I'm sure you're ready to get your glow on tomorrow. I was told too that you want to avoid anything with metals, so that includes deodorants, deodorant soaps, perfumes, lotions other than those they tell you to use.
My doc also recommends the rock crystal for deodorant and Dove (fragrance-free) soap (rinse well).
I was also told no bra. If absolutely necessary for support, choose a soft cotton bra. You want to minimize anything rubbing against the skin.
Let us know how it goes.
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Tonlee ~ I was told the aluminum in the deodorant can "scatter" the radiation?
I'm 17 of 33 as of Friday. I wear the Tom's just for peace of mind. I tried the cornstarch too, but we have no snow here, 95 degree weather - not sure I wouldn't stink even if I could wear Lady Speed stick!! lol. I apologize to the techs all them time, they said it's all in my head....but I can smell too! They are so polite, professional and probably have smelled worse I"m guessing.
I have noticed that any of my clothing that is not soft cotton feels very scratchy on the skin...I have limited my wardrobe very quickly.
Good luck to everyone starting and or continuing with Rads this week.
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Thank you for the warm welcome! I am anxious to start today. Not really nervous, just anxious about 6 weeks of this and getting into a new routine of it all!
The techs told me that yes we need to avoid the aluminum, and i was joking about feeling bad for THEM when i come in there when it is hot and i stink, and they said they never really notice!! LOL
I went to Kohls yesterday and bought a new bra and a couple tank tops with built in bra in them-all soft material. I am more worried about this part of it because I am a 38D and 44 y/o and me without a bra is not a pretty picture, but for six and a half weeks thats just the way it has to be! I even went through all of my bras at home, and i can't wear any of them because they have an underwire.
I am going to buy myself 33 lottery tickets also, that is SUCH a good idea! And also I am taking my kids out to dinner to celebrate most importantly my son getting a job (he graduated from college last week! SO PROUD!) and for me starting radiation!
It is so nice to have this forum to come to. No one else in my life has gone through this, or understands the emotional side of it!
Have a great day everyone!
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Here we go Day 1 for a lot of us! Good luck everyone. Counting down. I even encouraged my 24 yo daughter to buy the tom's deodorant, just because, dont feel we really need the aluminum right?
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I'm wearing a sportsbra with clips in the front, but I turn it inside out. Do you think that'll work?
Waiting to go in...
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Ok, 1 down, 32 to go, but who's counting. They took slides today and did the treatment. I didn't even know I was done. Sang songs from the Sound of Music and closed my eyes. Good luck to everyone who's starting today, there are a few of us.
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Here we go...
One down, 24 more to go.
Really simple. Went fast. Nothing as of yet. Hope I didn't jinx myself. I am tired, but haven't slept well in 3 days because of other life stuff. So who knows, maybe with the rads today I will sleep much better this evening.
Didn't win anything with the lottery ticket, but there are 24 more to go, and in the end, I will still be a big winner for beating the cancer.
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The first one is over. 30 more to go.
I know most women don't feel anything after the first one, but it feels like I have a carpet burn under my arm pit. And they TAPED the bolus on me...so I imagine after a few weeks of that...the adhesive will likely peel the skin right off.
I bitched about the tape.
Also, my right hand went completely cold...it is still cold several hours later.
I have aloe on right now...going to do Emu oil soon, then Aquafor....
I hate it already.
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TonLee I hear you....I cried after the 15th treatment, cause I felt tired of treatment, tests, x-rays, getting topless the whole shabang. My RO doesn't tattoo, I've had adhesive stickers the whole time and I"m allergic to adhesive....I don't have a bolus so I can only imagine....sorry. Did you happen to shave your underarm yesterday? I remember that feeling the first time and I thought it might have been from radiated razor burn??? I know the things we think...make sure you don't shave that one for the duration of course.
The first one is the worst since you don't know what to expect. I'm heading into 18 today. The redness gets worse as the week goes on, then subsides a bit on the weekend. Start counting down, and congrats to all of you getting started so it can end sooner!
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will have the simulation friday and start tx monday 23rd, live in florida so deoderent situation could be critical! for my co workers(lol), going to buy the lottery tickets this weekend , said 6 weeks of tx, should be interesting
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Thanks Sagina,
Um, yes. I shaved the pit this morning about an hour before TX...lol. WHAT?!? I thought, well dang..I don't really have much there right now anyway, but in 6 weeks I might! So I better clean up the area....that's probably what it is...
My breast hurts though.
And the machine beeps while delivering the radiation.....my beeps (6 of them) are between 7-15 seconds long...I counted after the first one because they seemed to go on forever.....
I think my RO is trying to fry me....seriously. He keeps using the word "aggressive treatment" and um, those beeps make me want to high tail it out of there!!
Ya know you're in trouble when they not only leave the room, but shut a big iron reinforced door behind them!
I think I was smokin' when I left

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One down and 30 to go!! (today they told me 31 treatments instead of 33), the actual treatment was so quick, but then they told me i had to meet with doc on Mondays, so waiting for her for 20 minutes was not quick, but i totally love her and she explains everything so well!!
I have bought aloe, vit E lotion, aquaphor, I am hoping between the three that they keep my skin in good shape!!
I am sure in a couple of weeks we all will have more things to discuss, I am tired tonight, but I think from the anxiety of starting the regimen for 6 weeks! I am so happy to have people going through the same thing at the same time!
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sagina-i totally understand crying from getting frustrated with all of it! The day my Oncologist told me that I didn't have to have chemo, my sister was with me, she went up to get the car after appt, while i had to wait to schedule ct scans and bone scan, and radiation scan...and it all hit me while doing that , i wanted to cry so bad, i was thankful not to have to have chemo, but geez, there are alot of other things i would rather do than all the tests, and appts, AND go somewhere every day for 6 weeks!! When i walked out to the car, she was clearly annoyed that i was upset and told me I should be Happy that i didn't have to have chemo and this was SO much easier!!! It is all very hard...whether you are very early stage, stage IV, in the middle, WHATEVER, it sucks!!! Gosh i feel better typing all of that! ok, so how long until you noticed skin/tiredness, if at all with your rads so far?
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