April 2011 chemo

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  • seeay
    seeay Member Posts: 56
    edited May 2011

    Roll call: TCH for 6 cycles (every three weeks). Completed 2 so far. Herceptin for 1 year

    Sudzinvermont - mine too felt as if I had in a too tight ponytail for too long! That's a great description!

    Ginger - I have been working every day, but usually 2 days after chemo, I find myself putting down my head on my desk from total exhaustion. I think working and keeping my mind going helps me through it.

    jackifp -yes! Hearing loss - so weird! I find myself saying, "what? huh?" What is it??!!

    pawprint - I love tha tyou work with furry creatures! I lost my 18 year old cat right before I was diagnosed, but I am getting another kitty end of June - can't wait!!

    Neulasta pain - use claritin! It works! Take one a day beginning on the day of the shot, then for a few more days. Helps me so very much!

    Anyone try Metromint? I feel like I am drinking mouthwash! I hate this disgusting taste in my mouth. Anyone find something that works?

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  • louis13
    louis13 Member Posts: 333
    edited May 2011

    thank you jackifp for coming to the rescue of my diminishing cognitive function! was just posting on other board how am finding this se curious- random but very real. i remember( now!) looking up claritin too before first round, couldn't fathom it either. and i love your weather report, rosemary

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  • PSU222
    PSU222 Member Posts: 127
    edited May 2011

    Ok I am doing my shopping for Monday post chemo.  I hate the metallic taste.

    What is Metromint?  Also the coconut water? 

    Thanks 

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  • Merilee
    Merilee Member Posts: 3,047
    edited May 2011

    I like metro mint -9. Feels good on the  hot belly. I keep it in the bathroom and when I go I replenish with 10 gulps each time. Metro mint is mint water, it comes in flavors as well as degrees of  coolness. Malox sipping is helping with the  metal mouth for me.

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  • louis13
    louis13 Member Posts: 333
    edited May 2011

    psu...i like zico coconut water, 5 important electrolytes..supports rapid hydration( but much better than those sugar drinks) can tell you that cos have one front of me and can read label...

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  • RangerMom
    RangerMom Member Posts: 604
    edited May 2011

    Hi all you amazing women,

    I am in the post chemo #2 funk. I feel so bloated anything out there that helps with that? My belly feels like it could burst. LOTs of gas. The emend did work very well, along with more decadron pills on day 3 and 4 and pepcid pills. No vomiting this time but still very nauseaus. I'm hoping to work tomorrow. Today at church, very obvious with my scarf on my head that I'm in chemo, a greeter told me she was a 12 year survior and proceeded to tell me she never go sick because she didn't have anyone to whine to. The things people say are unbelievable. I do hope I remember when I am a survior that I don't talk about my story, but remember to listen and ask questions on how that person is feeling. Its not about them. Does anyone else know what I mean. I just nod my head and smile because I know their intentions are good. But a lesson I will take with me if and when I do speak to someone going through this after I'm on the other side. It happens to me all the time, people want to go on and on about what they went through, not really too interested in what I'm going through,

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  • RangerMom
    RangerMom Member Posts: 604
    edited May 2011

    Also, here's a super week for all of us. We are strong warrior women and fighting the very good fight. also, down and want to share today my  son left for germany, then soon to Afganistan. 1LSt in the army infantry. I know he's doing what he was trained to do and wants to do but the thought of not seeing him again for quite some time breaks my heart. Please keep him and our soldiers in your daily prayers. thank you

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  • pawprintgirl24
    pawprintgirl24 Member Posts: 173
    edited May 2011

    i will rangermom! and tell your son thank you for everything he does to keep us free!

     i know what you are talking about with the people coming up to you..they mean well is all i have to tell myself. but it sucks to hear... one of my clients told me she knew all about about itshe went through rad!!! i was like really.... i had just come back to work from treatment #1 and feeling like crap! i know she ment well but i wanted to pinch her little head off!!! lol

    also i have had alot of suport to.i can't forget my little angels either!! i have found out who my true friends are and some that i least expected! :)

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  • lorenar
    lorenar Member Posts: 141
    edited May 2011
    RANGERMOM: I will for sure put your son in my prayers. I can also relate with you all on having frustrating days.Today has been one of those.I have four sisters that live out of state. When I first told them I had cancer they called all the time now they just ask my Mom how I am when they call her. I don't know about the rest of you but money is a big issue since Ive gotten sick. Lack of it that is. ha. It seems we can barely keep above water since gas prices have risen. I know one day when this is over and I get hair again one thing I do intend is when I see a woman without hair Not to look at her like I feel so sorry for her like everyone does me everywhere I go. Hope all you ladies who have treatments this week do okay I go wed. again for #4 of 12 taxol/ herceptin. If my feet and legs would quit hurting I would feel a little blessed today. ha.Okay enough of my bitching for today.
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  • pawprintgirl24
    pawprintgirl24 Member Posts: 173
    edited May 2011

    lorenar i totally understand! i have one sister and she is out of state . we never talk but now we are keeping up on facebook...i have not actually spoken to her...and i'm not calling...she messaged me the other day asking if i got the package she sent.. it was a t shirt with hope courage ect.. on it which was great but really.. i would've rather had a phone call and not the message...i really should not complan but she really really gets on my nerves that goes way back!!

    but anyway i hope everyone has a lovely week even if its chemo week !!!!

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  • ginger_mea
    ginger_mea Member Posts: 264
    edited May 2011

    Rangermom, my heart goes out to you, my son returned from Afg. in Feb. it was such a difficult time for me as a mom. I pray for all our military everyday, and your son as well. We appreciate the sacrafice they make for us!

    Pawprint, unfortunately I know what you mean about the friend thing, sad to say.

    Chemo week for me, and best wishes and big hugs for all you girls, be strong, we are warriors!!!

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  • Merilee
    Merilee Member Posts: 3,047
    edited May 2011

    Ranger mom,  hugs to you. I am holding the image of your son in the light of this beautiful full moon we are experiencing.

     Also,  Phazime is working for the bloating for me and you can buy it over the counter. I have been on it all week as a preventative because last treatment went so badly with gas and bloating.

    I also can not believe the dumb things people say sometimes. There is is  whole forum on BCO. The one I hate the most is " Oh, I lost my .....to BC" Really? Do I want to hear that? How the hell is that a helpful statement to anyone going through treatment? UG!

    Anyone reading this that wants to know what to say: How about " Well, I  am here for you, and will help in any way I can." that is when we feel the love. Am I right ladies?

    I stop them now, and say if it is not a happy ending, I don't want to hear it.

    And yes, you will find out who loves you, who will step up and  gives more than lip service.

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  • ginger_mea
    ginger_mea Member Posts: 264
    edited May 2011

    I have a Claritin question.  All you ladies using it, do you take it every day even with the other steroid, advil etc...????

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  • artiecat
    artiecat Member Posts: 257
    edited May 2011

    Amen, Merilee!!!!!!!

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  • geocachelinda
    geocachelinda Member Posts: 223
    edited May 2011

    Wow, I've missed a lot!  Welcome to the new folks!  Sorry to hear about the problems some of you have been having.  I didn't get my treatment this week.  I have been having palpitations (which I have off and on normally due to mitral valve prolapse).  The weekend before I was scheduled for chemo I was having them frequently and didn't feel well at all.  Of course I felt fine when I was sent to the cardiologist.  However to be on the safe side they are putting me on a Holter moniter this Wed and then follow up with a echo a couple days later.  If everything checks out ok, which hopefully it will I will resume the chemo.  I'm also wishing I never clipped my hair off because my stubble is still hanging in there! 

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  • axtella
    axtella Member Posts: 88
    edited May 2011

    Rangermom -- My son is a US Marine and in the "STAN" right now. This is his 3rd deployment and his final deployment. He comes home in the fall and then his time is up a month later. 

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  • Teckler2
    Teckler2 Member Posts: 71
    edited May 2011

    My prayers and heartfelt thanks to all those that have family in the military. I could not ever thank them enough!

    Is anyone going for tch on Friday?

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  • ginger_mea
    ginger_mea Member Posts: 264
    edited May 2011

    I'm going on Thurs. yippee......

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  • artiecat
    artiecat Member Posts: 257
    edited May 2011

    Geo - yup the stubble is annoying - I have it too.

     Also:  all you military moms - thank you thank you thank you for raising children who want to defend our freedom.  I pray for their safety. 

    I work with homeless vets here in San Diego.

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  • CarylC
    CarylC Member Posts: 230
    edited May 2011

    I still have some of my stubble too but noticed this morning, 5 days post tx 2 that when I rubbed my head after my shower, there were lots of little stubble pieces on my microfiber towel.  Yuck!  Scalp is sore again, too.

    Woke up today to fingertips that look like they've been soaking in water all night.  Anyone have any suggestions?  No amount of hand cream seems to help.  They are so ugly!

    Axtella, RangerMom and Ginger - congratulations for raising such fine young men!  Glad one is home safe and will pray the other two will soon be as well.    

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  • axtella
    axtella Member Posts: 88
    edited May 2011

    I'm supposed to have #3 A/C Thursday if blood platelets are back to normal. Oh my hair is growing back...what the heck???

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  • geocachelinda
    geocachelinda Member Posts: 223
    edited May 2011

    I also thank and congratulate our Military Mom's, wives, and family members and of course Military members!

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited May 2011

    I have family and friends in the forces as well.  May God keep them all safe

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  • Merilee
    Merilee Member Posts: 3,047
    edited May 2011

    Carylc

    I  have a  hot wax machine that I have been using for my fingers a few times a day. First I slather on coconut oil then I dunk my hands and let the wax set on for 5 minutes or so. It really seems to help for me. Also the hand sanitizer I use is Gold Bond and it has a nice moisturizer in it. For washing I have Jergens hand soap in a pump at the the sinks. It has a moisturizer in it. Good luck, and hugs, this stuff requires bring self care way up. Which is something I plan to continue after treatment, we deserve it after this.

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  • Teckler2
    Teckler2 Member Posts: 71
    edited May 2011

    I've been using the Gold Bond sanitizer too, which also seems to help me. The skin on my hands and nails has been peeling off in sheets. I also use Gold Bond Ultimate, it's a really thick lotion that stays on for a while.

    Atrie, Geo and Axtella, I have the stubble too!  It seems like it is growing back. You can say that again Axtella- what the heck??

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  • Teckler2
    Teckler2 Member Posts: 71
    edited May 2011

    Has anyone had problems with dry eyes? My eyes have been bugging me the last few days. I tried GenTeal eye drops, but they aren't helping. Any suggestions?

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  • Merilee
    Merilee Member Posts: 3,047
    edited May 2011

    Well the off balance thing got me this morning and I took a fall on the cement steps. Gave myself a fat lip. Lovely...I hope my face does not bruise. I put Ice on for an hour and it seems to have helped. Other than that just a skinned knee.  Now I feel the need to dress in all pink today Just to feel feminine lol. Sheesh!

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  • Teckler2
    Teckler2 Member Posts: 71
    edited May 2011

    Oh Merilee! I hope your lip and knee feel better soon

    Michelle

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  • ginger_mea
    ginger_mea Member Posts: 264
    edited May 2011
    Merilee, MAN! hope you heal ok.  Is the off balance thing, another thing?  I've noticed that myself that I am a little off but didn't realize its all from this?  I am becoming a baby, less hair daily, don't know what I wanted to say, and off balance Frown  what next?????
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  • RangerMom
    RangerMom Member Posts: 604
    edited May 2011

    God bless all you moms with sons in the service. I appreciate the kind words. My week after chemo has really sucked! No vomiting, well except once, with Emend but not good either. I feel like I'm going to crash at my desk. Went home early from work yesterday and slept through the night till morning. Merilee - sending you mega healing to your body. So sorry about the fall. We are all off our balance arent we. Everyone please try to get an extra hour of sleep tonight. Love to all

    LindaJ 

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