Who has opted for BMX?

13

Comments

  • Aggiecat52
    Aggiecat52 Member Posts: 55
    edited May 2011

    Hi Birdyrobin. Just checking in with you to see how you're doing. So you are scheduled for surgery on May 16th? That is soon, next Monday. It's good to get started on treatment. I found the waiting and tests the worst part. You will get lots of support here from other ladies that have done BMX. Are you still finding time to spend with your horse?



    Aggiecat

  • BirdyRobin
    BirdyRobin Member Posts: 105
    edited May 2011

    Angiecat,

    Yes, Calico is doing fine! I saw her today. She is such a lovely animal. I am looking forward to seeing her this weekend for a while also. She does help me get my mind off of my problems. My dh is taking things kinda hard. He is a worrier and medical bills have him a little stressed. I think I worry more about him than me. He will be with me at the hospital. My son will be home with a good friend of the familys, probilble up to eyes in xbox games.

    I am getting ready for the hospital, this weekend will be filled with chores and buying me a new zip front sweat suit.

    How are you doing? How are you feeling? I hope all is well and thank you so much for checking in.

    I know the ladies here are great! I try to give support and encouragement along with recieving it.

    The jitters will likely set in on Sunday. I will be here sharing : ).

    Robin

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2011

    robin-seriously in a do over I would have done the deip flap-----------belly to breast. the implants just aren't good. I had them in 78- and 80. told each PS the size.  I wanted to be acertain size and why unbeknownst to me they took me to the max each time and i'm only 5;3. ------------all I can say is some sort of arrogance on their part, I was absolutely specific and a nurse. I talked their language,

    I would like to take the whole 850cc and put it in their scrotal sack. I think they would not make that mistake again.

  • BirdyRobin
    BirdyRobin Member Posts: 105
    edited May 2011

    Surprised Ouch! Ya that would make them think twice about not listening to their clients, hmmmm.

    I have an apt with ps on the 2nd of June. I feel fairly well educated from this forum and will go to my apt with a flap surgery in mind.

    Thanks,

    Robin

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2011

    Robin -I think there is a deip thread you might want to visit that. Plus ask your doc how many they have done and what the outcome was? infection rate? Anything unusual? The same types of ?'s that you would ask of any other surgery.       Good luck

  • BirdyRobin
    BirdyRobin Member Posts: 105
    edited May 2011

    OK! I AM NERVOUS!  I AM TRYING NOT TO BE A BLATHERING IDIOT. I HAVE SURGERY TOMORROW, BMX.

    I am trying to stay busy with a few chores, I have a bag packed and I am mostly set.  I am just nervous, jitters, ya know usual stuff.

    Any good words for me tonight?

    Robin

  • TinaT
    TinaT Member Posts: 2,300
    edited May 2011
    BirdyRobin:  Best wishes tomorrow - we'll be thinking about you and sending you all the good vibes we can!!!
  • BirdyRobin
    BirdyRobin Member Posts: 105
    edited May 2011

    Thanks Tina....good vibes, good, good, good, good vibrations. If I hear that song on the radio, I'll think of BC.org. Corney I know but if it keeps me going through the next few hours I'll be ok.

    Robin

  • TinaT
    TinaT Member Posts: 2,300
    edited May 2011

    BirdyRobin:  Here's a funny song story.  My husband and I both have long backgrounds in healthcare so our sense of humor is a bit on the warped side (survival mechanism I guess).  In the car on our way to San Francisco for my first post op visit after my BXM Tony Bennett actually came on the radio singing "I Left My Heart In San Francisco".  We looked at each other and burst out laughing.  Tony left his heart there, but "I Left My Boobs in San Francisco".  It was a stressful time and it felt good to laugh for the first time in a few weeks.  Well, maybe you had to be there........

    Hang in there!!!  

  • BirdyRobin
    BirdyRobin Member Posts: 105
    edited May 2011

    Tina,

    That is funny! I could just immagine it. Lol, it is always good to laugh. Story for you...man was diagnosed with cancer and given a short time to live so he decided to go out laughing not crying so he baught a bunch of his fav comidies, all slap-stick, Laural and Hardy, I Love Lucy, Carol Burnett...etc. Well after a couple of weeks he went back in for scans and his tumor had shrank.......so everyone keep up the jokes.

    Robin

  • Aggiecat52
    Aggiecat52 Member Posts: 55
    edited May 2011

    Sending you good vibes, BirdyRobin! Do you have to stay in the hospital very long? Wishing you a very speedy recovery. Please let us know how you are doing when you get a chance.



    Aggiecat

  • BirdyRobin
    BirdyRobin Member Posts: 105
    edited May 2011

    Angiecat, I will likely (from what I have been told) be in 2 nights. I am takeing my laptop with me so I can post, as I feel up to it. Cyber hugs and thank you for your kins thoughts.

    Robin

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2011

    BR use the PCA button, if it doesn't take care of your pain the systems designed for them to give you extra. If that doesn't work ask them to call the doc. If they say they won't ask for the supervisor. This isn't written to scare you. It's to teach you how to work the system.

    This approach should be used for any sx. They have a protocol where they fill in the blanks. well one size fits all---doesn't fit all. Most place have it down pretty good now for addequate pain control. But at least you know what to do if you need more.

    There are diep threads2010 and 2011. Didn't look for lat flap, but I'm sure it's there-------Enjoy your aneasthesia.----sleepy time

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2011

    BR  hit the submit button twice deleted second submit

  • TinaT
    TinaT Member Posts: 2,300
    edited May 2011

    I posted my pictures on the picture forum under Nipple-Sparing Bilat. MX with TE - Necrosis.  Or you can search by my ID (same as here), TinaT.

  • CorinneM1
    CorinneM1 Member Posts: 539
    edited June 2011

    I opted for both.  I am 39 years old, and was told that I only had ILC (multifocal ILC) in the left breast.  I was told that there was nothing in the right at the pre-surgery ultrasound and MRI.  I was given the option to remove the left only.  I asked to remove for piece of mind, and I do not regret it one bit.  I have TE now and am awaiting Oncotype scores and what determining additional treatment.

  • cathmg
    cathmg Member Posts: 278
    edited June 2011

    Hi Debbsie,

    Initially I was scheduled for a lumpectomy for my ILC-then the MRI came back with a much bigger area: 4 cm, not 1.4 cm the ultrasound showed. Once I knew I had to have  a mastectomy I said, "take them both off." The surgeon didn't want to do it, but I would have been a basket case looking for ILC every 3 or 6 months or whenever they check in the clear breast. I haven't regretted it, although the reconstruction makes my shoulders tight-I have to watch my posture and stretch everyday.

    Best wishes,

    Cat 

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2011

    Debbsie I support what Cat said _______off with them . Never regretted the decision . I regretted the PS's work , but not the decision. Also consider a total hyster with ovaries out if er+. All of it gone

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2011

    http://community.breastcancer.org/forum/78/topic/770796?page=1

    new forum on Hot Flashes--------lots of good suggestionsCool

  • debbsie
    debbsie Member Posts: 45
    edited July 2011

    I went ahead with BMX.  Had my surgery 6/30.  I am patiently waiting to get my drains out this coming week, and move ahead with the pathology results and find out what treatment is next for me....chemo? rad? just Tamoxifen?  I should get most of those answers over the next couple of weeks.

     TinaT - I had to laugh about your song story....I've evolved it for my own situation..."I left my boobs in Miami".  LOL

  • annettek
    annettek Member Posts: 1,640
    edited July 2011

    tinat- you gave me a belly laugh this morning for the SFO song....thanks buddy:)

  • TinaT
    TinaT Member Posts: 2,300
    edited July 2011

    debbsie and CorinneM1:  I know things still feel so up in the air being where you're at right now.  Sounds like you'll know more about your plan of attack in a few weeks.  No matter what your treatment plan is, you'll be breathing easier when you at least know what you're dealing with.  Hang tough!!!

    Yep, I'll never be able to hear that song again without hearing my version in my head! 

  • CorinneM1
    CorinneM1 Member Posts: 539
    edited July 2011

    As mentioned, I have no regrets and doing really really well.  Its been a few weeks, but I am almost back to normal.  I can/have gone back to work, done housework, grocery shopping, made meals for my kids etc.

    The only thing I can't do is sleep on my stomach.  It feels weird (no pain, just weird) so I am sleeping my my back and side. I can get my arms over my head easily and with very little pain.  I know that everyone's recovery is different, but mine was fairly easy.  Hence, another reason that I don't have any regrets.

    Still waiting to hear Oncotype score, but met with another potential MO who stated that he would have never even ordered Oncotype, and that he wouldn't recommend chemo to me.  I have a close margin to the skin .05mm which is very concerning.  The hospital that I had the surgery done at is reviewing my case tomorrow with a board and they are coming to a decision in a few days regarding radiation.

  • TinaT
    TinaT Member Posts: 2,300
    edited July 2011

    CorinneM1:  My oncologist didn't feel the OncotypeDX was needed in my case either.  My cancers were found very early and apparently were "well behaved".  She ran the Adjuvent! Online and the results went along with her personal experience from dealing with many patients with similar pathology reports.  She kindly agreed to run the OncotypeDX at my request and the results weren't any different.  A 2% increase in protection with chemo wasn't enough for me to opt for it and my oncologist strongly agreed that it was a reasonable decision.  She added, however, that there are women who want to go through chemo even if there's only a 1/2% increase so she was happy that my decision was confirmed with the Oncotype test.  We all have to make decisions based on our comfort levels.

    Sorry your margins were so close.  I'm thinking good thoughts for you!!!

  • toomuch
    toomuch Member Posts: 901
    edited August 2011

    I had a lumpectomy last July when first diagnosed with PILC. I had surgery 9 days after diagnosis because I couldn't wait to get the cancer out. During chemo and radiation, I had time to fully research my reconstruction options. 1 week ago I had bilateral mastectomies with autologous flap reconstruction in NOLA. My pathology report came back yesterday showing a lot of atypical ductal hyperplasia in my good breast. I had a mammogram, breast ultrasound and breast MRI as pre op testing in July and all were reported as normal. I am so relieved that I went forward with the bilateral mastectomies.

  • CML0310
    CML0310 Member Posts: 75
    edited August 2011

    I did the bi-mx too.  Pre diagnosis I would joke if i got hit by this bus "chop them off and make me perky".  I followed through with little hesititation.  I guess for a minute or two I contemplated the lumpectomy but given these are flat and possibly viney tumors or starlike as my bs decribed mine, they couldnt estimate how much they would take to get the clear margin.  Im only 41 and while I was never obsessed with the size of "my girls" and wasnt that large I thought I filled out a dress or a  bathing suit nicely.  I didnt want to have to continue to get the mamograms and worry that something knew could brew.  I had one consult that said I could do the lumpectomy and if I didnt like the result go back for the bi mx.  That wasnt for me, I didnt see the point of delaying what I ultimately wanted to do.  My exchange surgery is next month.  The TE's have been uncomfortable and awkward at times ( I still dont sleep on my stomach) but I am glad I went the route i did.

  • TinaT
    TinaT Member Posts: 2,300
    edited August 2011

    toomuch:  I can hear the relief in your post, sounds like you made a good decision.  In brief, I had a "normal" mammogram (extremely dense breast tissue) and 5 abnormal areas on my MRI (3 fibroadenomas, 1 invasive lobular, and 1 DCIS) - all in the left breast.  I chose bilateral nipple-sparing mastectomies and at surgery more lobular atypia and multiples sites of ADH were found sprinkled throughout the breast tissue; these were not seen on any imaging studies either due to their early nature or denseness of the breast.  The MRI report actually made comment that the tissue was very dense and made interpretation slightly difficult.

    Due to having two different forms of cancer and because of the nature of lobular CA I was comfortable with my decision to have a bilateral even before surgery.  The discovery of all the other abnormal areas sealed the deal for me.

    All the best with your recovery!

  • Ellie1959
    Ellie1959 Member Posts: 316
    edited August 2011

    My mom and I both have ILC and both opted for bi-lat BMX - and neither or us has had a recurrence - she is 17 years out and I'm 5 1/2 - so far so good. She didn't do recon but I had a tram-flap done - I was only 45 at the time. We had the same surgeon and he reccomended this to us -

  • TinaT
    TinaT Member Posts: 2,300
    edited August 2011
    Ellie1959:  Congrats to you both!
  • Ellie1959
    Ellie1959 Member Posts: 316
    edited August 2011
    Thanks Tina T!!! You'll be there one day!!! Kiss

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