New type of LE Garment

There's my hero, Cookie...

So here's my report so far: I tried the large tummy band as a tube top. Had to cut off the top "band" because it cut in. I could wear it but it was so tight it sort of hurt my skin and my little rebuilt nipple. Today I am trying it lower on my ab just to see what it does for my mid section before cutting it up. I think I'm going to stick a piece under my Under Armour and see what happens. I don't have much issue in the breast but more trunc, side area.

The bilateral sleeves - I am not seeing anything happen there and wonder if I should have gotten a smaller size or the acutaly compression verson (that is one sleeve). The sleeves seem really tight on my lower arms and more loose on my upper, which is where I really need more compression I think.

Thoughts on this??  Will report back after I cut up the belly band and try it under the under armour.  

This doesn't help anyone but me...but that sleeve design is the only reason it fits me...every other sleeve(including the one arm) is too loose on the bottom and too tight on top.

I have not had anything miraculous on the arms, but I have gotten slightly better( since it is better than nothing) I will say the LE MD said my skin looked good and soft. I will put the juxtafit over it when I get it.

Oh I call the breast one my "boobie wiggle"

Yikes!  For the record, both the Armcare and the bilateral Wave ARE compression sleeves and both DO have graduated compression.  The bilateral Wave sleeve was not designed to be a LE sleeve, however, it absolutely IS a graduated compression sleeve (15-21mmHg). 

I've been wearing both the Armcare CCL2 and the bilateral Wave sleeve for a year.  (Exactly one year next week!!!)  They are the only sleeves that work for me.  I have no problem with the shape of the wrist/cuff on the Wave but I can imagine that some people might. 

Inspired by Cookie and everyone, I just ordered an abdominal band to cut up for experiements. I need to figure out a way to wrap it around my axilla and collar bone.  Hmmmmm.

Cookie - I am very curious about the Juxtafit.  I've never seen it in person but I have wanted to try that kind of garment - sort of a cross btw a sleeve and bandaging.  Please report back!

Sleeves - I used to have big-time problems with my elbow crease (searing pain, redness, immediate increased swelling).  The Armcare is great for me - hopefully it will work for you too.  Before the Armcare, I used to tuck a smooth piece of Artiflex inside my sleeves over my elbow crease.  This helped a lot. I also used Jobst roll-on body glue to help hold my sleeves up. 

Spring - I luvvvv to do inversions. I was v depressed by the idea of never doing them again.  I only do them with my favorite, trusted, knows-me-well yoga teacher - and we go easy.  I don't get to see her often but I feel wonderful whenever I do. 

Actually, Cookie, LE is such a huge subject that they offer several badges. Here are a few we're all working on:

- This one is "Finding a Doctor Who Will Diagnose LE"

- This one is "Adjusting to the Idea that This is For Life"

- This one is "Compliance in Wearing Wraps in Public 23/7"

- This one is "Graduating to Wearing Compression Garments"

- And this is "Paying for Said Compression Garments"

- This is "Educating Our Healthcare Providers Without Decking Them"

- This is "Maintaining Arm/Chest Without Swelling"

- And here's "Coping with Yet Another Flare"

- This is for "Advanced Brownie Eating"

- This is "Doing MLD and Exercises Regularly"

And finally, - "Getting On With Life, Sistah!"

As you can see, we'll all need the extra-long badge sash to fit all of these on, and I'm sorry to say that our insurance does not provide them. No surprise there....

Be prepared!
Binney

Binney,

I was never good at earning badges in the old days - but these, I'm working on it!!!!!

Dawn 

Trishia - I wear the silver wave with a sleeve (that is a little worn out, a little looser than normal) over the top of the silverwave.  The silverwave is a little big on me and I need a little more compression on top of it to give me the compression I need for working out.  It helps me!  I have to take the second sleeve off about an hour after working out because it is too much.  As with all this LE c#@* you have to figure out what works best for you. 

Binney - I LOVE the LE badges!    Unfortunately, I've only earned two thus far ..."Advanced Brownie Eating" and "Doing LE exercise and MLD Regularly."  Love it, love it, love it!  I'm still working on the other badges...

SleeveNinja: Great name you got and when I get comfy sleeves you can all help me change my user name from Sicklysleeves to something cooler. OK!,

Regarding the elbow crease that squeezes and rashes out like a boa constrictor, With my first off shelf sleeve I tried foam given from my MLD girl but had a devil of a time inserting it. I did finally get it in. Felt a bit better, that sleeve was too tight though so I am now trying a custom made.(2nd one)  What is Artiflex?

With my second attempt sleeve (custom) I tried the glue which did help but still wasn't the best as I was getting inner crease bother.  I figured that sleeve is too big and slipping.  I got my fitter to take back the sleeve which she was really good about. She is very concerned about comfort for me.

While we are trying to find another brand I ordered a Soledia CCl2 sleeve from Sue.  After reading this thread a few weeks back I thought the CCL2 sounds great with that inner crease pad and comfort.  Although I am worried about it not being a flat knit as my MLD says that is the cream of the crop way to go for containment. I use mostly as a preventive as I don't want to become the elephant man quite yet! Sorry for the pun as I feell bad for you girls that are suffering so much., hang in and we will see if we can get you some comfy soleidia products made for you)

Girls!   I said I would get back to you on contact info.  So If you all want new types of products made then email Sue Callison's contact person who is in direct line with the Italy manufacturer.

email to Mr. Brodini at brodini@solidea.com. Again I will mention that Sue said that if we let him know what products we want made and he gets enough response they will seriously look into producing. Also Sue said to please mention that we are in contact with her so he sees the connection.  Personally I want comfy gloves that are not restricting and tiring then I wouldn't mind them coming up so high towards my finger tips.

Don't know when I can get back on thread. Busy with fam. Will keep you posted on the Solieda's and love any tips you can pass on.

Hey wavers. Just checking in. I still think the silverwaves are doing their thing. I think the waves do have some benefit above and beyond compression. Still I would love to get it in a higher compression. My fitter said the top is really giving me almost nothing. Still it seems to work pretty reliably.

I guess when I get my custon sleeves and juxtafit, I will have a basis for comparison.

so I don't know quite where this falls...but I decided to experiment with wearing my "boobie wiggles" as much as possible....and my arm actually got smaller. I was inspired by the post about how important clearing the chest is.

When I got up this morning my LE arm was actually a tiny bit smaller than my good arm.

Go figure!

I'm lost too on the boobie wiggle?? and was it on your boobie or your arm??? (LOL never thought I'd be typing that out!!)

cookiegal - 'boobie wiggles' 

Do you sleep in it?  Are you the one who cut it up and uses it across the chest? 

yes....I am.

I really am ready to try to line a bra with it.

I actually made a bra out of one, but it's a little akward.

It may be a fluke, but when I slept with it, for two nights, I woke up with my arm perfect. And this is with no sleeve at night.

So go figure...but I feel like I am on to something.

~~~~~~~~

Boobie wiggles that suck the fluid out of your arm overnight! It sounds like a miracle!!!

I just got a new arm care and I they have made some slight changes to the band that goes across your back. I didn't think that it was possible but the new sleeve is even more comfortable then my first one! I still love my wave but when my arm is acting up the arm care is great!