Update from April 7th post

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LindaVA
LindaVA Member Posts: 23
edited June 2014 in Not Diagnosed With a Recurrence or Metastases but Concerned

I ended up waiting until my May 4th appt.(yesterday) at Duke for my bone scan to do anything about my left leg pain. The pain had finally gotten better in the last 2 weeks, so I felt like it wasn't likely a bone metasteses, but I keep the appointment expecting good news.

Well my leg is clear on the bone scan, but it is not a good report. The bad news is that there are scattered hot spots that are consistant with metastatic disease. Spots of concern are left iliac crest, rt acetabulum,left frontal calvarium (skull), vertabrae C-4 -C7, mild foci of radiotracer on the lumbar spine, midline sacrum, and possible left SI joint (connects pelvis to sacrum)

All this and the oncologist was not ready to give a bone metasteses diagnosis. He said he first wants more detail with a CT scan. He did decide there was reason to do tumor markers. I don't know the results of that yet.

The CT scan isn't scheduled until May 12th, so I'm in for a wait again, hoping for the best and fearing the worst.

I'm sure you can imagine how I'm feeling about now. I keep hoping I'll wake up and realize this is all a bad dream.

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  • edwards750
    edwards750 Member Posts: 3,761
    edited May 2011

    Oh Linda I am so sorry. And now you have to wait until May 12? Maybe you could check with them and see if they will call you if they have a cancellation. I understand about hoping for the best and fearing the worst. I always ask what is the best I can hope for and the worst it can be? At least the Onc is not 100% positive. So this was  your bone scan following radiation treatments? diane

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  • dlb823
    dlb823 Member Posts: 9,430
    edited May 2011

    Oh, no, what a shock!  I will pray that this is just a horrible scare.  Your hx (starting with a mast for Stage 0 DCIS) makes your update so hard to grasp.  Thinking of you, and praying for much more positive news to follow...   (((Hugs)))   Deanna  

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  • LindaVA
    LindaVA Member Posts: 23
    edited May 2011

    I finished chemo and radiation in the summer of 2006. I was on Herceptin for a year (finished that May of 2007). The DCIS stage 0 was diagnosed in 2004. Two years later the BC of axillary lymph nodes showed up. In the 2004 DCIS adventure the microcalcification area was small but they found I had Paget's disease of the nipple. I had been back and forth to the Gyno and breast imaging center for a sore crusting nipple on that breast  over a period of 1 1/2 years before the DCIS showed up in the mamogram.The radiologist said the nipple problem is probably due to a medication. They never even did a nipple biopsy or considered that it might be Paget's. At the time, I didn't even know to demand a nipple biopsy.

    I felt like I had been screwed by the Lynchburg, VA doctors, so when it returned in 2006 I decided to get treatment at the Duke Cancer Center. Doctors kept saying, "This isn't suppose to happen.When the 2006 adventure was first diagnosed, they did do all the scans and such before they did any treatment. I have been 5 years with no apparent problems.

    Thanks for your kind words and prayers!!

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited May 2011

    I'm praying for you!!

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