Accuracy Follow Up & Rice Crispies

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37antiques
37antiques Member Posts: 643

Hi all,

I just have some questions that I have not been able to find answers to.

1) How accurate is a bone scan, ie, how far back can it pick something up and how likely is it to pick up one thing but not another

2) When something is found, what is the best (most accurate) follow up scan, PET, MRI or CT?

3) Do any of your joints snap crackle and pop ALL the time without arthritis?

Even a direction to some solid research information would be helpful.

Thank you!

Comments

  • badger
    badger Member Posts: 34,614
    edited May 2011

    Hi Sue, I haven't had bone scan but do have rice krispies joints... snap crackle pop!

    especially in my ankles and feet, going downstairs to do laundry can get noisy :-)

  • 37antiques
    37antiques Member Posts: 643
    edited May 2011

    Thank you badger, I'm so glad I'm not alone.  My bone scan showed no arthritis, so I was wondering why I am suddenly a rice crispie!

  • thenewme
    thenewme Member Posts: 1,611
    edited May 2011

    Hi 37Antiques - your "Rice Crispies" comment made me laugh out loud!  YES - that's a perfect description of me too!  It sounds so much better than "chicken gristle" that I usually use to describe it, ugh!

    Here's a site I've found useful to help understand the various imaging scans:

    http://www.virrad.com/public/diff_type_scans.html 

    Also, I found a lot of helpful information on Wikipedia:  http://en.wikipedia.org/wiki/Bone_scan

    From my understanding, a bone scan shows the density of the bones, so it can detect normal bone density, hyper-dense lesions (ex. previous fracture site healing), and hypo-dense areas.  It sounds like maybe you're concerned about bone mets?  A bone scan would show areas suspicious for mets, which can be osteolytic (loss of bone, or the "swiss cheese" effect) or osteoblastic (extra bone deposits).

    I think the next diagnostic step depends on exactly specifically what is found, and all the various scans have their pros and cons.  I'm currently undergoing a workup for some hip symptoms, so I've been doing a lot of reading about all this too!  The PET scan is particularly looking for metabolic activity, whereas the bone scan and CT are looking more at the anatomical structures themselves, which is why a lot of PETs are actually combined PET/CT, so they can correlate the metabolic activity with the anatomic location.

    I wonder why my snap-crackle-pop is worse now too, post-treatment, but they've ruled out arthritis with me too!  Hopefully the rice crispie syndrome is all it is - I'm good with that, LOL!

  • 37antiques
    37antiques Member Posts: 643
    edited May 2011

    Hi thenewme!  Thank you so much, I've been google mad and totally forgot about wikipedia.

    Yes, I am concerned about mets, but I have had some conflicting results, which I can't find.  My sternum lit up, and follow up was recommended by the radiology report.  But here's the twister - my knee was lit up that I had surgery on 30 years ago, yet my leg that I broke 4 or 5 years ago showed nothing.  Everyone on the boards seems to get PET scans, but I don't know which would be best to define what is going on.

    I'm finding a lot of things are just late side effects of treatment, I wonder if being a rice crispie is one of them?

  • apple
    apple Member Posts: 7,799
    edited May 2011

    oddly, the word for the rice krispie noise is crepitus.. 

    I've had bad knees for years due to biking, gymnastics and such.  if there is no bone deterioration, one can manage it kind of, with diet, (maybe rice krispies help),  adequate liquid, etc.  In itself, the noise is harmless.. just a sound.  Maybe all this cancer treatment has helped... or maybe it is the lessened stress and few stairs.  anyway, my knees sound a lot better than they used to.

  • 37antiques
    37antiques Member Posts: 643
    edited May 2011

    Thank you Apple, I didn't know there was a name for it!  It doesn't hurt, it just is weird, everytime I move snap crackle pop!  It's not confined to my legs, I get it in my shoulders and spine too, and it came on suddenly.  Ah well, maybe I should lay off the pizza and ice cream for a bit...

    I still can't find anything definitive on the bone scan results, should I call the radiologist to have it explained?  The doctors just don't seem to be that familiar with it.

  • cat60
    cat60 Member Posts: 61
    edited December 2011

    Hi 37 antiques,    I do have the Rice Krispie noise in my bones too...I noticed you are from Red Creek, I grew up there.  Still have family up there !! Send me a PM if you would like to chat..Cathy

  • badger
    badger Member Posts: 34,614
    edited May 2011

    oh yeah, my knees are crunchy too

    crepitus ... decrepit  Undecided

    BTW I'm 51  Tongue out

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