Insurance is denying BMX , need help!

I want a prophelactic BMX due to strong family history and a couple of abnormal mamograms. I have lost my Mom and younger Sister to BC. My other Sister is thus far, a survivor. That is my entire family. My Mom and two sisters! That is a very strong family history. Also lost my Aunt on my Fathers side.

I have letters from 5 Dr.s and a genetic councelor stating i need to have this done. I have BSBC of Mi. MSPERS (school retiree).  In my contract it states they cover the BMX in cases of strong family history. The diagnosis code is V16.3. Strong family history of breast cancer.BUT ,my customer service rep at BC informed me they don't  cover anything coded that starts with a 'V". It is the most insane frustrating circle.

Does anyone have experience with this? Any thoughts, tips or advice is welcomed and appreciated!

Comments

  • lago
    lago Member Posts: 17,186
    edited January 2011

    Screw the customer service rep. This is unacceptable.

    I initially had an issue with BC&BC of MA denying my PS bill for reconstruction. It took a while to get it sorted out. BC&BS of MA said the code was too general. Ironically BC&BS of IL had no problem with the code. MA wants the code for each stage of the reconstruction. It took a while to find that out. (I was the one who found out that was the issue after several calls to BC&BS).

    It's possible that there is another code for that procedure that they will cover. Only the doctor's office can call and get that info. They will not give you the code.

    If that's not it go above your customer service rep. Someone higher up might be able to figure this out.

    Yes you need to be a pest with insurance companies. They will do anything to get out of or delay paying. The also tried to deny my $40 blood draw for the BRCA test but covered the actually BRCA testing. I finally got them to pay part of it. I know, small amount but I was paying a lot for Cobra. No need to pay any extra!

  • Cameron
    Cameron Member Posts: 182
    edited January 2011

    ...Oh boy am I adding this one to my "favorite topics"...

    I am going to keep an eye on you, looks like we'll (hopefully) be PBMX'ers together, and the sooner the better, right?

    I am currently choosing not to schedule my surgery until I get the proper codes so I know I'll be covered. The last thing I want is to be is post-op, and under the influence of pain meds, sitting on the phone, on hold for 30 minutes, holding a bill that says I owe them twenty billion dollars, and crying my head off.

    So I'm not in your boat (yet) because I haven't been told "no" yet. We'll see. I'm remaining optimistic because my doctors say it should be done, and once it's done, reconstruction MUST be done. I also have Minnesota law on my side, I've researched.

    If need be, I could send them a photo of my boobs and ask the insurance company "could YOU walk around like this?"  Unlike you, I have absolutely no history of breast cancer in my family. What I do have is a left breast with a giant fast growing tumor along with hundreds of fibroadenomas, and a right breast with smaller more painful tumors.

    Maybe the insurance companies should consider what a favor we're trying to do for them. You, with your history, clearly are at risk. And me, with my tumors, well I have so many hiding places for cancer to hide out and stage a hostile takeover...places that can't truly been seen, even on sonogram, because of the tumors. Why don't the insurance companies understand we're NOT trying to do this for "Fun". WHO wants to get their breasts removed, just for "funsies?" I don't think so. Imagine the money we'll save them in the long run. I know that if I don't get this surgery, I'm looking at more mamos, sonos, MRIs, MBIs, Biopsies, and lab tests than they can ever understand. Add in the cost of my therapist once I go stark raving mad, and wow, it's not pretty.

    Sorry about the rant...all I have to do is think about insurance and my inner snark-beotch comes out.

    Where I am: I have my radiologist, and my general surgeon behind me. The paperwork has been faxed to insurance, and tomorrow a medical letter of necessity will be dictated and sent. I will stay tuned to your dilemma and wish you the best!

    In the meantime, if I were you, I'd call the person you know best at your doctor's office. It will probably be a nurse or a "care coordinator". That person will be your "go-to" helper to get this surgery accomplished. Tell them you NEED someone to help you see this through. Tell them, if the doctor says it's necessary, SURELY there is another code he can place on the procedure, a code which your insurance will cover. 

    Just 5 minutes ago, I got off the phone with my "go-to" girl.  I'll tell you how I knew she should be my appointed helper: I told her my insurance company said they hadn't heard anything from the doctor, and I was calling to check on things. She was shocked they told me that, because she faxed them my paperwork like 8 hours ago. BUT then, she said that it was a process, and these things take time to work their way through. She seems like I was impatiently harassing her or something. To shift her mood, I gave a meek polite little thank you, and then I apologized for bothering her, by explaining that "I was sorry for being so pushy but that my tumors have me in a lot of pain." And then I think I sounded choked up and on the verge of tears. And WOW did she sound like I was her long lost daughter in need of a mama bear's help. She started saying how she'd call to expedite, follow up, keep me informed, rest assured, hang in there, don't worry, yada yada. 

    Mission accomplished.  (wink)

    ~ Cameron @~;~~

  • lago
    lago Member Posts: 17,186
    edited January 2011
    BTW the American Cancer Society has social workers that can help with these issues. Have you contacted your local office?
  • Elaine586
    Elaine586 Member Posts: 24
    edited January 2011

    I wrote a long, thought out response yesterday. It's gone. Undecided

    Thank you both for your thoughts and advice!! 

    Thank you Cameron for sharing your story. I wish the the very best and hope your insurance steps up and does what you have been paying for! Who is your PS? Where are you having it done?

    I reasearched all of my options, initially had a date set for BMX and implant reconstruction. I just had a bad feeling about it. Then I discovered info on DIEP/SGAP and Dr Massey. I knew that was the right answer for me.

    Initially, BCBS said yes , I am covered. It is a covered procedure. I saw it in black and white. I meet the critreia required.  I requested out of network exception for NOLA St Charles.They would only pay a very minimal amount, & St Charles turned me away. 

    Then Jenny and Dr Massey scheduled me at Fairway in NOLA, they are in network. All was fine, til Jenny requested pre auth. BC BS did a pre auth for the hosptial, but would give one for Dr Massey or the surgeon doing the mx.  They told Jenny she didn't need one because it was a covered procedure. But they said they don't guarentee pmt. They always have that disclaimer. Jenny wanted a pre auth to cover all of our butts. 

    She couldn't get anywhere with them, so I called. They said , yes, it was covered and it was between me and my Dr as to whether it was medically neccessary. No real answers, so I requested a nurse case manager. She is trying to help. In the mean time, I got a call from my "my" customer rep  saying they were not going to cover it! The diagnosis code for the strong family history is V16.3 . She said they don't cover anything "V"! The exact same time she was on the phone with me, Jenny was getting a call from the ombudsman saying if she faxed all the letters, background, etc, they "might" reviw it! SO FRUSTRATING!!!

    I hope to find someone that went through this, find out what code the surgeon used to bill it. "My" customer service rep wouldn't tell me. Yell

    I will look into the ACS, thank you Lago!  Looking forward to hearing how it works out for you, Cameron!!!

  • carcharm
    carcharm Member Posts: 486
    edited January 2011

    I believe the coders that prepare this for billing should look up and review the coding clinic on how to code this. I think they should be using the coder for breast cancer... try calling the medical records department and talking with the coding manager. Tell her that someone told you about a coding clinic on coding the prophylactic removal of breast for family hx of breast cancer. It may be the V code but I don't have access to an encoder since I am out of work currently.

  • mdg
    mdg Member Posts: 3,571
    edited February 2011

    Here is a website that lists codes.  Maybe if you call your insurance or look on line on their site it will spell out what you need to have it coded as.  Surely your doc's have dealt with this before.  Did you talk to their medical biller?   There has to be a way around this....

     http://www.icd10data.com/ICD10CM/Codes

  • Elaine586
    Elaine586 Member Posts: 24
    edited February 2011

    Thank you all so much for the advice, links and sharing . As of now, my case is being "reviewed". They said it will take about 3 weekes to get and answer. That was 2 weeks ago. Jenny at Dr. Masseys office siad she has never ran into this before with an insurance company! I am stunned. We have MSPERS BC/BS PPO. That is "supposed" to be one of the better plans. I have found them rude and unhelpful! I do have a nurse case manager that is very nice and supportive, but she can't help with the approval.

    MDG, Thank YOU!!! I will forward that to Jenny... and look to see if I can figure it out. At first glance it has medical terms that are foreign to me. LOL  I need to study and reseach. I will not give up.

    My Gyn suggested a lawyer if they deny me. Rarely does the work attorney come out of a Dr.'s mouth! LOL   

  • edwards750
    edwards750 Member Posts: 3,761
    edited March 2011

    Elaine...don't have your problem specifically - maybe you have solved this because your post was in January but I am concerned about the financial end of this nightmare. We do have insurance coverage - at least through my husband's job. He has Blue Cross which I have to admit has been a big benefit to us. The doctor and hospital we are using are all part of the network so they submit their allowable charges to the doctors and hospital. Our out of pocket is manageable but this is only the beginning of the medical floodgate charges. The charge that really bugs me is the Womens Health Center where I had my mmgram, original and node biopsy charged over $5700 just for "using" their facility and it was more than the hospital where I had my lumpectomy. Really? I am not going to stress over the bills...we have a flex account as well but it is so telling why a lot of people dont go to the doctor. I agree you have to take on insurance companies yourself hopefully with the help of your doctors, and push, push, push them. I have no problem doing that. We are all going through difficult times; the last thing we need is financial worries too.

  • Elaine586
    Elaine586 Member Posts: 24
    edited March 2011

    Edwards 750 & JBin, it has not been resolved. At all. It is "being reveiwed". The thing is , my policy sates a PBX  IS covered under certain criteria. IE strong family history, abnormal mamograms, etc. I DO meet the criteria they have in place. The first few ppl I talked to at BCBS said it WAS covered. They wouldn't put it in writing for Jen at Dr Masseys office. So, I called to see what was needed for a pre approval. I got the run around, but I kept calling. Then suddenly I got a call say it was denied and wouldn't be covered. The code they have is for the procedure is a V code. And, according to "my" customer rep, they don't cover V codes. Its insane!

    I was tested for BRCA. I came back negative. But since my Mom and Sisters were not tested, that doesn't really give me confidence.

    Thank you for your insights and thoughtfulness. I do so much appreciate it.

    Edwards 750, I hope your insurance will step and and do what they promised all the years they were collecting the premiums.You are right, stressing over money is the LAST thing you need to do. You have more important things to spend good energy on!  Thank you so much for sharing. I wish you well.

    Elaine

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited March 2011

    JBinOK, while it is true that the majority of women who develop BC do not have a strong family history, the converse is not true.  The fact that only about 15% of women who develop BC have a strong family history does not translate to "only 15% of women with a strong family history will develop BC."

    For example, the average American woman has about a 12% chance of developing breast cancer. [see http://www.cancer.gov/cancertopics/factsheet/detection/probability-breast-cancer]

    But women who are BRCA1 or 2 positive have a 65-80% chance of developing BC
    [http://www.hopkinsmedicine.org/avon_foundation_breast_center/breast_cancers_other_conditions/family_history_breast_cancer.html]

    While Elaine is not BRCA-positive, she is likely in the category of "50% of families with hereditary breast cancers" who don't have the BRCA mutation, in which case her risk is higher than the 12% average. This website says that having 2 first-degree relatives with BC increases a woman's risk by 3-fold (which would make the risk 36%) -- and Elaine has 3 first-degree relatives.  And even from a completely mercenary standpoint on the part of the insurance company, a prophylactic bilateral mastectomy and reconstruction in a healthy woman is almost certainly going to be less expensive than treating breast cancer...

    Elaine, I hope the insurance review comes through for you, and I'm so sorry you're having to wait like this.

    Hugs, and fingers crossed,

    Ann

  • AnneW
    AnneW Member Posts: 4,050
    edited March 2011

    Elaine, there are ways to work around those V codes. You need an actual diagnosis. V codes are "history of" or "screening for" type things. Very non-specific. If you have abnormal mammograms, there will be a code number for that (in the ICD-9 book, look under "findings, abnormal, xray" and have the dates listed. That may not be enough, but it keeps the V code out of there.

    It's a true shame you have to wait for cancer to get a surgery that feels right for you. But with the expense of this surgery, one can hardly blame the insurance company for not wanting to shell out the bucks for all the stages needed (as well as the unknown--flap failures, infections, revisions) for a NON cancer diagnosis.

    Then again, you could have a little cancer lurking in there and not know it till the pathology is done.

    Good luck with this.

  • cycle-path
    cycle-path Member Posts: 1,502
    edited April 2011
    Elaine -- I agree with AnneW. You need the doctor to give you an actual diagnosis, not a V-code diagnosis. "V codes identify circumstances for encounter related to circumstances other than a disease or injury and are also used to report problems or factors that may influence present or future care."
     
    That's the problem -- the V-code is identifying a "circumstance" not a "disease or injury." Get the doctor's office to re-code you. Look here: http://www.icd10data.com/ICD10CM/Codes/R00-R99/R90-R94/R92- 
  • edwards750
    edwards750 Member Posts: 3,761
    edited April 2011

    Elaine - Thought I would check in and see how things are going for you with the insurance battle...FYI I am now doing battle with Blue Cross because they initially approved the oncotype test and now they are NOT going to pay for it...meeting the criteria issues, all that turning you down jargon. Good news is Genomic Testing is filing the appeal for me. They sent me a letter a few days ago. I called them and the lady told me this happens all the time. Not sure with Blue Cross specifically but with insurance companies in general. I also called my BS office and am waiting on a call back from my BS nurse because the submitted the paperwork. While I am eternally grateful for the test...meant rads not chemo - I told them on the front end I would not have the test done if insurance would not pay for it. Luckily we are at l00% with BC now because we have met our deductible. No surprise given the charges by the anesthesiologist, etc...Genomic said they will continue to appeal until they are exhausted and then they will work something out with me. We have a decent family income but according to Genomic if your family income is $92k you are at poverty level. Ours is above the $150k level but apparently we are one step above that...seriously....With rising gas and food prices we may end up in that class if this keeps up. Bottom line is it is all about coding....diane

  • Elaine586
    Elaine586 Member Posts: 24
    edited April 2011

    Well, Blue Cross wore Dr. Masseys office down. They have pretty much dropped me. :(  BC/BS reps say it is a covered procedure under certain criteria, if the Dr. feels it is medically neccessary. I checked with a friend of mine here in Mi that works for a surgeon that specializes in breast surgeries. They just don't do microsurgery. Anyway, my friend says they do prophelactic often, and BC/BS  covers it. And they DO bill it as a V code. So confused. 

    At this point , I am searching for an in network Dr that does Diep/Sgap. 

    I can't thank you all enough for your help , support and suggestions. 

    Edwards750, I will keep my fingers crossed that BC /BS comes through for you. 

    JB , trust me, if there was anyway I could pay for it myself, I would. That is just not an option. 

    Anne, hugs to you!!! You are such amazing ladies!

  • Better-Body-Babe
    Better-Body-Babe Member Posts: 77
    edited April 2011

    Elaine586-- Dealing with insurance companies on top of dealing with the threat or treatment of breast cancer is awful.  I had  DIEP reconstruction a year ago and was so very fortunate that my surgeon's office took care of all insurance matters for me.  I never lifted a finger.  Hearing these stories makes me realize how much was actually done for me.  My surgeon is in the BC/BS network in Charleston, SC-- Dr. Richard Kline.  It might be helpful for you to call his office and talk with Gail.  She's a miracle worker when it comes to insurance.  Dr. Kline is a miracle worker when it comes to reconstruction.843-849-8418.  I sure hope Gail can be of help. 

    Good luck to you-- hang in there. 

  • Del11
    Del11 Member Posts: 944
    edited April 2011

    Elaine: are you sure you meet the criteria?  For strong family history they require a certain number and type of relatives who have been affected.  Their policy should be available online, just go to their site, go the "providers" tab and search the Policies section for "mastectomy" or "prophylactic mastectomy".  You should be able to see the criteria for medical necessity and the list of relevant procedure codes in that document (although they aren't correlated to specific things; you could search elsewhere to investigate those if you want).

    BCBS-IL policy states it's considered medically necessary for high risk if: "Confirmed family history of breast cancer in two first generation relatives, such as two siblings, or mother and sister"

    So, assuming your plan is similar (it may not be however)... maybe they're wanting confirmation of bc in your relatives? A letter from the doctrors may not be enough.  Have you tried contacting them directly to see what they're looking for?

  • CandDsMom
    CandDsMom Member Posts: 387
    edited April 2011

    Elaine-

    If Dr Massey's team wasn't able to help with the insurance, it may be worth checking with Dr. DellaCroce or Sullivan's people - they also operate out of Fairway and have many more "helper" staff to help with these complicated issues. Just a thought - sorry that you are dealing with this!

  • Elaine586
    Elaine586 Member Posts: 24
    edited April 2011

    B-B-B (LOVE YOUR NAME!!) and C & D's Mom, thank you . I will check with them both!

    Jeskachi, yes. Absolutely. Lost my Mom (@63) and younger Sister (@46) to BC. Other sister is a survivor (keeping fingers crossed ). Aunt on Fathers side lost her battle with BC at 38. Meet criteria and THEN some. Have letters from 5 Dr;s and a genetic councelor stating I am very high risk and this is neccesary. Not sure what the prob is. 

    Somewhere in the midst of all of this insanity, things will work out. Thank you all so very , very much.

    I will continue to keep all of you in my heart, thoughts and prayers. May we all go down in history as the END of breast cancer. We beat it and found the cure/preventive answers! That makes my heart smile to just fantasize about that! 

  • edwards750
    edwards750 Member Posts: 3,761
    edited April 2011

    Elaine - I hope we do all go down in history as the END of breast cancer. What a wonderful thought and hope...what I don't get about this whole thing is what is the point in calling the insurance company to see if your procedure is covered only to turn you down when the bill comes in? I understand about the coding and I know a doctor can decode and recode and it makes all the difference in the world but people like myself decide to go ahead with a procedure and/or testing based on that approval. In case you guys dont know the oncotype test is over $4k. Given the zillions we all have accumulated in doctor bills I would have elected not to have it done because I dont want to take on more medical bills if I dont absolutely have to. Okay I am done and de-stressing....good luck to all of us...diane

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