Starting chemo January 2009?
Comments
-
Hi Jewels,
Been thinking about you lately. Am coming up on the 2 year anniv of my LAST chemo. some days it seems like yesterday, most time it seems like a bad dream. I got through my Mammo and exam in March - needed extra views of a dystrophic (sp) calcification. Hated the sound of that - but they believe it is from surgery and rads and the pesky seroma still lingering in there. Breast surgeon says it may get better but I will always feel the scar tissue. Every time I see her, there is a student of some sort -- I am a good training patient as this seroma " feels like a tumor would" -- how reassuring
. They assure me they can see around it on Mri and mammo.
My onc retires in June
. He is my hero. He plans to continue to be involved with patient care conferences -- says the new guys know the new stuff, but when that doesn't work they need the old guys to tell them what used to work. He also plans to write a book on the things that patients taught him that helped him be a better physician. He is truly wonderful and I was so blessed to have him care for me . i will miss him. He told me he that even though he will still be involved with the clinic, he won't be allowed to access my medical record. I plan to send him a note every year on my birthday -- in that he is much the reason I will be celebrating birthdays. I asked him if I could ask my new onc for his assistance if ever I need it - to which he said absolutely. One more appointament with him in June --- I will try not to be a weepy mess.
I am feeling great, Bought myself a membership to WeightWatchers and am 25 lbs lighter as a result. Am eating good food and exercising regularly. Am ramping up for the Relay for Life in June... of course I will be carrying you all with me again.
Have been supporting three friends through breast cancer. Paying it forward for all who helped me. It has been very healing for me.
Well Jewels.... good to see all of us getting on and living life! Take Care!
-
Kt, so good to hear from you. I'd love to read that book when it's published. I still mourn my PS leaving, so hard when our docs move on. You said it so well, seems like yesterday, and like a bad dream
-
Hello everyone. Well, in good ol Michigan we jumped from rainy, cold weather to 80 degrees. I finally felt limber enough to move around in my yard and actually raked a bit. We also have a stray dog hanging around. A sweet female who recently had puppies. I hope it is not another drop off. It's been years since dogs have come our way; we usually have cats, kittens, pregnant cats who have kittens dropped off at our house. I don't understand why people think it is okay to drop off cats or dogs at some rural area and figure they'll be able to fend for themselves! That irks me! At any rate, my dog-well actually dd's
- had quite a hey day with asserting her authority, don't ya know! After a bit, the two get along just fine and I guess if no one claims her, I'll take her in! The thing is, I am sure someone is missing her. She is well behaved dog and so sweet. She sat when told and then stayed there! (quite unlike the other one!)
I will take a photo of her, print up a flyer or two, and post them- while taking care of her. I'd hate to take her away from her home , if that is indeed the case.
Saw the PA last week for the 4 month check up. I have a mri on the 22nd---yikes- trying not to worry!
-
Jess- woo hoo! on the weight loss. 25 pounds? Thats great. I am proud of my meesly 5.
-
Just saw a link DS sent to DH about dying from cancer and reflecting on life. There has been a few of those lately. Just breaks my heart that my cancer has made him think of life and priorities and dying in a way that young men his age don't usually have to think of or face.
-
Kmmd - Try to think of it differnently. How much fuller would each of our lives be if we really understood and accepted our mortality. This may be a gift that makes every day of his life richer than it would have been if he had remained blinded to the reality that every life ends in death.
-
That is a better way of thinking of it Renrel, once the initial upset faded I can see that side of it easier
-
Hello everyone. I know what you mean, KMMD, about the sobering reality of death. I have some students who are so immersed in the idea of death and those who can't help but struggle with life. I am always completely stunned when a young student of mine is so depressed he/she can't see her way. I know it isn't what you referred to about your son and the realization he has been affected by your fight, but I think his reflection is actually a good thing. Like Renrel said, embrace the existence of your mortality. I don't think I am really good at that. Great conversation!!!!!
-
Hi all!! Am on spring break finally and while I read these boards every day I'm usually just too tired to post. Kmmd--I know what you mean. My poor youngest child became so aware of death at age 13 when my husband had a stroke, and then again at 14 with my bc. Maybe some day she'll be able to reflect on this and accept life as a gift (which I try to get her to believe) but more often she thinks "why bother," and I'm definately keeping an eye on her. Our getting sick hit her more than older relatives dying. I don't get that deep sick feeling in my stomach as often now that I'm 2.5 years out from diagnosis--but sometimes it does hit me that I could die of this at some point. More immediately, there was another drive-by at our school at 8:15 am, after I had just got to my classroom. Two cars shooting at each other. One car hit multiple parents' cars who were dropping off children, and no one was hit but the kids heard and saw it. Scary and I'm mad our students have to live with that.
-
Anyone else "frisked"? I flew to LA for a few days this week. Usually I just walk through the scan door frame, but this time they pointed me to the "x-ray" machine. I couldn't hold my hands over my head properly but could put them up with my good arm holding my bad arm up. Of course I had my silicone form in (can't find my fiberfill), and the lady patted me down. She was very respectful and asked if it was ok. I said sure, but I have a fake boob in--she looked at me sadly and just barely felt up there. I was so nervous that I would be picked out to go through the x-ray, but then it didn't bother me at all. I guess that's a result of being "felt up" so many times and I think I've learned to detach myself from my body. I got through tsa quicker than the other lines.
-
BerekleyKim, very sad to hear about the drive by, must have been terrible for the kids to see and hear. I've avoiding flying as much as possible with the LE, but, so far haven't had too much trouble.
-
Kim--Horrible for those children, sad you have to work under those conditions. People don't know the half of what our children and teachers go through day in and day out.
-
Jess, Couldn't agree with you more. I think people remember their school days and how they saw things as a kid and think they know what teachers go through, but they don't. If they did our educators would get more of the pay and respect they deserve.
-
kmmd - I can't imagine having to worry about guns being shot near mean day in and day out. That stress must being having an affect on those kids and on you teachers. Wonder if anyone is doing a study?
I few to FL in February and told myself I would go for a pat down instead of walk through the newer x-ray thingys because after all the different MRIs and X rays and chemo I just did not want more stuff with unknown future effect around my body. But then I chickened out at the line. Not afraid of the pat down but did not want to draw attention to myself. Silly, but that what I let my choice be based on.
Hope everyone has had a happy Passover and/or joyful Easter. We had a lovely seder in our home and DS and I attended another at my sisters home. My parents then took DS and 2 of the cousins to there home for a few days so that we and my my sister did not have to pay for vacation care programs and the cousins could spend some time together. I just picked DS up a few hours ago. He and DH are downstair now improving on a model car DS engineered out of paper products my mom had for them to play with.
My parent will have their 50th anniversary this summer. They are leaving on a cruise in a couple of weeks to celebrate early. DH and I hit 10 years this summer as well. We want to do something a little special but have not decided what.
-
Renrel, I'm not in education, just really don't think our educators are appreciated. You know, I felt the same way. Avoid flying as much as possible because of the hassle and my LE, and really didn't want more radiation either. I chickened out too, easier to just go along with it and not have to explain anything. As it turned out at that moment of decision I really hated the thought of explanations hassle and attention more than I hated the radiation.
Sounds like you had a wonderful weekend, always love hearing how DS is doing. Congratulations to your parents and to you and your husband on your anniversaries. I've always thought I got wonderfully lucky with DH, but, have to say one of the small blessings from BC has been that I really appreciate our anniversay more. BC was not always easy on our marriage, tamoxifen those first several months really wasn't, but, he has been wonderful and anniversaries are more special now.
-
Renrel--your post just got me to thinking that dh and I will make 25 years 6-15. My son turns 24 on 6-16, and I remember trying to eat the wonderful wedding cake we saved and it just didn't taste right. I was in labor but didn't realize it--just had stabbing back pains. Everyone else loved it!! Anyhow, for years our anniversary consisted of getting ready for DS's birthday. I think we need to do something special this year!!
My daughter is graduating college on 6-12, so we might be busy getting her moved back home, and I'm finishing up the semester. We'll see! I'm just SO HAPPY to be planning my daughter's college graduation!! I really wasnt' sure I'd be here for it. Now I don't want to tempt bad luck, but I'm pretty sure I'll be there!!!
On a very sad note...my co-teacher called me yesterday to tell me she has ovarian cancer. Found out while visiting family out of state for spring break. Sister wouldn't let her go home until they found out why her abdomen continued to grow and her pain. I can't believe it. I'm in shock like I was when I was diagnosed. She is staying with her family and hopes to have surgery there but has Kaiser here--I can't believe they kept telling her her symptoms were due to "flu side effects" and last fall to indigestion. I hope it's just a bad dream I'll wake up from. She's just 40 and it's so unfair--I hope maybe the CT scann was wrong and it's just cysts but an onc read the films. Please send prayers or good thoughts to Ana.
-
Berkleykim - So sorry about your friend. I will send good thoughts her way. I know OC is a tough one but remember people survive even bad cancers. My peditrian, from my own childhood, had OC and got better. They atributed it to g-d as they had a rabbi come to there house and check their mazusas (the thing jews adhear to their door post to remember g-d) and were told they were not proper. They fixed them, she got better, and the whole family moved to Isreal. This was at least 20 year ago. Now I Face Book with their daughter whose youngest is about the age of my son. My Peditrician passed this year but his wife is still around. You are right though, 40 is way to young.
-
Oh, I forgot to say congrads on the up coming 25th. My parent's spent their 25th year putting together a party for my grandparent's 50th. So this 50th is particularly special for them.
-
Renrel--thanks for the positive story!! Really needed it after visitng dr. google. After draining 7 lbs of fluid of her abdomen the pathologist will try to find cells to determine whether it's ovc or colon ca, since markers are high for both.
And thanks for the early congrats. Do you have any party plans for your folks? 50 yrs is pretty amazing!!
-
My mom is thinking of a big family dinner. I suggested we do something more but she knows money is tight for me and one sister and time and energy even tighter. Still, I would like to do something. She and my aunt threw my grandparents a big party for their 50th, but since I live out of state it would be hard for me to do something like that, even if I was any good at organizing.
And I re-read my post - it was the doc's wife who had the caner not the doc.
-
Hello everyone. MRI--came back clear! Then I am on to May 28 with the onc.......Always something!
-
Yay Jess!
-
Great news, Jess! I have mine in June and I see the onc tomorrow.
Finally found a used copy of the "Anti-Cancer" book. I know we've talked about this before. Most people rave about this book, but as I read it I feel worse and worse--like my choices caused my cancer. I'm trying to exercise more and eat better, but sometimes I just want a sweet roll and instead of enjoying it I feel guilty over it. I was going to give the book to my co-teacher, but I'm not sure she's in the mindspace for it quite yet. She came in to see the kids on Friday (could barely walk) and just cried. We made a lovely book for her with letters and water color/crayon drawings from each kiddo.
-
BerkleyKim - I am so sorry the book had made you feel that way. I personally found it very positive. A feeling of control through doable things. But I can see how it could effect you in the way you discribe. I don't tend to blame myself for my cancer since I think we can only be who were are at any moment and any choices I made earlier in my life were the best ones i could have made that that time. If they led to cancer, well then that was a road I need to travel for some reason and I am not going to over think it. But, I do get you totally on feelin guilty about choices I made today based on the knowledge I now have. I do more thing that are good for me but I still do things I think are bad for me and worry that if my cancer comes back I will have myself to blame since I still indulge in way too much sugar, not enough veggies, store things in plastic, don't excercise enough, dont; get enough sleep, ect. But I try to think of it as a process and a journey. Each time I do "the right thing" I am taking a step in the right direction and making it easier to the right thing next time. And being aware "the wrong choices" and feeling a little guilty now and then should help me stay on the "right " path. But I do not beat myself up over these things.
-
Renrel: Words of wisdom for sure! Thanks!! I'll think of it as a process and not necessarily as a solution.
I want to get to the place where I can be more accepting, perhaps "zen", about the choices I make, but I think what got me is that he points out that we need to de-stress, and then I stress about not always making good choices. I need to read the book more carefully--I'm doing lots of what he advocates--exercising, mushroom supplements, tumeric, some vegies but not enough (does carrot juice count?).
-
See? Thats a great list of things you are doing right! I really found his whole explaination of the inflamation thing really helpful in understanding why sugar and stress and fats, ect are bad for us and why meditation and vegitables, ect are important to fight the inflamation. I also signed up for e-mails from Real Age which I find very helpful. Twice a week they send an e-mail with three links about something simple to do for your health. I try to guess from the title what food or excerice tip they are going to tell me about. I love finding out about the power of spices and herbs and how just drinking a glass of water before a meal can help you lose weight, and how this vegtable will keep my brain young and that one my heart. It is wonderful that there are so many different things we can do right. I wish I had time to drink more hot liquids as I want the benefits of coffee, and green tea, and Matte.
-
Good advice, Renrel. I appreciate your take on the book.
In two weeks I have a appt with onc.....nervous! I had an ultrasound done on my thyroid- no news on that yet. I should hear by Monday.
Have a great Saturday! Very beautiful today in good ol Michigan.
-
Jess--I know what you mean about nerves! I saw my onc last week. My BP was high!! Of course, just driving by the cancer center gives me the jitters. Good luck with your appt. Are your thyroid levels off?
I mentioned the anti-cancer book to my onc, and it seemed like she never heard of it (??!!). She said it wouldn't hurt to try some cucurmin (sp?), cut out or down white grains (wheat, rice), and lose weight. She said I should try to lose 15 lbs. Very direct! If I followed my dh's diet I'd do great--he is being tested for kidney problems due to type II diabetes. It's scary.
Happy weekend. I sure need a rest. My co-teacher had her surgery yesterday for ovarian ca and will be in ICU for at least 2 days.
-
Jess, keep us posted
BerkleyKim, my thoughts are with you and your co-teacher. 15 lbs is hard, I'm slowly getting the Tamoxifen weight off, but, it is hard.
Renrel, I've tried very hard to find a more positive attitude and find the good in BC like you're encouraging us to do. Have to tell you, I found one today. I still have balance problems from the neuropathy. DH and I love to go for walks in the evening and the weather here is finally nice enough to do so. Crossing roads looking for traffic, up and down curbs etc puts the neuropathy to the test. Realized tonight we've gotten into a habit. When we cross those roads I hold on to his hand and he helps me across. Such a sweet thing to me. Just like he's stood by me through all this BC and associated grief, he now quietly gives me a hand when I need it so we can keep moving and doing something we love. Clutches my heart every time I reach over and his hand is already there. That is precious to me. I wouldn't have thought so a year ago, but, you're right, with time, and effort, and working on it, I am finding positives in this journey.
-
greetings all
celebrated my two year anniversary of treatment completion on Friday with a visit to the onc... had an mri-- no results, but I am hopefully not expecting any surprises.
Talked with her about all the regular things-- going off lupron (have to wait), brain fuzziess (common) sporadic pain in my hip (likely something NOT related to cancer), etc. I kind of ran out of things to talk about. My vitals were great- the tech said "you are incredibly healthy" to which I responded' yup, except for that pesky bout of breast cancer".....
I have a bone density test next week-- last year, there was loss because of the lupron and femara--but I was still in the normal range-- according to onc, there will be some more loss, but I had enough going in that it might still be in the normal range this year--let's hope....
So, assuming that the MRI is clear, I am free and clear for the next 6 months..... yay!
Book I am recommending "Emperor of All Maladies: A Biography of Cancer" it is excellent!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team