April 2011 chemo

I am on facebook....msg. to add me if you'd like,

Kg.

Well, I am a very happy girl today - had a slice of pizza and it tasted almost like usual - a little off, but it made me feel more "normal" (whatever that is!).  Then I was actually able to start warping my loom!  Hooray!

 Thoughts and prayers to all on this journey!

artiecat --  I was brave and made nachos tonight and they were so good! I haven't taken the anti-nausea for two days now. I don't care for the one that melts in your mouth, I think it leaves a horrible after taste. I have had a sore throat for two days. We have a cold going around my house right now. I'm pretty much walking around with Lysol and keeping in my room.

Kg -- I'm not ready to shave til I have my correct color wig. I haven't felt the tingle scalp like they say you are supposed to get prior to hour hair starting to fall out.

Well we are moving next week to a bigger house. My 23 year old son has moved back home so he can finish college. He will be such a big help for me! DH informed me I wasn't going to move anything...hey I'm kind of liking this pampering!

Have a wonderful Easter everyone!

Day 5 for me and I had a little energy break through this morning. I was attempting to work out which was a bit challenging. I thought about quiting and then I got really pissed and yelled " You are not going to steal my vim!" Just yelling must have released something because I was instantly determined to finish the work out and did and now I feel so much better. It made me think. I can either come out the other side of this weak, or I can use the next 12 weeks to go on an exercise and nutrition plan that will leave me stronger in the end. I choose health. I am going to not only beat this nasty little bastard called Cancer, but I am going to use this experience to improve my self and my life.

Hi DeeBee

I am off them so far today and today is day 5. I am a better safe than sorry type so if you think you need them, stay on them. No point in letting yourself get sick.

I am using Biotien mouth wash as a preventative. So far so good.

I'm new to this topic as I wasn't sure till last week when my chemo was starting. I'm having the port placed tomorow 4/25 and my first round of AC on Thurs the 28th. This looks like the place for me because all you brave girls are ahead of me and can give me guidance. I read the first posts and that's where I'm at, kinda scared, and kinda of dreading it but also kinda of excited to get this going and move on to the next phase. I'm doing chemo first, then bi mx, then radiation. I'm not sure about reconstruction at this point. 

Hi Ladies,  I am on day 12, and everytime I brush my hair, there is more coming out.  Other than my steroid acne, I feel really good. 

geocachelinda:  i had my blow up yesterday with hubby and oldest son.  Later I was able to calmly tell them why i was upset, and hubby said he had heard that mood swings went along with this.  I think we are all on edge, and guess what ,  WE HAVE CANCER!  they seem to forget, or not realize how hard this is.  Hang in there, 

Scc,  you are braver than me,  I have an appt tues. to cut mine shorter, but wonder how much will have come out before I get there.  I may be loosing my hair while in Florida next week!  That will be something ,  leave home with hair, and come back bald.  I have never traveled with a wig before.  we have been making jokes about going thru security and being asked to remove hat with my velcro hair attached.  LOL  trying to laugh instead of cry.  Right now , I agree with you about loosing the hair being harder than loosing the boobs. 

Hope everyone has a wonderful afternoon!

Trail2 -- I had my hair cut shorter first.  I actually did that on day 3!  I wanted to minimize the "blow."  Day 14 is when I started noticing lots of hair coming out in the shower.  Today is day 16, and a TON came out in the shower.  Since we live in an RV, I didn't want to clog the drains, so I decided "it was time."  Really didn't want to do it on Easter and seriously contemplated doing the Easter egg/bald head thing, but alas, I'll just wear a bandana for now.  I'm wondering about the flying thing, too.  Heading to Texas in a couple of weeks for some quality time with my sister -- need it badly.  Between the wig, the fake boobs, and the compression arm sleeve, I'm sure I can set off some kind of "alarms" or at least turn some heads.  Should make for an interesting day.  I'll probably just go flat chested, with a bandana, and the arm sleeve -- skip the foobs and the wig.  Let me know what you decide to do and how it works out. 

I couldn't love you women more right now.  Hubby and I had an argument this morning too.  I think we all needed to blow off a little steam.  Our dearest friends were visiting, and my friend was watching my son and her kids, and it gave DH and I the time to get some stuff off our chests.  A little time alone without either of our parents here and with someone to watch our son--we needed a little honest communication, to express that we're both scared and irritated, and to admit that we've both been short with each other lately.  Talk about a GOOD friend--the kind you can let know you're fighting with your hubby in the other room.  LOL!

I'm not one to cry much.  I just grit my teeth and get through it and work hard, but sometimes that means I can be bitchy.  Granted, I've got plenty to be "irritable" about lately!  LOL!  Anyway, it's nice to hear I'm not alone.  Happy Easter, friends.

Oh, and DeeBee asked about the mouthwash.  I don't know the "formula," for the baking soda, but I have tried Biotine a couple of times and it's very soothing.  

G'nite! 

My dr says swish buttermilk and swallow it. Ok so I did and the mouth sores were gone the next day but it was so gross!!!!

I'll have to remember the buttermilk if I get the sores.

Question:  I had the neupogen shots for 3 days.(sat, sun, mon)...then the side effects were so bad, we stopped the shot.  So now I'm waiting till tuesday (which will be my day 12) to see where my blood counts are.  How do I know if they are dropping? (I guess I won't know) 

Will I have noticeable side effects over tomorrow and tuesday?

Kg.

Windlass,

I also feel you loss. I had long red hair, not as long as yours, and had it cut very short last week to get ready and give me time to have fun with this new style. You won't believe the positive comments you'll get when people see you with the new hair cut. I also was able to give my hair to Locks for Love. Made me feel very happy.