My Fellow Deletees and The Cyberbullied Sisters
Comments
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Oh Jancie, I never thought of that! I was partial to the 'see a cure' eye avatar I had, which was borrowed from a dear sistah who passed away October a year ago, but in light of it potentially causing confusion I've changed back to my original avatar!
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Angel - what a beautiful picture of you! I love it!
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Thank you so much, Jancie! PreBC times .. ahhh, to go back and be ignorant! But to still have made some of the best friends one could ever know ..
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Angel~welcome back!!
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and in technical problems.. if you click on an active topics thread from the forum index, you only get the first post. to view the thread you must visit the hosting forum. Once in a forum, the whole thread appears when clicking on an recent topic.
maybe this has been mentioned.
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But the good news is--I've remained logged on for over 24 hours now. Usually I have to log back in every time I leave my computer for more than an hour or so!
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Blah/Angel - I am so happy to see that you feel free to go back to your name, avatar, etc... What happened to you was well before my time and I have to connect a lot of the dots in my own head, but I am so, so happy that you are fighting back by being yourself and not letting whoever tried to keep you down from winning.
I just came back from seeing The Last Lions. It brought tears to my eyes to see that this lioness, forced to flee, alone, to an island with her cubs, had learned to do the unimaginable - hunt buffalo by herself, because she had no choice. She eventually emerged as a the leader of a pride that had once shunned her.
It just shows that if we try hard enough, old, nasty habits of intimidation can be turned around and we can restore our dignitiy despite what others may try to do to take it away from us.
I'm making another donation to this BCO moderation fund in honor of Blah becoming Angel again. Whoever wants to join in....
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Sharon, thank you hon

Athena, I'm truly honored and know that you get it. You literally brought tears to my eyes and now, I must see that movie! I fight for all of us who deserve so much better. Thank you so much .. I'm beyond touched.
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I was diagnosed with stage 4 cancer 3 years ago. It's in my bone, lung, and brain. Strange how everything changes. I have apologized and I have forgiven. After much research this is one of the ways to make peace with yourself. I am sad a good part of the time now yet I can still come here and talk to sisters I know will understand how I am feeling. and thats special.
I no longer sign chemosabi - stage 4 changed everything in my life. Palaminorides again is a remimder that if you are knocked down get up and try again. I am glad I stopped by here tonight. It was nice seeing all of you.
Nicki
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This is in today's newspaper.Münchausen by internet: the sick world of the internet fakers
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Sheila .. interesting article. The general consensus is those that lie on the internet about medical conditions are seeking attention. Since there is no monetary gain (unless people send them money), for the most part they are starving for attention and will lie and create other personas to get that attention.
What was interesting was that most times these people are found out. They either go to far or can't cover their tracks.
Bren
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Interesting article. What I noticed is that many of the "fakers" were on more general websites, so they were less likely to be found out. If you are pretending to go through chemo, it is a whole lot easier to fool someone who has never known anyone who went through chemo than it is to fool a community of sisters who have gone through it themselves, or who are currently going through it. On a site like this, someone can pull off a ruse for awhile, but they tend to get tripped up pretty quickly.
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Good article, Sheila. From it:
~ Psychiatrists say the lengths to which people like Wilson are prepared to go mean their behaviour is pathological, a disorder rather than simply an act of spite. The irony is these people might actually be classed as ill - just not in the way they claim to be. ~
~ "It's hard to say how common it is because the disorder is based in deceit. We're only detecting cases where the ruses have failed, which is probably a minority." Still, he hears of a new case every three weeks or so, and believes the phenomenon is becoming more widespread. "With the explosion of net-based support groups and special-interest groups, increasing numbers of people have realised these forums can be abused." ~
~ Whether feigning illness online or in the real world, fakers are often profoundly disappointed when they're told they may be ill after all. Many appear to prefer the stigma of being labelled cruel to that of being a psychiatric patient. According to Kanaan, this could be a false distinction. "There's confusion about where the line lies between being a bad person and being ill. Someone who's doing this, I'm afraid, could be both." ~
Unfortunately, I feel that there are probably more than we think who haven't been found out on this site. It wouldn't be too hard to follow what others write about and incorporate it into your own story. It's very sad. You want to take people at face value, but this kind of thing leaves one weary. I tend to believe people first, but have learned some hard lessons here. -
Angel said, "Unfortunately, I feel that there are probably more than we think who haven't been found out on this site. It wouldn't be too hard to follow what others write about and incorporate it into your own story. It's very sad. You want to take people at face value, but this kind of thing leaves one weary. I tend to believe people first, but have learned some hard lessons here. "
DITTO. It's sad but true, and a good reminder to not believe everything (or everyone) you read on the internet, and especially true here.
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I have to admit that I have been suspect of a few posters. If medical facts are wrong and/or the person tends to be an excessive poster always looking for validation...I just stay away from them.
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I agree with Angel .. it was interesting that the article noted the people who engage in this behavior are pathological. I imagine that pathology does show up somewhere else in their every day lives.
Bren
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I was here in 2005 after being diagnosed with Stage IIIB, had lumpectomy, had mast., TAC, radiation, Tram recon, and was on tamox for 5 years. Now, I am back because I have mets to my liver, and somewhere in my belly area which is pushing on one of my kidneys. I "found" this thread and cannot believe how things have changed. I am especially concerned about people pretending to be sick to get what? Attention?
My reason for posting here is that I don't want anyone to think that I am one of those people. I have changed my "diagnosis tag" several times because I couldn't remember my original diagnosis. Yes, six years from og diagnosis and I am still using the chemo brain excuse. The sad fact is that we have to be on alert for people who are here for...? I don't even know how to describe someone claiming to be sick with this BS disease for attention.
These boards helped get me thru the worst time of my life and I hate to think anyone is taking advantage of it. I have always referred people to this site because of the information, the community, the caring people who will talk you thru any questions, concerns, or anxieties that you may have. I admit I have not been here for a long time because I wanted to be free from cancer, to not think about it, but now I am a Stage IV and I need this community. I hate the idea that people are here for reasons other then what these boards are about. Maybe I should scan my recent biopsy report, or my original pathology report from 2005.
I am concerned for people that are really here for the first time seeking help and how they are received. I guess its a crap shot whether or not someone is believable with their diagnosis and that is really sad.
Guess I need to go to the rules because I am not sure about this five posts in 24 hours. Is that until I have 50 posts? I can't remember my original login information and since I signed up again with my old user name I assume I was deleted for inactivity.
So, anyway, this is post number one. -
oh Badboobee .. Please don't worry about proving anything to anyone. You haven't been accused of being fake, have you? In spite of pathological people who take advantage of vulnerable, caring communities, I know there are many, many more good people than cruel people on this site. I'm sooo very sorry you are now Stage IV and had to come back here. I wish you all the best. I do believe the 5 post rule has been changed now and you can post all you like!
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very interesting article, sheila, and right on point, in this thread.. its' a question a few of us have had here, and it makes you pay stricter attention, i think... 3jays
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When I worked in a hospital, there were Munchausen patients who would be admitted and tested for chest or abdominal pain or similar and their records showed they continually moved around the country to fool different doctors. It was not an option to ignore them in case they were genuinely ill this time.
On the other hand there were people saying they were in pain and the nurses would stand around whispering that there was nothing wrong with them and they were "making a fuss about nothing". Then they would end up rushing for emergency surgery and sometimes near death. That was before CT's and MRI's so it was hard to diagnose some things.
So It's best always to treat people as if they are genuine but ask pertinent questions in a nice way to see if they have the expected knowledge. Gaining friendship on FB can also reveal oddities, such as playing games when they are supposedly in a coma as stated in the article.
There was someone new on BCO recently who raised my suspicion as she would leave cries for help then not return to acknowledge the replies. She claimed to be a health care worker but didn't know her full diagnosis and said things that didn't tie in with her supposed occupation. She has since calmed down and doesn't seem to be exaggerating her situation so I guess she probably has less technical medical knowledge, or perhaps just in a specialised area.
BC affects people from all of society, from the poorest backgrounds to the highest ranks, and they all need our support. It's a shame to have to suspect some are not genuine but I doubt it will happen too often.
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i agree, sheila.. there was a thread where people would try to figure out "who was a troll, or not" i just could not get behind ANY of us trying to judge anyone else.. and, then, the real situation of what happened to Angel here, just goes to show you, it DOES happen... 3jays
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the problem is, you can't tell. I know I had people thinking I was a troll initially but the irony is that at the same time there was someone that was faking bc, was on the chat regularly and fooled everyone for more than a year. Eventually people realized I wasn't faking (if things can go wrong, they've gone wrong...) It's why I would encourage everyone to go do any of the meetups listed on the boards. Once you've met someone face to face, you have a definitely different rapport and you know they're real.
hugs to all.
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I met you face to face sweetie♥
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Badyboobe: I think I know you from 2005 and I am sorry you are now stage 4. I haven't been here for a very long time. Just wanted to say hugs to you and miss talking to you on the chat.
Nicki/Cheomsabil
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thanks deb. yeah, was hard being thought a troll the first week. Little did you all know..... Stuck with me now. LOL
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I am in your boat.

Principly because:
A. My breast cancer "experience" is much different from many posters.
B. I have done a great deal of research about microsurgical breast reconstruction because I am career Army and the exact degree and duration of disability associated with different reconstruction options is a serious issue... so, when I question widely accepted generalizations about procedures, people respond based on what their "gut" tells them (pun intended!)
...or what one particular doctor / group of doctors' commercials say. I disagree...so, therefore, I must be a troll. And, I generally feel cyber-bullied when other posters gang up on me.Tammy Lou...not a troll.

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Ladies,
I am personally greatful for debate. Disagreement leads to exploration which leads to better treatment. Any wonderful scientist or researcher will tell you that questioning an assertion leads to the creation of a new hypothesis which later leads to exploration. In my opinion, the rigid thinking and ignorance of others ignites their need to bully you very strong convicted women. I admire you for your truthfulness and conviction! You all rock!
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Palaminoridesagain... Aka Nicki, it's been a wild ride right? I had almost six years before my Stage IV diagnosis. I am so sorry to hear you are back in this boat too. I remember and have seen several people still on these boards from before. Hugs to you!
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palamino ridesagain... chemasabi.. you were here when i got here, and we always helpful.. i am sorry for the new dx. i personally know women here who do well stage IV; AND it still SUX . hope everything will work out on your next chapter here, with us. 3jays
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Thanks 3jays. I do believe the new medications are working. All one can do is go with the flow and enjoy each day as it is
Nicki
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