FEMARA

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  • dkerler
    dkerler Member Posts: 75
    edited April 2011

    Another SE of Femara is Meibomianitis which is a fancy name for clogged tear ducts that become infected. I looked this up and a cause was hormonal changes. Warm compresses and lubricating drops for 4 weeks should take care of this but if not antibiotics will be prescribed. My major symptom was waking up with a red eye. I just thought I would pass on this information to other Femara users.

  • Monty
    Monty Member Posts: 197
    edited April 2011

    Wow, thank you for that dkerler, I have been wondering why I keep waking up with what I thought was "pink eye" so often but without the gritty irritation, now I realize perhaps it is not.  My tear ducts do look kind of swollen/blocked when this happens.  I have been using antibiotic polysporin eye drops to treat it and they seem to work well, but just when it seems to have cleared up back it is again.  These boards are a wonderful source of information and sharing!

  • dkerler
    dkerler Member Posts: 75
    edited April 2011

    I'm glad I could help. It's the least I can do after all the information I've gotten from these boards. It took me three trips to the eye doctor before we figured it out.

  • nanna
    nanna Member Posts: 174
    edited April 2011

    Does anyone know when femara going generic i heard last of march then also last of may?

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited April 2011

    I already checked, and was told no, no generic yet, just in India............not sure if that is right, but that is what I was told......you can buy it online from India, but I'm not willing to take that chance......

    Ok, now my gripe............clogged tear ducts..........what the hell else can happen from tis friggin drug...........I am suppose to start this shit after i finish Rads, but the more I read the more I think..........the hell with it...........I am so fed up with the whole BC thing..........My surgery went well, my pathology was very good, margins ok too, but they still want to do Rads, even though I was told I can go without because of a small margin 1.2 in one area and that is very tiny. 2mm everywhere else.  .............I'm not being ungrateful, and I'm happy with what result I got so far, but this bullshi-, of dealing with the SE of the Al,s is getting to me...............5 years of that crap, what about quality of life...............I've had it.......................Yell

  • cd1234
    cd1234 Member Posts: 169
    edited April 2011

    Hi Duckyb1,

    I felt the same way, but Femara has been fine for me. I have been on it 4 months, and sometimes I feel stiff in the morning, but only when I first get out of bed. When I first started Femara, I told my onc. that I did not want to take it and feel like crap. She understood, and said it was my decision. She asked me to give it a try for 6 months and then make my decsion based on my own body not what I read. I agreed, and so far so good. We are all different, and I know lots of people have terrible side effects, but lots don't too.

    Good luck with your decision and take care!

    -Crystal

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited April 2011

    cdean1971.thanks for our input......I'm sure I'm gonna do it, just not happy about it, but maybe I will be one of the lucky ones who have few SE.

  • Monty
    Monty Member Posts: 197
    edited April 2011

    Woke up this morning and my right bottom cheek and upper leg feel weird, kinda cold and numb.  I can walk fine but the sensation is definitely not normal, feels like when you have been kneeling down for too long and your legs go dead.  Anyone else experience this?

  • ronqt1
    ronqt1 Member Posts: 811
    edited April 2011

    Answering the question regarding help with payment of Femara. Went through the same situation. I exhausted the Femara coupon. I then called Novartis and was denied by their program because of income exceeding a certain amount. However, they did refer me to another company which I now pay $30.00 as a co-pay. My premium for insurance is $492. and cost of Femara as a co-pay is $261.00 and my pharmacy bills do not go towards deductible.  Call Novartis and they will refer you to at least 3 corporations who might be able to help you.

    Wishing you much health and luck.

  • nanna
    nanna Member Posts: 174
    edited April 2011

    Have you thought about changing to arimedex. It is generic now. I am going change in july when i finish femara >I can get for $10.00 a month. If femara is not generic by then my onc said it is suppose to go generic at the end of may.  Just something to consider.

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited April 2011

    Gaynort............Don't know how old you are, but be careful what your feeling is something else and not related to Femara, although I hear the SE can be nasty.............Just make sure it isn't a mini-stroke.......don't want to scare you , but just giving you a heads up.

  • Cisatypo
    Cisatypo Member Posts: 23
    edited April 2011

    AFter a yeaer, no major or bothersome SE's from Femara; love it and plan to stay on it as long as my body cooperates. Note that they seem to be finding that some women may have a genetic trait that predisposes to arthritis when taking AI's so that may be why it hits some so much harder than others....Good luck to everybody.

  • KittyDog
    KittyDog Member Posts: 1,079
    edited April 2011

    Ciastypo

    Thanks for that info.  I had arthritis before BC.

    Grrr.  5 months on Femara and my knuckles have started hurting.  My right hand has trigger finger bad in the middle finger and the left middle finger is starting.  Both knees still kill when I stand up or I have to bend them.  The right is the worse it even hurts if I am sitting up with outstretched legs on the couch.  

     I don't go back to the Dr. until June.  I will keep on taking it and saying ouch a lot.  

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited April 2011
    Yuk, gonna go on this crap after Rads which start Monday, and I already have bone loss (ostopenia), and some arthritis......................but Tamox is not good either since I have had phlebitis, and a mild heart attack........Thank ;you estrogenYell
  • x-raygirl
    x-raygirl Member Posts: 373
    edited April 2011

    GRRRR.... I started mine a week ago.  I think it's the "axe approach", but hey, I NEVER want to go through this again!!!!

  • raincitygirl
    raincitygirl Member Posts: 3,143
    edited April 2011

    I read today that Femara will be available in US as a generic beginnning in mid-June....by Mylan...

  • Lories
    Lories Member Posts: 351
    edited April 2011

    I've been on F'in Femara for 2years-argggggg, body ACHES are the worst! I am only 55, not 95, bit i feel it!

    And weight gain. I start tamoxifen tonight, hoping for less SEs.

  • weety
    weety Member Posts: 1,163
    edited April 2011

    Does tamoxifen tend to have the weight gain, too?

  • Teal3Pink1
    Teal3Pink1 Member Posts: 109
    edited April 2011

    Finished rads yesterday and took my first femara this morning. So far so good. Wink Hope to go the distance with minimal side effects, but 5 years feels like such a long time. Sigh.

  • gingerstx
    gingerstx Member Posts: 91
    edited April 2011

    Good luck with it!  I'll be joining you in May.

  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited April 2011

    Teal3Pink1-if you have trouble fairly quickly - especially with fatigue-change to taking it at night--I switched after taking it for 2.5 months in the AM & was having to go home @ lunch & nap, etc.  Switched to bedtime & I am soooooooooooo much better-have been taking since Nov '09.

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited April 2011

    I start on this crap right after Rads, and I really don't want to take it, but have to be careful what I take since I had a heart attack..............I really don't want to do this, but I'm not sure if not doing it will hurt me, after going through all this shit I went through.........The last thing I need is more aches and pains, with Ostopenia I have my share now.....they did a dexa scan this morning.  I guess that is to see if they can make my bones more like swiss cheese with this shi--ing hormone........oh well.

  • Faithroad
    Faithroad Member Posts: 432
    edited April 2011

    I developed a rash from, I think, Anastrozole.  I'm off it for two weeks to see if the rash goes away.  If it does go away, then she wants me to start Femara.  I'm hoping I won't get all the SEs I've been reading about.  Glad to read that a few people have tolerated it well.  I'm kind of afraid to start something new.  I took Tamoxifan for a few months, I just had to take a Clariton with it, because it gave me watery eyes and runny nose, like I had a bad cold. ha!  I didn't mind because the Clariton really helped.  But the doc said I should try something else.

    My big concern is anxziety.  I already take meds for that and have things balanced.  I don't want to  rock that boat; It's hard to get steady again.  I noticed some anxiety with Anastrozole, so I hope Femara isn't as bad.

  • nanna
    nanna Member Posts: 174
    edited May 2011

    yeah! femara is generic i get 3 months for $10.00

  • gingerstx
    gingerstx Member Posts: 91
    edited May 2011
    Nanna:  That's great news!  Where did you find/get the generic?  I thought it wasn't coming out until next month. 
  • KristyAnn
    KristyAnn Member Posts: 793
    edited May 2011

    I picked up a refill last week and generic was available- CVS in Tyler, Texas

  • KittyDog
    KittyDog Member Posts: 1,079
    edited May 2011

    I am thinking it must be available here too because when I handed her my prescription today, she said wait a minute so I can make sure we still have the brand name.  I guess they make more money off the name brand  with that coupon from Femara because my generic copay is the same and my prescription said it was okay.

  • Teal3Pink1
    Teal3Pink1 Member Posts: 109
    edited May 2011

    It's been a week and so far so good. Was pretty tired over the weekend, but not sure if it's the Femara, still recovering from rads, or waking up at 4 am for the wedding on Friday! Wink

  • Texas357
    Texas357 Member Posts: 1,552
    edited May 2011

    Oh joy. I've read of women having rotator cuff injuries due to Femara,and I think I joined them. I haven't done a darn bit of upper body exercise since last Thursday evening, and this morning I woke up with tremendous shoulder pain that I strongly suspect is rotator cuff.

  • joan888
    joan888 Member Posts: 810
    edited May 2011

    My mail order pharmacy just sent me my next 90-day refill for Femara and it is now generic.  They still charged me $80 for the 90 day supply.  The $10 deal with the Femara coupon is still the better deal.

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