For Older People with Sense

Isabella, you may want to wear the plum jacket in the event of food fights!  lol

Lynda - so glad DH is doing better.  I know that makes things a little easier for you too.

Marybe - where are you and what has the MDA dr. said?  Missing you my friend. 

Oh Isabella, I am so sad about the little dog....I hope she goes peacefully.   The wedding sounds like so much fun...I am pictures dancing around, drinking wine out of leather pouches (what are those things.  Botas?) and a big fire.  Wear the purple.

Thank you for all your kind thoughts and hugs and prayers, Ladies.  I really don't know why I even went to see the onco again....Oh there has been some confusion and I don't know if it was the way I posted or what, but I did not go back to MDA.  I did go there several years ago and the onco I saw if just a super guy and always answers my emails right away and I have been asking his opinions on chemos and had my reports sent to him as I usually do, BUT I was not going back to see him..When I asked him if Xeloda would work on both my bone and liver mets, he said Absolutely.   It was my onco I went back to see today, with a list of questions and also info on both halaven and xeloda from the message boards.  He really did not listen too much to the good reports I had on Xeloda, but did say he feels sure that it is one of the ones I will be doing at sometime or other, just feels that havalen is the way to go now so that is what we are doing. I did at least get him to put off the starting date to a week from Wed. instead of starting next Wed.  I said what if, and it's pretty unlikely since this has never happened to me so far, but what if I really do have nausea and am puking, what am I supposed to do since they say not to bend from the waist down after my cataract surgery and he said well, I guess you would have a real problem there.  I asked is a week going to make that much difference and he said no, so we set the starting date up as May 4, for my lst treatment, and then I will get it again on the 11th and be off the next week and then it will follow the same pattern. two weeks in a row and then off.  I asked when we will find out if it's working and he said we will be able to tell after 6 weeks and I asked how and he says with the tumor markers, if they go down it's working!!!  With my tumor markers....the same markers we have watched go up up up to 2,177 and he is saying the entire time they aren't that accurate, don't worry about them!   I just don't get it.  Oh and when I asked about waiting he said as long as you don't wait too long because the cancer is not going to wait.  Doctors!!  Don't ya just love them.  I asked Tim what he thought and he said well, he made sense with what he said and he seems to know his chemo treatments.  If he was surprised to see me back so soon, he didn't show it.  I said you asked me if my husband knows what is going on so I brought him with me so he will. He did say today that he is not sure I will get fatigue and bad side effects and that he knows I like to work and that it is probably good for me, but he said he just thinks I should maybe look further into the disability since it is time for me to start looking out for me and not the job so much.  His wife is a hygienist, but she doesn't work.....then again I am sure she doesn't need to.  And I don't really need to, I just want to.  So we shall see and hopefully it will work and I won't feel too bad.  Another good thing about waiting til the 4th, for sure I will have hair for the wedding I am going to on the 7th.  One woman on the Haloven thread said she was totally bald in 8 days....Wow.  I didn't even start losing any hair on abraxane until 29 days.  Anyway, I am getting a haircut next Tues evening before some of the gals and I go to see a play at the local playhouse so I guess that will be my last haircut for awhile. 

Thanks for the offer AmyJo, but I think since my cancer is systemic the rad seeds to the liver would not work for me.

Thanks again to all of you for your warm support....I am really lucky to have so many friends....wish the ones around here would quit calling, but I know it is just because they want to know what is going on.  The dentist I work for and his staff got me a really nice card and I found it stuck in my purse when I was looking for my keys when I left the onco's office.  He wrote they love me even if I do have memory issues...I NEVER leave the office without forgetting my cell phone or keys or something. 

Well, Tomorrow I have to be at the hospital at 5 AM so I am turning in early.  Good Night All.  

Thinking of you Marybe

wow!!!ive had a bad today, and up most of last night, so just getting on now..

   First. Chrissy, im so sorry about Marrike's having to do surgery over!!! i hope they can round drs up; but, at least her pain will be controlled. sorry your Easter is not going to be as planned... will you go back out? i know its' selfish, but i sure do miss you, girl!! sending the best Easter wishes to all your beloved family..

    that goes for all of you, as well. Marybe, i will have you esp in my prayers tommorrow for your surgery. i have heard good things about halaven. don't make any decisions about work, till your'e on your way thru the chemo. i know it saves your mind, having work to go to; but; we gotta get those tumor markers down!!concentrate on feeling better, my friend...

  all the others, cyborg, lynda.. your in my thoughts and prayer. glad your DH is cath free, Lynda. thats' a gigsntic pain, had to do it for awhile, and hated every minute!!!

    yeas, Stanzie, no reflexes!!but, i have travelling patellas from the MS.. since he's confused as to what stage i am, he's in denial of that, also. enough that he didn't even want to look at my knees, till he does his tests..

     one question he had was if my thyroid isn't causing some of the havoc im experiencing, so, i'll know that when the blood results come in; or, in 6 weeks. when you start with a new dr., ya just don't know how they work.. i know most of my neuros' were very "distant" and ive not liked them. the one i did, no longer takes my ins. and i can't afford them w/out it, thats' for real!!!

   Isabella, there's quite a stir here for the royal wedding, so i've recently learned what a fascinator is.. let us know how it all works out. i agree, the purple will be the most colorful; ans it seems that would be suiting for a gypsy wedding.. they are a strange group of ple; but, fascinating...and loyal, if they like you!!!

    im in a funk the last week or so. added to my neoepinephine, hoping to pick up my energy, and mood. all ive accomplished is making the hot flashes worse!!!hahaha

      anyway, Mur was a dear: brought enough flowers we thought a funeral was here!!! cut flowers, and 2 rose bushes, the climbing tyoe, which i love... and a very new calladium, the colors ive never seen.

    we did nothing for our anniversary, ate cereal at 10 pm; both of us are worn out. im sure, if we find somewhere we want to go to, we will this wkend...

     yesterday, technically, bc of the time, was Maunday thursday; and its; a day of fasting and prayer for me, so it was odd, since our anniversary fell then, also.

   today being good friday, we haven't made our minds up what we're doing, either... his being Jewish, me being christian makes for strange times this time of the year.

      i had hoped for an invite to spend Easter with my son and GKids, but it doesn't look like it'll be forthcoming. i don't know why i even look for it, as ive only spent one year with them... years ago, when Fish was born.. he's a strange little fellow, my oldest Jay...

     we are gooing to see my jay #2 in rehab; sat.. so i will be bringing meat lasagna; his request, with some garlic rolls. so, on sunday, we'll chill out.

    tonight, at the church i go to most reg.; they had a combination sedar; communion, and i chose NOT to go... they messed about so much with the sedar part of it last year; i felt it was an insult to my husbands beliefs. it didn't upset him, but it did me. so i chose not to participate this year...

    so, everything continues to be in flux for me, my one thought is to bathe all you wonderful ladies in the Easter love, to remember WHY there is n Easter!!!

   you really do replace the dissappointment of my own family, for me. thanks for that!      3jays

Isabella, so sorry your yorkie is fading. Hugs. I know you will have a great time at the wedding. I can't wait to hear all about it.

Isabella, so sorry about the little dog.  That was the most difficult loss of my life when mine died.  Marybe, so glad your nurse found a vein!  That's one of my biggest issues as I used to be an IV nurse.  I'm sure the nurses hate to see me coming because I always tell them what to do.

Okay, here's the funny story of the day:  went to PS yesterday (the one who's name is unofficially Mr. Spock).  I asked him about lifting restrictions.  He asked me what I wanted to lift and I told him my dog, 15 lbs.  Then he asked me with a perfectly straight face why I would want to lift my dog!!!  The first answer that came out was "Because he's my baby!!"  He looked at me like I was an absolute nut case.  Does this guy need help or what!   He looks to me like a man who badly needs a dog!  Don't have to see him now for 6 weeks; whew...

Superficial news alert:  I got 2 mastectomy bras and now have 2 bras that are actually comfortable.  Boy BC women reallly know how to design bras.  Next week going to PT for my aching back...

DH is happy again and playing outdoors.  He took the lawnmower apart--always a good sign.

Oh my gosh this turned out huge--this is a princess Irene tulip.  Finally in bloom!  Happy Easter.

Dragon, what a lovely tulip. I have made a note of its name, and will look out for it this autumn when buying bulbs. My tulips are JUST at their peak this week, next week will see them start to drop I am sure. I haven't got very many yellow ones, I mainly have reds and pinks. Come autumn and I will never remember what colour I need to buy !!

Kathy, a fascinator is a smallish 'headpiece' for want of a better description. just a bit of net, a few feathers, or a flower, all stitched onto a haircomb or an alice band. I asked my gypsy friend, Elvis, if any of the ladies would be wearing hats. Silly question for a man really !! He had no idea at all, so I am only making a small fascinator so I won't stand out if no-one else is wearing anything on their heads.

Alyson. I've also got some hot cross buns. I love them, but they'll vanish as soon as the G/children arrive. Sorry about your G/son. Hope the problem will resolve . I know its not the same, but sometimes I get a puppy with a small hole in its heart, and by about 8/9 months it will have closed up on its own. Other than that how's he doing, and has there been any jealousy problems with Bea?  The oldest of my G/sons is called Benjamin...and he ALWAYS gets Bee. He has it embroidered on his works Tshirts and overalls. No-one has ever called him his full name at all. I don't like the name, never have. Even DD says she wished she hadn't called him it all those years ago...he is 22. I love the name Bee. I try and pick out birthday cards with a bee on, and if I can't find one I draw one on the card.

Isabella.

dragon>>>a beautiful tulip to us for Easter!!!thanks.....Alyson, i hope GS heart will heal on its on, as they mostly do.. will say prayers ...Isabella, what color is the fascintor?? did ya make a georgeous fushia one to match the skirt? i think it would do nicely!!!      Lots of Ruckus here again. i shouldv'e known ... went to lunch with DIL and the munchkins, but we she decided to dredge up each and every holiday; and of course, this past christmas was such a mess!!! threats were made on both our sides. i don't know how it will sort itself out. we were "UN" invited for Easter, don't you know her family will be here, unexpectedly, and Murs at his parents... so, the dear kids (dogs) and i will be watching tv that day... im poed, but will have to get over it. not exactly the Norman Rockwell /easter i might dream of {{{sigh}}} it is what it is. am not sure where i'll be going with this, but a move has to be made my me , to stick up for myself, or i will go mad!!!!

   im making meat lasagna to bring to Jay #2 in rehab tonight, so don't know if i'll be back tonight.. ptobably, though... later   3jays

chrissy, you just keep going on, dontcha, girl. of course your daughter wants you with her, and vice versa. im glad you've worked it out, so you can go, and bring Easter to her!!!i am so sorry to here about your FIL. you will all be in my prayers...

    Mazy, the first year is the hardest, believe you me, i know... but i bet yours will be great! next year, start some of your own traditions to go along with hers!!!  

                    wishing you all wonderful Easter, and Pesach!     3jays