I missed my breasts the othe night

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I had a bilateral mastectomy with snb 1/11/11 with no reconstruction. Very rarely do I miss my breasts but every once in awhile I do. The other night I was laying in bed with my partner and missing the sexual aspect of breasts. Much of my sexual gratification has centered around my breasts.I told him that I was missing them and he said he misses them too but doesn't fret about it. (He was not being rude or fillpant about it, I happened to have brought it up when he was about to fall asleep.)Then I felt more down cuz he misses them too.I have such bad post mastectomy pain syndrome going on that we really haven't had much of a chance to fool around with any part of my upper body and the two little fatty false breasts that were left after surgery (I don't really know what else to call them.) I really don't need any advice or the "it will pass it in time." I just wanted to have a place to talk about it and maybe hear from other women that have gone thru the same thing or are going thru it. Thanks.

Comments

  • BoobsinaBox
    BoobsinaBox Member Posts: 550
    edited April 2011

    mycinnamon,

    I had a bilat, no recon in 2006, and sometimes I miss my breasts, but the first 6 months were the worst for all the crying, and the first 2 years were harder than the next 3.  Lots of us are going/have gone through it.  You are not alone, and I'm glad we all have "here" to share this stuff with those who get it.

    Dawn 

  • sespebadger
    sespebadger Member Posts: 249
    edited April 2011

    Just a note to say that it's been nine months since my BMX no recon. I went to a big party today and saw lots of old friends I haven't seen much of due to all the treatment last year (chemo, surgeries, rads). I realize that I didn't once think about having no breasts while I was there. I started a new job and had a number of meetings this last week. Same story: I never thought about it. I wear microbead forms and forget about them. My husband and I have a great intimate life.

    I can't know what you will experience, but I do wish you all the best.

  • hopeful34
    hopeful34 Member Posts: 1,569
    edited April 2011

    mycinnamon- I totally feel you.  I had a BMX last May and had TE's placed and should have had breasts by now.  I got an infection and had to have the TE removed.  A year later and I just had my TE put back in.  I didn't realize I would have absolutely no sensation.  My breasts were a big part of my sex life as well.  And, to top things off my husband is a total boob man.  I know that might be TMI, but he is and while he tells me it is okay, I know it is not.  He has said once to me that he misses my breasts, and until I heard him say it, I was okay.  BUT....once those words came out of his mouth, I cried for days.  I know it has to be hard on our spouses, but I am only 35, and want to feel like a woman again.  Again, this may be TMI, but I used to get on top and now, I refuse.  I feel like there is nothing there to occupy him, and I am really uncomfortable.  I even had a dream the other night that I had no breasts, but I still had nipples, and I was so happy that I had them.  How silly is that.  Sorry for rambling, but you have every right to feel how you do and it is common.....or at least for me it seems like it.  If you need to talk, you can PM me anytime.  Take Care.

  • sgreenarch
    sgreenarch Member Posts: 528
    edited April 2011

    I know how you feel and am comforted that i am not alone in this thought. I had a unimx in july and didnt do immed recon. At the time i was overwhelmed with the dx and treatment decisions and couldnt handle sorting out reconstruction choices also. I dont regret this decision and am now grateful that i can consider all options in an orderly way. However, i didnt anticipate the depth of loss i would feel after this mx. All i could think of in july was ripping off the dreaded cancer. Now the full meaning of the loss is sinking in. I mourn my breast when i wake up, when i get dressed, when i make love. I never realized how much a part of me they were. It has nothing to do with self acceptance; i am just sad that this had to happen. I hope time will heal. If and when i opt for recon i think that could help a bit but it still wont be my original, sensate breast. All i can send you is best wishes for a full recovery (which is more important than our missing breasts) and the knowlege that you are in good company, not alone.













  • seagan
    seagan Member Posts: 166
    edited April 2011

    You are definitely not alone!  I had a bmx with no reconstruction in mid-February of this year, and I've just recently entered into a phase (I hope it's a phase!) of really missing my breasts.  It comes and goes, but when it's there it's a definite sadness and just missing how they felt.  I'm most aware of it when I get into bed at night, and roll over on my side.  I miss feeling their softness and fullness (as small as they were!).  And like you, I miss them during sex and feel very self-conscious then about their being gone, but that's gradually getting better.

    It's interesting how and when these waves of feeling come (and go).  I felt incredible grief and sadness leading up my surgery, almost overwhelming at times.  Then I was very focused on the physical challenge of healing up and accepting my new body.  With that more settled now, it's like my heart is able to speak up again about what is gone, what has been lost.  Thankfully it's usually a gentle kind of sadness, like grief for someone who died a long time ago but whom you still miss, but it's still sad. I'm hopeful that if I let those feelings flow, they will leave gifts of wisdom in their wake.  Grief so often does that.

    In the meantime, know that you have sisters out here going through this with you, and lean into that support.  We're here for you.

  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited April 2011

    Sgreen, you have just written my same story.  My cancer was very aggressive and I had a mastectomy 12 days after diagnosis.  The last thing I said to the surgeon was when he opened me up if the tumor wasn't as bad as he thought to PLEASE change the plan and do a lumpectomy.  I was so devastated by the diagnosis I couldn't even begin to focus on reconstruction.  I finished chemo 4 weeks ago today and am finally looking at reconstruction options.  Since I didn't have a TE placed at the time of my surgery I am worried that it is too late for reconstruction.  The more I believe that reconstruction is not possible, the more I miss my breasts.

    I have lived with only one breast for almost seven months.  It has had a huge impact on my sex life which, in turn, has had an impact on my whole relationship with my husband.  I totally understand what you are saying and the longing for your breasts and the feeling of being whole again.

    I hope you find peace in your journey and that one day soon you will love your body again.

    Susan

  • sgreenarch
    sgreenarch Member Posts: 528
    edited April 2011

    Dear Susan, thanks for your kind response. I feel very alone sometimes thinking that no one can understand what the loss of a breast feels like. I am comforted that there is a safe place here to share these feelings.



    One thing i do know, though, susan, is that it is not too late for you to do reconstruction. I didnt have a TE put in yet either; you can start the process now. In fact in some ways its better as the skin is largely healed. Many women dont do immediate recon. My husband is a plastic surgeon and he supported my choice to wait. I am at the beginning of my recon journey. Hop along and we can research together.



    I hear you re the intimacy issue. My husband is cool but i am self conscious. The problem is more mine than his. My feelings are so confusing. I feel sad yet relieved, but havent been able to acheive self acceptance, physically. I wish i could.



    Thanks again, shari

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