Does anyone like wearing a prosthetic bra?

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  • brendaclee3
    brendaclee3 Member Posts: 119
    edited April 2011

    Faithroad, I agree.  I hated the prosthesis.  They were hot, heavy, and were always slipping around.  The bras that hold them are large, heavy, and fake looking.  When I had my mastectomy (right side) in the early 90's, I didn't have any information about reconstruction, so I just got an expander and then had an implant.  It looked horrible.  I had three more surgeries on that breast over the next five years and now, almost 12 years later, that side is half the size of the other.  My self-esteem bottomed out.  I wish I hadn't spent so many painful hours, not to mention the money, having those surgeries.  I have opted now to have the DIEP procedure.  On May 25th, I will have a mastectomy on the other breast and DIEP on both sides.  That way, no more fake bras or hard, unsymmetrical breasts.  I'm having my surgery in South Carolina with Drs. Klein, Craigie, and Baron.  Their practice is called The Center for Natural Breast Reconstruction. 

  • beacon800
    beacon800 Member Posts: 922
    edited April 2011

    Sure thing Erica, here you go:  two bras I really like are

    1.  Hanes Beyond Bare Invisible Seamless wirefree style BTT8 (available at Target for $14.99, though the exact same bra is also at Macy's as a Warner's bra for double the price!).  This is a very, very soft microfiber style fabric.

    2.  Also like the Vanity Fair Body Caress Full Coverage Wire Free (style 72335), which I got at Macy's (full price is $32, but they had it on sale).  This is a lot like the Amoena Lara Mastectomy Bra but a bit more comfortable with softer straps.  The coverage on this bra is a bit more than the Hanes bra above.

    For making the pockets I use a stretch fabric called "powermesh" which you can buy in fabric stores.  It is often in the swimsuit or dancewear section.  This is very silky stretch mesh fabric, kinda like panty hose fabric but it will not run.  It is very strong stuff.

  • BoobsinaBox
    BoobsinaBox Member Posts: 550
    edited April 2011

    Thanks, Beacon800!  I really appreciate the bra and pocket info.

    Dawn 

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited April 2011

    Thanks from me, too, Beacon800. It's always helpful to learn what works for different women.

    Barbara

  • Faithroad
    Faithroad Member Posts: 432
    edited April 2011

    Erica, Beacon800, Celtic_Spirit, and EVERYONE!

    Thank you!  Thank you!  Thank you!

  • LiveFreeinNH
    LiveFreeinNH Member Posts: 40
    edited April 2011

    anneflorida and Erica -Thanks for the help with this . I am making an appointment with a fitter next week. This is one of the things I need to check out as a part of my informed decision process. There is so much to this . You ladies have been so helpful. I went to see the breast care nurse in my surgeons office and she was not encouraging about my not wanting recon. I was surprised at her attitude. She said something about not waking up without a breast...pretty funny if you think about it.

    Thanks to you gals who have been around the block and stick around to help newbies. We sure need it. I am still in shock at times

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited April 2011

    LiveFree,

    This attitude of the nurse is something I would love to change. She's either projecting her own feelings onto you or she's assuming that you will feel the way that some other women feel. I know that some women are genuinely terrified about waking up without a breast, yet others of us (like me) really don't feel that way about it. I didn't feel as if I would be less than "whole" without a breast and I certainly didn't feel that having an internal prosthesis (implant or flap) would make me feel better than having an external one (breast form) or going flat. I seriously considered reconstruction but when I decided against it, fortunately for me my medical team supported my decision. In the years since I started BreastFree, I have heard again and again from women who had to fight their medical team to convince them they didn't want reconstruction. It shouldn't be that way. Women should be advised of all their options and encouraged to make the choice that feels right for them. 

     

  • CarylC
    CarylC Member Posts: 230
    edited April 2011

    Erica,

    I totally agree.  I told my BS upfront that I would NOT be having reconstruction and that if I ever did, it would be some kind of flap procedure, I would never do implants.  When she did my bi-mx, the right side needed a modified radical, so it is nice and tight and actually looks quite good but she left the left side with lots of skin.  When I told her I didn't like it, that it was ugly she said she left it for the PS as it would be easier for him to reconstruct that way.  This BS pushed hard for immediate reconstruction with implants, turns out I needed chemo and rads which would not have been good had I listened to her!

    I'm 51 years old and I know my own mind.  I felt very much disrespected by her. 

  • River_Rat
    River_Rat Member Posts: 1,724
    edited April 2012

    CarylC, I had much the same experience as you.  My BS kept pushing me to have reconstruction, even though I had told her that I didn't want it and continued to push even after my BMX, telling me that when I decided to do it she would send me to a really good PS.

    I told her that I didn't want to hear about reconstruction anymore, once again I told her that I had explored my options and felt that not having reconstruction fit me best and that if she had to keep bringing it up I would have to find another doctor.  She did finally drop it.  It shouldn't have to get to that point.  Doctors should be more accepting of the patient's wishes.

  • Faithroad
    Faithroad Member Posts: 432
    edited April 2011

    I saw my new PS this afternoon.  She is not board certified yet, but she is an awesome listener.  She has done deconstruction before so I'm going to trust her.  She thinks she can get my insurance company to pay to have the implants removed.  I'm praying and believing it will work out that way.  She says it won't be pretty, when she takes the implants out, but I think I will be so glad to be free from having foreign objects in me.  Back to being just me in my own skin.  Pretty or not pretty.  She said it sounds like I've put a lot of thought into it, which I have.  I think prosthetic bras will work just fine.  I've gotten a lot of information at this site. 

    Thanks everyone. 

  • TokyoSing
    TokyoSing Member Posts: 140
    edited April 2011

    Faithroad, I have been travelling and have not been online much.  You have been on my mind.  I hope and pray that this works out for you.  I have not regretted my mastectomy without recon.  I too wear my prosthesis everyday, even when it is 100 degrees in Tokyo!

  • Faithroad
    Faithroad Member Posts: 432
    edited April 2011

    Thank you TokyoSing,
    Thank you for your encouragement!  It means a lot.

    BTW, I love your name!!!! 

    I'm hoping I won't regret this decision. But I don't think I will.  I'm not expecting much esthetically...but maybe I'll be surprised.  I'm starting a diet/lifestyle change, in hopes of looking better when I'm flat.  Hopefully I'll be less chubby.  It will take a month or so to get insurance approval and make plans for the surgery.  I already am feeling relieved knowing I'll be free.

  • possom60
    possom60 Member Posts: 7
    edited April 2011

    Because of my age and size, I dont bother too much about wearing my prosthesis, I am only 45kg and 61years of age. Although I do wear them when I go to a function but not for everyday use. Probably because I dont wear them very much I dont like them, but then again when I have them on it doesn't bother me except in the heat. I have just found this site and wished I had have found it four years ago when I was diagnosed. Best wishes to everyone.

  • River_Rat
    River_Rat Member Posts: 1,724
    edited April 2011

    didlydi, you sound very similar to me.  I wear them for dress up occasions but otherwise have gotten used to not wearing them most of the time, which has been easy over the winter.  They're comfortable enough when I wear them and I've found comfortable bras but going flat is just really comfortable.  I've recently bought some tops that I think will be cool and yet concealing for the hot summer weather and I've found scarves to be very useful.

    I wish that you had found this site when you were diagnosed, but I'm glad that you've found it now. I didn't start participating here until over 4 years after my diagnosis. 

  • LiveFreeinNH
    LiveFreeinNH Member Posts: 40
    edited May 2011

    My last appointment before my final decision was Friday with a prothsetic fitter. She was so kind. Itold my family last weekend I needed to be alone. DH even took off by himself on Saturday Then on Sunday we went for a ride after church. He was very quiet giving me time to "contemplate.

    Made the call to schedule (mastectomy) surgery. The sweet girl that does the scheduling said she would try for the 18th. She did't say anything like"Are you sure you don't want recon..we can get you in for it?" That would have blown me away. I am so on the edge. I could have kissed her.

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited May 2011

    LiveFree,

    I've been where you are (well almost--in my case I actually scheduled reconstruction surgery, then cancelled and went forward with just the mastectomy). Just remember, delayed reconstruction is always an option, so you aren't making an irrevocable decision. But it's worth noting that, like reconstruction, non-reconstruction is a process. So, it may take a while until you figure out what works best for you in terms of bras, breast forms, or going flat, and whether or not you want to stay breast-free.

    Please let us know how things go.

    Barbara

  • LiveFreeinNH
    LiveFreeinNH Member Posts: 40
    edited May 2011

    Thank you Erica, I am so glad to have your input.  I am scheduled, now for June 1. I am dreading it. I don't know how I will feel losing a breast. I just pray that God will help me through it.

    I think I will be comfortable with a prosthetic, if not, you are right, I can always go for reconstruction later. It is good to know it is not a dead end choice. 

  • Faithroad
    Faithroad Member Posts: 432
    edited May 2011

    didlydi, welcome!  I wish I had found this site much earlier too.  It would have made a big difference in my decision making.  Hope you find lots of encouragement and help here.  We're all in this together. 

    River_Rat, I can't wait until I get my implants removed and can go bra-free if I want to.  I can't take these implants off when they are hot and heavy.  I like your quote "Fear is the highest fence/"

    Livefree, all the best to you during your surgery and recovery.  I know God will be with you in it, before, during, and after. He will never leave your side.  I will be thinking of you and praying as well.  June 1 is around the time I'm hoping to have my imptants taken out.  I think it's wise to wait before reconstruction, because that's what I wish I had done last Oct..  I'm glad they didn't pressure you either way.  I'm already getting pressure to leave my inplants in.  My new PS, Onc, and even fellow BS survivors at a meeting I attended. But, having foreign objects stufffed in my chest, is just not for me. I guess everyone is different, aye.

    Erica, Thanks for the reminder that there will be some adjustment time to going breast free.  I know I'll be eager to find something comfortable for work in the office.  But being a perfectionist, I'm sure I'll experiment!

    --Faithroad 

  • River_Rat
    River_Rat Member Posts: 1,724
    edited May 2011

    To those worried about the comfort of prosthetic bras - the prosthetic bras are as comfortable to me as regular bras were and there are many pretty ones too.  Going bra-less just wasn't an option for me before and I'm enjoying it now. (Scarves are my most important accessories)

    Faithroad and Livefree, I wish you all the best with your surgeries and the adjustment.

  • Kezzie62
    Kezzie62 Member Posts: 189
    edited May 2011

    I have found my bras to be just as comfortable as my old ones were, well maybe more comfortable as I have gone down 4 cup sizes.. I would love to be braless but I have a belly that makes me look 9 months pregnant if I dont wear my forms.  Have other had this problem of a belly looking very large? I have lost 9 lbs since my surgery (not including the 9lbs lost as a result of BMX) but I fear it is going to take years befor I will be able to wear nice tops when braless and not look pregnant..

    Kezzie

  • BoobsinaBox
    BoobsinaBox Member Posts: 550
    edited May 2011

    Kezzie62,

    I only looked about 5 months pregnant after my bilat.  It was the best, most persuasive thing to get me to the Y and exercising many days a week!  Good luck! I lost it, and I've kept it off.  Talk about incentive!

    Dawn 

  • LiveFreeinNH
    LiveFreeinNH Member Posts: 40
    edited May 2011

    I was wondering about the prosthetics...do the feel like they are going to fall when you bend over? I know they arent going to fall out but will it feel like they are or do they stay pretty close to the chest wall?  I do alot of bending and lifting and wonder how it will feel. Is there a lot of strength loss in the arm? How long of a recovery should I expect to get my full strength back?  (I am having  some lymph nodes removed) I think sometimes the BS see so much they are so used to it and say a couple weeks.

  • Kezzie62
    Kezzie62 Member Posts: 189
    edited May 2011

    I was able to return to work within 4 weeks, I could have gone back after 2 weeks but I was approved for 4 weeks by my short term disability insurance.  I was in very little pain and I had almost full range of motion  and strength when I returned to work.  I do not have any problem with my prosthetics falling forward they stay very close to my chest wall.  When I went for my first fitting the fitter made sure I had a well fitting bra before we even tried the different types of forms.  I have even wore a tank that is a bit low without having any issues with them falling too far forward.  I know there are forms that can be attached to the chest wall but I have not tried them.

    Kezzie

  • keno41
    keno41 Member Posts: 91
    edited May 2011

    I found this nice bra called "Coobie" where I place my microfiber boobs. They are very comfortable during the day, but as soon as I walk in from work I take them off. I wear tank tops and blouses and am very comfortable. I guess because I am 53 I don't care much about what people think>  Most of the time I don;t wear anything and am very happy.  Sometimes. I feel very sad  but most of the time I am glad for my decision!

  • Faithroad
    Faithroad Member Posts: 432
    edited May 2011

    Kezzie and BoobsinaBox,  Yes, I looked a bit pregnant after my BMX and reconstruction with very little saline in them.  I'm dieting and exercising now so I will hopefully be a little bit smaller when I have the implants taken out.  I have 15-20 lbs to lose.  The hysterectomy changed things too.

    Keno, I've never heard of Coobie.  I'll have to google them!  I too am 53 and would love to be able to take them off at the end of the day.  That's my plan. 

    Faithroad

  • River_Rat
    River_Rat Member Posts: 1,724
    edited May 2011

    There's an old thread here about the Coobie bra and others.  The thread is "New Bra."  I will bump it up for you.

  • nwest125
    nwest125 Member Posts: 240
    edited May 2011

    I got the coobie bras and wear them everyday , I only wear my prosthetics for church and special times, At home I just go flat much more comforable for me.

    Nancy

  • epgnyc
    epgnyc Member Posts: 101
    edited May 2011

    I had a double mastectomy in March, 2011 and waited 6 weeks to be fitted for the prostheses.  I went to a place that specializes in breast cancer patients and they spent two hours fitting me.  I have no problem at all with the mastectomy bras (I bought 4).  They're comfortable and I mostly forget I have them on.  Before surgery I was a 34-C and I decided to go down a size to a B.  It's great.  I also bought a 2nd set of prostheses for the summer.  These are lighter weight and hollow and won't be hot like the silicone ones can be in the warm weather.  Frankly I'm surprised that it has worked out so well.  I was not a candidate for implants because of prior breast cancer, skin problems and radiation 9 years ago.  The plastic surgeon I saw said I could later have the DIEP flap surgery, but frankly at over 12 hours, I'm not up for any more surgeries.  Once in a while I take a day off and go without anything, which is nice too.  But I'm very, very happy with my new breast forms and mastectomy bras.  Good luck.

  • LiveFreeinNH
    LiveFreeinNH Member Posts: 40
    edited May 2011

    Thanks , everyone. I am feeling more and more comfortable with my decision, but nervous about the surgery. I guess that is normal.I keep hugging my breast that I will lose(silly,huh?)

    I am still a little sketchy on what my insurance will cover. 

  • walker2222
    walker2222 Member Posts: 558
    edited May 2011

    I like every ones information here.  I had BMX w/recon a year ago today.  10 days after I had a massive infection and had to take my right (tumor side) TE out.  Tried again in November and another infection so put the big stop on the recon.  Still have the left TE in and I am working with my PS office to get a surgery date at the end of the month.  I have been looking into prosthesis and like the idea of using a regular bra with the forms.  I have a foam filled one for my right side and I have just been using sports bras the attach in the back with it but moves too much.  Making my own pocket should do the trick.  I bought a mastectomy bra at the specialty store I frequent but did not like it since it was an under-wire.  Hate those.  Looking forward to more info in the future.

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