Those with Large Lumps-What did they feel like?

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NJDevChick
NJDevChick Member Posts: 135
edited June 2014 in Stage III Breast Cancer

I am getting a large lump (feels 4.5-5 cm) removed on Wednesday to determine whether it is cancer or not.  although it moves around the breast some.., the actual bottom of the lump doesn't have a clearly defined border and I can't "lift" it like the other breast tissue, it feels attached to the muscle....I am clearly concerned about the size and whether it is cancer or not...if it was just fibrocystic tissue wouldn't it move more with the breast...it stays against my chest if I lay forward.

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  • bdavis
    bdavis Member Posts: 6,201
    edited April 2011

    What did your surgeon say?

  • bdavis
    bdavis Member Posts: 6,201
    edited April 2011

    I just read your other posts... They are probably doing an excisional biopsy... with a mass that large, it just shouldn't be in you cancer or not... if they think it is benign, then go with that until you know differently. I had an excisional biopsy 13 years ago and its better, in my opinion, than a needle biopsy.

    And once they remove it and do some preliminary tests, they may choose to do a SN biopsy if it is indeed cancer, but that is a separate incision.

    Just relax if you can and remember that most lumps are benign.

  • kqteaches
    kqteaches Member Posts: 29
    edited April 2011

    Hi NJ

    I had a 2cm lump towards the surface of the breast.  My first doctor told me we could needle biopsy then take it out anyways OR do an incisional biopsy right away and get it out.  Well to me it seemed like a no brainer, so I got the lumpectomy.  I thought it was the right choice until I found out it was cancer. I had a double mastectomy on March 23 and it all went well, but my surgeon (who I adore) was worried that the radioactive dye needed to determine the main lymph nodes would not travel well due to the first lumpectomy.  So ask your doctor if a lumpectomy would interfere with lymph node testing if you should need it.  I hope that makes sense.

  • bdavis
    bdavis Member Posts: 6,201
    edited April 2011

    Good point kqteaches...

  • NJDevChick
    NJDevChick Member Posts: 135
    edited April 2011

    Thanks kq...When I see the BS on Tuesday for the prelim. stuff I will add that to my list of questions.  

  • jennyboog
    jennyboog Member Posts: 1,322
    edited April 2011

    My largest lump was a 5mm by 7mm, it was at the 12 o'clock position right near my chest wall but wasn't attached.  Mine moved independently from the chest and felt hard, it could be seen with my shirt on.  I had a BMX b/c I had a second tumor and my entire breat was infected.  Hope the procedure goes well, let us know.

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited April 2011

    Mine was unmoveable and felt like a nut (very hard).

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited April 2011

    Mine was deep in my right breast and felt hard about the size of a marble.  I think bdavis is on the right track though with what your doc is going to do.  Didn't he mention a biopsy?

    Take care,

    Sharon

  • poptart
    poptart Member Posts: 101
    edited April 2011

    I had a large lump, had invasive grade 3 triple negative cancer, but I was not stage 3.  At my request, I had a biopsy immediately followed by a mastectomy.  I basically said, if there is cancer there, I want a mastectomy.  So everything was done in one procedure.  I think you should make sure they can check your lymph nodes in the event that you have cancer.  Maybe they could do a biopsy before moving forward with the lumpectomy so that they can check the sentinal nodes if they need to.  I am not sure what this is called, but I know that biopsies can be done right there (when you are in surgery).  Good luck.

  • NJDevChick
    NJDevChick Member Posts: 135
    edited April 2011

    The BS made it seem like they wouldn't have the results until the following Tuesday...but can't they get an idea based on what it looks like if it is cancer or not especially if it ends up being attached to the chest wall (a big fear of mine)  Thanks for all the advice...at 30 with 2 small boys 7 and almost 3 this is a scary time for me....I have had other chronic pains in my body which have me thinking too...

    pupfoster-so your mass felt on the outside a lot smaller than it actually was?  I see you had a 6+ cm mass which sounds similiar to what mine might end up being...only mine when laying back although deep,it is at the bottom 6 o'clock to about 9 o'clock and I don't have large breast so I can feel it easily.  

    BS felt it was probably fibrocystic changes, but I don't see how something that big can be fibrocystic. 

  • poptart
    poptart Member Posts: 101
    edited April 2011

    For me, they didn't have details of my diagnosis for a week (triple negative, etc) but they are able to do enough of a biopsy as part of my surgery to know that I had breast cancer.  I knew that I wanted a mastectomy if I had bc, and I didn't want a biopsy then another surgery.  I don't know why they couldn't do this in your case so they would know about checking the sentinel nodes.  What did your breast surgeon say about whether or not your mass is attached to the chest wall?  My surgeon told me he could tell my mass was not attached to the chest wall.  I had fibrocystic change and schlerosesing adenosis in my mass a long with lots of dcis, comedo necrosis, and then some high grade triple negative bc.  I had lumpiness way far back towards my armpit, though I had no cancer in my lymph nodes,  in front of the lumpiness pointing towards the nipple was a more cylindrical shaped mass.  My lump appeared quickly, though I was on 6 month mammos at the time.  If I was wearing a bra, the mass got pushed towards my nipple and made it stick out on the side.  Oddly enough, I didn't actually have any cancer down by my nipple.  The dcis ran all the way from the upper outer quadrant about 3/4 of the way down towards the nipple.  I tried not to feel it.  I know it is scary.  I had a 3 year old at diagnosis.  Terrifying.

  • NJDevChick
    NJDevChick Member Posts: 135
    edited April 2011

    So a mass can be large and not all be cancer I take it from your description?  He didn't say...don't think he could tell or not about it being attached.  It is when laying back against the very top of the ribs and runs diagnoal from around the 6 o'clock position to the 9 o'clock, almost where the breastbone is...I probably feel it WAY to often.  My son turns 3 next week on the 27th...I already told my husband that if I get bad news he needs to finish pulling Easter for both kids and his birthday together because I don't know if I will be in a very good frame of mind at all, plus we are having a birthday party for him on May 1st...ugh, I should be on the ball but have been so depressed.

  • bdavis
    bdavis Member Posts: 6,201
    edited April 2011

    NJDEVCHICK...

    Most, if not all, hospitals have the ability to send the mass up to pathology for a preliminary evaluation of the mass. If your hospital doesn't have this then I would consider going somewhere they do... Maybe your doctor wants to send you to a radiologist's office for a core needle biopsy and that does take a few days and they don't do SNB there... So I would start with asking what procedure you are getting.

    And your mass may be surrounded by other things, like fibroids, adenosis etc... because they take margins, so a path report might have multiple things listed if you have an excisional biopsy.

    I don't know your case enough to give an opinion accurately, but it sounds like you would benefit from an excisional biopsy with the option of having a SNB while on the table and a path report comes back... Did you say if you've had an MRI yet? That is very helpful for teh surgeon because if they know about one thing, there may be other things in there that could give them the full picture... in essence, if they see two or three areas of concern, then they could biopsy all and make a decision about lumpectomy/mastectomy etc...

    So, my suggestion is:

    *Get an MRI

    *Based on that result (if there is only one area of concern), have an excisional biopsy at a hospital where they can evaluate the tumor

    *Request SNB if they find cancer

    IF THE MRI shows other findings, have those areas biopsied using MRI imaging before any surgeries... that way if you have multiple issues, you have information to make an educated decision on treatment

    Just my opinion

  • MelG
    MelG Member Posts: 23
    edited April 2011

    Hi NJDEVCHICK,

    I had a 7.5cm lump removed.   It looked like a small hard-boiled egg sticking out of the top of my breast.  It was moveable, and my GP said it didn't look or feel like breast cancer.   Unfortunately, it was.   My GP's hesitation cost me three months as I felt reassured.

    However, I see you are only young.   As others have said, go with Benign until you know any different.   Most lumps are *not* breast cancer and fibrocystic changes are common in your age group. 

    Best wishes for benign results!   Hope all goes well for you on Wednesday.

    Mel

  • Bugs
    Bugs Member Posts: 1,719
    edited April 2011

    I suggest an MRI.  *IF* it turns out to be suspicious, then you will want to move forward with the biopsy.  This is  A BIG IF right now...please remember that!    However, most stage 3 ladies get neoadjuvent chemo these days (chemo before any surgery).  An MRI will help them determine whether that should be a plan or not.   Mel is right...over 80% of lumps are NOT cancer!!  

  • KerryMac
    KerryMac Member Posts: 3,529
    edited April 2011

    My BS could tell from my Mammo that it was cancer. She biopsied it for confirmation, but they can tell a lot from feel and from your mammo/US.

    I would be encouraged by the fact that they don't think it is cancer.

    A lot of hospitals have Breast Diagnostic centres now - Dx and treatment plan within 24 hours. Can you get referred to somewhere like that?? It does take some of the waiting stress away.

  • NJDevChick
    NJDevChick Member Posts: 135
    edited April 2011

    Thanks for all the advice.  The BS wants it out regardless...so for now I am going to go with that and then proceed from there.  Did you have any other symptoms other than a lump?  I have had a pins and needles and some pain feeling in the same shoulder that has been persistant for a month...it is the neck/shoulder/upper arm area...scares me so much. 

     No MRI...I think because he thinks it is benign that is why they are going with the removal right now...I am just so scared because like I said it blends in towards the back like it is in the chest wall...

  • jennyboog
    jennyboog Member Posts: 1,322
    edited April 2011

    Great advice from everyone...I forgot to mention, I was having sharp pains in that breast too.  It would come and go all through out the day so, I knew it was something going on even after I was told I was fine after my mammo.  Good luck.

  • NJDevChick
    NJDevChick Member Posts: 135
    edited April 2011

    jenny...I have a shooting pain that has come and gone for the past couple of months in the area of the lump...that is another thing that concerns me as well.

  • NJDevChick
    NJDevChick Member Posts: 135
    edited April 2011

    Also how to you even tell a lump is moveable or not?  or course you can move the tissue around it, so how do you know if it is moving or not...I can definitely tell it is not "lifting" when I lift the tissue around the breast though....

  • jennyboog
    jennyboog Member Posts: 1,322
    edited April 2011
    That's a hard one to describe Laughing....I can only tell you what mine felt like.  My BS told me it wasn't attached to my chest wall b/c she could move it, she said it would not move around as much if it was attached.  When I leaned over breast hanging I could push the tumor left & right, the tissue around moved with it, but with mine at the 12 o'clock position I could almost pick it up like a golf ball underneath the skin...if that makes senses.  The pains were unusual for me and started after I found the lump, that breast just had a heaviness about it.  Hugs and prayers going your way for Wed., we're here for you.
  • burley
    burley Member Posts: 631
    edited April 2011

    Mine moved, and felt like a baby carrot (about the same size.) 

    Good luck and hugs-Kim

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited April 2011

    Hi Again,

    In answer to your question, yes my tumor was a lot larger once they did surgery than originally thought.  After biopsy they were saying around 3cm, which at the time I thought sounded large.  Ended up being 6.5cm after mastectomy pathology.  Definitely NOT happy about that, but it is what it is, right? I had zero symptoms, and clear yearly mammograms before.  The classic large, dense breast thing they say is like finding a polar bear in a snowstorm.

    But PLEASE remember that each individual body is different and will present differently.  Try not to think too far ahead of yourself at this point.  We are all hoping that your surgery will come back benign.  Any idea of when that might take place yet?  

    Take care,

    Sharon

  • bdavis
    bdavis Member Posts: 6,201
    edited April 2011

    Mine was at 11;00 and felt like a small walnut... didn't move... and once I knew it was cancer it hurt sometimes, which of course made me think it was growing.

  • sagina
    sagina Member Posts: 1,219
    edited April 2011

    I could see my "lump" sticking out top of breast, but it wasn't my tumor as explained by the BS, he said it was more like the princess and the pea, it was tissue elevated around the tumor that I was feeling, hence the gyn thought it was a cyst....he was not feeling the tumor, it was sitting on my chest wall, I had chemo to shrink it and had time to think about my options.  The chemo shrunk my tumor to nothing, so a lumpectomy was possible.  But I agree with what has been said I think the radiologist knew exactly what he was looking at after my mammo and ultra sound.

  • NJDevChick
    NJDevChick Member Posts: 135
    edited April 2011

    I go in to get the dye injected today, but I am going to talk to him first and explain to him my concerns and the other pains I have been feeling....I think if I just had the lump and none of these other pains I wouldn't be "as" scared...but I feel like this is cancer and spreading in my body...

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited April 2011

    Awww hon,

    I am so with you.  I STILL am hypersensitive to every new ache and pain.  I think it's natural.  How do we know how to trust our bodies anymore? 

    I am still hoping and praying that yours will all be just fine, and you can leave this group once and for all (not that we mind having you here of course) Laughing

    (((Sharon)))

  • thenewme
    thenewme Member Posts: 1,611
    edited April 2011

    Hi NJDevChick,

    I'll be thinking of you today and sending good thoughts your way!   It sounds like you've been worried about this for a while, so it's good that you're moving forward - today is a big step! 

    We're all hoping for benign news for you!  Hugs!  Let us know how you're doing when you feel up to it!

  • jennyboog
    jennyboog Member Posts: 1,322
    edited April 2011

    We all have been aboard the worry train and I just knew my cancer was going to be through out my body before I started chemo so I know how you feel.  I hope you get some clear answers today and feel better.

  • NJDevChick
    NJDevChick Member Posts: 135
    edited April 2011

    Thanks all...dye is injected...told him my concerns about it being attached to the muscle...he said it feels moveable (he's been doing this for 35 yrs) and sometimes scar tissue can attach to muscle too and my "lesion" could be attached to that...he is leaning towards benign but he said that is why we are taking it out and doing a biopsy so we know exactly what we are dealing with.  He also said because of the size it is good to have it out and you could take samples of a large mass and miss spots that actually have cancer in them....he said regardless it is coming out completely...so that is reassuring.  I said do benign conditions end up cancer...he said yes but also cancerious masses turn out benign, that is why we do the biopsy...

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