Symptoms prior to diagnosis
Hi everyone, I was disagnosed on 14 March 2011 with IDC, 2.7cm, stage 3, grade 3, 5 positive nodes of 23 and LVI. I had a right radical mastectomy on 5 April 2011 and I am healing pretty well. I will probably not begin chemo for another week or so. My question to anyone who has experienced this or has knowledge of it is - prior to your diagnosis, did you experience all over bodily itching and hair loss? I experienced this for about four years prior to me finding the lump in my breast. The Drs could not pinpoint the reasons or consider cancer. Now, I'm wondering if the cancer was there all along. Just curious. I guess if it stops after treatment, then that's an indicator. Thanks!
Comments
-
I did NOT have any symptons and still don't... If I hadn't found the lump I never would have known I had cancer.
-
Marcya - Hugs to you... My stats are similar to yours... and I had no clue... nothing to give me any idea there was something bad buried in my right breast. Mammogram found it...
-
Ladies, thank you for your responses. It's just something that I have been speculating for a few years now, but because of my age (41) the Drs thought I was a hypochondriac of sorts. I kept telling them that I know my body and itching and hair loss was not something that is supposed to happen daily for years, but because they couldn't find any outstanding information in my bloodwork, they dismissed me. Until now. Although it doesn't change anything, I can't help but wonder if we could have caught this much sooner had they treated me and not my symptoms.
-
I felt absolutely fantastic when my lump was detected. No symptoms at all. That is why now, I can't take too much comfort in the fact that I am feeling really good again. The little voice inside my head says "Yeah, but you felt really good before...."
-
What kind of cancer did you have? Have you only had a lumpectomy and not a mastectomy?
-
All over itching and loss of hair sounds more like a liver issue and would have nothing to do with breast cancer! Ladies on here who have those symptoms have them due to treatments they are on. Totally no link at all.
-
Actually I have read that unexplained itching is sometimes a forewarning of cancer and my DH (an MD of the old school was taught that in med school). I had weird itchy skin for a few years prior to IDC early stage BC. I really thought I was allergic to something in toilet paper as that "area" itched like crazy. Stopped itching as soon as I began treatment for breast cancer and has not come back in spite of very dry skin sue to Arimidex and or Tamoixifen. Just saying......
-
I fell ill about three and a half years ago, lost half my hair, developed hypothyroidism, and suffered from extreme fatigue and horrible PMS symptoms. I traced it back (I believe) to heavy metal poisoning from a water dispenser -- GE brand, made in China. I took it apart and was horrified to find the hot water tank clogged with metal corrosion. I had been drinking two pots of tea a day made with that water.
I just had a blood test for copper and my levels are elevated. High copper is associated with breast cancer.
You may want to look into your metal levels, which could account for both hair loss and itching.
-
Purely anecdotal but...
Localized itching as a harbinger of breast cancer?
Journal of Family Practice, July, 2004 by Josette McMichael
12Next
A 34-year-old, previously healthy nurse whose mother and maternal aunt had breast cancer presented in January 2003 complaining of itching of her left areola and the area just lateral to it at the 3 o'clock position. The itching had begun 6 months ago, stopped, and recurred. She reported no other symptoms.
Examination yielded normal findings without skin changes, palpable masses, or lymphadenopathy. She was treated with hydrocortisone 1% cream and was asked to return in 2 to 3 weeks to discuss further evaluation if the itching had not resolved. At the time, she was working overseas as a humanitarian aid worker and unable to get a mammogram or other evaluation without leaving the country. She did not return for a follow-up visit, though the itching continued intermittently.
About 2 months later, the patient discovered on self-examination a mass in the left breast lateral to the areola at the 9 o'clock position. She was due to go home to the United States in 2 months and deferred evaluation. In the meantime the breast mass doubled in size. Upon returning home, she had a mammogram (negative finding) followed by ultrasound and a needle biopsy. Pathology examination revealed a 1.8-cm mass positive for ductal carcinoma with local micrometastasis. Results of node biopsies were negative. There was no evidence of Paget's disease.
Since her diagnosis, both her mother and sister have tested positive for the BRCA gene. The patient herself declined testing. Initially, the patient underwent lumpectomy followed by chemotherapy. After her lumpectomy, the itching resolved. After counseling concerning the BRCA gene and cancer risk, she elected to undergo bilateral mastectomies in October.
Could itching be a warning sign of possible cancer, especially in a patient at high risk? Pruritis has been well described as a presenting symptom of Paget's disease of the breast, malignant nevi, and of other cancers. (1-3) Itching may be localized to the area of cancer or more generalized. (2,3) Both itching and pain involve activation of a peripheral group of C nerve fibers, and itching can originate anywhere along the afferent neural path. I hypothesize that this patient's itching was caused by nerve fibers in the breast being affected by the growth of the breast mass.
Could itching be the presenting symptom of other types of breast cancer as well? Have you observed this phenomenon? If there is indeed a connection between such itching and breast cancer, would a more aggressive evaluation of unexplained itching lead to earlier diagnoses and decreased morbidity and mortality from cancer?
Let me know if you have also seen this in your practice.
-
I still can't get my wife to participate yet on this forum, so I'll reply for her and try to get everything right.
She started to have strange itching and swelling on her right arm in January of 2010. She talked to the Dr. who ran some tests and decided it was Lupis due to slight elevated numbers (can't remember the name of the test). She showed the Dr. a lump that was developing under her armpit, and was told it was a symptom of Lupis. She was on a treatment for Lupis for several months, until during a followup visit she was told that her levels were normal and they didn't think she had Lupis after all.
She was pleased to be told she didn't have Lupis, but still annoyed by the problems in her right arm. During a visit for a sinus infection early last December, the nurse looked at the lump and scheduled her for an immediate Ultrasound, and later needle biopsies on two lumps. Found out two days after Christmas that it was multifocal BC. This was a full year after her first visit for the itching and swelling. I'm extremely grateful to that nurse, but of course time was lost in getting this treated. She is currently undergoing Neoadjunct chemotherapy (TACx6), on her 5th treatment for stage IIIc, ER+/HER2- IDC.
-
I have Invasive Ductal Carcinoma. I only recevied a right mastectomy due to the microcalcifications.
-
I had no symptoms of cancer in my left breast at all...until I noticed blood on my bra and realized it came from my nipple. Thank God for that clue.
-
I had itching in my breast occasionly...I say "in" because it felt like the itch came from the inside of my breast and scratching on the outside didn't help. I also felt very tired alot but figured it was due to getting older. Don't know if these are actually symptoms of cancer, though I sometimes wonder....
-
I too had itching decribed by Lindy323 exactly. An itch you couldn't scratch. This started months prior to my finding the lump. When I discovered the lump I also had dimpling over the area if I raised my arm up.
-
No symptoms at all. I felt like a million dollars. Now I feel like about $1.50.
Janice
-
I never had itching but had unexplained pain between my shoulderblades for almost a year beforeDX.I am sure it was my bodys way of letting me know that something was very wrong.I just wish i had listened earlier.
-
Itching in or on a breast can be an indication of IBC as well. But say a itching leg? Nope.
I agree about the heavy metal poisoning too! Of course! I knew of a great stain glass artist that developed cancer due to the metals she had to use for her craft.
-
jteach, Love the million dollar/$1.50 analogy
-
OOoooh, as a Canadian, I can say that the $1.50 makes me feel like $1.59!!! (For so many years we've been less than the US dollar, it's been nice to be higher for a while).
-
But of course a million bucks is not worth as much as it used to be either.
So I could say "used to feel like a million-two but now I feel like 91 cents."
Doesn't sound as dramatic, does it?
-
My only "symptom" just prior to my diagnosis was extreme fatigue (I was 44). I didn't know why I was so tired all the time.
-
Same as fearless one. I was very tired for at least 6 months before being diagnosed. I had to take nap each day which I never did before.
-
I had no symptoms prior to my diagnosis. Went for annual mamogram and mass was found. Had extreme generalized itching following my axillary node disection, called surgeon and thought I was allergic to pain meds, the next day I was as yellow as a banana. My liver enzymes had gone to 8 times normal. They determined I had acute hepatitis from anesthesia, fortunately this resolved over several weeks. I can hardly wait to have surgery again. I used to feel like a million bucks too, this week a nickel, up from a penny last week.
-
Wow Christine47, that must have been terrifying! So glad the hepatitis resolved, Do the docs associate it with a certain type of anesthetic used? Definitely one to be avoided if so.
-
Well, I say that I feel better AFTER cancer than I did before. Diagnosed at 39. I feel like the vitamin D was huge: I was 17 at diagnosis, and even after a year of 5,000 IU still only at 49. I had joint pain, chronic bad sleep and always tired. I have always thought I might have had what some naturopaths refer to as estrogen dominance. My body was always on a period rollercoaster. I'm so sad to be in menopause so young, but I didn't realize what a slave my body was to the hormone cycle.
-
They are still working to figure this out, I was at a teaching hosptial, so I am going to be topic for a paper (wonder if I get a copy). I had my 1st surgery at the same hospital BMX with TEs earlier the same month, because of nausea post op the anesthesia was different. They are having me meet with several anesthesia docs and an allegist before I have my exchange surgery. I hope they have a plan. Evidently this is a rare occurence and usually occurs from inhalation type of anesthesia (halothane). I quess I will get more info at consult visits.
-
no symptoms whatsoever
-
LtotheK,
My vitamin D was 10 at diagnosis, shocking since I am an outdoor lover and thought I had plenty in my diet. I am now up to 39, I am taking 50,000 IU/week. How high are you trying to get to?
-
Hi Christine,
I know naturopaths and even some forward-thinking oncologists think 60 - 90 offers protective benefit. I was on 50,000 for a few months, then my naturopath put me on 5,000 IU a day. I'm climing a wee bit every test, but it's a long road! I started D supplementation upon diagnosis last summer.
From what I understand, the diet isn't where you get the benefit. And it seems like some people don't absorb from outdoor exposure, especially at the northern latitudes!
-
Looks like I have a way to go, I believe I am to stay on the 50,000 per week until I get higher. I did learn from an endocrinologist friend that the best time to take the D is with a fattier meal, since it is a fat soluable vitamin. Is the 5,000 IU a rx or otc? So wish someone would have checked my D level sooner. I live in NC, plenty of sunshine, guess I do not absorb very well.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team