Surgery finally happening

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Anonymous
Anonymous Member Posts: 1,376
edited June 2014 in Lymphedema

Well, ladies, I'm scheduled for surgery with Dr Massey in Charleston on Tues, Apr 5. Consulted with a few local PSs to see if I could get similar proactive LE care while having my implants removed/deconstructed but wasn't satisfied with what I was offered. So, I arrived today and have an appt with the LE therapist tomorrow at 1pm and Dr M at 5pm. Surgery is early Tues morning. I'll keep you posted when it's over.

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Comments

  • kira66715
    kira66715 Member Posts: 4,681
    edited April 2011

    Tina, that's tomorrow! I'll be thinking of you and know how hard you're worked to get to this point.

    Healing thoughts and best wiahes--it will all go well.

    Kira

  • Suzybelle
    Suzybelle Member Posts: 920
    edited April 2011
    Good luck, Tina!  I'll be thinking and praying for you.  Kiss
  • BoobsinaBox
    BoobsinaBox Member Posts: 550
    edited April 2011

    Thinking of you, Tina!

    Dawn 

  • Nordy
    Nordy Member Posts: 2,106
    edited April 2011

    Tina - I hope all goes very, very well for you tomorrow. Tell Dr. M I said "Hi!" and keep us posted!

  • Binney4
    Binney4 Member Posts: 8,609
    edited April 2011
    Tina, hugs and prayers! It'll be good!
    Binney
  • skippyrcis
    skippyrcis Member Posts: 186
    edited April 2011

    Hey Tina, I have been thinking about you.  I hope that you are doing okay.  Take care!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011

    Hello, my swell friends! Well, the implants are out, and it is an immense relief to not have that implant poking through my muscle or my chest muscles pulling and spasming on the outer side of my chest due to the capsular contracture. The PS said both capsules were quite thick.



    I received the full proactive treatment with Dr. Massey and staff. Both arms were wrapped by Dr. Massey, BP taken on calf, IV in neck. No questions asked. What I found most interesting is how Dr. Massey tailored my surgery so that it would have the least impact on my LE. In order to remove all the extra skin that had been created for the implant, she would have had to create large incisions that ran around the side of my chest. After seeing that the side of my chest is my main LE area, she decided against that kind of incision since it might disrupt the pathway I've been using for MLD.
    Instead, she cut a two inch incision on each side closer toward the sternum. She also placed the drains below the breast area vs the side since the scar from that might effect the MLD path. She had said I might need a second surgery to make everything tidy, but that she'd be able to do that with only a small incision and wouldn't effect my LE. I wasn't keen on a second surgery but knew she was right about protecting my MLD path.



    Post surgery, my arms were unwrapped. Dr. Massey reported she was pleased with the results
    and said I probably wouldn't need a second surgery. Going to see how the skin shrinks and everything heals. I know this seems crazy, but I actually think my chest LE is down even though I
    had surgery in the immediate area. My arm is fine, and both of my hands feel like my "old" hands. It's clear my body didn't want these implants in me and is happy they're gone.

    haven't felt emotional about the loss of my implants - guess I mourned when I made the decision to deconstruct and in the days leading up to the surgery. I'm just incredibly happy to feel good again. Can't imagine I'm going to feel even better once the incisions heal.

    Had MLD the day after my surgery and today, and I'm scheduled for MLD every day next week. One drain will probably be removed when I see Dr. Massey on Monday, but I'm hoping the second one
    cooperates and can go at the same time.

    Time to take my meds and get some rest. Looking forward to catching up on the discussions here. I've missed you guys!

    Tina


  • Suzybelle
    Suzybelle Member Posts: 920
    edited April 2011

    Tina,

    So glad all went well, and your experience is just fantastic...they certainly took great care of you.

    Please rest up and heal - I'm so glad all went well for you.  Kiss

  • sisterinspirit
    sisterinspirit Member Posts: 204
    edited April 2011

    Tina,

    So glad to hear that the surgery went well and that you are feeling much better.  Hurray!

    Deb

  • BoobsinaBox
    BoobsinaBox Member Posts: 550
    edited April 2011

    Celebrating with you!

    Dawn 

  • kira66715
    kira66715 Member Posts: 4,681
    edited April 2011

    Tina, it sounds like it all went well, you got great care and I'm so thrilled you feel so well.

    Take good care of your self.

    Healing hugs.

    Kira

  • Nordy
    Nordy Member Posts: 2,106
    edited April 2011

    Tina! I am so glad you are feeling well and that surgery went so well! Woohooo!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011

    KissKissKiss Thanks for all the good wishes! Having a slump day - uh, plumbing wise. Taking my stool softener to stay ahead of those meds. I can't stand feeling like a big balloon!

    Edited: I can't believe I just posted that. TMI . .  Sorry, you guys get to hear it all! 

  • Binney4
    Binney4 Member Posts: 8,609
    edited April 2011
    Tina, so glad that's all behind you, and hoping the "plumbing" problem gets straightened out in short order. Bleeeeeah!Tongue out Thanks for the updates -- really great to hear from you. Rest up!
    Binney
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011

    Still here in Charleston, as my LE physiatrist recommended I stay long enough to get drains removed by Dr. Massey. I have had such a great experience here. I've been scheduled for daily MLD sessions with the therapist since being released from the hospital. She has been very good.



    I was so elated by the relief I felt from the removal of my implants, that it took me a while to bottom out. Dr. Massey had warned me I'd probably have some crying spells, but I was still surprised when they came on like a great flood. I was already tired of being a patient, had become cranky and weepy by the time I had my first appt with Dr. Massey after being released from the hospital. After she removed one drain, she explained exactly what she found during surgery and what she had been able to repair. It was clear a lot of damage had occurred during the expansion phase, and it's no wonder since it was painful as hell. Anyway, some of the muscle couldn't be repaired because it was so thin and wispy. As a result, for now I have a little ledge above my incision that may or may not retract and lie flat. We are hoping I don't need to return for a second surgery. Anyway, I think it finally sunk in exactly what I had subjected my body to. I have been having great feelings of regret for what I have done to myself, even though I know I made the best decision I could during a stressful time. I thought I was informed, but obviously not as much as I could have been. It's going to take some time to come to terms with the body I have been left with, and I know I need to be patient and give it six months to allow the skin and muscle time to retract (like a tummy after pregnancy). However, I am going to need to work on trying to forgive myself. I am so upset that I wasn't just grateful enough to beat cancer, but had to have boobs, too. I almost passed on the recon, and it was always my plan to never replace implants when their shelf life expired. I wish I had just known better. So much wasted time and pain.



    I had one drain removed the day before yesterday, and yesterday morning I woke up with some swelling - bad side of trunk. It was a rainy day, I've been slipping on hydration and it's been difficult to control salt. Anyway, the therapist wrapped my trunk and put yellow foam inserts on the sides below my arm pits. No fun with that remaining drain pinching underneath, as well as the bandaged drain site. Slept very poorly last night. Wore my tank and swell spots to therapy today to show therapist my original compression treatment garment. She liked it and said was okay if I preferred over wrapping. Bad news: four months again with the compression until everything settles down from surgery. Another blow to my fragile emotional state, and I slept poorly with the foam pressing on the edges of my back or firmly against my side. Ah, well. I know I came to the best place possible for LE care and surgery, so even though it's going to be a little while to get back to my pre-surgery state, I know I'm in better shape than if I had stayed local for the surgery.

    It's a good thing I had the foresight to schedule our flight home on Monday for late afternoon, allowing for one last chance for drain removal. Looks like the left drain might not be removed before the weekend.

    Did I mention Dr. Massey is just the greatest? She is warm, compassionate and committed to her patients. What an amazing doctor.


    Tina
  • Nordy
    Nordy Member Posts: 2,106
    edited April 2011

    Tina. I am so sorry that you have been having a "down" day. Please try not to be too hard on yourself.... As for your statement:: "I am so upset that I wasn't just grateful enough to beat cancer, but had to have boobs, too." I feel so sad about that... Why shouldn't you want boobs??? Why shouldn't we "have it all"? Really. You had already been through so much - why not try to regain a piece of what you lost? I want to send you lots and lots of gentle hugs. Hang in there!

  • kira66715
    kira66715 Member Posts: 4,681
    edited April 2011

    Tina, please, please don't be hard on yourself--you made perfectly reasonable decisions--and I'm sure they were supported and proposed by your treatment team.

    It's a grieving, and you'll come out of this stronger, in better health, hopefully with the LE negligible.

    I wish I could "Wrinkle in Time" you ahead to the great outcome, but I know you have to go through this process, but please don't add blame to it.

    Where I practice, it's "normative" to suggest immediate reconstruction by the breast surgeons: to refuse reconstruction is considered "different".

    Feel better, and know we care.

    Hugs and thinking of you.

    Kira 

  • Binney4
    Binney4 Member Posts: 8,609
    edited April 2011

    Tina, you sound wonderfully strong and well after all you've been through.Smile Brava!

    Very tough decisions we have to make, and if it had all worked out like it was supposed to you wouldn't be dealing with any of this. You didn't make "bad" decisions, you just had bad outcomes -- no way your fault.

    It was kind of Dr. Massey to forewarn you about the emotional crash. Do take some comfort in the fact that what you're experiencing was at least predictable -- you'll get on top of it all as you work your way through the grief.  Tough road, but we're all here with you. Tell us how we can help.

    When the time is right, some of the women's stories on Barbara's BreastFree.org website may be helpful to you. You're not alone, much less to blame!

    Huge, gentle hugs,
    Binney

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011

    Thanks for your support and kind words. Blaming myself certainly doesn't help the situation, does it! I am trying to take it one day at a time and think positively. Some days I'm more successful than others. I think the physical stuff, still feeling somewhat bruised and raw - or having more sensation - combined with antibiotics that never agree with me, make me feel beaten down. Looking at all the extra skin and muscle that was left in order to avoid a longer incision in the LE area of my chest is just difficult to take.

    In contrast, yesterday I walked five miles with my husband, and today we did almost four. And, this morning at the LE therapist I was back down 2cm to my original post-surgery measurement. I do better when I keep myself busy, and I think when I get back home I'll feel better. Living out of a hotel room without a car and needing a cab to get places makes me feel I don't have much control. The salt factor has been difficult to control, and I am tired of restaurant food.

    My husband bought me a silver necklace yesterday - he was worried I wouldn't have anything positive to associate with Charleston. It is a stark contrast to our first trip here together 11 years ago. What a difference a decade can make! We were at such a different point in our lives, and we've both gone through so many changes. DH doesn't have to worry; I will always love Charleston. It is such a beautiful city. How can you not love the place Dr. Massey calls home!

  • Suzybelle
    Suzybelle Member Posts: 920
    edited April 2011

    Tina, so good to hear from you!  And you will feel better, my friend...you've been in constant pain for like, ever, and you just had to go through a rough surgery to get painful implants removed.  Cut yourself some slack.  And hell, yeah, I want some boobs.  (I love Nordy because she always agrees with me.  Tongue out)  If I ever get implants, watch out, world.  I will be like Pamela Anderson meets Bozo.  (I have crazy red hair.  And Casper white skin.  Okay.  Maybe Pam. A size implants is a mistake.)

    Seriously, give yourself time.  You are a lovely, strong woman, and six months from now is going to feel totally different than it does now.  If you're currently on tamoxifen, 5 minutes from now is going to feel totally different than it does now!

    Hang in there, cutie.  I'm sending brownies, prayers and good thoughts your way.  And take it easy!!!!  What is this 5 mile walk crap????  Make people wait on you and bring you candy!!!!!!

    Hugs,
    S.

  • SleeveNinja
    SleeveNinja Member Posts: 178
    edited April 2011
    Tina - did you walk on one of those beautiful, wide beaches near Charleston?  A beach walk -or sit- is an excellent Rx for healing  . . .  which always takes time and gentleness.

  • kira66715
    kira66715 Member Posts: 4,681
    edited April 2011

    Tina, when I was in Charleston last year there was a place called the Hominy Grill, near the hospitals, and it was great southern food--not so sure about the salt.

    http://hominygrill.com/ 

    Here's another thought I have about how you're feeling: Binney and I think that bc patients get a form of PTSD, and I sure know I had a tough time emotionally with just a D&C recently, and this is so much more. The associations are so profound when it comes to surgery, our breasts, being a patient.

    Enjoy your silver necklace, and please let us know how you're doing.

    Kira 

  • Suzybelle
    Suzybelle Member Posts: 920
    edited April 2011

    Kira, that restaurant sounds fantastic.  YUM.

    I just ate cheetos and a mountain dew for lunch...I'm pretty sure my salt intake ain't so great.

  • kira66715
    kira66715 Member Posts: 4,681
    edited April 2011

    Suzy, I had chicken and biscuits and a huge bowl of grits there, and it was heaven.

    I had a yogurt and a brownie. One essential food group--the brownie.

    Kira 

  • Suzybelle
    Suzybelle Member Posts: 920
    edited April 2011

    The menu looks awesome.  What is the chicken and biscuits?  Is it just fried chicken and some biscuits?  I have a recipe for a chicken casserole that you put frozen biscuits on the top of and bake...it's out of this world, but it is sooooo fattening.  Lots of cheese and cream of whatever you got soups.  I never make it for home - it's only for church dinners and for when somebody dies/has surgery/family member in jail, etc.  You know in the south we throw food at every problem known to man.  I was wondering if the chicken and biscuits is something like that.

  • kira66715
    kira66715 Member Posts: 4,681
    edited April 2011

    Suzy, it was such a great restaurant: I looked for the dish I had on the menu, but maybe it was a special, it was a fried chicken breast on a biscuit, smothered in gravy.

    When my daughter was doing research in Jackson, Mississippi, she ate at Two Sisters a lot, and I was so envious of the great food she was eating: they just don't do sweet tea up here.

    I think I had a "Lonely Planet" guidebook--we were staying on Kiawah Island, and loved Charleston and the food.....

    I'll bet the dish I had was similar to your casserole--great for special occasions. Like family member in jail....A versatile dish.

    You've got to check out Binney's girlscout badges on the New Lymphedema thread--she's channeling YOU! It's a riot.

    But, back to Tina, heal up and be kind to yourself, and check in, please.

    Kira

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011

    Here I am! I'm feeling a little better and really appreciate how thoughtful you all are. Such a great cheering team!! It warms my heart to see your messages.

    Suzy, you are just so funny - it's impossible to not laugh when I read your posts. I need a recording!

    Kira, we walked past the Hominy Grill yesterday and thought it looked great. I want to go to there . .  (channeling Liz Lemon!)  We're thinking about breakfast or lunch tomorrow or Sunday.

    We haven't done any beach stuff - I'll save that for the next trip. Have been wanting to see, but it's actually starting to get HOT here. We have really lucked out with the weather. Our first week here it was in the low 80s, but now it's in the mid-70s. The locals say this kind of weather is rare - it's usually cold and then becomes really hot, so they treasure days in the 70s. If it were more hot and humid, I would be freaking out. After 2pm it starts to get a little too much for me if I can't find some shade. Actually, I'm hoping that some of this swelling I'm having is similar to the humid summer weather at home . .  ah, probably wishful thinking!

    Tomorrow we are having dinner at Fig. It has received great reviews and the menu looks interesting. 

    http://www.eatatfig.com/

    We had lunch at the Black Bean Co. yesterday, and it was delicious. I asked my LE therapist if she knew of a healthy place, and she recommended this, which was only a few blocks from the hospital.

    http://www.blackbeanco.com/store/1/menu 

    We walked some today, but I am trying to slow down a bit as my drain output was higher after more walking. It was at the level it needed to be for almost two days until I started walking a lot. So, this weekend I am taking it a little easier so it can be pulled Monday morning before I fly home. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011

    Bumping my thread for Laura. We seem to be in all the same places! I'm the gal Anne is referring to that used Dr. Massey for my implant removal surgery. The ladies here are a wealth of information and so supportive and kind. I think they also moonlight as comediennes, but I digress. Their info helped me find my way in the beginning when my docs denied I had truncal LE, and they will guide you, too!

    I am home and feeling in a much better place emotionally. Final drain was removed Monday morning by Dr. Massey before I flew home. She came and did it while I was having my MLD session. I've also been off the pain meds, anti-nausea meds and antibiotic for several days. I feel much better without the drugs. My stomach is still flip flopping from the antibiotic - I think that's what caused it. I tried to stay on top of the probiotics on opposite times of the antibiotic so my system didn't get screwed up, but I felt very woozy for days and it really did a number on my appetite and willingness to take anything. I don't have a fever and don't think I have an infection, but I am going to monitor. I got so backed up after this surgery. I really think it's kind of related, as I'm just starting to feel regular again. Ugh, TMI.

    Anyway, being home and feeling better physically and minus the drain has given me some emotional strength. I feel like I'm through the darkest part, but I know I have more mourning to do. Dr. Massey talked a bit with me at our last appt, and she said this was all normal and to be expected. She said to give myself some time. It definitely took me back to the wounded period of the mastectomy and feelings of loss. I know I will get through this eventually - I do have confidence in myself and know I can process and come to terms with WHAT IS. Then I'll be pleasantly happy with any changes or improvements. 

    Kira, I really do think you're right about the PTSD. My diagnostic period lasted four months with six biopsies, and they were all over the place about how bad my situation was. Then I had the mastectomy and five months of expansion hell - which I think is really what did me in emotionally. The doctor's office was unsympathetic, so I felt quite isolated during that period. The prolonged pain of living with the implants over the past 2 1/2 years just added insult to injury. So, I am definitely going to be kind to myself and give my body, heart and mind time to heal. I feel so much better without the implants, and that makes me hopeful. I get a little worried about having to do a revision since I want this to be over, but I'll cross that bridge when I get to it. I'm feeling 75% better even with the post-surgery soreness, and that's a real positive!

    Lymphedema is still under control and wasn't affected by the flying. I wore a sleeve and glove on both arms since I have occasional truncal swelling on my non-node side and some post surgery swelling on both. Of course, I also wore my tank with inserts on both sides of my trunk below the underarm area.

    Thanks again for all your support and brownies! 

  • Binney4
    Binney4 Member Posts: 8,609
    edited April 2011
    Tina, brava!Smile So glad you're home and drainless and healing in every way. Tough road, and grieving is such hard work. Big, gentle hugs,
    Binney
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011

    Thanks, Binney!

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