Survivors who used Alternative Treatment
If YOU have used alternative, complementary and/or holistic treatment after surgery or refused surgery as well, please post your journey. This thread is for the stories of Alternative journeys ONLY.
This is NOT a thread to post studies, opinions, questions etc. If you have questions about their journey please send them a private message.
Comments
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My journey not been idea for someone who chooses alternative only, or after surgery.. I have had three cancer dx,.Each time after researching, I'm the most comfortable with alternative, or trying to fix what broke. I chose to decline rads and tamoxifen. This is my story.
My first lumpectomy was Dec 2007. The rad doctor said that if she was in my shoes that she would get out the cancer a.s.a.p. as it looked micro-invasive. I was clueless to cancer terminology or what she was talking about. The next week, I saw a surgeon. Because of the size of the tumor, they suggested an mx.. I put the brakes on. My head was swimming. Since I was self-pay, I knew that anything more than a lumpectomy was out of the question. I learned that my dx was only dcis, grade 3 the como-ne type. I realized then that the cancer was not invasive so I wasn't really worried about it. After the lumpectomy, I pretty much thought it was over. I didn't look into alternative treatment or change my diet or way of life.
One year later, I went in for a mammogram. The radiologist called me into a room filled with my mammo pictures. She said every time, she saw calcifications lined up like that it was cancer. I again was dx with high grade dcis, como type. I had a different surgeon, who insisted I speak with someone from the hospital (social services) to discuss radiation and tamoxifen. By this time, I had done enough research to know that I wasn't comfortable with the possible side effects of either treatment. Plus, I was still self-pay. I stilled owed money just for a rad/oncologist consultation a year earlier.
So...December, 2008, I had my second lumpectomy. This surgeon took out a quadrant of my breast. The final pathology reported, high grade 3, como type. removed tissue was also dotted with high grade dcis cells. The margins were .03 m. The surgeon said my breast wants to make cancer cells. She said that if I wasn't going to do rads or tamoxifen that I should be watched like a hawk. I knew she was right.
I then was on a mission to find out why my body wanted to make cancer cells. I went to see a naturopath. I soon learned that I was hypothyroid. I thought that my thyroid might have been the problem. I began taking vitamin D's and other supplements. I also made sure that I had my 6 month breast screening. If I was to be dx again, I wanted to find it before it became invasive.
I was comfortable with the watch and wait approach. I took the second cancer dx as a wakeup call to eat right and to take better care of myself. Everything was going well until last spring. I began using a mouthwash every morning that kills bad bacteria in your mouth. I over brushed my teeth cutting into my guns that got infected. The good bacteria in the mouth was destroyed by the mouthwash.The dentist gave me a round of antibiotics. After several days, the infection in my mouth worsened. The dentist gave me another round of antibiotics. The whole right side of my mouth was infected. My primary doctor then thought it could be oral cancer. My mouth wasn't healing. After doing a little research on my own, I thought it was nothing more than an oral yeast infection. I went on a yeast free diet, probiotics and a few other anti-fungal supplements. The mouth sores and canker sores began to heal. I never quite got over it. I felt that my body was acidity. I had a gut feeling that my body was ripe for another cancer infection. To make matters worse last September, my mouth exploded into sores, and thrust. After test, the doctor concluded it was H Pylori, which meant a horrible treatment of two different types of antibiotics. My mouth looked like rot. I was so sick. I lost twenty pounds. I could barely eat or talk. I began to wonder if there is a connection between cancer and yeast.
After much prayer, yeast free diet, probiotics and more supplements the infection was gone. But...I knew that I wasn't out of the woods. I felt there was something really wrong with my body and immune system. I had a yeast antibody test done, which showed high levels of a yeast infection, past and present.
In December, I asked for an MRI. The mri test was faulty due to a lot of movement. Instead of another mri, I had an ultra-sound that show up a suspecious area. I soon learned that I had mucinous cancer, stage 1. It was small and a less aggressive cancer. After learning more about that kind of cancer, I saw no need for radical treatment. I even considered forgoing surgery.
During surgry, IV antibiotics, which caused my mouth again exploded into thrust, canker sores and more. I'm now on anti-fungal med's and a horrible yeast free diet.
I'm now wondering if the yeast, low immunity and infections are why I have an autoimmune disease, Hashiminto, thyroid problem, and why my body is making cancer cells. I'm serious about getting rid of the yeast in my body. After the anti-fungal med's and diet, I'm being tested again for the thyroid, hashiminto, and yeast antibody infection. If it's normal, I will have learned why my body broke. Maybe yeast is the culpret. If not, I will continue searching and learning more about alternative cancer treatments.
I'm not comfortable doing anything that weakens or destroys my immune system. I believe that a strong healthy immune system is the answer to health. I want to do whatever I can toward naturally aiding my immune system. I have the most peace about this kind of alternative treatment.
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My journey is recent. I was dx 7/22/10 with IDC. Lumpectomy on 8/12/10 and 10 MammoSite radiation treatments in 5 days ending on 8/23/10. I had an Oncotype test done that revealed chemo would not help me much and I had already decided with my family's help, chemo was not an option at this point. My IDC was small, stage 1, clear margins and after MammoSite, I felt it was gone. That is when my alternative journey began. After two medical oncologists could not agree on AI's or Tamox, I refused both. I too believe that a strong immune system is the answer to preventing a recurrence. I began Vitamin C IVs, diet change, yeast control, thyroid management and hormone balancing. I do take several supplements and vitamins, but I truly believe that the liposomal Vitamin C that I make and take daily, getting my Vitamin D3 levels up to 100 from 24, and making the right choices where foods are concerned will keep me cancer free. I am now removing the heavy metals from my body with oral chelation and after only two weeks can feel the energy level increase. Both medical oncologists told me my cancer was not genetic or caused by the HRT I was on, it was environmental. So my quest is correcting the internal damage my almost 60 years of living has caused. I don't wish this diagnosis on anyone. It's a frightening thing to have handed to you. From this I have learned so much and refer to myself as a FIGHTER not a survivor as I am not a victim I'm a winner. Most of the medical community does not agree with my path for through the knowledge I've gained I have lost that FEAR that they all play on. If I have one message to anyone reading my journey, it's....ask questions, research and ask more questions and don't let the fear take over. Life is a journey...enjoy each day!
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hi irish,
yes, enjoy the journey-- whatever they say! thanks for sharing your story,
how did the medical onc know that the cause of your cancer is environmental.. for my mother it seems to be environmental as well..as she has never taken HRT or birth control pills or DES. she has been very selective with her food choices...
we have learned it was environmental because of the unusually high levels of arsenic in her body.. she was asked to take selenium and zinc because of it.. however it was'nt the medical onc who pointed it out-- it was her endocrinologist.
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by the way ThatGirl, I am not going post my mother's story here as it is already in my profile-- however, I also do not call her a survivor at least not yet
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Hi suepen,
are you still watching over me? its almost 6am your time..
what you posted is SPAM. my GOD! you are being obsessed by all this! I do not have anything against you suepen. Please be kind to yourself. I do not have any motivations or intent to hurt anyone--- if you cannot spare me, can you at least spare thatgirl or anyone else on this board??
when are you all going to stop to hound me?
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I am afraid that it is going to be hard to find a answer to your question on someone using "Alternative Only" for his or her cancer.......because if anyone did share around here, they would be ridiculed and who in all honesty wants that? All I have to say is if u want a good read, then go to the library and check out a book "Knockout" by Suzanne Summers.
Kimberly
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Welcome Kimberly!
You are so right. The trolls come blasting their evangelism and trying to get us banned from the alternative forum. LOL.
It only makes us alternative-doers more determined
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Hello Jane, Thx for the welcome, nice to meet u!
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Thank you eve and Irish for sharing your story. It's so hard for me to understand why some people can't respect others in this forum.
Thanks Kim but Suzanne is under a different umbrella. She has a book for sell. She could have easily went on talk shows and shared with us what she did.
The title is self explanatory and if it does not apply to you, than move on and read another thread. My short time on this board has taught me that a cancer dx and all the treatment that goes along with it, does not lessen one's need to try to control others. Control your own damn cancer and shut the $&&@$);:/:$&! up! -
I understand the fear of acknowledging alternative only. The grief I get from people when I tell them that I have done absolutely nothing since my lumpectomy amazes me. It's my body and my decision. I was opposed to mammograms and if not for finding the lump myself, I would never have gone for one. Again, people were shocked whenever I told them this because of my age. I am 61. It's like living in Beverly Hills and never having cosmetic surgery. If you don't do what is expected of you, you get reprimanded. I worked at a holistic center and was one of the first women to investigate what is now referred to as PMS. My husband is a chiropractor and we believe in the body's ability to heal itself. I can't imagine putting my body through treatments that weaken it and cause a multiple of problems. I have two grown daughters and they actually survived without being rushed to the doctor for something minor. Nowdays they prescribe antibiotics like candy because mothers insist that it's the only thing that will help. I think I took antibiotics twice in my adult life, once for urinary tract infection and the other for a brown recluse spider bite. Thank you Thatgirl for starting this topic. It was greatly needed and I greatly appreciate it.
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..just reading.. keep posting girls. you inspire newbies like me.
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@mind...thank you for acknowledging that you have refused chemotherapy and rads. If you feel comfortable, I would love to hear what therapies you are doing. Feel free to pm me as well. Hopefully, others will chime in and share their journey.
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@trasia...Hi
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hi thatgirl
thanks for the warm welcome.. just reading around here.. interesting topics! and quite brave of you to stand up for your decision.
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Hello Thatgirl, R U referring to me in your post about controling others? Or am I just misinterpreting your statement? I am new to this list but not new to cancer or alternative medicine. The first cancer 16 yrs ago was Hodgkins Lymphoma of which I was treated allopathic method of 10 weeks radiation. I was never the same after and went vegetarian for 15 yrs along with fasting etc......and felt much better. Then in 2008 DCIS with a total 9cm tumor scattered throughout, progesterone and estrogen negative. The doctors wanted to do a double mastectomy. I walked out of the hospital and never looked back!!! A doctor helped me and the first and most important thing I had to do was get the root canals extracted, which BTW all had abcessess after extraction. My breast cancer cleared and I have been stable now for 2 1/2 years.
Suzanne Summers might have a book to sell but it is very in
formative and I didn't buy the book, I checked it out for free at the library. She talks of good doctors who will help women in the ALTERNATIVE FIELD. Steve McQueen was also a celebrity who had cancer and did alternative and tried to get the word out before he passed. A celebrity can make a profound statement because they r a celebrity and sometimes people will listen.................
Kimberly
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Hi Kimberly,
All of the people who put down Suzanne Somers book on this forum have never read it--by their own admission. It's a great anthology of some of the best oncology minds of our time.
It's so easy to put down a book you haven't read. I bought it. I don't get what the objection is to buying books. If Suzanne Somers makes $3 a book, fine. Do you know how much of a kickback oncologists get for the drugs they push? Anybody read the NY Times article on that? What are the ethics of recommending treatments you get thousands of dollars from?
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Hello Matty,
I just checked out the book a few days ago and after reading through 35 pages or so I knew she wasn't a dumb blond, hehehe.... Believe me I have educated myself through books, internet and good doctors in 16 years of living with a cancer diagnosis....
Kimberly
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@Kim....I'm unsure why you think I was talking to you. I specifically thanked you for sharing info about her book. I also stated she is trying to sell something unlike people who share their journey on this board. If She would like to come on BCO and tell us her story then I'm wiling to read it. This thread is for people to tell their OWN story.
I was sure hoping this thread didn't turn into a fight, he said, she said, bunch of crap.
PLEASE ONLY POST STORIES OF YOUR JOURNEY IN THIS THREAD!!!!!
YOU CAN START YOUR OWN THREAD FOR ANYTHING ELSE YOU WANT TO SAY! -
Well thank u for making feel so welcome around here "THATGIRL". I didn't realize your rules for posting on your thread and have only posted a few times, sorry I wasn't perfect. I think that part of the Alternative Cancer Protocol is "reading", I don't have ESP on this Journey. If you don't want a fight then don't make someone defend every word they say. Oh, and why did you delete your post? Well now I feel all stressed, have a great day!
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That girl, you can start any thread you want but you don't get to make the rules about how people answer. Threads evolve. Please don't type in caps to enforce your point because it's the equivalent of shouting.
Since this forum is overrun by anti-alternative trolls, many people are unlikely to take the time or risk putting themselves "out there." Hang around and be patient and you will observe the women here who are expert veterans of alternative/integrative medicine.
Kimberly, please come back! I miss your cutie sunglasses..
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If there was a topic going even beyond alternative, I would be on it. I'm not doing anything extraordinary. I was supposed to have a reexcision to clear margins but just couldn't bring myself to being opened up and probed once again. I'm hoping that my scar will heal with the help of a cream I apply. No special cream, just something purchased at the pharmacy. I can't stand the idea of investigating everything I put in and on my body. I'm not a vegetarian. I'm just a regular woman who had breast cancer. I won't walk for a cure because I don't think it's rational since I can't trust where the money goes. Sometimes things work and sometimes they don't. It's as simple as that. I grew up in the 1950s when things were pretty great. The sixties were amazing. Met my high school sweetheart when I was fifteen and married him five years later. That was not unusual in those days. I had my children when I was twenty-two and twenty-five. Was married for twenty-two years until my husband suddenly passed away in his sleep beside me. That was worse than breast cancer. I am now a grandmother. I have remarried and just going along like a normal person. So, I guess in my case alternative is just being and letting whatever happens happen. I'm looking it right in the face and laughing.
And I would like to end by asking everyone to please try your best not to bicker. There's enough of that going on here at BCO. I sometimes feel as though I am in a nut house (pardon the expression) where each room is filled with women in straight jackets.
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@mind...thank you for sharing. I loved reading your story. I laughed hard about the women in straight jackets.
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Thatgirl...I understand why you posted this thread. It would be nice to hear the stories of those who chose alternative over conventional. It's refreshing. Women can be very sensitive and defensive. I've learned that even people who appear tough are fragile. I don't care what anyone says, we're all sensitive...that's why all the reactions on bco.
Hope this thread stays on track.
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@eve....Yes. I too wish women could post their stories without being attacked by others. I've gotten a few pm's of alternative journeys and also support for the thread.
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